an online Instagram web viewer

#jpouch medias

Photos

Two week post op visit for my Jacob and heโ€™s healing! (And back to being a tired, sleepy teenager! ๐Ÿคท๐Ÿปโ€โ™€๏ธ) The third (and hopefully the final) surgery is scheduled and ready to go after we run some long, detailed tests to ensure that his new โ€œcolonโ€ is healing well and has no leaks or tears!
.
.
.
Iโ€™ve learned that believing being โ€œblessedโ€ over material things is NOT the true meaning of โ€œblessedโ€. If that is what anyone considers a โ€œblessingโ€, they are clearly mistaken and have no clue what โ€œblessedโ€ means. Having loved ones, my children, my husband, my family, my friends in GOOD HEALTH, is the true meaning of BLESSED. ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ #LifeLessons #MeaningOfBlessed #CrohnsSucks #CrohnsWarrior #CrohnsDisease #UlcerativeColitis #JPouch #GutItOut #SilentDisease #AutoimmuneDisease #Healing #Son2 #MomLife #Blessed #Grateful
Two week post op visit for my Jacob and heโ€™s healing! (And back to being a tired, sleepy teenager! ๐Ÿคท๐Ÿปโ€โ™€๏ธ) The third (and hopefully the final) surgery is scheduled and ready to go after we run some long, detailed tests to ensure that his new โ€œcolonโ€ is healing well and has no leaks or tears! . . . Iโ€™ve learned that believing being โ€œblessedโ€ over material things is NOT the true meaning of โ€œblessedโ€. If that is what anyone considers a โ€œblessingโ€, they are clearly mistaken and have no clue what โ€œblessedโ€ means. Having loved ones, my children, my husband, my family, my friends in GOOD HEALTH, is the true meaning of BLESSED. ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ #LifeLessons  #MeaningOfBlessed  #CrohnsSucks  #CrohnsWarrior  #CrohnsDisease  #UlcerativeColitis  #JPouch  #GutItOut  #SilentDisease  #AutoimmuneDisease  #Healing  #Son2  #MomLife  #Blessed  #Grateful 
A whole bunch of recording equipment in my bag. And my foundation because I have a Facebook Live for #IBDSC tomorrow at 8 EST! Iโ€™ll be in Chicago at #HealtheVoices18 for the next few days doing all the things and meeting all the people and reconnecting with friends. Thanks for being on the ride with me! #IBD #IBDMoms #jpouch #UC #AboutIBDPodcast #podcasting #podcastlife
Iโ€™ve been in remission for 4 years WITHOUT medication/drugs, any kind of special diets and NO J-Pouch surgery and I was suffering for years flaring at least 25x a day. Read my story (link in the bio) and go through my previous posts to see just how many people are in remission due to my factual knowledge. I blew ยฃ40k-ยฃ50k on this nasty disease, but you donโ€™t have to, especially anyone reading this in America where Drs charge $12k every six weeks for Remicade if you donโ€™t have health insurance (and even if you do have insurance it still costs $1800 every six weeks). Visit the link on my bio to my eBay listing and read my story... ๐Ÿ‘†๐Ÿ‘†๐Ÿ‘† #colitis #colitissucks #stopcolitis #colitisawareness #colitisfighter #colitiswarrior #colitisdiet #colitisfree #ibdawareness #colitisfoundation #ibdlife  #IBD #flares #colitisflares #ulcerativecolitisflares #jpouch #nojpouch #remission #ulcerativecolitis
Iโ€™ve been in remission for 4 years WITHOUT medication/drugs, any kind of special diets and NO J-Pouch surgery and I was suffering for years flaring at least 25x a day. Read my story (link in the bio) and go through my previous posts to see just how many people are in remission due to my factual knowledge. I blew ยฃ40k-ยฃ50k on this nasty disease, but you donโ€™t have to, especially anyone reading this in America where Drs charge $12k every six weeks for Remicade if you donโ€™t have health insurance (and even if you do have insurance it still costs $1800 every six weeks). Visit the link on my bio to my eBay listing and read my story... ๐Ÿ‘†๐Ÿ‘†๐Ÿ‘† #colitis  #colitissucks  #stopcolitis  #colitisawareness  #colitisfighter  #colitiswarrior  #colitisdiet  #colitisfree  #ibdawareness  #colitisfoundation  #ibdlife  #IBD  #flares  #colitisflares  #ulcerativecolitisflares  #jpouch  #nojpouch  #remission  #ulcerativecolitis 
Thanks for trusting me @ravinmichellebegnaud 
Iโ€™ve been in remission for 4 years WITHOUT medication/drugs, any kind of special diets and NO J-Pouch surgery and I was suffering for years flaring at least 25x a day. Read my story (link in the bio) and go through my previous posts to see just how many people are in remission due to my factual knowledge. I blew ยฃ40k-ยฃ50k on this nasty disease, but you donโ€™t have to, especially anyone reading this in America where Drs charge $12k every six weeks for Remicade if you donโ€™t have health insurance (and even if you do have insurance it still costs $1800 every six weeks). Visit the link on my bio to my eBay listing and read my story... ๐Ÿ‘†๐Ÿ‘†๐Ÿ‘† #colitis #colitissucks #stopcolitis #colitisawareness #colitisfighter #colitiswarrior #colitisdiet #colitisfree #ibdawareness #colitisfoundation #ibdlife  #IBD #flares #colitisflares #ulcerativecolitisflares #jpouch #nojpouch #remission #ulcerativecolitis
Thanks for trusting me @ravinmichellebegnaud Iโ€™ve been in remission for 4 years WITHOUT medication/drugs, any kind of special diets and NO J-Pouch surgery and I was suffering for years flaring at least 25x a day. Read my story (link in the bio) and go through my previous posts to see just how many people are in remission due to my factual knowledge. I blew ยฃ40k-ยฃ50k on this nasty disease, but you donโ€™t have to, especially anyone reading this in America where Drs charge $12k every six weeks for Remicade if you donโ€™t have health insurance (and even if you do have insurance it still costs $1800 every six weeks). Visit the link on my bio to my eBay listing and read my story... ๐Ÿ‘†๐Ÿ‘†๐Ÿ‘† #colitis  #colitissucks  #stopcolitis  #colitisawareness  #colitisfighter  #colitiswarrior  #colitisdiet  #colitisfree  #ibdawareness  #colitisfoundation  #ibdlife  #IBD  #flares  #colitisflares  #ulcerativecolitisflares  #jpouch  #nojpouch  #remission  #ulcerativecolitis 
Been reminding myself of times gone by, because they're on their way again.
I remember not giving one tiny shit about what other people thought of me and my #ostomy. I was pain free and no longer vomiting and gaining weight at last!
I genuinely did love my stoma!
~ @sahara88uk

#LoveYourStoma #IBDSuperHeroes #Colitis #IBD #Jpouch #Pouchitis #UlcerativeColitis #CureIBD #NoColonStillRollin #IBDVisible #IBDLife #IBDAwareness #InflammatoryBowelDisease #IBDSucks #IBDWarrior #IBDProblems #FlareDay #IBDFighter #IBDSelfie #IBDStrong #ChronicIllness #InvisibleIllness #Spoonie #CrohnsDisease #Crohns #OstomyAwareness
Been reminding myself of times gone by, because they're on their way again. I remember not giving one tiny shit about what other people thought of me and my #ostomy . I was pain free and no longer vomiting and gaining weight at last! I genuinely did love my stoma! ~ @sahara88uk #LoveYourStoma  #IBDSuperHeroes  #Colitis  #IBD  #Jpouch  #Pouchitis  #UlcerativeColitis  #CureIBD  #NoColonStillRollin  #IBDVisible  #IBDLife  #IBDAwareness  #InflammatoryBowelDisease  #IBDSucks  #IBDWarrior  #IBDProblems  #FlareDay  #IBDFighter  #IBDSelfie  #IBDStrong  #ChronicIllness  #InvisibleIllness  #Spoonie  #CrohnsDisease  #Crohns  #OstomyAwareness 
Hahaha had to steal this also @sahara88uk from the #IBDSuperHeroes Facebook group. I would like one.. thank you ๐Ÿ˜‚
.
.
#IBDSuperHeroes #NoColonStillRollin #Jpouch
Armday!! About 7.5 weeks out from show time . Those pancakes last night gave a crazy arm pump today !  @ifbbprochristuttle @tuttlenutrition
Armday!! About 7.5 weeks out from show time . Those pancakes last night gave a crazy arm pump today ! @ifbbprochristuttle @tuttlenutrition
ICYMI: There's a Twitter chat going on today at noon CST. Be sure to join the conversation with the hashtag #NUCAlife! Hope to see you there. #ulcerativecolitis @nuca_life #JPOUCH
ICYMI: There's a Twitter chat going on today at noon CST. Be sure to join the conversation with the hashtag #NUCAlife ! Hope to see you there. #ulcerativecolitis  @nuca_life #JPOUCH 
As a part of my Spiritual Cleaning Project, I also went through my kitchen shelves, fridge and freezer. I checked the best before dates on all the different ingredients I had and wrote three long lists to organize what I needed to use first for cooking.

I highly recommend doing this! I've already saved a lot of money by just eating the foods I already have in my kitchen, and it's better for the environment too. I've also cooked some really nice meals.

I found just enough ingredients for one block of raw chocolate (in the picture). Yum! Who knew cleaning could be this fun and therapeutic. ๐Ÿ˜…๐Ÿซ
โ€ข
โ€ข
โ€ข
โ€ข
โ€ข
#chocolate #rawchocolate #raakasuklaa #vegan #vegaani #whatveganseat #veganfoodshare #plantbased #love #wellness #health #mindfulness #yogi #spiritual #terveys #hyvinvointi #jpouch #spoonie
As a part of my Spiritual Cleaning Project, I also went through my kitchen shelves, fridge and freezer. I checked the best before dates on all the different ingredients I had and wrote three long lists to organize what I needed to use first for cooking. I highly recommend doing this! I've already saved a lot of money by just eating the foods I already have in my kitchen, and it's better for the environment too. I've also cooked some really nice meals. I found just enough ingredients for one block of raw chocolate (in the picture). Yum! Who knew cleaning could be this fun and therapeutic. ๐Ÿ˜…๐Ÿซ โ€ข โ€ข โ€ข โ€ข โ€ข #chocolate  #rawchocolate  #raakasuklaa  #vegan  #vegaani  #whatveganseat  #veganfoodshare  #plantbased  #love  #wellness  #health  #mindfulness  #yogi  #spiritual  #terveys  #hyvinvointi  #jpouch  #spoonie 
Some of last nightโ€™s circuit. Iโ€™m starting to work on more dynamic movements. I tried jumping a few weeks ago and it didnโ€™t feel right so I waited another 3 weeks before doing these again. They felt great this time! Continuing to work on getting stronger! P.S. Iโ€™m back to my pre-surgery weight 112-114lbs ๐Ÿ’ช! This means Iโ€™ve put on 14lbs of healthy weight since February. Always remember the scale is just a number itโ€™s all about how you feel and so far, Iโ€™m feeling pretty great!
Some of last nightโ€™s circuit. Iโ€™m starting to work on more dynamic movements. I tried jumping a few weeks ago and it didnโ€™t feel right so I waited another 3 weeks before doing these again. They felt great this time! Continuing to work on getting stronger! P.S. Iโ€™m back to my pre-surgery weight 112-114lbs ๐Ÿ’ช! This means Iโ€™ve put on 14lbs of healthy weight since February. Always remember the scale is just a number itโ€™s all about how you feel and so far, Iโ€™m feeling pretty great!
Been reminding myself of times gone by, because they're on their way again.
I remember not giving one tiny shit about what other people thought of me and my #ostomy. I was pain free and no longer vomiting and gaining weight at last!
I genuinely did love my stoma!

