Day 2 started at 7am this morning. We laid down some serious miles yesterday so will carry on past our target to a minimum of 1,000 miles 🚴🏻♂️ @cr_uk @bmwuk @theplymouthherald @thisisheart @radioplymouth @primaleurope
Today was my last day at the infusion clinic. This has actually broken my heart more than imaginable. The beautiful, amazing women that work there have been taking care of me since the year pediatrics finally evicted me & sent me to the “big” hospital. I think that was in 2010, possibly 2011. I have been spoiled beyond all imagination there. I could not be more thankful to them all or more humbled by their selfless natures.
Thank you, OHO infusion clinic staff!!! I am still working on a plan to get you all shipped to my doorstep once a week when I’m in DC. 😉 ...I only posted this because Linda says I’m the perfect patient. No one would believe me without the proof! 😂 #FarewellTennesseeTour
I wasn’t going to share weekly pics, but I’m kind of in shock with how big my belly is already. Daniel said it doesn’t look real to him. I just can’t believe this is only week 16 out of 40. 😳😐 I’ve been feeling little baby flutters and somersaults for a couple weeks now. I sleep late and nap often (and thank the Lord for the pregnancy pillow that my sister gave me). I THINK we’ll be able to see the gender at our next ultrasound 🤞🏻🤞🏻 and the doctor finally gave me something to help with nausea since my weight had plateaued since my last visit, and I had actually been feeling sicker than the first trimester and none of my remedies were helping anymore. The medicine is really helping though and my appetite is back with a vengeance. 😈
Today marks 6 years since I wrote my first blog post on The Stolen Colon. A lot has changed since then - 2 surgeries, dozens of blog posts, 2 kids, 3 job changes, too many to count emails and conversations with others with an ostomy or IBD, and some of those people I have had the pleasure and honor of meeting in person. I hate that some of that has made it difficult to stay up to date here, but thank you all for being a part of this incredible journey. Never could have imagined the blessings I would have received after starting this blog. #ostomy#stolencolon#blogiversary#6years#ibd
EXTRA EXTRA READ ALL ABOUT IT ! I was contacted last week by my school newspaper about an interview, and the story was published today. It’s pretty cool to see a picture ostomy bag printed for everyone to see - just another way to smash the stigma of the ostomy !
CLC MEMBER FEATURE: Hi There, my name is Lauren and I was diagnosed with moderate to severe Crohn’s disease at the age of 12. I’m now 25 years old living in South Boston and working at an advertising agency. Normal, right? But what most people don’t know about me is that I’ve had a permanent ileostomy bag since I was 19.
It took quite a few months to diagnose my disease, but it all started with the bathroom. When I wasn’t in the bathroom, I was thinking about going to the bathroom. Where was the bathroom in the mall? How am I going to ask my teacher to leave class more than once in a period? I couldn’t eat, couldn’t keep any weight on, and quite frankly didn’t know what it was like to not have a stomach ache. One colonoscopy later and I’ve got Crohn’s disease!
Since diagnosis, I’ve had quite the journey - and a difficult one at that. My disease took a turn for the worst right at the end of my high school career as I entered college. It was during that time when I acquired multiple abscesses, drug reactions, and eventually wound up on the operating table for an emergency surgery due to a total bowel obstruction. A few more surgeries and resections lead to my permanent ileostomy bag and I wouldn’t change it for the world!
Besides my Crohn’s, I love all things fashion and you can usually find me at the yoga studio or the closest TJ Maxx. I’m newly super open about all of this, and would love to chat about similar experiences :) Never let this disease get you down!
☆Today was a total waste of make-up☆
I could have posted a pic from my concepts, happy and smiley. But that didn't seem fair because today I feel like 💩 My rectum is playing up big time, my belly is sore, my neck hurts like crazy what results in a headache and I'm exhausted. Seems like a checklist almost 😂
That is part of having a chronic illness. Not knowing what the heck you are feeling, or actually it is more not knowing WHY you feel the way you feel sometimes!
