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“This year during the holidays, we decided to go on a family vacation to Colorado. It was a week filled with fun, laughter, plenty of Decemberfest-worthy activities and even a few snow flurries!
But something happened on our trip that I didn’t expect. I couldn’t hide my #MS from my kids. And that really sucked.
When I’m at home, I feel protected by familiar surroundings and if I’m ever not feeling well, my bedroom is never too far away so I can slip off for a private break.
But in Colorado, as our family shared one hotel room, I felt like all my magic tricks were exposed and my kids saw clearly what I normally try to keep hidden—my MS veil had been lifted.
It started with sleeping. I find myself in the frustrating paradox of being completely exhausted, yet unable to fall asleep. So, my regular nighttime ritual is to read, hoping to make myself drowsy before I drift off to la-la land. And that’s what I did in Colorado. But… I had an audience. I’d catch my son, in his adjacent bed, watching me struggle with restless legs and cold, achy limbs.
In his innocent eyes, I could see equal parts curiosity and concern. I realized he’s not six years old, anymore–I knew I couldn’t just say it’s an ‘adult thing’ or gloss over my aguish. It had become obvious to him.
In the morning, a new struggle began as I attempted to get up…Both of my children were watching, hearing how sore daddy was, seeing my lack of energy and struggles with numbness, spasms, tightness and even vertigo.
There I was, at a beautiful resort, surrounded by the majestic mountains–my spirit pleading to go outside and savor the crisp air, but my failing body was begging to rest…The entire trip I felt like I was under the microscope of my children’s sweet, beautiful and watchful eyes.
As they get older, they are becoming much more observant and it’s becoming harder to hide my MS.
But overall, I’m ok with that reality…MS isn’t my dirty secret, it’s part of my complete package. Our trip to Colorado was a rude awakening of just how quickly our family dynamic is changing.
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Latitude might affect the risk of developing MS. A higher latitude (further away from the equator) is associated with a higher prevalence of MS. (1-3)
References: 1. Simpson S Jr, Blizzard L, Otahal P, et al. J Neurol Neurosurg Psychiatry. 2011;82(10):1132-1141. 2. Kinoshita M, Obata K, Tanaka M. Neurol Sci. 2015;36(7):1147-51. 3. Balbuena LD, Middleton RM, Tuite-Dalton K, et al. PLoS One. 2016;11(5):e0155181.
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Loving this scooter!! #cheeringyouon 🎉🎉🎉 /// #Repost @mssociety
"See what's happening back there? That's my new scooter, Bumblebee the Transformer. It folds and although we couldn't get her in the trunk, she sat nicely in the back seat. MS will not stop 👉this girl👈 from enjoying my life. I just enjoy It a little slower and on wheels." ~ @edible_monster #ThisIsMS#MultipleSclerosis#MS
Diagnosing MS is a complex process. A diagnosis is usually based on symptoms, along with the results of a physical examination, MRI scans of the brain and spine, and other procedures, such as a lumbar
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What an incredible impact that has been made. Have you ever participated in an #MSWALK ? #Repost @mssociety
This weekend -- 76 Walk MS events are taking place across the country! We look forward to seeing everyone, and we thank you for being with us as we walk toward a world free to #MultipleSclerosis and raise critical funds needed to help those living with #MS . Be sure to use #walkMS on social media and let others know why YOU Walk MS.
Not yet registered? We have many more events to choose from – find your Walk MS event today by visiting: http://ntl.ms/WalkMS2018
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10 years since my MS first reared it’s ugly head and a few months later after a second relapse followed by a scan I was told the then devastating news. Not very clued up on the subject I was pretty scared to start with and imagined a rapid decline in my health was imminent. I slowly learned that this is not necessarily how it goes and whilst it’s generally something out of my control, I personally have found that having quite a defiant and somewhat ignorant attitude towards it, as well as being lucky enough to have very few problems since diagnosis has meant I’ve been able to live a life not ruled by my illness.
I MIGHT not be able to do all the things I enjoy one day, I MIGHT need a walking aid one day, I MIGHT need a wheelchair one day.....
Since diagnosis I HAVE climbed a mountain, I HAVE run 7 half marathons, I HAVE run 2 London marathons, I HAVE grown a beautiful little human.... I WILL run another London marathon, I WILL play with my son as much as I can, I WILL shower him with love ❤️
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Well that was hard ...... but I only went and bloody did it!! 26.2 miles in blistering heat. The first 17 miles I was going strong then at mile 18 the wheels started to fall off and I got excruciating nerve pain in my thighs and had to walk/run to the finish. Going over the finish line was the most amazing feeling ever! I was gutted I didn’t get under 5hrs but still over the moon with 5hrs 3 mins!
Thank you to everyone who has supported me in my training and to every person who has donated. Nearly £2600 raised for the @ms_trust , that’s incredible.
Thank you to all my family for their amazing support today, I felt like you were all there with me. I love you all
Thank you Danielle and Daniel for coming to London with my gorgeous grandson to watch me, you have no idea how good it was to see you all at mile 17.
Lastly thank you Steve for all your support always, you have no idea how much inspiration you give me to do the things I do. Love you always 😘💕 xx #vlm2018 ##mswarrior#imanmswarrior#runningwithfriends#msrunner#msfitness#ivegotmsbutthatwontstopme#cantstopwontstop#msstrong#family
We love sharing these stories of inspiration! We hope it encourages you too! #Repost @mssociety
Lisa was diagnosed with multiple sclerosis in 1988 and started to use a wheelchair in 1993. She divides her life into two parts: BC (Before Chair) and AD (After Disability). At first, she felt like her life as she knew it was over. It took several years to realize she could still be a useful member of society even with a disability. In the early years she took up the fight, so all people may have accessibility in public places. For several years she was a mentor, teaching life skills to women incarcerated at the Harris County Jail. In 2007, Lisa switched her focus on volunteering for the MS Society after her husband Mike rode in his first @bpms150. Since then Lisa has become an MS Ambassador and enjoys speaking to groups about her journey with MS. She served five years on the Houston MS Leadership Council. She and Mike have been Top Fundraisers for the past 10 years and hope to surpass the $200,000 mark in funds raised this year. In addition, Lisa has been instrumental in developing a wellness program for people with MS called “Moving Stronger.” She helped to form a partnership with the MS Society, the YMCA of Houston and UT Health Science Center. She has worked over five years to see that those with MS in her city have access to wellness in their own community. #MS#NVW#MultipleSclerosis
One more day!!!!! I want to thank every single person that has donated to my charity the @ms_trust and supported me along this journey. I’m so proud to be running the London Marathon for them. If you would like to track me my number is 44192. My start time is around 1025hrs. If you would still like to donate I’d be very grateful. Thank you 😊 https://www.justgiving.com/fundraising/jules-cooper1 #vlm2018#mstrust#mswarrior#imanmswarrior#msrunner#msfitness#msstrong#cantstopwontstop#onemoreday
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