#LoveYourStoma #IBDSuperHeroes #Colitis #IBD #Jpouch #Pouchitis #UlcerativeColitis #CureIBD #NoColonStillRollin #IBDVisible #IBDLife #IBDAwareness #InflammatoryBowelDisease #IBDSucks #IBDWarrior #IBDProblems #FlareDay #IBDFighter #IBDSelfie #IBDStrong #ChronicIllness #InvisibleIllness #Spoonie #CrohnsDisease #Crohns #OstomyAwareness
Been reminding myself of times gone by, because they're on their way again. I remember not giving one tiny shit about what other people thought of me and my #ostomy . I was pain free and no longer vomiting and gaining weight at last! I genuinely did love my stoma! #LoveYourStoma  #IBDSuperHeroes  #Colitis  #IBD  #Jpouch  #Pouchitis  #UlcerativeColitis  #CureIBD  #NoColonStillRollin  #IBDVisible  #IBDLife  #IBDAwareness  #InflammatoryBowelDisease  #IBDSucks  #IBDWarrior  #IBDProblems  #FlareDay  #IBDFighter  #IBDSelfie  #IBDStrong  #ChronicIllness  #InvisibleIllness  #Spoonie  #CrohnsDisease  #Crohns  #OstomyAwareness 
In case you needed to hear it! #WisdomWednesday! #GirlsWithGuts #Crohns #ulcerativecolitis #uc #ostomate #jpouch
Went shopping having not eaten enough today and thought I might actually faint ๐Ÿ˜… so ended up walking slowly home in the rain with a @upandgouk drink ๐Ÿ™ˆ
~ @sahara88uk 
#IBDSuperHeroes #Colitis #IBD #Jpouch #Pouchitis #UlcerativeColitis #CureIBD #NoColonStillRollin #IBDVisible #IBDLife #IBDAwareness #InflammatoryBowelDisease #IBDSucks #IBDWarrior #IBDProblems #FlareDay #IBDFighter #IBDSelfie #IBDResearch #IBDCantStopMe #IBDStrong #IBDPetPeeves #AutoimmuneDisease #ChronicIllness #InvisibleIllness #Spoonie #Autoimmuneย #CrohnsDisease #Crohns
Went shopping having not eaten enough today and thought I might actually faint ๐Ÿ˜… so ended up walking slowly home in the rain with a @upandgouk drink ๐Ÿ™ˆ ~ @sahara88uk #IBDSuperHeroes  #Colitis  #IBD  #Jpouch  #Pouchitis  #UlcerativeColitis  #CureIBD  #NoColonStillRollin  #IBDVisible  #IBDLife  #IBDAwareness  #InflammatoryBowelDisease  #IBDSucks  #IBDWarrior  #IBDProblems  #FlareDay  #IBDFighter  #IBDSelfie  #IBDResearch  #IBDCantStopMe  #IBDStrong  #IBDPetPeeves  #AutoimmuneDisease  #ChronicIllness  #InvisibleIllness  #Spoonie  #Autoimmune ย #CrohnsDisease  #Crohns 
My heart skipped a beat yesterday when I received this letter! It's different to any I've had before so i was unsure if it was asking me to ring for a date for my takedown surgery or what. But no, it's just a consultation with my surgeon; the one I was meant to have in December after my dye test. I'm only getting it now because they have been so busy apparently. But at least it's one step closer to finding out if my j pouch is healing well enough for me to have my reversal.
#onestepcloser #takedown #jpouch #ileostomy #ibd
My heart skipped a beat yesterday when I received this letter! It's different to any I've had before so i was unsure if it was asking me to ring for a date for my takedown surgery or what. But no, it's just a consultation with my surgeon; the one I was meant to have in December after my dye test. I'm only getting it now because they have been so busy apparently. But at least it's one step closer to finding out if my j pouch is healing well enough for me to have my reversal. #onestepcloser  #takedown  #jpouch  #ileostomy  #ibd 
I could tell you about all the weight I've lost but instead I'll tell you about all the life I've gained. Slept until 2:30 today and didnt care because I woke up HAPPY & tan ;) Still me, happiness is shining (most days), better quality of life and growing. 5.5 weeks post op and waiting on another surgery. I'm not quitting, I'm not giving up, my life is just beginning and we WILL get it right. ๐Ÿ‘Š๐Ÿ‘Œ๐Ÿ˜๐Ÿ’œ #humble #recovery #life #fitness #fuckuc #ileostomy #awareness #jpouch #nocolonstillrollin #ibd #crohns #adventure #happy #free #healthy #warrior #strong #summertime #colorado #tan
I could tell you about all the weight I've lost but instead I'll tell you about all the life I've gained. Slept until 2:30 today and didnt care because I woke up HAPPY & tan ;) Still me, happiness is shining (most days), better quality of life and growing. 5.5 weeks post op and waiting on another surgery. I'm not quitting, I'm not giving up, my life is just beginning and we WILL get it right. ๐Ÿ‘Š๐Ÿ‘Œ๐Ÿ˜๐Ÿ’œ #humble  #recovery  #life  #fitness  #fuckuc  #ileostomy  #awareness  #jpouch  #nocolonstillrollin  #ibd  #crohns  #adventure  #happy  #free  #healthy  #warrior  #strong  #summertime  #colorado  #tan 
A little bit of honest talk as the past couple of weeks have been crazy busy, and the next few weeks are going to be crazy as well with my impending due date ๐Ÿ˜ณ .. learning to be grace-full to myself as my body adjusts to making a little one (fighting fatigue like crazy), to being a wife to my hubby who is still struggling with his #jpouch recovery, to juggling my other business as well as this one. Thereโ€™s so much going on and Iโ€™m trying to be okay that things are not all going to be done, and things wonโ€™t all go all to plan, and just do what I can when I am able. Learning to let go of certain things and being okay with that. Inhaling in courage to brace whateverโ€™s coming and exhaling the fear. Spending more time than ever with God in prayer and learning that is more than enough for me. #moderncalligraphy #quote #courage
A little bit of honest talk as the past couple of weeks have been crazy busy, and the next few weeks are going to be crazy as well with my impending due date ๐Ÿ˜ณ .. learning to be grace-full to myself as my body adjusts to making a little one (fighting fatigue like crazy), to being a wife to my hubby who is still struggling with his #jpouch  recovery, to juggling my other business as well as this one. Thereโ€™s so much going on and Iโ€™m trying to be okay that things are not all going to be done, and things wonโ€™t all go all to plan, and just do what I can when I am able. Learning to let go of certain things and being okay with that. Inhaling in courage to brace whateverโ€™s coming and exhaling the fear. Spending more time than ever with God in prayer and learning that is more than enough for me. #moderncalligraphy  #quote  #courage 
#RepostSave @420_support_group with @repostsaveapp ใƒปใƒปใƒป Good afternoon my friends ๐Ÿค—๐Ÿค—๐Ÿค—.
Please be advised that these 3 Instagram accounts are the only official site's as of right now โœ”โœ”๐Ÿ’ฏ๐Ÿ’ฏ.
@boneprone201 @boneprone2001 @420_support_group @cannabis_nurse_navigator ๐Ÿ–ฅ๐Ÿ–ฅ. If there are any other accounts out there, they are fake, and misleading you ๐Ÿ‘Ž.
We are also on Facebook Tony kremer 
Nique Pichette ๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ.
Please, never send any personal information unless you know it's us for sure ๐Ÿค”๐Ÿค”. We are also having a soft launch of our new www.420supportgroup.com 
420supportgroup.net
420supportgroup.org coming within the next week ๐Ÿ˜‰๐Ÿ˜‰.
More awesome news coming ๐Ÿ“ฐ๐Ÿ—ž.
#boneprone201 #420supportgroup #colonless #osteoarthritis #osteoporosis #jpouch #patientshelpingpatients #crohnsdiease #liverdisease #nursenavigator #pouchitis #niqwear
#RepostSave  @420_support_group with @repostsaveapp ใƒปใƒปใƒป Good afternoon my friends ๐Ÿค—๐Ÿค—๐Ÿค—. Please be advised that these 3 Instagram accounts are the only official site's as of right now โœ”โœ”๐Ÿ’ฏ๐Ÿ’ฏ. @boneprone201 @boneprone2001 @420_support_group @cannabis_nurse_navigator ๐Ÿ–ฅ๐Ÿ–ฅ. If there are any other accounts out there, they are fake, and misleading you ๐Ÿ‘Ž. We are also on Facebook Tony kremer Nique Pichette ๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ. Please, never send any personal information unless you know it's us for sure ๐Ÿค”๐Ÿค”. We are also having a soft launch of our new www.420supportgroup.com 420supportgroup.net 420supportgroup.org coming within the next week ๐Ÿ˜‰๐Ÿ˜‰. More awesome news coming ๐Ÿ“ฐ๐Ÿ—ž. #boneprone201  #420supportgroup  #colonless  #osteoarthritis  #osteoporosis  #jpouch  #patientshelpingpatients  #crohnsdiease  #liverdisease  #nursenavigator  #pouchitis  #niqwear 
Good afternoon my friends ๐Ÿค—๐Ÿค—๐Ÿค—.
Please be advised that these 3 Instagram accounts are the only official site's as of right now โœ”โœ”๐Ÿ’ฏ๐Ÿ’ฏ.
@boneprone201 @boneprone2001 @420_support_group @cannabis_nurse_navigator ๐Ÿ–ฅ๐Ÿ–ฅ. If there are any other accounts out there, they are fake, and misleading you ๐Ÿ‘Ž.
We are also on Facebook Tony kremer 
Nique ๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ.
Please, never send any personal information unless you know it's us for sure ๐Ÿค”๐Ÿค”. We are also having a soft launch of our new www.420supportgroup.com 
420supportgroup.net
420supportgroup.org coming within the next week ๐Ÿ˜‰๐Ÿ˜‰.
More awesome news coming ๐Ÿ“ฐ๐Ÿ—ž.
#boneprone201 #420supportgroup #colonless #osteoarthritis #osteoporosis #jpouch #patientshelpingpatients #crohnsdiease #liverdisease #nursenavigator #pouchitis #niqwear
Good afternoon my friends ๐Ÿค—๐Ÿค—๐Ÿค—. Please be advised that these 3 Instagram accounts are the only official site's as of right now โœ”โœ”๐Ÿ’ฏ๐Ÿ’ฏ. @boneprone201 @boneprone2001 @420_support_group @cannabis_nurse_navigator ๐Ÿ–ฅ๐Ÿ–ฅ. If there are any other accounts out there, they are fake, and misleading you ๐Ÿ‘Ž. We are also on Facebook Tony kremer Nique ๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ. Please, never send any personal information unless you know it's us for sure ๐Ÿค”๐Ÿค”. We are also having a soft launch of our new www.420supportgroup.com 420supportgroup.net 420supportgroup.org coming within the next week ๐Ÿ˜‰๐Ÿ˜‰. More awesome news coming ๐Ÿ“ฐ๐Ÿ—ž. #boneprone201  #420supportgroup  #colonless  #osteoarthritis  #osteoporosis  #jpouch  #patientshelpingpatients  #crohnsdiease  #liverdisease  #nursenavigator  #pouchitis  #niqwear 
๐Ÿ“…๐Ÿ“…๐Ÿ“…โœโœโœ.
These top 4 are involved with the @420_support_group family in one way or another ๐Ÿ’–๐Ÿ’–.
@cannananowater 
@mclovinmunchies 
@dosbroscooks 
@seedvaultofca1 ๐Ÿ‘๐Ÿ‘๐Ÿ™๐Ÿ™๐Ÿ’–๐Ÿ’–.
@tactical_patients_norcal @tactical_patients 
@californiacannabisawards 
@highlife_musicfestival 
@chalicefestival 
@bostonfreedomrally 
@thehippielounge710 โœŒ.
@ackrte
@prerollparty 
#boneprone201 #420supportgroup #colonless #osteoarthritis #osteoporosis #jpouch #patientshelpingpatients #crohnsdiease #liverdisease #nursenavigator #pouchitis #prerollparty
#bostonfreedomrally 
#highlife 
#seedvault
#dosbros
#mclovin
๐Ÿ“…๐Ÿ“…๐Ÿ“…โœโœโœ. These top 4 are involved with the @420_support_group family in one way or another ๐Ÿ’–๐Ÿ’–. @cannananowater @mclovinmunchies @dosbroscooks @seedvaultofca1 ๐Ÿ‘๐Ÿ‘๐Ÿ™๐Ÿ™๐Ÿ’–๐Ÿ’–. @tactical_patients_norcal @tactical_patients @californiacannabisawards @highlife_musicfestival @chalicefestival @bostonfreedomrally @thehippielounge710 โœŒ. @ackrte @prerollparty #boneprone201  #420supportgroup  #colonless  #osteoarthritis  #osteoporosis  #jpouch  #patientshelpingpatients  #crohnsdiease  #liverdisease  #nursenavigator  #pouchitis  #prerollparty  #bostonfreedomrally  #highlife  #seedvault  #dosbros  #mclovin 
Things people don't usually talk about - highs and lows of upcoming #surgery: http://sahara88uk.blogspot.co.uk/2018/04/things-people-dont-usually-talk-about.html
I wrote this only yesterday, straight after receiving an email from my #IBD nurse. I am pleased to say that within a few hours, I did feel calmer. I have no doubt that between now, seeing the surgeon and the surgery actually happening, I will experience many highs and lows as I consider my future.
#Blog link in @sahara88uk bio 
#IBDSuperHeroes #Colitis #IBD #Jpouch #Pouchitis #UlcerativeColitis #CureIBD #NoColonStillRollin #IBDVisible #IBDLife #IBDAwareness #InflammatoryBowelDisease #IBDSucks #IBDWarrior #IBDProblems #FlareDay #IBDFighter #IBDSelfie #IBDResearch #ChronicIllness #InvisibleIllness #Spoonieย  #CrohnsDisease #Crohns #IBDblog #ColitisBlog
Things people don't usually talk about - highs and lows of upcoming #surgery : http://sahara88uk.blogspot.co.uk/2018/04/things-people-dont-usually-talk-about.html I wrote this only yesterday, straight after receiving an email from my #IBD  nurse. I am pleased to say that within a few hours, I did feel calmer. I have no doubt that between now, seeing the surgeon and the surgery actually happening, I will experience many highs and lows as I consider my future. #Blog  link in @sahara88uk bio #IBDSuperHeroes  #Colitis  #IBD  #Jpouch  #Pouchitis  #UlcerativeColitis  #CureIBD  #NoColonStillRollin  #IBDVisible  #IBDLife  #IBDAwareness  #InflammatoryBowelDisease  #IBDSucks  #IBDWarrior  #IBDProblems  #FlareDay  #IBDFighter  #IBDSelfie  #IBDResearch  #ChronicIllness  #InvisibleIllness  #Spoonie ย  #CrohnsDisease  #Crohns  #IBDblog  #ColitisBlog 
#ChronicFatigue stole 16 months of my life. 16 months I can never get back or make up for ๐Ÿ˜ข
Make the most of the days you can get shit done, because you never know when the wall is going to hit!
~ @sahara88uk

#IBDSuperHeroes #Colitis #IBD #Jpouch #Pouchitis #UlcerativeColitis #CureIBD #NoColonStillRollin #IBDVisible #IBDLife #IBDAwareness #InflammatoryBowelDisease #IBDSucks #IBDWarrior #IBDProblems #FlareDay #IBDFighter #IBDSelfie #IBDResearch #ChronicIllness #Spoonieย  #CrohnsDisease #Crohns

