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#hospitalstay medias

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What is it about the smile of a big brother that makes our hearts melt? <3 Hospital stays take such an emotional toll on everyone in the family, so seeing a gleaming smile like this when you finally get to bring baby brother home are something like the sun parting the clouds after a storm. We're so honored we get to be a home-away-from-home for a families like the Barretts during the stormy times and are honored to have amazing sunshine supporters and friends like you. #keepingfamiliesclose #renonevada #renotahoe #renoheartsyou #hospitalstay #bigbrothers #littlebrothersarethebest #bigsmileday #finallyhome #homebound #homeawayfromhome #stormclouds #sunshineday
What is it about the smile of a big brother that makes our hearts melt? <3 Hospital stays take such an emotional toll on everyone in the family, so seeing a gleaming smile like this when you finally get to bring baby brother home are something like the sun parting the clouds after a storm. We're so honored we get to be a home-away-from-home for a families like the Barretts during the stormy times and are honored to have amazing sunshine supporters and friends like you. #keepingfamiliesclose  #renonevada  #renotahoe  #renoheartsyou  #hospitalstay  #bigbrothers  #littlebrothersarethebest  #bigsmileday  #finallyhome  #homebound  #homeawayfromhome  #stormclouds  #sunshineday 
Had a heart and blood pressure scare over the weekend. Hospital injected me with radio isotopes..............I was nuclear!!!! I'm still waiting for my superpowers to manifest themselves. .
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#nuclearmedicine #superpower #superpowers #bloodpressure #hospitalstay #health
Not exactly how we were planning on spending our Memorial Weekend, but very grateful to live next to a wonderful children’s hospital. #apendicitis #hospitalstay #grateful
Not exactly how we were planning on spending our Memorial Weekend, but very grateful to live next to a wonderful children’s hospital. #apendicitis  #hospitalstay  #grateful 
Hello! Ive been in a psychiatric hospital for 11 days and my journey is far from over. I appreciate my followers & the sweet comments I get from you!
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#bopo #mentalhealthawareness #mentalhealth #bipolar #depression #bipolardepression #hospitalstay
Funny story!!!! I decided to walk the Stairs again while I’m waiting at the hospital. I did many flights over & over. The FUNNY part is that when i went to go back, the door was LOCKED!!😯😂😂😂 .
So...I called my brother (thank goodness I had my phone!) to come let me in! 😂 What a goof!!! I told my brother he was my knight in shining armor today. 😉🛡⚔️
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#lockedout  #stairworkout #hospitalstay #move 
#happyendorphins #becreative #cardio 
#candoattitude #overcommer #dedication #healthylifestyle 
#thejokesonme #funnystory #myknight
Funny story!!!! I decided to walk the Stairs again while I’m waiting at the hospital. I did many flights over & over. The FUNNY part is that when i went to go back, the door was LOCKED!!😯😂😂😂 . So...I called my brother (thank goodness I had my phone!) to come let me in! 😂 What a goof!!! I told my brother he was my knight in shining armor today. 😉🛡⚔️ . #lockedout  #stairworkout  #hospitalstay  #move  #happyendorphins  #becreative  #cardio  #candoattitude  #overcommer  #dedication  #healthylifestyle  #thejokesonme  #funnystory  #myknight 
Gimme all the coffee and chocolate things!
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If you follow Her Happy Home, you know I love to show appreciation to people by giving gifts.  Hmmm, can gift GIVING be a love language? 🤔
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Today’s post is about an easy and INEXPENSIVE (because you know that’s the first thing I factor in) gift you can give to all the baby nurses during your hospital stay after giving birth. To read the post, follow the #linkinprofile or go to her-happy-home.com! 