Is it a flu, a flare up, a virus. Did you do it to yourself because of some choices you made or was it out of your control.
Not getting those answers can be freaking frustrating! But sometimes you just don't get those answers and you have to be at peace with that in order to not stress out any further! ❤
Do you ever have these feelings, questioning why?
So earlier on, I went on Unity FM discussing my ostomy bag and the process I went through to get to where I am today and I thought it was only right to share another exclusive selfie of me totally oblivious to anything whilst being full of morphine and anaesthetic. It was a difficult time for me and my family but alhumdulillah we got through it together. I just want to say a big thank you to all of you who supported me and helped me get back to myself again, you know who you are! I may have had a rough time but believing in God and believing in his power to help me and bring me to ease was what really got me to realise my potential will power. Now here I am, making dua all the time and always thanking Allah for what he has done for me and to me. We are all put through tests but just remember that we can make it out with our friends and family, and Allah. Thank you to those of you who tuned in today, God bless! #alhumdulillah#blessed#unityfm#liveradio#wellbeing#health#selfie#ostomy#ostomybag#religion#believe#ulcerativecolitis#crohnes#illness#notalone
First 12 hours down and we managed a massive 656.9 miles!! This leaves us with 227.1 miles to do tomorrow but we will be winding the miles on past the target 🚴🏻♂️🚴🏻♂️ #bossedit @cr_uk @theplymouthherald @radioplymouth @thisisheart @primaleurope @bmwuk
7 months post-op and I just ran my first 1/2 mile without stopping! Eeek! I’m so happy.
It may have been slow, and I probably looked like a fish out of water, but I’m so proud of my progress.
Fun fact: I used to LOVE running and would run purely for fun, so it is so exciting to slowly make progress towards that again.
I’ve been adding this to my morning smoothie because I feel like I need any extra fruits/veggies I can get. 🍎🍊🍌🍓🍐🥦🥕
When I am nauseous all I want to eat is bread. 🍞 And more bread. 🍞 Give me all the bread. 🍞
I’d been in bed all day barely waking at 5.30 and struggled getting dressed as russ wanted to go out to dinner and I wanted to try my best to have a nice night too. Went to dinner had a date night which we haven’t had in months and had delicious meal. .
He said he was really happy we did this as he wanted to see me out of the house. We got home around 7.30pm and I went straight to bed just woke for some medicine but heading back to sleep now. It was nice for an hour escaping and forgetting about our issues and talking, holding hands and looking at each other. Love this man so much. I’m hoping that I can manage sleep and that my stoma behaves.
At dinner russ said “I have so much to celebrate” one of his answers was that I can still manage to get out of the house even on a bad day.
He also told me today which made me cry, that I’m his idol and hero and that he really admires me. I didn’t know he felt this way and it made my heart gush that he sees me like he truly sees all of me and loves me. .
Okay, starting to fall asleep and write jibberish but the hour I was out of the house was the best fun I’d had in a while. I hope@for more moment like these even if they’re short is love them.
Thanks Russ for loving me and bling me to be the best version of myself but also for constantly surprising me and making me feel like a princess, your princess. You spoil me with your love and kindness and I love that you try each day to make it good for me ❤️😍😘 #love#husband#marriage#datenight#cancer#ostomy#pain#exhausted#cherishthegoodtimes
I'm 10 months post op now, and although my diet has expanded since the first few weeks (I literally cried into a bowl of pasta & philadelphia thinking that was the only thing I'd ever eat again), I'm still not brave enough to try greens or veg in big portions as I have "the fear" about blockages. .
I found this amazing recipe from the @jamieoliver 5 ingredients cook book, where he blends Cavolo Nero to make a pasta sauce. I've adapted it and also use Kale & Spinach, but it's super yum and is a great way to get some goodness back in my diet without being worried about the dreaded blockage 💪