Shared from @paigecrowtherx: My life in a picture.. time to get some ๐Ÿ’ค as I never got any last night ๐Ÿ˜–

#ostomy #stoma #ostomylife #chronicillness
#ChronicFatigue  stole 16 months of my life. 16 months I can never get back or make up for ๐Ÿ˜ข Make the most of the days you can get shit done, because you never know when the wall is going to hit! ~ @sahara88uk #IBDSuperHeroes  #Colitis  #IBD  #Jpouch  #Pouchitis  #UlcerativeColitis  #CureIBD  #NoColonStillRollin  #IBDVisible  #IBDLife  #IBDAwareness  #InflammatoryBowelDisease  #IBDSucks  #IBDWarrior  #IBDProblems  #FlareDay  #IBDFighter  #IBDSelfie  #IBDResearch  #ChronicIllness  #Spoonie ย  #CrohnsDisease  #Crohns  Shared from @paigecrowtherx: My life in a picture.. time to get some ๐Ÿ’ค as I never got any last night ๐Ÿ˜– #ostomy  #stoma  #ostomylife  #chronicillness 
๐Ÿ“…๐Ÿ“…๐Ÿ“…โœโœ’โœ๐Ÿ˜€๐Ÿ˜€.
@bigindustryshow 
@therollupshow with @freddysayegh and I'll be there supporting ๐Ÿ“ธ๐ŸŽฌ.
@drsanjaygupta
Part 4 of Weed.
@howsefoundation 
@highdining.club 
@cannabizexpo 
@mjmstratagy
@product_earth 
@executivekushlounge 
@agendashow 
@highrollerzbjj 
@oggirlsclub 
#boneprone201 #420supportgroup #colonless #osteoarthritis #osteoporosis #jpouch #patientshelpingpatients #crohnsdiease #liverdisease #nursenavigator #pouchitis #oggirlsclub
#Highrollerzbjj
#agendashow
#productearth
#cannabizexpo
#therollupshow #GreenHoldingsGroup #howsefoundation #drsanjaygupta #cnn 
#bigindustryshow
๐Ÿ“…๐Ÿ“…๐Ÿ“…โœโœ’โœ๐Ÿ˜€๐Ÿ˜€. @bigindustryshow @therollupshow with @freddysayegh and I'll be there supporting ๐Ÿ“ธ๐ŸŽฌ. @drsanjaygupta Part 4 of Weed. @howsefoundation @highdining.club @cannabizexpo @mjmstratagy @product_earth @executivekushlounge @agendashow @highrollerzbjj @oggirlsclub #boneprone201  #420supportgroup  #colonless  #osteoarthritis  #osteoporosis  #jpouch  #patientshelpingpatients  #crohnsdiease  #liverdisease  #nursenavigator  #pouchitis  #oggirlsclub  #Highrollerzbjj  #agendashow  #productearth  #cannabizexpo  #therollupshow  #GreenHoldingsGroup  #howsefoundation  #drsanjaygupta  #cnn  #bigindustryshow 
What? Courtneyโ€™s putting an effort into her appearance again? ๐Ÿ˜ณ๐Ÿคฏ (Itโ€™s been a rough few months for me, especially losing so much weight and not being able to gain it back. I donโ€™t know if it was the weather this past week or the fact that Iโ€™m not on many medications atm, but Iโ€™m actually feeling pretty good inside. Itโ€™s time I show that on the outside too! Swipe if you wanna see how different Happy Courtney is from Sad Courtney) #courtneywearingmakeup #happycourtney #alwayswearingflorals #ucwarrior #jpouch
What? Courtneyโ€™s putting an effort into her appearance again? ๐Ÿ˜ณ๐Ÿคฏ (Itโ€™s been a rough few months for me, especially losing so much weight and not being able to gain it back. I donโ€™t know if it was the weather this past week or the fact that Iโ€™m not on many medications atm, but Iโ€™m actually feeling pretty good inside. Itโ€™s time I show that on the outside too! Swipe if you wanna see how different Happy Courtney is from Sad Courtney) #courtneywearingmakeup  #happycourtney  #alwayswearingflorals  #ucwarrior  #jpouch 
Right on my friend. Keep educating and medicating ๐Ÿ‘Š๐Ÿ‘Š.
@major_cbd
Talking with @doctorfranklive
#doctorfranklive
#majorcbd
#boneprone201 #420supportgroup #colonless #osteoarthritis #osteoporosis #jpouch #patientshelpingpatients #crohnsdiease #liverdisease #nursenavigator #ptsd #cannabis 
#RepostSave @major_cbd with @repostsaveapp ใƒปใƒปใƒป #Repost @doctorfranklive with @get_repost
ใƒปใƒปใƒป
Today we are talking Cannabis for Insomnia. SWIPE UP in my Instagram story to see how cannabis can help with your sleeping problems. #marijuanaismedicine @major_cbd #medicalmonday
Right on my friend. Keep educating and medicating ๐Ÿ‘Š๐Ÿ‘Š. @major_cbd Talking with @doctorfranklive #doctorfranklive  #majorcbd  #boneprone201  #420supportgroup  #colonless  #osteoarthritis  #osteoporosis  #jpouch  #patientshelpingpatients  #crohnsdiease  #liverdisease  #nursenavigator  #ptsd  #cannabis  #RepostSave  @major_cbd with @repostsaveapp ใƒปใƒปใƒป #Repost  @doctorfranklive with @get_repost ใƒปใƒปใƒป Today we are talking Cannabis for Insomnia. SWIPE UP in my Instagram story to see how cannabis can help with your sleeping problems. #marijuanaismedicine  @major_cbd #medicalmonday 
In the process of trying to get my shit together so I can go for surgery this year with no stress to come out to!
This has involves getting everything bought and paid for that needed sorting this year and then saving up so I can pay the bills while I'm off work.
Things started well but have gone a little pear shaped from there ๐Ÿ˜‚
Couldn't find a tv stand like I wanted. Lady at work was getting rid of one in the wrong colour, but was solid wood so the plan was to sand and stain it. Accidently bought gloss which we didn't realise until we painted the whole thing and the shine didn't dissapear when dry ๐Ÿ˜… that was then scraped off, now it has dents in and looks old a crappy ๐Ÿ˜‘ but it's ready to stained now WITHOUT gloss ๐ŸŽ‰ and the shit bit will actually be covered by the TV anyway so... "meh".
Ordered washer dryer. To be delivered 2 Sundays ago. Sold mine the Saturday, then realised I actually ordered it for a whole month away - May. So, that was cancelled because the earliest it could come was 3 wks and 2 days time. Ordered a different one which came last Thursday. Only, this shit heap is fucked and the dryer doesn't work, and my towels came out dripping wet after the drain and spin... So tomorrow an exchange is happening for a completely different one again.
The bed came yesterday. So far, so good! No issues are apparent yet (touch wood). Other than the fact it's really low and will be hard so get out of straight after surgery. I know this because I've had 6 over the last few years and have had a low bed and a high bed during that time.
Hopefully, by the end of the week the TV stand will be finished and a working washer dryer will be in place so the only thing I need to focus on now is saving pennies!
~ @sahara88uk

#IBDSuperHeroes #Colitis #IBD #Jpouch #Pouchitis #UlcerativeColitis #CureIBD #NoColonStillRollin #IBDVisible #IBDLife #IBDAwareness #InflammatoryBowelDisease #IBDSucks #IBDWarrior #IBDProblems #FlareDay #IBDFighter #IBDSelfie #IBDResearch #IBDCantStopMe #IBDStrong #AutoimmuneDisease #ChronicIllness #InvisibleIllness #Spoonieย  #CrohnsDisease #Crohns
In the process of trying to get my shit together so I can go for surgery this year with no stress to come out to! This has involves getting everything bought and paid for that needed sorting this year and then saving up so I can pay the bills while I'm off work. Things started well but have gone a little pear shaped from there ๐Ÿ˜‚ Couldn't find a tv stand like I wanted. Lady at work was getting rid of one in the wrong colour, but was solid wood so the plan was to sand and stain it. Accidently bought gloss which we didn't realise until we painted the whole thing and the shine didn't dissapear when dry ๐Ÿ˜… that was then scraped off, now it has dents in and looks old a crappy ๐Ÿ˜‘ but it's ready to stained now WITHOUT gloss ๐ŸŽ‰ and the shit bit will actually be covered by the TV anyway so... "meh". Ordered washer dryer. To be delivered 2 Sundays ago. Sold mine the Saturday, then realised I actually ordered it for a whole month away - May. So, that was cancelled because the earliest it could come was 3 wks and 2 days time. Ordered a different one which came last Thursday. Only, this shit heap is fucked and the dryer doesn't work, and my towels came out dripping wet after the drain and spin... So tomorrow an exchange is happening for a completely different one again. The bed came yesterday. So far, so good! No issues are apparent yet (touch wood). Other than the fact it's really low and will be hard so get out of straight after surgery. I know this because I've had 6 over the last few years and have had a low bed and a high bed during that time. Hopefully, by the end of the week the TV stand will be finished and a working washer dryer will be in place so the only thing I need to focus on now is saving pennies! ~ @sahara88uk #IBDSuperHeroes  #Colitis  #IBD  #Jpouch  #Pouchitis  #UlcerativeColitis  #CureIBD  #NoColonStillRollin  #IBDVisible  #IBDLife  #IBDAwareness  #InflammatoryBowelDisease  #IBDSucks  #IBDWarrior  #IBDProblems  #FlareDay  #IBDFighter  #IBDSelfie  #IBDResearch  #IBDCantStopMe  #IBDStrong  #AutoimmuneDisease  #ChronicIllness  #InvisibleIllness  #Spoonie ย  #CrohnsDisease  #Crohns 
Nice shit ๐Ÿ’ฉ๐Ÿ’ฉ๐Ÿ’ฉ#colitisulcerosa #ileostomy #jpouch #funnyvideos
Good morning to all my Crohnโ€™s & UC Warriors and all my JPouch & Ostomy Rockstars.....this is for you!! I hope youโ€™ll come be part of my awesome group!  Itโ€™s new and still growing and Iโ€™d love if youโ€™d grow with me! Iโ€™ll be posting educational studies rated to our illnesses and youโ€™ll be able to post and share stories, ask questions of your own, and give feedback when you can. My group is different than most as I like to do everything with a bit of humor!  I truly believe that laughter (sometimes chuckles when the pain is too much) is the best medicine. Iโ€™ve also learned that in my twelve years of being diagnosed itโ€™s definitely not worth it to take myself too seriously!!! I also love spreading positivity and good vibes!  A lot of us have seen the dark side of these illnesses and I donโ€™t like people to stay in the dark for too long. So come check us out!! #crohnsdisease #crohns #crohnswarrior #crohnsfighter #ulcerativecolitis #ulcerativecolitisawareness #crohnsawareness #jpouch #jpoucher #jpouchlife #ostomy #ostomylifestyle #ostomylife #ostomate #support #supportgroup #warriors #weneedacure #spoonie #illness #hospital #surgery #educate #inspire humor #laughteristhebestmedicine #findhumorineverything #livelovelaugh #comejoinme
Good morning to all my Crohnโ€™s & UC Warriors and all my JPouch & Ostomy Rockstars.....this is for you!! I hope youโ€™ll come be part of my awesome group! Itโ€™s new and still growing and Iโ€™d love if youโ€™d grow with me! Iโ€™ll be posting educational studies rated to our illnesses and youโ€™ll be able to post and share stories, ask questions of your own, and give feedback when you can. My group is different than most as I like to do everything with a bit of humor! I truly believe that laughter (sometimes chuckles when the pain is too much) is the best medicine. Iโ€™ve also learned that in my twelve years of being diagnosed itโ€™s definitely not worth it to take myself too seriously!!! I also love spreading positivity and good vibes! A lot of us have seen the dark side of these illnesses and I donโ€™t like people to stay in the dark for too long. So come check us out!! #crohnsdisease  #crohns  #crohnswarrior  #crohnsfighter  #ulcerativecolitis  #ulcerativecolitisawareness  #crohnsawareness  #jpouch  #jpoucher  #jpouchlife  #ostomy  #ostomylifestyle  #ostomylife  #ostomate  #support  #supportgroup  #warriors  #weneedacure  #spoonie  #illness  #hospital  #surgery  #educate  #inspire  humor #laughteristhebestmedicine  #findhumorineverything  #livelovelaugh  #comejoinme 
I had my follow up with colorectal and GI at the Cleveland clinic and was given these options as treatment. Both colorectal and GI are saying I have Crohnโ€™s disease based off of pathology and โ€œthe tiniest fistulaโ€ theyโ€™ve ever seen. Iโ€™m still not convinced I have Crohnโ€™s. They didnโ€™t even ask about symptoms or anything. They said they saw acute inflammation in my biopsies, but inflammation is also found in pouchitis. Does anyone have good colorectal or GI recommendations? I am looking for a second opinion. #uc #crohnsdisease #nocolonstillrollin #jpouch #jpouchsurgery #remicade
I had my follow up with colorectal and GI at the Cleveland clinic and was given these options as treatment. Both colorectal and GI are saying I have Crohnโ€™s disease based off of pathology and โ€œthe tiniest fistulaโ€ theyโ€™ve ever seen. Iโ€™m still not convinced I have Crohnโ€™s. They didnโ€™t even ask about symptoms or anything. They said they saw acute inflammation in my biopsies, but inflammation is also found in pouchitis. Does anyone have good colorectal or GI recommendations? I am looking for a second opinion. #uc  #crohnsdisease  #nocolonstillrollin  #jpouch  #jpouchsurgery  #remicade 
Transformation Tuesday! A major side effect of IBD that I donโ€™t think gets talked about enough is hair loss. As women, we have a special connection with our hair. We play with our dollโ€™s hair when weโ€™re little girls. We watch our mothers style their hair in the mirror each morning and they style ours until weโ€™re old enough to do it ourselves. Itโ€™s part of our mother/daughter bond. Itโ€™s literally programmed in us at a young age to cherish our hair, so naturally, thereโ€™s a whole range of emotions felt as a result of its abandonment. If youโ€™ve lost hair due to illness, it is ok to feel upset! IT DOES NOT mean youโ€™re vain or superficial. I struggled with this concept for years. It means youโ€™ve lost a part of yourself, and youโ€™re allowed to grieve that loss. โœจ
The first time it abandoned me was right after college. I had no money and bought a $25 dollar bleach blonde wig. It was hideous, and I wore it for a year. โœจ
My weave game drastically improved when I met the amazing @tanyalange. After my second surgery my body, like a snake, shed all its remaining damaged parts. This meant my hair, again, had to go.
โœจ
I was too scared to shave my head because of my Prednisone moonface. It had reached its pinnacle and people were staring long before I lost the hair. So Tanya suggested quickie tape-in extensions. They kept my self confidence from plummeting, protected the hair as it grew back and were much cheaper than other extensions! We nursed my hair back to health through lots of patience, vitamins, diet, and trims. It took over 2.5 years, but Iโ€™m finally back to my good olโ€™ self with no extensions! (Photos show hair revival from Sept 2015 to April 2018, no extensions).
โœจ
So what does my daily hair routine look like? Collagen peptides, sublingual biotin, and prescription-strength folic acid. Also weekly ๐Ÿ’† to stimulate those follicles!
โœจ
Gosh, I could write a book on this topic. This post just doesnโ€™t do it justice. Feel free to sound off in comments if you have any questions! ๐Ÿ’œ๐Ÿ’œ
โœจ
#transformationtuesday #hairloss #crohns #uc #fucrohns #chronicillness #autoimmune #crohnswarrior #ucwarrior #blondehair #haircreations #saulinosalon
Transformation Tuesday! A major side effect of IBD that I donโ€™t think gets talked about enough is hair loss. As women, we have a special connection with our hair. We play with our dollโ€™s hair when weโ€™re little girls. We watch our mothers style their hair in the mirror each morning and they style ours until weโ€™re old enough to do it ourselves. Itโ€™s part of our mother/daughter bond. Itโ€™s literally programmed in us at a young age to cherish our hair, so naturally, thereโ€™s a whole range of emotions felt as a result of its abandonment. If youโ€™ve lost hair due to illness, it is ok to feel upset! IT DOES NOT mean youโ€™re vain or superficial. I struggled with this concept for years. It means youโ€™ve lost a part of yourself, and youโ€™re allowed to grieve that loss. โœจ The first time it abandoned me was right after college. I had no money and bought a $25 dollar bleach blonde wig. It was hideous, and I wore it for a year. โœจ My weave game drastically improved when I met the amazing @tanyalange. After my second surgery my body, like a snake, shed all its remaining damaged parts. This meant my hair, again, had to go. โœจ I was too scared to shave my head because of my Prednisone moonface. It had reached its pinnacle and people were staring long before I lost the hair. So Tanya suggested quickie tape-in extensions. They kept my self confidence from plummeting, protected the hair as it grew back and were much cheaper than other extensions! We nursed my hair back to health through lots of patience, vitamins, diet, and trims. It took over 2.5 years, but Iโ€™m finally back to my good olโ€™ self with no extensions! (Photos show hair revival from Sept 2015 to April 2018, no extensions). โœจ So what does my daily hair routine look like? Collagen peptides, sublingual biotin, and prescription-strength folic acid. Also weekly ๐Ÿ’† to stimulate those follicles! โœจ Gosh, I could write a book on this topic. This post just doesnโ€™t do it justice. Feel free to sound off in comments if you have any questions! ๐Ÿ’œ๐Ÿ’œ โœจ #transformationtuesday  #hairloss  #crohns  #uc  #fucrohns  #chronicillness  #autoimmune  #crohnswarrior  #ucwarrior  #blondehair  #haircreations  #saulinosalon 
Went shopping having not eaten enough today and thought I might actually faint ๐Ÿ˜… so ended up walking slowly home in the rain with a @upandgouk drink ๐Ÿ™ˆ

