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If you'd be kind enough to check on something else i started ... Does it sound ok or still very much basic poop ... Im still less than a year in to wanting to learn how to make my own beats .. And with all my bodily fuckups thats not day in and day out unfourtantly.. no violins please i aint looking 4 sympathy just an understanding that i try and try at this thing we call life .. Anyway heres dunnno cos i couldnt think up a name ... #imatechnofreak#baggedboy#techno#technodj#edmlife#technoforlife#undergroundmusic#dancemusic#edm#tattooed#inkaddict#tattooaddict#baggeddude#ileostomy#stoma#invisibleillness#sickbutinvisible#crohns#ibd#crohnslife#instacrohns#breakingthestigma#crohnsdisease#crohnswarrior#essexboy#colchester#ukdj#ohyesohyes
If you'd be kind enough to check on something else i started ... Does it sound ok or still very much basic poop ... Im still less than a year in to wanting to learn how to make my own beats .. And with all my bodily fuckups thats not day in and day out unfourtantly.. no violins please i aint looking 4 sympathy just an understanding that i try and try at this thing we call life .. Anyway heres dunnno cos i couldnt think up a name ... #imatechnofreak #baggedboy #techno #technodj #edmlife #technoforlife #undergroundmusic #dancemusic #edm #tattooed #inkaddict #tattooaddict #baggeddude #ileostomy #stoma #invisibleillness #sickbutinvisible #crohns #ibd #crohnslife #instacrohns #breakingthestigma #crohnsdisease #crohnswarrior #essexboy #colchester #ukdj #ohyesohyes 
•The Do’s and Don’ts of Crohn’s Disease•
Link in bio! Honestly this can be applied to any form of IBD or auto-immune issue. www.sophrosynebrew.com
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#crohnsdisease #IBD #crohnscolitisfoundation 
#copingwithcrohns #autoimmune #immunedisorder #icanttrustgut #instacrohns #immunesuppressed #remicade #remicadeinfusion #remission #infusiontherapy #diettherapy #crohnsiscray #chronicillness @crohnsiscray @instacrohns @ibdgirls @crohnscolitisfoundation @ibd_hu
•The Do’s and Don’ts of Crohn’s Disease• Link in bio! Honestly this can be applied to any form of IBD or auto-immune issue. www.sophrosynebrew.com • • • • • #crohnsdisease  #IBD  #crohnscolitisfoundation  #copingwithcrohns  #autoimmune  #immunedisorder  #icanttrustgut  #instacrohns  #immunesuppressed  #remicade  #remicadeinfusion  #remission  #infusiontherapy  #diettherapy  #crohnsiscray  #chronicillness  @crohnsiscray @instacrohns @ibdgirls @crohnscolitisfoundation @ibd_hu
@cheyennerae127 Crohn's warrior since 2014
@cheyennerae127 Crohn's warrior since 2014
@kelli_fulford (middle) Crohn's warrior since 1987, along with Hailey (left) in 2016 & Thomas (right) in 2010
@kelli_fulford (middle) Crohn's warrior since 1987, along with Hailey (left) in 2016 & Thomas (right) in 2010
What #pricetopoo would you pay in a public restroom? What's the most you've ever paid?
What #pricetopoo  would you pay in a public restroom? What's the most you've ever paid?
Counting spoons 👍🥄🥄🥄 #IBDSuperHeroes share - @one_spoon_at_a_time_:
Just hanging out with my little clones today. Hubby is working and we are on episode 726 of paw patrol... 😂... but also 😫. I woke up super early today (like 4am... wtf?) and so my carefully crafted plan (aka my “spoon budget”)to balance my day is blown. I’m almost out of spoons. At least my kids are happy that we are having a lazy day watching cartoons (and doing Snapchat filters)
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#spoonbudget #spoonielife #crohnsdiease #crohnssucks #IBD #chronicfatigue #chronicillness #anemia #outofspoons #invisibleillness #youlookokaytome #instacrohns #ibdsuperheroes #spooniemom #spooniewife #crohnsmom #crohnswife #crohnslife#Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #InflammatoryBowelDisease #CureIBD #IBDawareness #IBDproblems #IBDwarrior #IBDfighter #IBDproblems
Counting spoons 👍🥄🥄🥄 #IBDSuperHeroes  share - @one_spoon_at_a_time_: Just hanging out with my little clones today. Hubby is working and we are on episode 726 of paw patrol... 😂... but also 😫. I woke up super early today (like 4am... wtf?) and so my carefully crafted plan (aka my “spoon budget”)to balance my day is blown. I’m almost out of spoons. At least my kids are happy that we are having a lazy day watching cartoons (and doing Snapchat filters) . #spoonbudget  #spoonielife  #crohnsdiease  #crohnssucks  #IBD  #chronicfatigue  #chronicillness  #anemia  #outofspoons  #invisibleillness  #youlookokaytome  #instacrohns  #ibdsuperheroes  #spooniemom  #spooniewife  #crohnsmom  #crohnswife  #crohnslife #Crohns  #Colitis  #IBD  #CrohnsDisease  #UlcerativeColitis  #InflammatoryBowelDisease  #CureIBD  #IBDawareness  #IBDproblems  #IBDwarrior  #IBDfighter  #IBDproblems 
Hello gente linda!