#diygifts #gratitudegifts #laboranddelivery #laboranddeliverynurse #postpartum #postpartumnurse #thankyougift #hospitalstay
Gimme all the coffee and chocolate things! . . . If you follow Her Happy Home, you know I love to show appreciation to people by giving gifts. Hmmm, can gift GIVING be a love language? 🤔 . . Today’s post is about an easy and INEXPENSIVE (because you know that’s the first thing I factor in) gift you can give to all the baby nurses during your hospital stay after giving birth. To read the post, follow the #linkinprofile  or go to her-happy-home.com! #diygifts  #gratitudegifts  #laboranddelivery  #laboranddeliverynurse  #postpartum  #postpartumnurse  #thankyougift  #hospitalstay 
Getting closer and closer to having an answer. So we got an update from the dr again! Finally some good news! Her Prilosec has been working. Based on the tests and how great she did last night, they will move us to the pediatric floor today. They did say she looks more yellow today than she did last night so they’re checking her bilirubin levels. If they’re high she’ll be put under the warmer for at least 24 hrs. They’re recommending some infant CPR training for us to do outpatient. As long as everything continues to go well, we should HOPEFULLY go home tomorrow. I hope and pray there’s no more episodes! #picu #wakemed #hospitalstay #childrenshospital #sleepingbaby #shesprecious #newbornbaby #babygirl #girlmom #momofboth #staystrong #bundleofjoy #stayathomemom #sahm #momlife
Getting closer and closer to having an answer. So we got an update from the dr again! Finally some good news! Her Prilosec has been working. Based on the tests and how great she did last night, they will move us to the pediatric floor today. They did say she looks more yellow today than she did last night so they’re checking her bilirubin levels. If they’re high she’ll be put under the warmer for at least 24 hrs. They’re recommending some infant CPR training for us to do outpatient. As long as everything continues to go well, we should HOPEFULLY go home tomorrow. I hope and pray there’s no more episodes! #picu  #wakemed  #hospitalstay  #childrenshospital  #sleepingbaby  #shesprecious  #newbornbaby  #babygirl  #girlmom  #momofboth  #staystrong  #bundleofjoy  #stayathomemom  #sahm  #momlife 
2 years 10 months 10 days

What's so funny ?!?
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#boo #hospitalstay #day11 #kkhospital #24weeker #micropreemie #preemies #twins #boygirltwins #twinstagram #sgbaby #sg50baby
2 years 10 months 10 days

Black Sheep 🐏 : " Kaylen, let's go fishing together soon! "
White Sheep 🐑 : " Ok! Can I bring my doll along? "

I've bought a toy comb and mirror set to keep Kaylen entertained. It came with a hideous looking doll and some Peppa Pig figures. Doesn't see what's the link between them. Hmm... By the way, my kids don't watch Peppa Pig, (both don't like cartoons) but they seem to know the characters. The influence of friends!
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#fishingrod #woodentoys #peppapig #hospitalstay #day11 #kkhospital #24weeker #micropreemie #preemies #twins #boygirltwins #twinstagram #sgbaby #sg50baby
2 years 10 months 10 days Black Sheep 🐏 : " Kaylen, let's go fishing together soon! " White Sheep 🐑 : " Ok! Can I bring my doll along? " I've bought a toy comb and mirror set to keep Kaylen entertained. It came with a hideous looking doll and some Peppa Pig figures. Doesn't see what's the link between them. Hmm... By the way, my kids don't watch Peppa Pig, (both don't like cartoons) but they seem to know the characters. The influence of friends! . . . #fishingrod  #woodentoys  #peppapig  #hospitalstay  #day11  #kkhospital  #24weeker  #micropreemie  #preemies  #twins  #boygirltwins  #twinstagram  #sgbaby  #sg50baby 
We are back home!!! 👦🏡After a 5-night-stay at hospital, our little champ’s lungs are clear and  recovered from bronchiolitis. 🌟🙌Thanks everyone for checking on Maximo, all the beautiful messages and positive vibes you sent our way; we truly appreciate it. 🙏❤️
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Estamos de vuelta en casa!!!🌟🏡 Después de 5 noches en el hospital, la doctora le dio el alta a Maximo.🌟🙌 Mil gracias a todos por los mensajes y buenas vibras que enviaron para nuestro lado; se los agradecemos sinceramente. 🙏❤️
#bronchiolitis #maximoreschke #hospitalstay #bronquiolitis #wearebackhome