#IBDSuperHeroes #Colitis #IBD #Jpouch #Pouchitis #UlcerativeColitis #CureIBD #NoColonStillRollin #IBDVisible #IBDLife #IBDAwareness #InflammatoryBowelDisease #IBDSucks #IBDWarrior #IBDProblems #FlareDay #IBDFighter #IBDSelfie #IBDResearch #IBDCantStopMe #IBDStrong #IBDPetPeeves #AutoimmuneDisease #ChronicIllness #InvisibleIllness #Spoonie #Autoimmuneย #CrohnsDisease #Crohns
Went shopping having not eaten enough today and thought I might actually faint ๐Ÿ˜… so ended up walking slowly home in the rain with a @upandgouk drink ๐Ÿ™ˆ #IBDSuperHeroes  #Colitis  #IBD  #Jpouch  #Pouchitis  #UlcerativeColitis  #CureIBD  #NoColonStillRollin  #IBDVisible  #IBDLife  #IBDAwareness  #InflammatoryBowelDisease  #IBDSucks  #IBDWarrior  #IBDProblems  #FlareDay  #IBDFighter  #IBDSelfie  #IBDResearch  #IBDCantStopMe  #IBDStrong  #IBDPetPeeves  #AutoimmuneDisease  #ChronicIllness  #InvisibleIllness  #Spoonie  #Autoimmune ย #CrohnsDisease  #Crohns 
#Repost @sahara88uk
โ€ข โ€ข โ€ข
#ChronicFatigue stole 16 months of my life. 16 months I can never get back or make up for ๐Ÿ˜ข
Make the most of the days you can get shit done, because you never know when the wall is going to hit!

#IBDSuperHeroes #Colitis #IBD #Jpouch #Pouchitis #UlcerativeColitis #CureIBD #NoColonStillRollin #IBDVisible #IBDLife #IBDAwareness #InflammatoryBowelDisease #IBDSucks #IBDWarrior #IBDProblems #FlareDay #IBDFighter #IBDSelfie #IBDResearch #ChronicIllness #Spoonieย  #CrohnsDisease #Crohns

Shared from @paigecrowtherx: My life in a picture.. time to get some ๐Ÿ’ค as I never got any last night ๐Ÿ˜–

#ostomy #stoma #ostomylife #chronicillness
#Repost  @sahara88uk โ€ข โ€ข โ€ข #ChronicFatigue  stole 16 months of my life. 16 months I can never get back or make up for ๐Ÿ˜ข Make the most of the days you can get shit done, because you never know when the wall is going to hit! #IBDSuperHeroes  #Colitis  #IBD  #Jpouch  #Pouchitis  #UlcerativeColitis  #CureIBD  #NoColonStillRollin  #IBDVisible  #IBDLife  #IBDAwareness  #InflammatoryBowelDisease  #IBDSucks  #IBDWarrior  #IBDProblems  #FlareDay  #IBDFighter  #IBDSelfie  #IBDResearch  #ChronicIllness  #Spoonie ย  #CrohnsDisease  #Crohns  Shared from @paigecrowtherx: My life in a picture.. time to get some ๐Ÿ’ค as I never got any last night ๐Ÿ˜– #ostomy  #stoma  #ostomylife  #chronicillness 
Things people don't usually talk about - highs and lows of upcoming #surgery: http://sahara88uk.blogspot.co.uk/2018/04/things-people-dont-usually-talk-about.html
I wrote this only yesterday, straight after receiving an email from my #IBD nurse. I am pleased to say that within a few hours, I did feel calmer. I have no doubt that between now, seeing the surgeon and the surgery actually happening, I will experience many highs and lows as I consider my future.
#Blog link in bio 
#IBDSuperHeroes #Colitis #IBD #Jpouch #Pouchitis #UlcerativeColitis #CureIBD #NoColonStillRollin #IBDVisible #IBDLife #IBDAwareness #InflammatoryBowelDisease #IBDSucks #IBDWarrior #IBDProblems #FlareDay #IBDFighter #IBDSelfie #IBDResearch #ChronicIllness #InvisibleIllness #Spoonieย  #CrohnsDisease #Crohns #IBDblog #ColitisBlog
Things people don't usually talk about - highs and lows of upcoming #surgery : http://sahara88uk.blogspot.co.uk/2018/04/things-people-dont-usually-talk-about.html I wrote this only yesterday, straight after receiving an email from my #IBD  nurse. I am pleased to say that within a few hours, I did feel calmer. I have no doubt that between now, seeing the surgeon and the surgery actually happening, I will experience many highs and lows as I consider my future. #Blog  link in bio #IBDSuperHeroes  #Colitis  #IBD  #Jpouch  #Pouchitis  #UlcerativeColitis  #CureIBD  #NoColonStillRollin  #IBDVisible  #IBDLife  #IBDAwareness  #InflammatoryBowelDisease  #IBDSucks  #IBDWarrior  #IBDProblems  #FlareDay  #IBDFighter  #IBDSelfie  #IBDResearch  #ChronicIllness  #InvisibleIllness  #Spoonie ย  #CrohnsDisease  #Crohns  #IBDblog  #ColitisBlog 
The grind never stops!! Letโ€™s keep fucking shit up this whole week whether itโ€™s a bad or good day ๐ŸคŸ๐Ÿฝ we only live once make everyday count !! .
.
.
.
.
#fitfam#fitness#dietmode#noexcuses#fitspo#follow#lafitness#summershredding#weightlifting#bodybuilding#fitgoals#focus#nocolonstillrollin#jpouch#texas
Days in hospital was awful. I still remember the day my bf had the 1. surgery. It lasted for more than 6 hours. I was having a business workshop during the whole week when he had the surgery. I was very nervous the whole day, didn't finish my part of presentation for group work in time and was blamed by the group members, still I didn't talk about my situation and finished the last part then rushed to hospital. 
As I opened the door I saw a swollened man, strengthless lying on the bed, waiting my visit. I watched a lot of pics online before his surgery to see what stoma was, what it looked like. I have to say that was the right decision coz when it happened, that I had to watch his stoma or condition after the surgery, I didn't feel that awful as I feared. I accepted it very quickly, comforted him and then had to rush back home according to the visit time limitation. Worked on my project till midnight and then continued my workshop the next day. The whole week went on like this. I was like an robot the whole time. 
To some extent I am thankful that  the workshop was in that week coz without it, I don't know if I would go crazy if my focus was only on him. Luckily he was well taken care of, but still spent 14 days in the hospital. 
I guess I, we, will never forget this experience, despite all the sorrows and fears, we still sticked together, tried to make each other comfortable and gave each other as many comforts as we could. After all, only light can blow darkness away, and we must choose the brightness.
#stoma #stomy #surgery #ulceratovecolitispartner #ulcerativecolitisproblems #ulcerativecolitis #ibdawareness #ibd #jpouch #crohns #crohndisease #partnerwithdisease #pancolitis #nocolon
Days in hospital was awful. I still remember the day my bf had the 1. surgery. It lasted for more than 6 hours. I was having a business workshop during the whole week when he had the surgery. I was very nervous the whole day, didn't finish my part of presentation for group work in time and was blamed by the group members, still I didn't talk about my situation and finished the last part then rushed to hospital. As I opened the door I saw a swollened man, strengthless lying on the bed, waiting my visit. I watched a lot of pics online before his surgery to see what stoma was, what it looked like. I have to say that was the right decision coz when it happened, that I had to watch his stoma or condition after the surgery, I didn't feel that awful as I feared. I accepted it very quickly, comforted him and then had to rush back home according to the visit time limitation. Worked on my project till midnight and then continued my workshop the next day. The whole week went on like this. I was like an robot the whole time. To some extent I am thankful that the workshop was in that week coz without it, I don't know if I would go crazy if my focus was only on him. Luckily he was well taken care of, but still spent 14 days in the hospital. I guess I, we, will never forget this experience, despite all the sorrows and fears, we still sticked together, tried to make each other comfortable and gave each other as many comforts as we could. After all, only light can blow darkness away, and we must choose the brightness. #stoma  #stomy  #surgery  #ulceratovecolitispartner  #ulcerativecolitisproblems  #ulcerativecolitis  #ibdawareness  #ibd  #jpouch  #crohns  #crohndisease  #partnerwithdisease  #pancolitis  #nocolon 
#WorldIBDday is coming!!! Help us raise awareness and provide support to those affected by inflammatory bowel disease (Crohn's Disease & Ulcerative Colitis) by stocking up on some @getyourbellyout_official
merchandise ๐Ÿ˜Š ๐Ÿ›๏ธWrist bands, keyrings, pens, badges, bobble hats, wedding favours & more are all available from our #GetYourBellyOut store!
๐Ÿ‘‡๐Ÿ‘‡
https://www.GetYourBellyOut.org.uk/shop

#crohns #colitis #IBD #ostomy #crohnsdisease #ulcerativecolitis #jpouch #InflammatoryBowelDisease #ibdawareness #ibdwarrior #curecrohns #curecolitis #crohnsandcolitisuk #crohnsawareness #colitisawareness #spoonie #spoonieproblems #inflammation #social #socialmedia
#WorldIBDday  is coming!!! Help us raise awareness and provide support to those affected by inflammatory bowel disease (Crohn's Disease & Ulcerative Colitis) by stocking up on some @getyourbellyout_official merchandise ๐Ÿ˜Š ๐Ÿ›๏ธWrist bands, keyrings, pens, badges, bobble hats, wedding favours & more are all available from our #GetYourBellyOut  store! ๐Ÿ‘‡๐Ÿ‘‡ https://www.GetYourBellyOut.org.uk/shop #crohns  #colitis  #IBD  #ostomy  #crohnsdisease  #ulcerativecolitis  #jpouch  #InflammatoryBowelDisease  #ibdawareness  #ibdwarrior  #curecrohns  #curecolitis  #crohnsandcolitisuk  #crohnsawareness  #colitisawareness  #spoonie  #spoonieproblems  #inflammation  #social  #socialmedia 
#ChronicFatigue stole 16 months of my life. 16 months I can never get back or make up for ๐Ÿ˜ข
Make the most of the days you can get shit done, because you never know when the wall is going to hit!