🌟Não me levem a mal, gosto da primavera, das flores, do céu azul bla,  bla...mas para mim abriu a época das alergias 🌾 desde que tomo o Infliximab /Remicade para a doença de Crohn 💩 melhorei em 90% a minha qualidade de vida, mas por outro lado deixa o sistema imunitário em baixo. O que resultou em sintomas da rinite alérgica todo o ano, havendo um agravamento 📈 na primavera. Corrimento nasal, espirros, olhos vermelhos e lacrimejantes e a comichão no nariz é terrível! O caso ficou tão grave, que a médica imunoalergologista recomendou uma vacina💉 especial que tomo todos os meses. É feita consoante as minhas alergias custo: + de 200€/ano. Os sintomas atenuaram, principalmente os olhos que estavam sempre inchados vermelhos e com sensação de queimadura. Infelizmente os doentes de Crohn 💩 além de sofrer da doença, também sofrem dos efeitos adversos da medicação. #crohnswarrior
[Há que manter uma atitude positiva e estar sempre à procura de algo que minimize o nosso sofrimento ]

Paula...💜
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#portugal#braga#alergias#infliximab#remicade#allergies#primavera#spring#doençadecrohn#doençaautoimune#crohns#ibd#quotes#pensamentododia#hope#crohnsdisease#crohnsjourney#instacrohns#picoftheday#photooftheday#pic#instapic#blackandwhite#instadaily#quoteoftheday#me
Hello gente linda! 🌟Não me levem a mal, gosto da primavera, das flores, do céu azul bla, bla...mas para mim abriu a época das alergias 🌾 desde que tomo o Infliximab /Remicade para a doença de Crohn 💩 melhorei em 90% a minha qualidade de vida, mas por outro lado deixa o sistema imunitário em baixo. O que resultou em sintomas da rinite alérgica todo o ano, havendo um agravamento 📈 na primavera. Corrimento nasal, espirros, olhos vermelhos e lacrimejantes e a comichão no nariz é terrível! O caso ficou tão grave, que a médica imunoalergologista recomendou uma vacina💉 especial que tomo todos os meses. É feita consoante as minhas alergias custo: + de 200€/ano. Os sintomas atenuaram, principalmente os olhos que estavam sempre inchados vermelhos e com sensação de queimadura. Infelizmente os doentes de Crohn 💩 além de sofrer da doença, também sofrem dos efeitos adversos da medicação. #crohnswarrior  [Há que manter uma atitude positiva e estar sempre à procura de algo que minimize o nosso sofrimento ] Paula...💜 _____ #portugal #braga #alergias #infliximab #remicade #allergies #primavera #spring #doençadecrohn #doençaautoimune #crohns #ibd #quotes #pensamentododia #hope #crohnsdisease #crohnsjourney #instacrohns #picoftheday #photooftheday #pic #instapic #blackandwhite #instadaily #quoteoftheday #me 
@ginasb84 Crohn's warrior since 1973! 💜
@ginasb84 Crohn's warrior since 1973! 💜
Just hanging out with my little clones today. Hubby is working and we are on episode 726 of paw patrol... 😂... but also 😫. I woke up super early today (like 4am... wtf?) and so my carefully crafted plan (aka my “spoon budget”)to balance my day is blown. I’m almost out of spoons. At least my kids are happy that we are having a lazy day watching cartoons (and doing Snapchat filters)
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#spoonbudget #spoonielife #crohnsdiease #crohnssucks #IBD #chronicfatigue #chronicillness #anemia #outofspoons #invisibleillness #youlookokaytome #instacrohns #ibdsuperheroes #spooniemom #spooniewife #crohnsmom #crohnswife #crohnslife
Just hanging out with my little clones today. Hubby is working and we are on episode 726 of paw patrol... 😂... but also 😫. I woke up super early today (like 4am... wtf?) and so my carefully crafted plan (aka my “spoon budget”)to balance my day is blown. I’m almost out of spoons. At least my kids are happy that we are having a lazy day watching cartoons (and doing Snapchat filters) . . . #spoonbudget  #spoonielife  #crohnsdiease  #crohnssucks  #IBD  #chronicfatigue  #chronicillness  #anemia  #outofspoons  #invisibleillness  #youlookokaytome  #instacrohns  #ibdsuperheroes  #spooniemom  #spooniewife  #crohnsmom  #crohnswife  #crohnslife 
Boa tarde! 🙌
🌟 Caminhada com um pouquinho de corrida 🏃 @decathlonportugal @mizunorunning @kalenji 
Parei um pouco ao pé da Malheira para apreciar a natureza e escutar os seus ruídos 🌳🌲🌿 faz-me tão bem 🙏
[ Bom fim de semana 🌞] .
