an online Instagram web viewer
  • bridgetcrohns
    Bridget Crohns
    @bridgetcrohns

Images by bridgetcrohns

Second Entyvio infusion went well! With the warm weather we're having I was hoping the hospital wouldn't be its usual tropical greenhouse so was pleasantly surprised when there was actual AC in the infusion room! I did get the fatigue again after the infusion and a little nausea and am still feeling more tired than usual.
.
.
.
.
.
.
.
#entyvio #crohns #crohnsdisease #IBD #vedolizumab #infusion #crohnie #spoonie #autoimmunedisease #NHS
Second Entyvio infusion went well! With the warm weather we're having I was hoping the hospital wouldn't be its usual tropical greenhouse so was pleasantly surprised when there was actual AC in the infusion room! I did get the fatigue again after the infusion and a little nausea and am still feeling more tired than usual. . . . . . . . #entyvio  #crohns  #crohnsdisease  #IBD  #vedolizumab  #infusion  #crohnie  #spoonie  #autoimmunedisease  #NHS 
And then there was one...down to my final g of Prednisone, 2 weeks until I'm steroid free! I have to say that besides the terrible moonface, this has been the course of steroids with the least amount of side effects. When my doc suggested taking them again when I was flaring a few months ago I asked if I could try a lower starting dose to see if it would help with the depression, pounding heart and wobbles and he was fine for me to try it. I'm not saying it would work for everyone but worth having a chat with your doc about and as mine said, you can always increase it if it's not having an effect.
.
.
.
.
.
#crohns #crohnsdisease #IBD #ibdawareness #crohnie #spoonie #autoimmunedisease #invisibleillness #prednisone #moonface #steroids
And then there was one...down to my final g of Prednisone, 2 weeks until I'm steroid free! I have to say that besides the terrible moonface, this has been the course of steroids with the least amount of side effects. When my doc suggested taking them again when I was flaring a few months ago I asked if I could try a lower starting dose to see if it would help with the depression, pounding heart and wobbles and he was fine for me to try it. I'm not saying it would work for everyone but worth having a chat with your doc about and as mine said, you can always increase it if it's not having an effect. . . . . . #crohns  #crohnsdisease  #IBD  #ibdawareness  #crohnie  #spoonie  #autoimmunedisease  #invisibleillness  #prednisone  #moonface  #steroids 
I've just posted my usual #humiraday blog post so go & have a read if you fancy...starting to feel a bit emotional because it was my second to last injection!!!
.
.
.
.
.
.
.
#crohns #crohnie #crohnsdisease #humira #IBD #crohnslife #spoonie #entyvio #crohnslife #autoimmunedisease #invisibleillness
Baby foot! I posted on my stories that I was going through the whole lovely process of the Baby Foot thing...2 days in and doing a bit of soaking to help the peel. By the way - I have soooooo many little red veins around my ankles - my doc put it down to "age" and tried wearing comporession tights for months with no significant change - has anyone else come across this! It's entirely cosmetic but hate the way my ankles look, especially when summer and are legs are coming soon!
.
.
.
.
.
. .
#crohns #crohnsdisease #IBD #Pamper #relax #spoonie #crohnie #spiderveins #babyfoot #babyfootpeelingmask
Baby foot! I posted on my stories that I was going through the whole lovely process of the Baby Foot thing...2 days in and doing a bit of soaking to help the peel. By the way - I have soooooo many little red veins around my ankles - my doc put it down to "age" and tried wearing comporession tights for months with no significant change - has anyone else come across this! It's entirely cosmetic but hate the way my ankles look, especially when summer and are legs are coming soon! . . . . . . . #crohns  #crohnsdisease  #IBD  #Pamper  #relax  #spoonie  #crohnie  #spiderveins  #babyfoot  #babyfootpeelingmask 
New post • good loo roll is pretty important when you have Crohn's so am on the quest to find the ultimate toilet paper! This time I'm reviewing Andrex Supreme Quilts. What's your TP of choice?
.
.
.
.
.
.
#crohns #crohnsdisease #IBD #crohnshumor #colitis #ulcerativecolitis #toiletpaper #toilet #toiletroll #andrex #crohnie #crohnslife #spoonie
New blog post • Friday was my first Entyvio infusion! Remember my last post where I asked a tonne of questions? Well I figured I should answer them myself based on my first visit - what was it like, how did I feel, how long did it take...
.
.
.
.
.
.
.
.
#entyvio #vedolizumab #IBD #crohns #crohnie #crohnslife #crohnsdisease #invisibleillness #infusion #chronicillness #ibdblogger #healthblogger #autoimmunedisease #myibdstory
My first infusion is tomorrow & I need your help! I have questions! I figure if I have questions, other people will too...I've not been given any info about what will happen, what to expect, other than the research I've done myself but would REALLY love it if you could let me know about your experiences with infusions and hopefully anyone else reading this who is new to it will be able to read this too! Let me know as much or as little as you like and if there's something I've not covered, please mention it!
.
• how long does the actual infusion take?
.
• how do you manage time off work for the treatment?
.
• do you feel anything while it's happening?
.
• how do they monitor you during the infusion?
.
• do you feel anything during? After? Any reactions?
.
• how long did it take before you felt it helping with your symptoms?
.
• top tips for what to do while having your infusion (is snacking acceptable?!)
.
.
.
.
.
.
.