#IBDSuperHeroes #Colitis #IBD #Jpouch #Pouchitis #UlcerativeColitis #CureIBD #NoColonStillRollin #IBDVisible #IBDLife #IBDAwareness #InflammatoryBowelDisease #IBDSucks #IBDWarrior #IBDProblems #FlareDay #IBDFighter #IBDSelfie #IBDResearch #ChronicIllness #Spoonieย  #CrohnsDisease #Crohns

Shared from @paigecrowtherx: My life in a picture.. time to get some ๐Ÿ’ค as I never got any last night ๐Ÿ˜–

#ostomy #stoma #ostomylife #chronicillness
#ChronicFatigue  stole 16 months of my life. 16 months I can never get back or make up for ๐Ÿ˜ข Make the most of the days you can get shit done, because you never know when the wall is going to hit! #IBDSuperHeroes  #Colitis  #IBD  #Jpouch  #Pouchitis  #UlcerativeColitis  #CureIBD  #NoColonStillRollin  #IBDVisible  #IBDLife  #IBDAwareness  #InflammatoryBowelDisease  #IBDSucks  #IBDWarrior  #IBDProblems  #FlareDay  #IBDFighter  #IBDSelfie  #IBDResearch  #ChronicIllness  #Spoonie ย  #CrohnsDisease  #Crohns  Shared from @paigecrowtherx: My life in a picture.. time to get some ๐Ÿ’ค as I never got any last night ๐Ÿ˜– #ostomy  #stoma  #ostomylife  #chronicillness 
In the process of trying to get my shit together so I can go for surgery this year with no stress to come out to!
This has involves getting everything bought and paid for that needed sorting this year and then saving up so I can pay the bills while I'm off work.
Things started well but have gone a little pear shaped from there ๐Ÿ˜‚
Couldn't find a tv stand like I wanted. Lady at work was getting rid of one in the wrong colour, but was solid wood so the plan was to sand and stain it. Accidently bought gloss which we didn't realise until we painted the whole thing and the shine didn't dissapear when dry ๐Ÿ˜… that was then scraped off, now it has dents in and looks old a crappy ๐Ÿ˜‘ but it's ready to stained now WITHOUT gloss ๐ŸŽ‰ and the shit bit will actually be covered by the TV anyway so... "meh".
Ordered washer dryer. To be delivered 2 Sundays ago. Sold mine the Saturday, then realised I actually ordered it for a whole month away - May. So, that was cancelled because the earliest it could come was 3 wks and 2 days time. Ordered a different one which came last Thursday. Only, this shit heap is fucked and the dryer doesn't work, and my towels came out dripping wet after the drain and spin... So tomorrow an exchange is happening for a completely different one again.
The bed came yesterday. So far, so good! No issues are apparent yet (touch wood). Other than the fact it's really low and will be hard so get out of straight after surgery. I know this because I've had 6 over the last few years and have had a low bed and a high bed during that time.
Hopefully, by the end of the week the TV stand will be finished and a working washer dryer will be in place so the only thing I need to focus on now is saving pennies!
#IBDSuperHeroes #Colitis #IBD #Jpouch #Pouchitis #UlcerativeColitis #CureIBD #NoColonStillRollin #IBDVisible #IBDLife #IBDAwareness #InflammatoryBowelDisease #IBDSucks #IBDWarrior #IBDProblems #FlareDay #IBDFighter #IBDSelfie #IBDResearch #IBDCantStopMe #IBDStrong #AutoimmuneDisease #ChronicIllness #InvisibleIllness #Spoonieย  #CrohnsDisease #Crohns
In the process of trying to get my shit together so I can go for surgery this year with no stress to come out to! This has involves getting everything bought and paid for that needed sorting this year and then saving up so I can pay the bills while I'm off work. Things started well but have gone a little pear shaped from there ๐Ÿ˜‚ Couldn't find a tv stand like I wanted. Lady at work was getting rid of one in the wrong colour, but was solid wood so the plan was to sand and stain it. Accidently bought gloss which we didn't realise until we painted the whole thing and the shine didn't dissapear when dry ๐Ÿ˜… that was then scraped off, now it has dents in and looks old a crappy ๐Ÿ˜‘ but it's ready to stained now WITHOUT gloss ๐ŸŽ‰ and the shit bit will actually be covered by the TV anyway so... "meh". Ordered washer dryer. To be delivered 2 Sundays ago. Sold mine the Saturday, then realised I actually ordered it for a whole month away - May. So, that was cancelled because the earliest it could come was 3 wks and 2 days time. Ordered a different one which came last Thursday. Only, this shit heap is fucked and the dryer doesn't work, and my towels came out dripping wet after the drain and spin... So tomorrow an exchange is happening for a completely different one again. The bed came yesterday. So far, so good! No issues are apparent yet (touch wood). Other than the fact it's really low and will be hard so get out of straight after surgery. I know this because I've had 6 over the last few years and have had a low bed and a high bed during that time. Hopefully, by the end of the week the TV stand will be finished and a working washer dryer will be in place so the only thing I need to focus on now is saving pennies! #IBDSuperHeroes  #Colitis  #IBD  #Jpouch  #Pouchitis  #UlcerativeColitis  #CureIBD  #NoColonStillRollin  #IBDVisible  #IBDLife  #IBDAwareness  #InflammatoryBowelDisease  #IBDSucks  #IBDWarrior  #IBDProblems  #FlareDay  #IBDFighter  #IBDSelfie  #IBDResearch  #IBDCantStopMe  #IBDStrong  #AutoimmuneDisease  #ChronicIllness  #InvisibleIllness  #Spoonie ย  #CrohnsDisease  #Crohns 
๐Ÿ“…๐Ÿ“…๐Ÿ“…โœโœโœ.
These 4 are part of the @420_support_group family in one way or another ๐Ÿ…๐Ÿ…๐Ÿ…๐Ÿ…๐Ÿ†, which include 
@pot_brothers_at_law 
@wasslawdog @wasslaw @jcures @jp_bhomb @westcoastcure_ @westcoastcurebhomb_ 
@drzodiak @drmoonrock @moonrocksog @holysmokescrafts ๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ’ฏ๐Ÿ’ฏ๐Ÿ’ฏ.
Event's โฌ‡๏ธโฌ‡๏ธโฌ‡๏ธโฌ‡๏ธ
@licensing_ubm
@xtravaganja_ 
@dle_california 
@unitemusicfestival 
@reggaesplashsd 
@freestyle.concert 
@wegotitsesh 
@renaissancepleasurefaire 
#boneprone201 #420supportgroup #colonless #osteoarthritis #osteoporosis #jpouch #patientshelpingpatients #crohnsdiease #liverdisease #nursenavigator #pouchitis #wegotitsesh #freestyleconcert #reggaesplashsd 
#unitemusicfestival 
#xtravaganja 
#potbrothersatlaw #moonrocks
#drzodiac #westcoastcure 
#holysmokescrafts
๐Ÿ“…๐Ÿ“…๐Ÿ“…โœโœโœ. These 4 are part of the @420_support_group family in one way or another ๐Ÿ…๐Ÿ…๐Ÿ…๐Ÿ…๐Ÿ†, which include @pot_brothers_at_law @wasslawdog @wasslaw @jcures @jp_bhomb @westcoastcure_ @westcoastcurebhomb_ @drzodiak @drmoonrock @moonrocksog @holysmokescrafts ๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ’ฏ๐Ÿ’ฏ๐Ÿ’ฏ. Event's โฌ‡๏ธโฌ‡๏ธโฌ‡๏ธโฌ‡๏ธ @licensing_ubm @xtravaganja_ @dle_california @unitemusicfestival @reggaesplashsd @freestyle.concert @wegotitsesh @renaissancepleasurefaire #boneprone201  #420supportgroup  #colonless  #osteoarthritis  #osteoporosis  #jpouch  #patientshelpingpatients  #crohnsdiease  #liverdisease  #nursenavigator  #pouchitis  #wegotitsesh  #freestyleconcert  #reggaesplashsd  #unitemusicfestival  #xtravaganja  #potbrothersatlaw  #moonrocks  #drzodiac  #westcoastcure  #holysmokescrafts 
30 pound difference โ€”โ€”Roughly 2 years between photos. 3 surgeries later, ileostomy bag, no colon, no rectum, countless procedures later. What you donโ€™t see are the gallons of tears that were cried out of pain, you donโ€™t see the depression, you donโ€™t see the hopelessness feelings I had everyday, you donโ€™t see the anger because I had lost so much weight, anger that this was happening to me. You donโ€™t see the guilt for having to miss things with my kids or not being able to sign them up for activities because mommy couldnโ€™t take them or go to games. However both pictures were taken in a gym. I wanted so badly to give up. So many damn times. I thought what was the point anymore? I had fought so hard for 10 years battling my own body. I was so exhausted... mentally & physically. I was just over it. All of it. Thankfully there were people in my life that kept me pushing forward, people who believed in me, people who taught me new things, people who gave me something to look forward to in the gym. There are no words to explain how hard it was to get in the gym and push hard when I was already depressed and exhausted. I HAVE BEEN AT ROCK BOTTOM yโ€™all. I KNOW what itโ€™s like. I just got in there everyday no matter what. You can do the same! I was a quitter my whole life.... I never tried anything hard. I wanted easy. My illness and my struggle gave me a strength I never knew existed. Iโ€™m thankful for the depression, the anger, the pain. It brought me a completely new outlook on life and I needed that. Keep pushing yโ€™all... everything you want is on the other side. The ONLY way to get through it is to go through it. โ™ฅ๏ธ๐Ÿ’ช๐Ÿผ
30 pound difference โ€”โ€”Roughly 2 years between photos. 3 surgeries later, ileostomy bag, no colon, no rectum, countless procedures later. What you donโ€™t see are the gallons of tears that were cried out of pain, you donโ€™t see the depression, you donโ€™t see the hopelessness feelings I had everyday, you donโ€™t see the anger because I had lost so much weight, anger that this was happening to me. You donโ€™t see the guilt for having to miss things with my kids or not being able to sign them up for activities because mommy couldnโ€™t take them or go to games. However both pictures were taken in a gym. I wanted so badly to give up. So many damn times. I thought what was the point anymore? I had fought so hard for 10 years battling my own body. I was so exhausted... mentally & physically. I was just over it. All of it. Thankfully there were people in my life that kept me pushing forward, people who believed in me, people who taught me new things, people who gave me something to look forward to in the gym. There are no words to explain how hard it was to get in the gym and push hard when I was already depressed and exhausted. I HAVE BEEN AT ROCK BOTTOM yโ€™all. I KNOW what itโ€™s like. I just got in there everyday no matter what. You can do the same! I was a quitter my whole life.... I never tried anything hard. I wanted easy. My illness and my struggle gave me a strength I never knew existed. Iโ€™m thankful for the depression, the anger, the pain. It brought me a completely new outlook on life and I needed that. Keep pushing yโ€™all... everything you want is on the other side. The ONLY way to get through it is to go through it. โ™ฅ๏ธ๐Ÿ’ช๐Ÿผ