Paula...💜
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#portugal#vilaverde#caminhada#nature#natureza#river#rio#beautiful#naturelovers#naturepics#worldbestgram#mountain#relax#grateful#doençadecrohn#crohnsdisease#crohnsjourney#instacrohns#picoftheday#photooftheday#fotografia#instapic#instagood#instamood#instadaily#inkgirl#fitgirl
Boa tarde! 🙌 🌟 Caminhada com um pouquinho de corrida 🏃 @decathlonportugal @mizunorunning @kalenji Parei um pouco ao pé da Malheira para apreciar a natureza e escutar os seus ruídos 🌳🌲🌿 faz-me tão bem 🙏 [ Bom fim de semana 🌞] . Paula...💜 _____ #portugal #vilaverde #caminhada #nature #natureza #river #rio #beautiful #naturelovers #naturepics #worldbestgram #mountain #relax #grateful #doençadecrohn #crohnsdisease #crohnsjourney #instacrohns #picoftheday #photooftheday #fotografia #instapic #instagood #instamood #instadaily #inkgirl #fitgirl 
So today i smell like deep heat... as much as id like 2 take something stronger than paracetamol but i can't as ive my little man ere and tbh id not chance it being on morphine ... so its paracetamol and this rubbed on my knees shins back neck and shoulders oh and wrists n elbows .. Man dont need old spice innit 😂😂😂 And trust me blud i dont speak like dat you get me fam ! 😁 
Ava gr8 day peeeeeople 
#imatechnofreak#baggedboy#techno#technodj#edmlife#technoforlife#undergroundmusic#dancemusic#edm#tattooed#inkaddict#tattooaddict#baggeddude#ileostomy#stoma#invisibleillness#sickbutinvisible#crohns#ibd#crohnslife#instacrohns#breakingthestigma#crohnsdisease#crohnswarrior#essexboy#colchester#ukdj#ohyesohyes
So today i smell like deep heat... as much as id like 2 take something stronger than paracetamol but i can't as ive my little man ere and tbh id not chance it being on morphine ... so its paracetamol and this rubbed on my knees shins back neck and shoulders oh and wrists n elbows .. Man dont need old spice innit 😂😂😂 And trust me blud i dont speak like dat you get me fam ! 😁 Ava gr8 day peeeeeople #imatechnofreak #baggedboy #techno #technodj #edmlife #technoforlife #undergroundmusic #dancemusic #edm #tattooed #inkaddict #tattooaddict #baggeddude #ileostomy #stoma #invisibleillness #sickbutinvisible #crohns #ibd #crohnslife #instacrohns #breakingthestigma #crohnsdisease #crohnswarrior #essexboy #colchester #ukdj #ohyesohyes 
I've had a fare few Endoscopies & Colonoscopies in my time dealing with Crohn's, however I've never had one done without general anaesthetic! What's it really like under normal sedation & what are your experiences?
I've had a fare few Endoscopies & Colonoscopies in my time dealing with Crohn's, however I've never had one done without general anaesthetic! What's it really like under normal sedation & what are your experiences?
Cirurgia do instestino- 
Tratamento Doença de Crohn.

Meu Alien saiuuuuuuuuuu!!! É meus amiguinhos, não deu😖
Fiz de tudo para evitar este  procedimento, quem me conhece sabe o quanto lutei e batalhei para não chegar a este "extremo" mas, realmente nao foi possivel. Já havia tentado tomar todos os remedios existentes, inclusive os remedios mais caros e avançados, fiz todos os tipos de tratamento possiveis, inclusive tratamentos experimentais mas, realmente não deu mesmo.
Tive que entrar na faca.
Depois de tantos anos de tratamento, lutas e batalhas travadas contra essa doença, agora tive que realizar uma intervenção cirurgica.
Realizar uma cirurgia como esta tem grandes riscos, fora todos os transtornos que o pós operatorio pode gerar.Eu já sabia que teria que operar desde Janeiro, mas não avisei ninguem ou no caso, avisei apenas poucas pessoas para não alarmar nem preocupar ninguem.
No dia 18/04, nesta ultima quarta-feira, realizei a minha "cesariana"  não sei bem o quanto do meu instestino foi retirado mas pelas fotos que a minha medica me enviou, foi um baita pedaço, tanto que até a medica se assustou com a "criança".
Meu "bebe" nasceu vermelho, enrugado (Estenoses) e todo enrolado (Fistulas) literalmente eu estava, como  disse minha medica " Com um baita nó nas tripas" inclusive era esse o motivo pelo qual eu sentia tantas dores, muitas vezes, dores incontrolaveis.

Eu estou muito bem 😉
E me recuperando progressivamente.
Fiquei o dia na UTI do Hospital Samaritano de SP e agora já estou no quarto, que diga-se de passagem é um verdadeiro luxo, parece um hotel cinco estrelas.
Todo brasileiro deveria ter esse tipo de tratamento e prestação de serviço.
Estou sendo super bem tratado, todos são muito  atenciosos, carinhosos, prestativos e verdadeiramente humanos.
Fiz este texto, porque muitas pessoas que me seguem tanto pelo Instagram como Facebook, tambem tem doença de Crohn e tem muitas duvidas e principalmente muitos medos e receios, por isso...
Não deixe de se tratar.
Não negligencia jamais a tua doença seja ela qual for.
Cuide sempre da tua saúde.
Sempre respeitando a doença mas...