#crohns #crohnsdisease ##ibd #crohnslife #crohnssucks #entyvio #vedolizumab #invisibleillness #infusion #butyoudontlooksick #crohnie
My first infusion is tomorrow & I need your help! I have questions! I figure if I have questions, other people will too...I've not been given any info about what will happen, what to expect, other than the research I've done myself but would REALLY love it if you could let me know about your experiences with infusions and hopefully anyone else reading this who is new to it will be able to read this too! Let me know as much or as little as you like and if there's something I've not covered, please mention it! . • how long does the actual infusion take? . • how do you manage time off work for the treatment? . • do you feel anything while it's happening? . • how do they monitor you during the infusion? . • do you feel anything during? After? Any reactions? . • how long did it take before you felt it helping with your symptoms? . • top tips for what to do while having your infusion (is snacking acceptable?!) . . . . . . . #crohns  #crohnsdisease  ##ibd  #crohnslife  #crohnssucks  #entyvio  #vedolizumab  #invisibleillness  #infusion  #butyoudontlooksick  #crohnie 
Happy #humira day! Who's taking theirs today? I've just posted my bi-weekly roundup of what's been going on since my last injection!
.
.
.
.
.
.
.
.
#crohns #crohnsdisease #crohnie #IBD #crohnsfighter #autoimmunedisease #butyoudontlooksick
Happy Easter everyone! What are you up to today?
Happy Easter everyone! What are you up to today?
New post on my blog • Prednisone, 3 weeks in - how's it working for me, side effects and pros/cons
.
.
.
.
.
.
#moonface #crohns #crohnsdisease #crohnie #crohnslife #prednisone #steroids #IBD #spoonie #autoimmunedisease #invisibleillness #butyoudontlooksick #crohnssucks #crohnsfighter #crohnswarrior
I'm not usually one for the motivational quotes thing but every so often one pops up that makes me think "YESSSSS" and this couldn't be more true than right now.
.
It was so great to see @dynamomagician share his picture of the effects of Crohn's/meds which was quickly followed by soooo many people from this wonderful online IBD community sharing their pics and stories.
. 
I'm currently in proper full moon face at the moment so all of this couldn't have come at a better time when I'm really feeling self conscious about myself!
. 
Thank you to everyone who has shared photos and stories - not easy or comfortable at all but it really makes the rest of us feel like we're not alone!
.
.
.
.
.
.
.
.
.
#moonface #crohns #crohnsdisease #colitis #IBD #crohnssucks #crohnsfighter #invisibleillness #autoimmunedisease #butyoudontlooksick #crohnie #spoonie #prednisone #steroids #moonfacegang #moonfaceclub
I'm not usually one for the motivational quotes thing but every so often one pops up that makes me think "YESSSSS" and this couldn't be more true than right now. . It was so great to see @dynamomagician share his picture of the effects of Crohn's/meds which was quickly followed by soooo many people from this wonderful online IBD community sharing their pics and stories. . I'm currently in proper full moon face at the moment so all of this couldn't have come at a better time when I'm really feeling self conscious about myself! . Thank you to everyone who has shared photos and stories - not easy or comfortable at all but it really makes the rest of us feel like we're not alone! . . . . . . . . . #moonface  #crohns  #crohnsdisease  #colitis  #IBD  #crohnssucks  #crohnsfighter  #invisibleillness  #autoimmunedisease  #butyoudontlooksick  #crohnie  #spoonie  #prednisone  #steroids  #moonfacegang  #moonfaceclub 
New blog post: another way I like to relax - colouring! @crohns.colitis.color2cope sent me this fab Crohn's & Colitis colouring book to try so go and have a read (link up there in my bio!)
.
.
.
.
.
.
#crohns #crohnsdisease #crohnsfighter #autoimmunedisease #IBD #colitis #invisibleillness #adultcoloringbook #relax #mindfulness #relaxation #stressrelief #calm #crohnslife #crohnsfighter #crohnswarrior
Humira time again so have posted about #humiraday on my blog. This one was super frustrating but there have been some good things that have happened since the last shot - have a read of my post if you get a minute or two.
.
.
.
.
.
#crohns #crohnsdisease #ibd #crohnslife #crohnsfighter #crohnswarrior #colitis #invisibleillness #autoimmunedisease #butyoudontlooksick #humira #entyvio #vedolizumab #spoonie
So I just got this email...yay (I think!!!). What now?! Tell me all about your experience with #entyvio - has it worked? How long did it take to kick in? What are the actual infusions like? #vedolizumab #crohns #crohnslife #crohnsdisease #ibd #infusion #autoimmunedisease #immunosuppressed
1 week of taking #prednisone & I've written a post about how I'm feeling. I'd love to hear from everyone else taking it to see if we have the same things going on! .
.
.
.
.
.
#crohns #crohnsdisease #autoimmunedisease #crohnslife #crohnslife #ibd #invisibleillness #ulcerativecolitis #colitis #pred #prednisonesucks #prednisolone #steroids #crohnsfighter
Fatigue sucks & a good nap can really help! I've written about my favourite things to help with napping (link in bio!). Have you got any favourite things or routines that make napping even better?
.
.
.
.
.
.
#crohns #crohnsdisease #fatigue #nap #naptime #pillowspray #nealsyard #bucky #sleepmask #ibd #autoimmunedisease #crohnslife #selfcare #pamper #relax #relaxing
New post• TP review from my favourite "budget" shop, @lidluk - how does it stand up to the big brands...?
.
.
.
.
.
#crohns #crohnslife #crohnsdisease #ibd #toiletpaper #toilet #review #invisibleillness
Happy Humira day! I've just posted my second #humiraday post on my blog! #crohns #crohnslife #crohnsdisease #ibd #humira #invisibleillness #autoimmunedisease