Looky looky, Iโ€™m outside!! I wasnโ€™t going to do much exercising today since I raced yesterday, but it was just so pretty out! And the weather report says rain the next three days sooooo I just HAD to go on the trail. I was going to keep it small, maybe 1.5 or 2 miles, but I ended up with 3.67 miles. The breeze was just so nice, I didnโ€™t want to stop! I love running when thereโ€™s a gentle breeze. Itโ€™s like running with a personal fan! ๐Ÿ˜‚ There were lots of chattering animals, some moody Canada geese (as usual) and a deer. And so many people for a Monday! I guess everyone was excited to get out and enjoy the breezy sun. All that sun and fresh air wiped me out. Iโ€™m still not used to it! ...Yet! Canโ€™t wait til my next trail run! ๐Ÿ™Œ๐Ÿผ Night, peeps!
Looky looky, Iโ€™m outside!! I wasnโ€™t going to do much exercising today since I raced yesterday, but it was just so pretty out! And the weather report says rain the next three days sooooo I just HAD to go on the trail. I was going to keep it small, maybe 1.5 or 2 miles, but I ended up with 3.67 miles. The breeze was just so nice, I didnโ€™t want to stop! I love running when thereโ€™s a gentle breeze. Itโ€™s like running with a personal fan! ๐Ÿ˜‚ There were lots of chattering animals, some moody Canada geese (as usual) and a deer. And so many people for a Monday! I guess everyone was excited to get out and enjoy the breezy sun. All that sun and fresh air wiped me out. Iโ€™m still not used to it! ...Yet! Canโ€™t wait til my next trail run! ๐Ÿ™Œ๐Ÿผ Night, peeps!
๐Ÿ“…๐Ÿ“…๐Ÿ“…โœโœโœ.
@wegotitlounge 
@wegotitsesh 
@thekayafest 
@cbdexpo 
#petexpo 
@movidaoils 
@joejoentertainment 
@theseshsandiego 
@laxsesh 
@irwindalespeedway 
@executivekushlounge 
@thedoobiesesh 
@wfwp_sd 
@thefarmersmarket_ 
#boneprone201 #420supportgroup #colonless #osteoarthritis #osteoporosis #jpouch #patientshelpingpatients #crohnsdiease #liverdisease #nursenavigator #pouchitis #wfwsd
#thedoobiesesh
#thefarmersmarket
#irwindalespeedway 
#laxsesh
#thekayafest
#cbdexpo
#wegotitsesh #therollupshow
๐Ÿ“…๐Ÿ“…๐Ÿ“…โœโœโœ. @wegotitlounge @wegotitsesh @thekayafest @cbdexpo #petexpo  @movidaoils @joejoentertainment @theseshsandiego @laxsesh @irwindalespeedway @executivekushlounge @thedoobiesesh @wfwp_sd @thefarmersmarket_ #boneprone201  #420supportgroup  #colonless  #osteoarthritis  #osteoporosis  #jpouch  #patientshelpingpatients  #crohnsdiease  #liverdisease  #nursenavigator  #pouchitis  #wfwsd  #thedoobiesesh  #thefarmersmarket  #irwindalespeedway  #laxsesh  #thekayafest  #cbdexpo  #wegotitsesh  #therollupshow 
A cracking weekend in Vienna! I had a target of going under 4hrs but after the first 5k I knew that was never ever gonna happen. It was waaay too hot!! ๐Ÿ”ฅ๐Ÿ”ฅ I saw a lot of people collapsing or passed out in the Schรถnbrunn area (10-15km ish) and figured Iโ€™d just enjoy the scenery and make sure I finished. My time in the end was 4hrs 53mins 06secs. Which is a fair bit down on a PB but Iโ€™m just glad I did finish!  Btw the scenery was incredible. Vienna really is a beautiful city, especially in the sunshine. Super happy to pick up my medal in front of the Rathaus and collect my second one from Amelia when I got back ๐Ÿ˜‚๐Ÿ˜‚
Huge thanks to everyone who has supported me with sponsorship and/or words of encouragement on social media or in person. You guys made a big difference! Also, huge thanks to those guys that were at the course supporting, completely amazing! Thanks to Julia and Benedikt for the fantastic pre-race spaghetti too ๐Ÿ๐Ÿ‘Œ๐Ÿฝ
BrumFam for looking after our kids for the weekend so we could actually go. Check out Matti and Amelia Do Stuff on here if you want to see what they got up to.
Finally an enormous thank you to my fantastic wife and mother-in-law who did the โ€œU-Bahn marathonโ€ and were there to cheer every 10k. On their feet all day in the hot sun and riding the super busy underground all day to make sure they were there to catch me go past. ๐Ÿ˜˜
#ileum4eva @vienna_city_marathon #marathon #run #running #medalmonday #travel #vienna #beautifulcity @crohnsandcolitisuk #ulcerativecolitis #crohnsdisease #ibd #stoma #jpouch #nocolonstillrollin
A cracking weekend in Vienna! I had a target of going under 4hrs but after the first 5k I knew that was never ever gonna happen. It was waaay too hot!! ๐Ÿ”ฅ๐Ÿ”ฅ I saw a lot of people collapsing or passed out in the Schรถnbrunn area (10-15km ish) and figured Iโ€™d just enjoy the scenery and make sure I finished. My time in the end was 4hrs 53mins 06secs. Which is a fair bit down on a PB but Iโ€™m just glad I did finish! Btw the scenery was incredible. Vienna really is a beautiful city, especially in the sunshine. Super happy to pick up my medal in front of the Rathaus and collect my second one from Amelia when I got back ๐Ÿ˜‚๐Ÿ˜‚ Huge thanks to everyone who has supported me with sponsorship and/or words of encouragement on social media or in person. You guys made a big difference! Also, huge thanks to those guys that were at the course supporting, completely amazing! Thanks to Julia and Benedikt for the fantastic pre-race spaghetti too ๐Ÿ๐Ÿ‘Œ๐Ÿฝ BrumFam for looking after our kids for the weekend so we could actually go. Check out Matti and Amelia Do Stuff on here if you want to see what they got up to. Finally an enormous thank you to my fantastic wife and mother-in-law who did the โ€œU-Bahn marathonโ€ and were there to cheer every 10k. On their feet all day in the hot sun and riding the super busy underground all day to make sure they were there to catch me go past. ๐Ÿ˜˜ #ileum4eva  @vienna_city_marathon #marathon  #run  #running  #medalmonday  #travel  #vienna  #beautifulcity  @crohnsandcolitisuk #ulcerativecolitis  #crohnsdisease  #ibd  #stoma  #jpouch  #nocolonstillrollin 
LOVE this ๐Ÿ’œ๐Ÿ’œ #IBDSuperHeroes share - @theincompleteathlete:
โ€œYouโ€™ve been assigned this mountain to show others it can be moved.โ€
โœจ
This is one of my favorite quotes about suffering, but I never thought Iโ€™d get to a point in my journey where itโ€™d apply to me.
โœจ
For a long time I viewed myself as a victim. Iโ€™d ask, why me? This life isnโ€™t fair. But slowly, over many years, Iโ€™ve shifted my perception. The way in which we perceive each situation in our lives ultimately shapes our reality. By learning to shift our perception, it becomes very possible to create a brighter reality for ourselves.
โœจ
Iโ€™m now proud of how my life has unfolded. I am proud of my suffering. And I am proud of my scars. โœจ
Even though I prefer to climb my mountains instead of move them, Iโ€™ve learned that no matter how your life unfolds or how incredibly challenging your battles are, your situation can always be used to help others. Warriors, keep fighting the good fight, for your fight may light a way in someoneโ€™s else life. Just the slightest glimpse into your world can give someone else a huge glimmer of hope. โœจ
And that, I believe, is worth fighting for! โœจ
Happy Monday! ๐Ÿ’œ๐Ÿ’œ
.
#mondaymotivation #perception #crohnswarrior #fucrohns #uc #ulcerativecolitis #crohns #jpouch #nocolonstillrollin #jpouchlife #mtnbike #mtnbikegirl #cycling #psroiasiswarrior #autoimmune #invisibleillness #ibdsuperheroes #ibd #spoonie #chronicillness #psoriasis #getyourskinout #whistler #whistlerbikepark #mtblife #crohnsdisease #santacruzbicycles #psoriaticarthritis
LOVE this ๐Ÿ’œ๐Ÿ’œ #IBDSuperHeroes  share - @theincompleteathlete: โ€œYouโ€™ve been assigned this mountain to show others it can be moved.โ€ โœจ This is one of my favorite quotes about suffering, but I never thought Iโ€™d get to a point in my journey where itโ€™d apply to me. โœจ For a long time I viewed myself as a victim. Iโ€™d ask, why me? This life isnโ€™t fair. But slowly, over many years, Iโ€™ve shifted my perception. The way in which we perceive each situation in our lives ultimately shapes our reality. By learning to shift our perception, it becomes very possible to create a brighter reality for ourselves. โœจ Iโ€™m now proud of how my life has unfolded. I am proud of my suffering. And I am proud of my scars. โœจ Even though I prefer to climb my mountains instead of move them, Iโ€™ve learned that no matter how your life unfolds or how incredibly challenging your battles are, your situation can always be used to help others. Warriors, keep fighting the good fight, for your fight may light a way in someoneโ€™s else life. Just the slightest glimpse into your world can give someone else a huge glimmer of hope. โœจ And that, I believe, is worth fighting for! โœจ Happy Monday! ๐Ÿ’œ๐Ÿ’œ . #mondaymotivation  #perception  #crohnswarrior  #fucrohns  #uc  #ulcerativecolitis  #crohns  #jpouch  #nocolonstillrollin  #jpouchlife  #mtnbike  #mtnbikegirl  #cycling  #psroiasiswarrior  #autoimmune  #invisibleillness  #ibdsuperheroes  #ibd  #spoonie  #chronicillness  #psoriasis  #getyourskinout  #whistler  #whistlerbikepark  #mtblife  #crohnsdisease  #santacruzbicycles  #psoriaticarthritis 
I'm all over #MarvelouslyMoodyMonday today...
I've felt like absolute shite from the second I got up. I intended not to nap because my friend is coming later but now I'm home, the call of my bed and pillow is just too loud.
Over and out ๐Ÿ‘‹
- @sahara88uk
#IBDSuperHeroes #Colitis #IBD #Jpouch #Pouchitis #UlcerativeColitis #CureIBD #NoColonStillRollin #IBDVisible #IBDLife #IBDAwareness #InflammatoryBowelDisease #IBDSucks #IBDWarrior #IBDProblems #FlareDay #IBDFighter #IBDSelfie #IBDResearch #IBDCantStopMe #IBDStrong #Fatigue #AutoimmuneDisease #ChronicIllness #InvisibleIllness #Spoonieย #CrohnsDisease #Crohns
I'm all over #MarvelouslyMoodyMonday  today... I've felt like absolute shite from the second I got up. I intended not to nap because my friend is coming later but now I'm home, the call of my bed and pillow is just too loud. Over and out ๐Ÿ‘‹ - @sahara88uk #IBDSuperHeroes  #Colitis  #IBD  #Jpouch  #Pouchitis  #UlcerativeColitis  #CureIBD  #NoColonStillRollin  #IBDVisible  #IBDLife  #IBDAwareness  #InflammatoryBowelDisease  #IBDSucks  #IBDWarrior  #IBDProblems  #FlareDay  #IBDFighter  #IBDSelfie  #IBDResearch  #IBDCantStopMe  #IBDStrong  #Fatigue  #AutoimmuneDisease  #ChronicIllness  #InvisibleIllness  #Spoonie ย #CrohnsDisease  #Crohns 
10 days ๐Ÿ’Š๐Ÿ’‰๐Ÿฅ!!!! I received confirmation that my next operation will be Thursday 3rd May 2018! 
I am so ready for the next step, it means I'm one step closer to getting my life back on track! One step closer to having a J-pouch. One step closer to pursuing my dream job. One step closer to feeling healthy again. 
Since day one after my last op I've been living with a major flare up. It hasn't responded to any treatment and it's made me feel awful all year... it's also made me anemic! So thankfully my next operation will remove the remaining inflammation and create a j-pouch, then we'll be looking to start iron infusions to treat the anemia. The doctors are more than confident that the anemia will be sorted out in no time ๐Ÿ‘Œ