Jamais temendo. 😉
Cirurgia do instestino- Tratamento Doença de Crohn. Meu Alien saiuuuuuuuuuu!!! É meus amiguinhos, não deu😖 Fiz de tudo para evitar este procedimento, quem me conhece sabe o quanto lutei e batalhei para não chegar a este "extremo" mas, realmente nao foi possivel. Já havia tentado tomar todos os remedios existentes, inclusive os remedios mais caros e avançados, fiz todos os tipos de tratamento possiveis, inclusive tratamentos experimentais mas, realmente não deu mesmo. Tive que entrar na faca. Depois de tantos anos de tratamento, lutas e batalhas travadas contra essa doença, agora tive que realizar uma intervenção cirurgica. Realizar uma cirurgia como esta tem grandes riscos, fora todos os transtornos que o pós operatorio pode gerar.Eu já sabia que teria que operar desde Janeiro, mas não avisei ninguem ou no caso, avisei apenas poucas pessoas para não alarmar nem preocupar ninguem. No dia 18/04, nesta ultima quarta-feira, realizei a minha "cesariana" não sei bem o quanto do meu instestino foi retirado mas pelas fotos que a minha medica me enviou, foi um baita pedaço, tanto que até a medica se assustou com a "criança". Meu "bebe" nasceu vermelho, enrugado (Estenoses) e todo enrolado (Fistulas) literalmente eu estava, como disse minha medica " Com um baita nó nas tripas" inclusive era esse o motivo pelo qual eu sentia tantas dores, muitas vezes, dores incontrolaveis. Eu estou muito bem 😉 E me recuperando progressivamente. Fiquei o dia na UTI do Hospital Samaritano de SP e agora já estou no quarto, que diga-se de passagem é um verdadeiro luxo, parece um hotel cinco estrelas. Todo brasileiro deveria ter esse tipo de tratamento e prestação de serviço. Estou sendo super bem tratado, todos são muito atenciosos, carinhosos, prestativos e verdadeiramente humanos. Fiz este texto, porque muitas pessoas que me seguem tanto pelo Instagram como Facebook, tambem tem doença de Crohn e tem muitas duvidas e principalmente muitos medos e receios, por isso... Não deixe de se tratar. Não negligencia jamais a tua doença seja ela qual for. Cuide sempre da tua saúde. Sempre respeitando a doença mas... Jamais temendo. 😉
@misssouthernvegan Crohn's warrior since 2008 💜
@misssouthernvegan Crohn's warrior since 2008 💜
Waiting for this window to turn yellow is the LONGEST wait 😭 still not used to it at all 💉!! #humiraday #humira #whensyourhumiraday #ibd #crohnsdisease #crohnielife #crohnswarrior #instacrohns #crohnie #mybellyhurts #ouchies #mellowyellow
Bom dia! Good morning! Bonjour! 🙋 🌟 01/04/2018 Passei uma tarde fantástica junto dos meus, a minha filha, o meu irmão e os meus queridos sobrinhos 💖 andar de "luge" fez soltar a minha criança 😁😂🙌 é tão divertido!! A neve, a paisagem, a companhia e sobretudo o ar puro revigoram a alma 🙏
[ Rir é o melhor remédio 😆]
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 Paula...💜
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#france#jura#lesrousses#neve#neige#beautifulview#beautiful#nature#natureza#landscapes#luge#rir#paisagem
#doençadecrohn #maladiedecrohn #crohnsdisease#crohnsjourney#instacrohns#ibd#picoftheday#photooftheday #fotografia #instapic #instagood #instamood#lifestyle#photo#photoshoot#instadaily
Bom dia! Good morning! Bonjour! 🙋 🌟 01/04/2018 Passei uma tarde fantástica junto dos meus, a minha filha, o meu irmão e os meus queridos sobrinhos 💖 andar de "luge" fez soltar a minha criança 😁😂🙌 é tão divertido!! A neve, a paisagem, a companhia e sobretudo o ar puro revigoram a alma 🙏 [ Rir é o melhor remédio 😆] . Paula...💜 _____ #france #jura #lesrousses #neve #neige #beautifulview #beautiful #nature #natureza #landscapes #luge #rir #paisagem  #doençadecrohn  #maladiedecrohn  #crohnsdisease #crohnsjourney #instacrohns #ibd #picoftheday #photooftheday  #fotografia  #instapic  #instagood  #instamood #lifestyle #photo #photoshoot #instadaily 
@weemoo82 Crohn's warrior since 1986! 💜💪
@weemoo82 Crohn's warrior since 1986! 💜💪
Well done for sharing 💜💜 #IBDSuperHeroes share - @agent_crohns:
I wanna take this opportunity to thank @crohnsibdcolitis for asking me to make this video for their page so here’s a sneaky peak for y’all 😄 It took me like half hour to get it right 😅😂 I must admit that sometimes it’s hard for me to make videos because, for the most part, I’m extremely shy and I feel my voice sounds weird but I have been gaining confidence little by little as I do some here and there. Also, I can’t bear to watch myself and I have no idea why I feel that way 🤷🏻‍♂️ self-consciousness I guess. Again, thank you everyone for the encouragement and support you give unto me and I will continue to do the same for everyone out there as well! We’re all in this together 👊🏼💪🏼☺️💜
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#crohnsdisease #crohnscolitis #crohns #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife #instacrohns #myIBD #ibdsuperheroes #myinvisibleillness #invisibleillnesslove
