Day 39 - taking steps towards accepting myself as I am.
My radar key (and hella cute pin) have just arrived from @ncphlexicare and I’m more excited than I thought I would be!
For those of you who don’t know what a radar key is, you know those disabled toilets (at least here in the uk that is) that are always locked and you have to go upstairs to the loo or be brave and ask behind the bar and be worried that they think you’re just fat and lazy and that they’ll tell you to go upstairs. Well a radar key UNLOCKS THOSE TOILETS! 😱
So now I’ll never have to walk upstairs - and use up spoons I really don’t have - out of fear of someone thinking or saying I’m not disabled enough.
This is a huge step for me! I find it really hard when I’m out and have people confront me about whether or not I’m “disabled enough” to use disabled toilets, or to sit on the front of the bus, or any other number of things that people judge people with invisible illnesses for.
Also, I’m a sucker for a cute pin. .
#tbt I remember this night out in 2015. I remember feeling absolutely knackered very early on, struggling to stand & needing the loo straight after every drink. Hangover for days..🤢 I didn't know then that I had #multiplesclerosis . I'm going out on the town tomorrow night 💃I haven't really done that since diagnosis. I'll have reliable people with me, a #radarkey 🗝 & I won't drink too much, but I'm worried #anxiety will spoil it even if the monster doesn't..😔 #chronicillness
A Mitrofanoff procedure does entitle you to purchase a radar key so you can use an accessible toilet should you need to. Radar keys work nationally and can be used in any toilet.
To purchase a radar key and see prices go to: www.radarkeys.org
There is also a free app you can download to your mobile phone called ‘Toilocator’ which allows you find the nearest toilet when you’re out and about.
Had a wonderful afternoon catching up with an old school friend. Managed to get all the way into Islington without any hassles. Return journey not as stress-free. Came very close to not making it to the loo at Waterloo after the tube journey, the accessible toilet was in use to had to try to explain to the lady at the normal toilets that I had the money but REALLY needed to be let through. Needed to go again on the train home. Not too much of a problem as I'd already found a seat next to it but when I did use it there was no loo roll. Argh! Luckily I had tissues in my bag but not many AND my stop was coming up in 5 minutes...home safe now and very much enjoying my own *vacant* toilet that has plenty of TP! (Oh, and I had this glorious cheesecake so wasn't a totally awful day!)
Something not geeky this time. Got my 'Can't wait card' and 'radar key' in the post today. Hopefully, I'll not need to use them too often, but so reassuring knowing I have them now.
Thought for the day before you judge ... think 🤐
Saw this post on twitter this morning and simply had to share it. I've lost count at the amount of times I've had comments, criticism, looks and sighs when entering or leaving a disabled toilet . Personally I think it's far ruder to queastion a person as to why they need to use a disabled loo. And I know I'm not alone with this there are so many people that need to access disabled toilets with invisible reasons.
Be kind to people it costs nothing.
Get full access to thousands of locked disabled toilets around the UK with an official RADAR Key. Contact us to order yours today. www.nichollsandclarke.com/contact-us #radarlock#radarkey#nationalkeyscheme
**massive long post ahead** Having an invisible illness as an individual is a psychological and physical minefield of obstacles and especially having "embarrassing" flare ups in public places but no access to private toilet facilities. @crohnsandcolitisuk have really revolutionised the way their members can deal with their illnesses by providing them with items such as those pictured above. The last thing you want to do when you're in excruciating pain and desperate for the toilet is use public facilities shared by people who reinforce the supposed stigma surrounding pooing in public and I think especially as a young woman it's important to spread the word regarding invisible illnesses and the stigma surrounding irritable bowel disease. I'm thankful my condition is mild compared to others and treated via daily medication but when my condition does flare up it is just as acceptable for people with IBD to use an accessible toilet as it is for physically disabled people, because in those moments we are also physically unable to share a toilet with others. Massive long post but the jist is I'm so thankful to C&C for providing their members with access to resources such as these. 💖💖 #CrohnsColitisUK#RadarKey#CantWait#IrritableBowelDisease#InvisibleIllnesses#PublicToilets#Stigma
I can't believe after nearly 12 yrs of being diagnosed with UC I've never been a member!! But I now have my pack which includes the "can't wait card" and radar key!! Even though my UC is ok at the minute due to various meds all the extras (anxiety, depression, anaemia, hair loss, infections etc) are still ALWAYS with me!!! This pack is a great support and reminds me I'm far from alone even when I feel it!! #colitis#crohns#sick#sickforlife#lonely#depression#anxiety#poop#chronic#radarkey#noonegetsittiltheygetit !!!! @crohnsandcolitisuk 💜