If you have any essentials for your stay in hospital let me know! I didn't get a chance to plan out or prepare for my last stay, so I want be prepared this time!

#ibdfreedom #ibd #ibdawareness #inflammatoryboweldisease #ibdwarrior #colitis #UlcerativeColitis #UC #Crohns #crohnsandcolitis #spoonie #invisibleillness #chronicillness #chronicpain #health #jpouch #ileostomy #ostomate #raiseawareness #nocolonstillrollin 
#operation #surgery #hospital #preop #nhs #anemia #excited #nextstep
10 days ๐Ÿ’Š๐Ÿ’‰๐Ÿฅ!!!! I received confirmation that my next operation will be Thursday 3rd May 2018! I am so ready for the next step, it means I'm one step closer to getting my life back on track! One step closer to having a J-pouch. One step closer to pursuing my dream job. One step closer to feeling healthy again. Since day one after my last op I've been living with a major flare up. It hasn't responded to any treatment and it's made me feel awful all year... it's also made me anemic! So thankfully my next operation will remove the remaining inflammation and create a j-pouch, then we'll be looking to start iron infusions to treat the anemia. The doctors are more than confident that the anemia will be sorted out in no time ๐Ÿ‘Œ If you have any essentials for your stay in hospital let me know! I didn't get a chance to plan out or prepare for my last stay, so I want be prepared this time! #ibdfreedom  #ibd  #ibdawareness  #inflammatoryboweldisease  #ibdwarrior  #colitis  #UlcerativeColitis  #UC  #Crohns  #crohnsandcolitis  #spoonie  #invisibleillness  #chronicillness  #chronicpain  #health  #jpouch  #ileostomy  #ostomate  #raiseawareness  #nocolonstillrollin  #operation  #surgery  #hospital  #preop  #nhs  #anemia  #excited  #nextstep 
Post op day 4 maybe getting out of UCSD hospital today! #warrior #crohns #ulcerativecolitis #jpouch #surgery #ileostomy
Haha PREDNISONE! Makes me feel just like this sometimes! Haha who else ? ๐Ÿ˜๐Ÿ˜‚ #ankylosingspondylitis  #arthritis  #pancolitis #colitis  #autoimmunedisease #autoimmune #jpouch #nocolonstillrollin #prednisone #prednisonerage
Good morning ๐ŸŒž๐ŸŒž, after a 420 weekend โ™จ๏ธ.
I stayed around home and spent time with family and saved money I don't have ๐Ÿ˜‰.
This week, I'll be pretty quiet, while working behind the scenes ๐ŸŽฌ to move our @420_support_group
With @cannabis_nurse_navigator to the next level ๐Ÿ’ผ๐Ÿ’ผ. Along with scheduling meetings, Events and doctors appointments ๐Ÿ“…๐Ÿ“…โœโœ.
And I'm also working on putting material together for the new and improved  website that will be relaunched shortly โŒ›โณ๐Ÿ’ป.
Www.420supportgroup.com
420supportgroup.net 
420supportgroup.org
Stay tuned ๐Ÿ“ข๐Ÿ“ฃ.
With the help of some special people ๐Ÿ™๐Ÿ™๐Ÿ’–๐Ÿ’–๐Ÿ’–๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ.
Also, you need a confirmation number ## before you are confirmed for a seat at our next 420 support group patient meeting on May 20th from 1-430ish in Santee, San Diego ๐ŸŒŠ๐ŸŒŠ.
And blessed by @greengoldlounge @dabber_mcgavin @greengoldfarm
For continuing to support us with a amazing location ๐Ÿ‘๐Ÿ‘๐Ÿ’–๐Ÿ’–๐Ÿ’–.
Also,  coming for your donations soon ๐Ÿคฉ๐Ÿคฉ.
#boneprone201 #420supportgroup #colonless #osteoarthritis #osteoporosis #jpouch #patientshelpingpatients #crohnsdiease #liverdisease #nursenavigator #pouchitis #greengoldlounge
Good morning ๐ŸŒž๐ŸŒž, after a 420 weekend โ™จ๏ธ. I stayed around home and spent time with family and saved money I don't have ๐Ÿ˜‰. This week, I'll be pretty quiet, while working behind the scenes ๐ŸŽฌ to move our @420_support_group With @cannabis_nurse_navigator to the next level ๐Ÿ’ผ๐Ÿ’ผ. Along with scheduling meetings, Events and doctors appointments ๐Ÿ“…๐Ÿ“…โœโœ. And I'm also working on putting material together for the new and improved website that will be relaunched shortly โŒ›โณ๐Ÿ’ป. Www.420supportgroup.com 420supportgroup.net 420supportgroup.org Stay tuned ๐Ÿ“ข๐Ÿ“ฃ. With the help of some special people ๐Ÿ™๐Ÿ™๐Ÿ’–๐Ÿ’–๐Ÿ’–๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ. Also, you need a confirmation number ## before you are confirmed for a seat at our next 420 support group patient meeting on May 20th from 1-430ish in Santee, San Diego ๐ŸŒŠ๐ŸŒŠ. And blessed by @greengoldlounge @dabber_mcgavin @greengoldfarm For continuing to support us with a amazing location ๐Ÿ‘๐Ÿ‘๐Ÿ’–๐Ÿ’–๐Ÿ’–. Also, coming for your donations soon ๐Ÿคฉ๐Ÿคฉ. #boneprone201  #420supportgroup  #colonless  #osteoarthritis  #osteoporosis  #jpouch  #patientshelpingpatients  #crohnsdiease  #liverdisease  #nursenavigator  #pouchitis  #greengoldlounge 
Good morning ๐ŸŒž๐ŸŒž, after a 420 weekend โ™จ๏ธ.
I stayed around home and spent time with family and saved money I don't have ๐Ÿ˜‰.
This week, I'll be pretty quiet, while working behind the scenes ๐ŸŽฌ to move our @420_support_group
With @cannabis_nurse_navigator to the next level ๐Ÿ’ผ๐Ÿ’ผ. Along with scheduling meetings, Events and doctors appointments ๐Ÿ“…๐Ÿ“…โœโœ.
And I'm also working on putting material together for the new and improved  website that will be relaunched shortly โŒ›โณ๐Ÿ’ป.
Www.420supportgroup.com
420supportgroup.net 
420supportgroup.org
Stay tuned ๐Ÿ“ข๐Ÿ“ฃ.
With the help of some special people ๐Ÿ™๐Ÿ™๐Ÿ’–๐Ÿ’–๐Ÿ’–๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ.
Also, you need a confirmation number ## before you are confirmed for a seat at our next 420 support group patient meeting on May 20th from 1-430ish in Santee, San Diego ๐ŸŒŠ๐ŸŒŠ.
And blessed by @greengoldlounge @dabber_mcgavin @greengoldfarm
For continuing to support us with a amazing location ๐Ÿ‘๐Ÿ‘๐Ÿ’–๐Ÿ’–๐Ÿ’–.
#boneprone201 #420supportgroup #colonless #osteoarthritis #osteoporosis #jpouch #patientshelpingpatients #crohnsdiease #liverdisease #nursenavigator #pouchitis #greengoldlounge
Good morning ๐ŸŒž๐ŸŒž, after a 420 weekend โ™จ๏ธ. I stayed around home and spent time with family and saved money I don't have ๐Ÿ˜‰. This week, I'll be pretty quiet, while working behind the scenes ๐ŸŽฌ to move our @420_support_group With @cannabis_nurse_navigator to the next level ๐Ÿ’ผ๐Ÿ’ผ. Along with scheduling meetings, Events and doctors appointments ๐Ÿ“…๐Ÿ“…โœโœ. And I'm also working on putting material together for the new and improved website that will be relaunched shortly โŒ›โณ๐Ÿ’ป. Www.420supportgroup.com 420supportgroup.net 420supportgroup.org Stay tuned ๐Ÿ“ข๐Ÿ“ฃ. With the help of some special people ๐Ÿ™๐Ÿ™๐Ÿ’–๐Ÿ’–๐Ÿ’–๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ. Also, you need a confirmation number ## before you are confirmed for a seat at our next 420 support group patient meeting on May 20th from 1-430ish in Santee, San Diego ๐ŸŒŠ๐ŸŒŠ. And blessed by @greengoldlounge @dabber_mcgavin @greengoldfarm For continuing to support us with a amazing location ๐Ÿ‘๐Ÿ‘๐Ÿ’–๐Ÿ’–๐Ÿ’–. #boneprone201  #420supportgroup  #colonless  #osteoarthritis  #osteoporosis  #jpouch  #patientshelpingpatients  #crohnsdiease  #liverdisease  #nursenavigator  #pouchitis  #greengoldlounge 
Heute meine erste #Pouchoskopie gehabt... und siehe da? Direkt eine #Pouchitis ๐Ÿ˜๐Ÿ˜• wir warten nun noch die pathologischen Befunde ab, bis dahin wird weiter mit #Budenofalk behandelt ๐Ÿ˜… mensch mensch.. wann lรคsst der Bauchi mich denn mal in Ruhe? ๐Ÿ‘Œ #jpouch #pouchi #pouchitis #entzรผndung #wannendetes #nocolonstillrollin #meistenszumindest #endlosescheiรŸe #Pouchoskopie #jpoucher
โ€œYouโ€™ve been assigned this mountain to show others it can be moved.โ€
โœจ
This is one of my favorite quotes about suffering, but I never thought Iโ€™d get to a point in my journey where itโ€™d apply to me.
โœจ
For a long time I viewed myself as a victim. Iโ€™d ask, why me? This life isnโ€™t fair. But slowly, over many years, Iโ€™ve shifted my perception. The way in which we perceive each situation in our lives ultimately shapes our reality. By learning to shift our perception, it becomes very possible to create a brighter reality for ourselves.
โœจ
Iโ€™m now proud of how my life has unfolded. I am proud of my suffering. And I am proud of my scars. โœจ
Even though I prefer to climb my mountains instead of move them, Iโ€™ve learned that no matter how your life unfolds or how incredibly challenging your battles are, your situation can always be used to help others. Warriors, keep fighting the good fight, for your fight may light a way in someoneโ€™s else life. Just the slightest glimpse into your world can give someone else a huge glimmer of hope. โœจ
And that, I believe, is worth fighting for! โœจ
Happy Monday! ๐Ÿ’œ๐Ÿ’œ
.
.
.
.
#mondaymotivation #perception #crohnswarrior #fucrohns #uc #ulcerativecolitis #crohns #jpouch #nocolonstillrollin #jpouchlife #mtnbike #mtnbikegirl #cycling #psroiasiswarrior #autoimmune #invisibleillness #ibdsuperheroes #ibd #spoonie #chronicillness #psoriasis #getyourskinout #whistler #whistlerbikepark #mtblife #crohnsdisease #santacruzbicycles #psoriaticarthritis
โ€œYouโ€™ve been assigned this mountain to show others it can be moved.โ€ โœจ This is one of my favorite quotes about suffering, but I never thought Iโ€™d get to a point in my journey where itโ€™d apply to me. โœจ For a long time I viewed myself as a victim. Iโ€™d ask, why me? This life isnโ€™t fair. But slowly, over many years, Iโ€™ve shifted my perception. The way in which we perceive each situation in our lives ultimately shapes our reality. By learning to shift our perception, it becomes very possible to create a brighter reality for ourselves. โœจ Iโ€™m now proud of how my life has unfolded. I am proud of my suffering. And I am proud of my scars. โœจ Even though I prefer to climb my mountains instead of move them, Iโ€™ve learned that no matter how your life unfolds or how incredibly challenging your battles are, your situation can always be used to help others. Warriors, keep fighting the good fight, for your fight may light a way in someoneโ€™s else life. Just the slightest glimpse into your world can give someone else a huge glimmer of hope. โœจ And that, I believe, is worth fighting for! โœจ Happy Monday! ๐Ÿ’œ๐Ÿ’œ . . . . #mondaymotivation  #perception  #crohnswarrior  #fucrohns  #uc  #ulcerativecolitis  #crohns  #jpouch  #nocolonstillrollin  #jpouchlife  #mtnbike  #mtnbikegirl  #cycling  #psroiasiswarrior  #autoimmune  #invisibleillness  #ibdsuperheroes  #ibd  #spoonie  #chronicillness  #psoriasis  #getyourskinout  #whistler  #whistlerbikepark  #mtblife  #crohnsdisease  #santacruzbicycles  #psoriaticarthritis 
I'm all over #MarvelouslyMoodyMonday today...
I've felt like absolute shite from the second I got up. I intended not to nap because my friend is coming later but now I'm home, the call of my bed and pillow is just too loud.
Over and out ๐Ÿ‘‹