Well done for sharing 💜💜 #IBDSuperHeroes  share - @agent_crohns: I wanna take this opportunity to thank @crohnsibdcolitis for asking me to make this video for their page so here’s a sneaky peak for y’all 😄 It took me like half hour to get it right 😅😂 I must admit that sometimes it’s hard for me to make videos because, for the most part, I’m extremely shy and I feel my voice sounds weird but I have been gaining confidence little by little as I do some here and there. Also, I can’t bear to watch myself and I have no idea why I feel that way 🤷🏻‍♂️ self-consciousness I guess. Again, thank you everyone for the encouragement and support you give unto me and I will continue to do the same for everyone out there as well! We’re all in this together 👊🏼💪🏼☺️💜 . #crohnsdisease  #crohnscolitis  #crohns  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife  #instacrohns  #myIBD  #ibdsuperheroes  #myinvisibleillness  #invisibleillnesslove 
@cherrytale_ Crohn's warrior since 2003 💜
@cherrytale_ Crohn's warrior since 2003 💜
I wanna take this opportunity to thank @crohnsibdcolitis for asking me to make this video for their page so here’s a sneaky peak for y’all 😄 It took me like half hour to get it right 😅😂 I must admit that sometimes it’s hard for me to make videos because, for the most part, I’m extremely shy and I feel my voice sounds weird but I have been gaining confidence little by little as I do some here and there. Also, I can’t bear to watch myself and I have no idea why I feel that way 🤷🏻‍♂️ self-consciousness I guess. Again, thank you everyone for the encouragement and support you give unto me and I will continue to do the same for everyone out there as well! We’re all in this together 👊🏼💪🏼☺️💜
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#crohnsdisease #crohnscolitis #crohns #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife #instacrohns #myIBD #ibdsuperheroes #myinvisibleillness #invisibleillnesslove
I wanna take this opportunity to thank @crohnsibdcolitis for asking me to make this video for their page so here’s a sneaky peak for y’all 😄 It took me like half hour to get it right 😅😂 I must admit that sometimes it’s hard for me to make videos because, for the most part, I’m extremely shy and I feel my voice sounds weird but I have been gaining confidence little by little as I do some here and there. Also, I can’t bear to watch myself and I have no idea why I feel that way 🤷🏻‍♂️ self-consciousness I guess. Again, thank you everyone for the encouragement and support you give unto me and I will continue to do the same for everyone out there as well! We’re all in this together 👊🏼💪🏼☺️💜 . #crohnsdisease  #crohnscolitis  #crohns  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife  #instacrohns  #myIBD  #ibdsuperheroes  #myinvisibleillness  #invisibleillnesslove 
"Much like managing finances; being chronically Ill requires that we “spend wisely”. Plan ahead, don’t overcommit, take breaks, say no. PLAN your downtime! If I have a full day I will look at how I can “save” spoons so I don’t become exhausted. Maybe it’s choosing to not do my hair, or opt for leftovers or a frozen pizza instead of making a huge dinner. Plan ahead and be realistic! No body likes running out of spoons before their day is over."
~ shared from @one_spoon_at_a_time_
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#spoonbudget #chronicillness #invisible illness #spendyourspoonswisely #spoonie #spoonielife #crohnsdiease #crohnssucks #crohnssupport #chronicpain #chronicfatigue #anemia #crohnsmom #crohnswife #autoimmunedisease #auotimmune #arthritis #EIMS #flare #crohnsmanagement  #selfcare #selflove #balance #balanacedlife #ibd #IBDSuperHeroes #instacrohns #quoteoftheday
"Much like managing finances; being chronically Ill requires that we “spend wisely”. Plan ahead, don’t overcommit, take breaks, say no. PLAN your downtime! If I have a full day I will look at how I can “save” spoons so I don’t become exhausted. Maybe it’s choosing to not do my hair, or opt for leftovers or a frozen pizza instead of making a huge dinner. Plan ahead and be realistic! No body likes running out of spoons before their day is over." ~ shared from @one_spoon_at_a_time_ . . #spoonbudget  #chronicillness  #invisible  illness #spendyourspoonswisely  #spoonie  #spoonielife  #crohnsdiease  #crohnssucks  #crohnssupport  #chronicpain  #chronicfatigue  #anemia  #crohnsmom  #crohnswife  #autoimmunedisease  #auotimmune  #arthritis  #EIMS  #flare  #crohnsmanagement  #selfcare  #selflove  #balance  #balanacedlife  #ibd  #IBDSuperHeroes  #instacrohns  #quoteoftheday 
Зачем мне нужна моя болезнь?
1. Разошлась с бывшим супругом.
2. Ушла с нелюбимой работы.
3. Поняла ценность моего тела.
4. Осознала силу моего разума.
5. Поняла, что в этом мире никому кроме себя, по большому счету, не нужна.
6. Начала лучше питаться.
7. Работаю над характером.
8. Реализую потребность в том, чтобы быть полезной через помощь  людям с ВЗК.
9. Начала подрабатывать.
10. Стала пить воду.
11. Начала писать.
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Иногда мы отклоняемся от своего пути и тогда Вселенная (Бог, Аллах, Космос, то, во что вы верите) пытается вернуть нас на него. Сначала мягко, дипломатично, но мы не слышим. Потом жёстче, но мы не замечаем. Потом прикладывает конкретно.
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Предупредительные в воздух я пропустила.
Следующие выстрелы были с ювелирной точностью, меня не убило, только ранило.
Да, сейчас мне тяжелее двигаться вперёд, но я хотя бы стала туда двигаться.
•
Каждый пункт я распишу потом подробнее. 
А вы уже поняли зачем вам болезнь?