#IBDSuperHeroes #Colitis #IBD #Jpouch #Pouchitis #UlcerativeColitis #CureIBD #NoColonStillRollin #IBDVisible #IBDLife #IBDAwareness #InflammatoryBowelDisease #IBDSucks #IBDWarrior #IBDProblems #FlareDay #IBDFighter #IBDSelfie #IBDResearch #IBDCantStopMe #IBDStrong #IBDPetPeeves #AutoimmuneDisease #ChronicIllness #InvisibleIllness #Spoonieย #CrohnsDisease #Crohns
I'm all over #MarvelouslyMoodyMonday  today... I've felt like absolute shite from the second I got up. I intended not to nap because my friend is coming later but now I'm home, the call of my bed and pillow is just too loud. Over and out ๐Ÿ‘‹ #IBDSuperHeroes  #Colitis  #IBD  #Jpouch  #Pouchitis  #UlcerativeColitis  #CureIBD  #NoColonStillRollin  #IBDVisible  #IBDLife  #IBDAwareness  #InflammatoryBowelDisease  #IBDSucks  #IBDWarrior  #IBDProblems  #FlareDay  #IBDFighter  #IBDSelfie  #IBDResearch  #IBDCantStopMe  #IBDStrong  #IBDPetPeeves  #AutoimmuneDisease  #ChronicIllness  #InvisibleIllness  #Spoonie ย #CrohnsDisease  #Crohns 
Happy #medalmonday ! Love my new Twinkie guy medal! Swipe to see the cream filling dots on the back! And keep swiping to see the Twinkie grill! Ha ha ha. On to the next race! ๐Ÿƒ๐Ÿผโ€โ™€๏ธ๐Ÿ’œ
Happy #medalmonday  ! Love my new Twinkie guy medal! Swipe to see the cream filling dots on the back! And keep swiping to see the Twinkie grill! Ha ha ha. On to the next race! ๐Ÿƒ๐Ÿผโ€โ™€๏ธ๐Ÿ’œ
Just Got the news that my next operation Will be on the 30th of april, and if Im lucky that means bye to sassy and hello to a life with a j-pouchโค๏ธ๐Ÿ’ƒ๐Ÿ˜โ˜€๏ธ#smiling
Just Got the news that my next operation Will be on the 30th of april, and if Im lucky that means bye to sassy and hello to a life with a j-pouchโค๏ธ๐Ÿ’ƒ๐Ÿ˜โ˜€๏ธ#smiling 
โ€œWhen I was with him I suddenly wasn't this broken person anymore. I was just me. I was whole again. I was just a person - like everybody else.โ€ ~ Renata Suzuki 
The love of my lover is unlike any other. He never once made a problem of me being chronically ill. When I was in the hospital he was there every single day. He didnโ€™t mind seeing me with dozens of tubes in and out of my body. He was the first one to give me a high five when I did my first poop in 10 years. (and he proudly told everybody in the bar later that evening) He loves me just the way I am and that makes me more in love with him than Iโ€™ve ever been.
#support #boyfriend #throwback #jpouch #IBD #IBDfamily #IBDcommunity #UC #ulcerativecolitis #chronicillness #autoimmune #crohns #ostomy #ileostomy #girlswithguts #awareness #resilient #nopainnogain #invisibleillness #surgery #ibdstrong #reversal #love  #life #invisibleillnesslove
โ€œWhen I was with him I suddenly wasn't this broken person anymore. I was just me. I was whole again. I was just a person - like everybody else.โ€ ~ Renata Suzuki The love of my lover is unlike any other. He never once made a problem of me being chronically ill. When I was in the hospital he was there every single day. He didnโ€™t mind seeing me with dozens of tubes in and out of my body. He was the first one to give me a high five when I did my first poop in 10 years. (and he proudly told everybody in the bar later that evening) He loves me just the way I am and that makes me more in love with him than Iโ€™ve ever been. #support  #boyfriend  #throwback  #jpouch  #IBD  #IBDfamily  #IBDcommunity  #UC  #ulcerativecolitis  #chronicillness  #autoimmune  #crohns  #ostomy  #ileostomy  #girlswithguts  #awareness  #resilient  #nopainnogain  #invisibleillness  #surgery  #ibdstrong  #reversal  #love  #life  #invisibleillnesslove 
2yrs ago today became a mother. It was truley the best thing that's ever happened to me despite me having one of my worst flares since i gave birth. Being a mum with crohns, a mum on steroids and a first time mum trying to hold it all together was tricky for me. I had support from my mum but there were still times i didn't feel good enough. I thought, why does MY baby have to get steroids through breast milk, why can't MY baby have a healthy mum? Why is my 1 yr old comforting me? Why cant i take her out? Why cant she have a dad thats there for her? I used to over compensate because i felt guilty for having an illness, she was so perfect she didnt deserve it.I would feel sorry for myself and her. Till i realised this has all made us both stronger and no matter what the circumstance we still have each other. Try to look at what you DO have not what you DON'T. And my oh my the worlds a much more beautiful place to live. I'm finally calling it home and she's by my side. HAPPY BIRTHDAY BABYโค 
#crohnsmums #autoimmunedisorder #crohnsdisease #ibdmom #ibd #mumwithcrohns #colitis #invisableillness #ostomate #jpouch #inflammatoryboweldisease #stoma #crohnsandcolitisuk #walkit #ibdtravel #vegan #mentor #crohnssurviver #ibdwarrior #mentor #ibdblogger #vlog #influencer #babymodel
2yrs ago today became a mother. It was truley the best thing that's ever happened to me despite me having one of my worst flares since i gave birth. Being a mum with crohns, a mum on steroids and a first time mum trying to hold it all together was tricky for me. I had support from my mum but there were still times i didn't feel good enough. I thought, why does MY baby have to get steroids through breast milk, why can't MY baby have a healthy mum? Why is my 1 yr old comforting me? Why cant i take her out? Why cant she have a dad thats there for her? I used to over compensate because i felt guilty for having an illness, she was so perfect she didnt deserve it.I would feel sorry for myself and her. Till i realised this has all made us both stronger and no matter what the circumstance we still have each other. Try to look at what you DO have not what you DON'T. And my oh my the worlds a much more beautiful place to live. I'm finally calling it home and she's by my side. HAPPY BIRTHDAY BABYโค #crohnsmums  #autoimmunedisorder  #crohnsdisease  #ibdmom  #ibd  #mumwithcrohns  #colitis  #invisableillness  #ostomate  #jpouch  #inflammatoryboweldisease  #stoma  #crohnsandcolitisuk  #walkit  #ibdtravel  #vegan  #mentor  #crohnssurviver  #ibdwarrior  #mentor  #ibdblogger  #vlog  #influencer  #babymodel 
Twinkie race recap! We had sooo much fun! Highly recommend this race if you are in the Ann Arbor area! I didnโ€™t get my best time...31 and change. I think 31:50?? I was 10th in my age group, and my biffy finished just about a minute or so before I did. The course was super beautiful, along the water pretty much the entire time, rolling dirt trails, a few wooden bridges. We had awesome weather for it too! Yea the sun made me a little warm, but how can I complain when just last week my race was cancelled due to an ice storm?! ๐Ÿ˜ŽNow. Letโ€™s talk about the star of the race...the twinkies! Iโ€™ve never been a big fan of them, and probably havenโ€™t had one in the last 20 years. BUT. grilled ๐Ÿ‘๐Ÿผtwinkies ๐Ÿ‘๐Ÿผare๐Ÿ‘๐Ÿผdownright๐Ÿ‘๐Ÿผamazing!!! Iโ€™m pretty sure they were designed to be grilled and they forgot to tell all of us. Honestly, the next time you have a bbq, try throwing a few on the grill! The outside sorta caramelizes and gets a little chewier, and the filling becomes more like a marshmallowy treat. Haha Iโ€™m serious!! ๐Ÿ˜› 
This was such a fun morning! Iโ€™m so glad I signed up for this and made the drive! Have a great night, peeps! ๐Ÿ’œ๐Ÿƒ๐Ÿผโ€โ™€๏ธ๐Ÿฐ
Twinkie race recap! We had sooo much fun! Highly recommend this race if you are in the Ann Arbor area! I didnโ€™t get my best time...31 and change. I think 31:50?? I was 10th in my age group, and my biffy finished just about a minute or so before I did. The course was super beautiful, along the water pretty much the entire time, rolling dirt trails, a few wooden bridges. We had awesome weather for it too! Yea the sun made me a little warm, but how can I complain when just last week my race was cancelled due to an ice storm?! ๐Ÿ˜ŽNow. Letโ€™s talk about the star of the race...the twinkies! Iโ€™ve never been a big fan of them, and probably havenโ€™t had one in the last 20 years. BUT. grilled ๐Ÿ‘๐Ÿผtwinkies ๐Ÿ‘๐Ÿผare๐Ÿ‘๐Ÿผdownright๐Ÿ‘๐Ÿผamazing!!! Iโ€™m pretty sure they were designed to be grilled and they forgot to tell all of us. Honestly, the next time you have a bbq, try throwing a few on the grill! The outside sorta caramelizes and gets a little chewier, and the filling becomes more like a marshmallowy treat. Haha Iโ€™m serious!! ๐Ÿ˜› This was such a fun morning! Iโ€™m so glad I signed up for this and made the drive! Have a great night, peeps! ๐Ÿ’œ๐Ÿƒ๐Ÿผโ€โ™€๏ธ๐Ÿฐ
Today was a good day out playing with gocarts! โค๏ธ my back felt like shit and my stomach wonโ€™t behave, but I had a sweet ass day ๐Ÿ˜Šโค๏ธ #anklosingspondylitis #arthritis #pancolitis #colitis #ibd #jpouch #nocolonstillrollin #nogutsstillnuts
Right on โœŒโœŒโœŒ, @cheechandchong
@heytommychong
@cheechmarinofficial
Will be joining @snoopdogg
@djsnoopadelic_
Tonight on the @jokerswildtbs
On @tbsnetwork
๐Ÿ“บ๐Ÿ“บ๐Ÿ’ป๐Ÿ’ป.
#snoopdogg #djsnoopadelic #cheechandchong #heytommychong
#tommychong
#cheechmarin
@funnyshelby
@cheechsprivatestash
@cheechandchongglass
@chongschoice
#tbs #tbsnetwork
#boneprone201 #420supportgroup #colonless #osteoarthritis #osteoporosis #jpouch #patientshelpingpatients #crohnsdiease #liverdisease 
#RepostSave @jokerswildtbs with @repostsaveapp ใƒปใƒปใƒป Catch @cheechandchong on #JokersWild TONIGHT on @tbsnetwork! It's Lit!
Right on โœŒโœŒโœŒ, @cheechandchong @heytommychong @cheechmarinofficial Will be joining @snoopdogg @djsnoopadelic_ Tonight on the @jokerswildtbs On @tbsnetwork ๐Ÿ“บ๐Ÿ“บ๐Ÿ’ป๐Ÿ’ป. #snoopdogg  #djsnoopadelic  #cheechandchong  #heytommychong  #tommychong  #cheechmarin  @funnyshelby @cheechsprivatestash @cheechandchongglass @chongschoice #tbs  #tbsnetwork  #boneprone201  #420supportgroup  #colonless  #osteoarthritis  #osteoporosis  #jpouch  #patientshelpingpatients  #crohnsdiease  #liverdisease  #RepostSave  @jokerswildtbs with @repostsaveapp ใƒปใƒปใƒป Catch @cheechandchong on #JokersWild  TONIGHT on @tbsnetwork! It's Lit!
Flashback 2 years ago on 420 with @mr.suuurf and @drcannabina ๐Ÿ‘ซ๐Ÿ‘ฌ.
We had a fantastic time hanging out and seeing @cheechandchong 
@heytommychong @funnyshelby @cheechmarinofficial on stage live ๐ŸŽคโœŒโœŒโœŒ.
#boneprone201 #420supportgroup #colonless #osteoarthritis #osteoporosis #jpouch #patientshelpingpatients #crohnsdiease #liverdisease #cheechandchong #chong
#cheech
#shelbychong
#tommychong
#cheechmarin
#pouchitis
#WorldIBDday is coming!!! ๐Ÿ›๏ธWrist bands, keyrings, pens, badges, bobble hats, wedding favours & more, all available from our #GetYourBellyOut store!
๐Ÿ‘‡๐Ÿ‘‡
https://GetYourBellyOut.org.uk/shop

#crohns #colitis #IBD #ostomy #crohnsdisease #ulcerativecolitis #jpouch #InflammatoryBowelDisease #crohnsdisease #UlcerativeColitis #ccfa #ccuk #gybo #campaign #global #globalcampaign #efcca #ibdawareness #social #socialmedia #influencer
#WorldIBDday  is coming!!! ๐Ÿ›๏ธWrist bands, keyrings, pens, badges, bobble hats, wedding favours & more, all available from our #GetYourBellyOut  store! ๐Ÿ‘‡๐Ÿ‘‡ https://GetYourBellyOut.org.uk/shop #crohns  #colitis  #IBD  #ostomy  #crohnsdisease  #ulcerativecolitis  #jpouch  #InflammatoryBowelDisease  #crohnsdisease  #UlcerativeColitis  #ccfa  #ccuk  #gybo  #campaign  #global  #globalcampaign  #efcca  #ibdawareness  #social  #socialmedia  #influencer 
I call this series โ€˜the Bay Run is not an ugly place also I ran farโ€™
I call this series โ€˜the Bay Run is not an ugly place also I ran farโ€™
So tea looked good, and was obviously a very brave (stupid) choice. I was intending to skip potato skin and have some sweetcorn... but the steak tasted weird and sweetcorn was raw so was an #EpicFail ๐Ÿ˜‚
#IBDSuperHeroes #Colitis #IBD #Jpouch #Pouchitis #UlcerativeColitis #CureIBD #NoColonStillRollin #IBDVisible #IBDLife #IBDAwareness #InflammatoryBowelDisease #IBDSucks #IBDWarrior #IBDProblems #FlareDay #IBDFighter #IBDResearch #IBDCantStopMe #IBDStrong #IBDPetPeeves #AutoimmuneDisease #ChronicIllness #InvisibleIllness #Spoonie #CrohnsDisease #Crohns
So tea looked good, and was obviously a very brave (stupid) choice. I was intending to skip potato skin and have some sweetcorn... but the steak tasted weird and sweetcorn was raw so was an #EpicFail  ๐Ÿ˜‚ #IBDSuperHeroes  #Colitis  #IBD  #Jpouch  #Pouchitis  #UlcerativeColitis  #CureIBD  #NoColonStillRollin  #IBDVisible  #IBDLife  #IBDAwareness  #InflammatoryBowelDisease  #IBDSucks  #IBDWarrior  #IBDProblems  #FlareDay  #IBDFighter  #IBDResearch  #IBDCantStopMe  #IBDStrong  #IBDPetPeeves  #AutoimmuneDisease  #ChronicIllness  #InvisibleIllness  #Spoonie  #CrohnsDisease  #Crohns 
Hi everyone! I am from Sydney, Australia and this is me! I was diagnosed with #UC in 2010, shortly after having my first son.  Things were reasonably well managed until about 12 months ago and too many ER visits and hospital admissions later, I ended up needing emergency surgery and a subtotal #colectomy in March 2018. I am now adjusting to life with a temporary #ileostomy and the likelihood of #jpouch surgery in the near future. 
Life is slowly returning to normal though physical recovery feels like it has stalled a bit and processing the emotional stuff is tough at times.  Though on the good days i can appreciate lufe is a million times better than when I was sick with inflammation! 
One more voice in the chorus of strong, resilient souls fighting these illnesses and living their lives! 
Ps. I was very sick with inflammation here which just shows how invisible these illnesses can be
- shared from  @secondchance_ibd

#Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #InflammatoryBowelDisease #CureIBD #IBDawareness #IBDproblems #IBDwarrior #IBDfighter
Hi everyone! I am from Sydney, Australia and this is me! I was diagnosed with #UC  in 2010, shortly after having my first son. Things were reasonably well managed until about 12 months ago and too many ER visits and hospital admissions later, I ended up needing emergency surgery and a subtotal #colectomy  in March 2018. I am now adjusting to life with a temporary #ileostomy  and the likelihood of #jpouch  surgery in the near future. Life is slowly returning to normal though physical recovery feels like it has stalled a bit and processing the emotional stuff is tough at times. Though on the good days i can appreciate lufe is a million times better than when I was sick with inflammation! One more voice in the chorus of strong, resilient souls fighting these illnesses and living their lives! Ps. I was very sick with inflammation here which just shows how invisible these illnesses can be - shared from @secondchance_ibd #Crohns  #Colitis  #IBD  #CrohnsDisease  #UlcerativeColitis  #InflammatoryBowelDisease  #CureIBD  #IBDawareness  #IBDproblems  #IBDwarrior  #IBDfighter 
Not thrifting today.  I worked on my gains. ๐Ÿค— Today marks a year of weight training after I fell off my race bike on a bike tour in Fort Lauderdale and messed my knee up.  It was a blessing in disguise.  I used to run a lot too.  I weighed 129 lbs in 2017 and now Iโ€™m at 138 lbs.  Eating clean and making no excuses for skipping the gym.  Itโ€™s a slow progress that a magic pill canโ€™t do.  #slowprogress #notthirftingtoday #eatingclean #ulcerativecolitis #jpouch
Not thrifting today. I worked on my gains. ๐Ÿค— Today marks a year of weight training after I fell off my race bike on a bike tour in Fort Lauderdale and messed my knee up. It was a blessing in disguise. I used to run a lot too. I weighed 129 lbs in 2017 and now Iโ€™m at 138 lbs. Eating clean and making no excuses for skipping the gym. Itโ€™s a slow progress that a magic pill canโ€™t do. #slowprogress  #notthirftingtoday  #eatingclean  #ulcerativecolitis  #jpouch