#зачеммнеВЗК #взк #болезнькрона #няк #зачто #длячего #зачтоболею #длячегоболею
Зачем мне нужна моя болезнь? 1. Разошлась с бывшим супругом. 2. Ушла с нелюбимой работы. 3. Поняла ценность моего тела. 4. Осознала силу моего разума. 5. Поняла, что в этом мире никому кроме себя, по большому счету, не нужна. 6. Начала лучше питаться. 7. Работаю над характером. 8. Реализую потребность в том, чтобы быть полезной через помощь людям с ВЗК. 9. Начала подрабатывать. 10. Стала пить воду. 11. Начала писать. • Иногда мы отклоняемся от своего пути и тогда Вселенная (Бог, Аллах, Космос, то, во что вы верите) пытается вернуть нас на него. Сначала мягко, дипломатично, но мы не слышим. Потом жёстче, но мы не замечаем. Потом прикладывает конкретно. • Предупредительные в воздух я пропустила. Следующие выстрелы были с ювелирной точностью, меня не убило, только ранило. Да, сейчас мне тяжелее двигаться вперёд, но я хотя бы стала туда двигаться. • Каждый пункт я распишу потом подробнее. А вы уже поняли зачем вам болезнь? #зачеммнеВЗК  #взк  #болезнькрона  #няк  #зачто  #длячего  #зачтоболею  #длячегоболею 
Parenting and IBD. It’s not easy!! But is it ever easy? It’s just...different! I am so glad that we decided to have our kids a few years apart. The age different is 4.5 years and I’m sooo glad! Having really little ones is a lot of work and I knew for myself that I could only handle one at a time! By the time we had our son Theo our daughter Audrey was done with diapers, slept great at night and could play independently! I hadn’t even thought about how much of a help she would become as a big sister! She is constantly watching, helping and loving her little brother. Best two decisions we ever made! @chrisdirkson .
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#crohnsmom #ibdmom #chronicillness #crohnsdiease #parentingwithIBD #chronicpain #chronic fatigue #invisibleillness #anemia #IBDSuperHeroes #instacrohns #makingitwork #siblings #bigsister #littlebrother #love #unconditinal #spooniemom #spoonie #spoonbudget
Parenting and IBD. It’s not easy!! But is it ever easy? It’s just...different! I am so glad that we decided to have our kids a few years apart. The age different is 4.5 years and I’m sooo glad! Having really little ones is a lot of work and I knew for myself that I could only handle one at a time! By the time we had our son Theo our daughter Audrey was done with diapers, slept great at night and could play independently! I hadn’t even thought about how much of a help she would become as a big sister! She is constantly watching, helping and loving her little brother. Best two decisions we ever made! @chrisdirkson . . . #crohnsmom  #ibdmom  #chronicillness  #crohnsdiease  #parentingwithIBD  #chronicpain  #chronic  fatigue #invisibleillness  #anemia  #IBDSuperHeroes  #instacrohns  #makingitwork  #siblings  #bigsister  #littlebrother  #love  #unconditinal  #spooniemom  #spoonie  #spoonbudget 
I might not be able to stand but there's always something I can do. #chronicbadass #chronicillnesswarrior #indistruttibile #instacrohns #crohns #instagramfitness
Much like managing finances; being chronically Ill requires that we “spend wisely”. Plan ahead, don’t overcommit, take breaks, say no. PLAN your downtime! If I have a full day I will look at how I can “save” spoons so I don’t become exhausted. Maybe it’s choosing to not do my hair, or opt for leftovers or a frozen pizza instead of making a huge dinner. Plan ahead and be realistic! No body likes running out of spoons before their day is over. .
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#spoonbudget #chronicillness #invisible illness #spendyourspoonswisely #spoonie #spoonielife #crohnsdiease #crohnssucks #crohnssupport #chronicpain #chronicfatigue #anemia #crohnsmom #crohnswife #autoimmunedisease #auotimmune #arthritis #EIMS #flare #crohnsmanagement  #selfcare #selflove #balance #balanacedlife #ibd #IBDSuperHeroes #instacrohns #quoteoftheday
Much like managing finances; being chronically Ill requires that we “spend wisely”. Plan ahead, don’t overcommit, take breaks, say no. PLAN your downtime! If I have a full day I will look at how I can “save” spoons so I don’t become exhausted. Maybe it’s choosing to not do my hair, or opt for leftovers or a frozen pizza instead of making a huge dinner. Plan ahead and be realistic! No body likes running out of spoons before their day is over. . . . #spoonbudget  #chronicillness  #invisible  illness #spendyourspoonswisely  #spoonie  #spoonielife  #crohnsdiease  #crohnssucks  #crohnssupport  #chronicpain  #chronicfatigue  #anemia  #crohnsmom  #crohnswife  #autoimmunedisease  #auotimmune  #arthritis  #EIMS  #flare  #crohnsmanagement  #selfcare  #selflove  #balance  #balanacedlife  #ibd  #IBDSuperHeroes  #instacrohns  #quoteoftheday 
Some people just don’t understand....I’ve even had an ER doctor say this very thing to me...until he took a long gander at my medical history. I often hear this statement as well as “You are too young to be this sick and have to take so many medications.” 🤨 Umm wut? Illness knows no age, race, social status, etc. It does what it is trained to do, attack your body and wreak complete havoc on your life. These two statements lead to the patient having to ‘defend’ themselves. It already sucks knowing that I will never get any better since there aren’t any cures but also that I will likely get worse as time goes on. Doctors can be just as bad as strangers or friends with some of the comments they make. Sometimes I want to scream and cry at how incredibly frustrated I am over the cards I was dealt and the pain I live with everyday. There are moments I give into that feeling for my own sanity and then there are times when I push it deep down and I keep going through my day. Compassion goes a long way when there isn’t anything you can do to help me physically feel better. I have so much love for those of you that have not turned your backs on me and continue to love me even tho I cancel plans or bail halfway thru because I’m feeling bad. You are my hero’s.  #tired #crohnsdisease #lupus #flare #lupusflare #crohnswarrior #instacrohns #crohnsprobs #lupusfighter #jointpain #abdominalpain #headaches #brainfog #ulcers #autoimmunedisease #medicine #pain #insomnia #spoonie #crohnsprobs #concealerismybestie #livingzombie #compassion
Some people just don’t understand....I’ve even had an ER doctor say this very thing to me...until he took a long gander at my medical history. I often hear this statement as well as “You are too young to be this sick and have to take so many medications.” 🤨 Umm wut? Illness knows no age, race, social status, etc. It does what it is trained to do, attack your body and wreak complete havoc on your life. These two statements lead to the patient having to ‘defend’ themselves. It already sucks knowing that I will never get any better since there aren’t any cures but also that I will likely get worse as time goes on. Doctors can be just as bad as strangers or friends with some of the comments they make. Sometimes I want to scream and cry at how incredibly frustrated I am over the cards I was dealt and the pain I live with everyday. There are moments I give into that feeling for my own sanity and then there are times when I push it deep down and I keep going through my day. Compassion goes a long way when there isn’t anything you can do to help me physically feel better. I have so much love for those of you that have not turned your backs on me and continue to love me even tho I cancel plans or bail halfway thru because I’m feeling bad. You are my hero’s. #tired  #crohnsdisease  #lupus  #flare  #lupusflare  #crohnswarrior  #instacrohns  #crohnsprobs  #lupusfighter  #jointpain  #abdominalpain  #headaches  #brainfog  #ulcers  #autoimmunedisease  #medicine  #pain  #insomnia  #spoonie  #crohnsprobs  #concealerismybestie  #livingzombie  #compassion 
3,2,1 💥
3,2,1 💥
God sake not only is it monday but ive got a shitty tummy ache and a stiff neck and achey shoulder .. the joys of illnesses and getting older ..
Im on a drug thats meant 2 help all this shitty suffering called humira but its clearly not working so back 2 the drawing board it looks like ... Anyway morning peeeps have a great start to your week... #imatechnofreak#baggedboy#techno#technodj#edmlife#technoforlife#undergroundmusic#dancemusic#edm#tattooed#inkaddict#tattooaddict#baggeddude#ileostomy#stoma#invisibleillness#sickbutinvisible#crohns#ibd#crohnslife#instacrohns#breakingthestigma#crohnsdisease#crohnswarrior#essexboy#colchester#ukdj#ohyesohyes
God sake not only is it monday but ive got a shitty tummy ache and a stiff neck and achey shoulder .. the joys of illnesses and getting older .. Im on a drug thats meant 2 help all this shitty suffering called humira but its clearly not working so back 2 the drawing board it looks like ... Anyway morning peeeps have a great start to your week... #imatechnofreak #baggedboy #techno #technodj #edmlife #technoforlife #undergroundmusic #dancemusic #edm #tattooed #inkaddict #tattooaddict #baggeddude #ileostomy #stoma #invisibleillness #sickbutinvisible #crohns #ibd #crohnslife #instacrohns #breakingthestigma #crohnsdisease #crohnswarrior #essexboy #colchester #ukdj #ohyesohyes 
@_lii.sa__ and i did the spartan sprint in munich on saturday. a hard parcours full of hevy ironchains, fu**ing freezing cold water, heavy stones, long ropes and lots of teamwork 🥦 arooo #usedeverysinglefilter #spartanrace #spartanmunich #spartan #aroo #fitness #fitnessmotivation #fitnesslifestyle #fightcrohns #instacrohns #crohns #morbuscrohn #healthylifestyle #sports #gym #nopainnogain #munich #olympiapark #münchen #germany #spartansprint
@lukefarrell7 Crohn's warrior since 1999 💪
@lukefarrell7 Crohn's warrior since 1999 💪
Devamı ve daha fazlasına bio da ki linkten ulaşabilirsiniz 🙋💞 #crohn #lifestyle #hepatoloji #soru #ibd #ibh #healthyfood #food #crohns #uk #hospital #sağlık#fecalcalprotectin#kalprotektin #kolit#instacrohns #tahlil#tetkik#ne#nedir#
@hansololol0 Crohn's warrior since 2011 - Check out Hannah's blog at ittakesgutz.wordpress.com 😊
@hansololol0 Crohn's warrior since 2011 - Check out Hannah's blog at ittakesgutz.wordpress.com 😊
Zucchini, Möhren Puffer 😍😍 mit Ei und ein bisschen Mandelmehl.
Sieht Scheiße aus aber schmeckt göttlich 🤤🤤🤤
#instacrohns #instafood #foodporn #food #foods #foodgasm #lecker #nomnom #zucchini #veggie #veggiefood
@_emilyyrenae_ Crohn's warrior since 2015 💜
@_emilyyrenae_ Crohn's warrior since 2015 💜
For this throwback Thursday I thought I’d share a side by side pic of me in my early 20s during a real bad flare and a current pic of how far I’ve come along. As you can see, I was so thin, I was literally swimming in my clothes and putting on weight wasn’t easy. I will share my Crohn’s Journey for those that are getting to know me.
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I was 16 years old when I was diagnosed with Crohn’s disease. I had never heard of the illness or was I even prepared for what I was getting into when it first hit me. When the symptoms started to manifest, I blew it off as something that would go away. Unfortunately, it kept getting worse. My mother dragged me to a doctor to figure out what was wrong with me only for him to tell her that I was on drugs probably doing cocaine. My mother flipped out and if there’s one thing I’ve learned, not only should you never piss off a Latina but don’t EVER piss off one who’s a single parent and worried about her kid’s health. She took me over to another hospital where I was better treated and diagnosed with Crohn’s disease. As the years passed, I noticed that I would have flare ups in the fall/winter but would have remission during the spring/summer semesters. They were rollercoaster flare ups and by the time I was 21, I had finally been in remission for 4 years until I hit 25 and became hospitalized because of my refusal to take prednisone. That’s when I first learned of remicade which was a new treatment for me at that time and it did wonders for me! By the time I hit 29 I had a bad flare up that just permanently scarred my colon. I toughed it out for 2 more years until I just couldn’t handle the exhaustion and tendencies of wanting to pass out. By the time I was 31, the option of having my colon removed came up. The doctor had noticed I had polyps and the original plan was to have my colon removed then after I healed remove the polyps and then talk about a reversal. After about 6 months of having my ileostomy, I went to see the doctor about removing the polyps. It turns out that they were pseudo polyps and it was my illness trying to flare up only there wasn’t anything it could do. (This story will continue in the comments)👇🏼
For this throwback Thursday I thought I’d share a side by side pic of me in my early 20s during a real bad flare and a current pic of how far I’ve come along. As you can see, I was so thin, I was literally swimming in my clothes and putting on weight wasn’t easy. I will share my Crohn’s Journey for those that are getting to know me. . I was 16 years old when I was diagnosed with Crohn’s disease. I had never heard of the illness or was I even prepared for what I was getting into when it first hit me. When the symptoms started to manifest, I blew it off as something that would go away. Unfortunately, it kept getting worse. My mother dragged me to a doctor to figure out what was wrong with me only for him to tell her that I was on drugs probably doing cocaine. My mother flipped out and if there’s one thing I’ve learned, not only should you never piss off a Latina but don’t EVER piss off one who’s a single parent and worried about her kid’s health. She took me over to another hospital where I was better treated and diagnosed with Crohn’s disease. As the years passed, I noticed that I would have flare ups in the fall/winter but would have remission during the spring/summer semesters. They were rollercoaster flare ups and by the time I was 21, I had finally been in remission for 4 years until I hit 25 and became hospitalized because of my refusal to take prednisone. That’s when I first learned of remicade which was a new treatment for me at that time and it did wonders for me! By the time I hit 29 I had a bad flare up that just permanently scarred my colon. I toughed it out for 2 more years until I just couldn’t handle the exhaustion and tendencies of wanting to pass out. By the time I was 31, the option of having my colon removed came up. The doctor had noticed I had polyps and the original plan was to have my colon removed then after I healed remove the polyps and then talk about a reversal. After about 6 months of having my ileostomy, I went to see the doctor about removing the polyps. It turns out that they were pseudo polyps and it was my illness trying to flare up only there wasn’t anything it could do. (This story will continue in the comments)👇🏼
Hey Guys.
Tomorrow is my next hospital appointment. 🔜🏥
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I am very excited and honestly afraid. 😱
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I was the the last 17 years a several time there (feels like a thousand times).
There ist still no routine. Just this disgusting routine. 🌀
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It is always the same with:
• I have sleepless nights and nightmares a few days before.
• scary feeling when I step in the Hospital
• bad memories
• the fear of getting new bad news
• fear of medical treatments and side effects • fear of they couldn’t place a needle in because of my damaged veins.
...and much more!
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PLEASE keep your fingers crossed for me!!
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Does anyone feel the same? .
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Notice to myself:
Calm down.
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#spoonie #fear #afraid #spoonieproblems #krankenhaus #instacrohns #ibd #ibdfamily #CED  #crohnsofinsta #hospitallife #doctorappointment #flashbacks #pain #chronicillness #chronicdisease #chronicpain #autoimmuneillness #autoimmunewarrior #chronicillnesswarrior #warrior #fighter #bravery #brave #strenght #strong #keeponfighting #Entyvio #Entyviotherapie #Angsthase .
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Hey Guys. Tomorrow is my next hospital appointment. 🔜🏥 . I am very excited and honestly afraid. 😱 . I was the the last 17 years a several time there (feels like a thousand times). There ist still no routine. Just this disgusting routine. 🌀 . It is always the same with: • I have sleepless nights and nightmares a few days before. • scary feeling when I step in the Hospital • bad memories • the fear of getting new bad news • fear of medical treatments and side effects • fear of they couldn’t place a needle in because of my damaged veins. ...and much more! . . PLEASE keep your fingers crossed for me!! . Does anyone feel the same? . . Notice to myself: Calm down. . . #spoonie  #fear  #afraid  #spoonieproblems  #krankenhaus  #instacrohns  #ibd  #ibdfamily  #CED  #crohnsofinsta  #hospitallife  #doctorappointment  #flashbacks  #pain  #chronicillness  #chronicdisease  #chronicpain  #autoimmuneillness  #autoimmunewarrior  #chronicillnesswarrior  #warrior  #fighter  #bravery  #brave  #strenght  #strong  #keeponfighting  #Entyvio  #Entyviotherapie  #Angsthase  . . .