We are back home!!! 👦🏡After a 5-night-stay at hospital, our little champ’s lungs are clear and recovered from bronchiolitis. 🌟🙌Thanks everyone for checking on Maximo, all the beautiful messages and positive vibes you sent our way; we truly appreciate it. 🙏❤️ —- Estamos de vuelta en casa!!!🌟🏡 Después de 5 noches en el hospital, la doctora le dio el alta a Maximo.🌟🙌 Mil gracias a todos por los mensajes y buenas vibras que enviaron para nuestro lado; se los agradecemos sinceramente. 🙏❤️ #bronchiolitis  #maximoreschke  #hospitalstay  #bronquiolitis  #wearebackhome 
He desperately needs a haircut! #SuttonJameson #hospitalstay #pedsfloor #hesdoingbetter #hejustneedstodrink
#coffee We have a #lovehaterelationship One of the rules I #need to live by is #nostimulants From the time I got my #lvad explanted I slowly but surely started drinking coffee again. I limited myself to about 5oz a day and wet my whistle with lemon water throughout the whole day. After this last #hospitalstay it’s clear to me that I CAN NOT have #caffeine #detoxing #caffeinedetox #headachefordays #needtofigureout a #healthy transition from #sleep to #wake #gimmeyourbestshot #ideas
#coffee  We have a #lovehaterelationship  One of the rules I #need  to live by is #nostimulants  From the time I got my #lvad  explanted I slowly but surely started drinking coffee again. I limited myself to about 5oz a day and wet my whistle with lemon water throughout the whole day. After this last #hospitalstay  it’s clear to me that I CAN NOT have #caffeine  #detoxing  #caffeinedetox  #headachefordays  #needtofigureout  a #healthy  transition from #sleep  to #wake  #gimmeyourbestshot  #ideas 
Day 2 in the hospital so my hubby brought my planner stuff to make me feel better. So gotta love him. Yay so gonna work on my planner and jot down how horrible this hospital stay has been . #hospitalstay #besthubbyever❤️ #plannerlover #happiness#getting better. ❤️❤️❤️
Day 2 in the hospital so my hubby brought my planner stuff to make me feel better. So gotta love him. Yay so gonna work on my planner and jot down how horrible this hospital stay has been . #hospitalstay  #besthubbyever ❤️ #plannerlover  #happiness #getting  better. ❤️❤️❤️
man when they gave Hadi the green light to go, she was outta there! so thankful for our doctors & nurses and for the prayers from every one, we’re back home and resting! we never figured out exactly what happened but it turned into a bacterial infection! #sothankful #babygirl #onlydaughter #littlestlove #hospitalstay #feelingblessed #cookschildren
April 20, 2018~ 1 day new. Getting checked in to our new triplet room in the Special Care nursery. So glad all the girls are doing so well. They get to all be together in one room and there is space for my husband and I to stay and even sleep if we want. As soon as I get discharged from my own room, I plan on staying with them here. The nurses are all so nice too, they don’t make you feel like you’re bothering them at work. They encourage parents to be here, do kangaroo care, breastfeed and they’re teaching us as we go how to care for them. I can’t say  enough about @childrensmn 💙⭐️
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#preemies #hospitalstay #childrenshospital #triplets #multiples #nursery #motherhood #newmom #newborn #girlgang #brandnew #tripletsofinstagram
April 20, 2018~ 1 day new. Getting checked in to our new triplet room in the Special Care nursery. So glad all the girls are doing so well. They get to all be together in one room and there is space for my husband and I to stay and even sleep if we want. As soon as I get discharged from my own room, I plan on staying with them here. The nurses are all so nice too, they don’t make you feel like you’re bothering them at work. They encourage parents to be here, do kangaroo care, breastfeed and they’re teaching us as we go how to care for them. I can’t say enough about @childrensmn 💙⭐️ . . #preemies  #hospitalstay  #childrenshospital  #triplets  #multiples  #nursery  #motherhood  #newmom  #newborn  #girlgang  #brandnew  #tripletsofinstagram 
I’m trapped at the hospital all day for my moms surgery, BUT I found a way the get some activity & my heart rate up. 👍 STAIRS!!! I did at least 15 rounds of up & down these babies in a row!  Felt good!!!!! 😅👊🏻 My Daughter & I also walked the halls. I just wish I didn’t have FLIP FLOPS on today. 😉
I plan on having my shake tonight when I get home. 
BTW, surgery went well. 🙌 Praying for healing. .
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#findaway  #getmoving 
#hospitalstay #stairsworkout #momlife #activelifestyle #outofbreath #sweatisfatcrying #flipflops #nike #sunglassesselfie
I’m trapped at the hospital all day for my moms surgery, BUT I found a way the get some activity & my heart rate up. 👍 STAIRS!!! I did at least 15 rounds of up & down these babies in a row! Felt good!!!!! 😅👊🏻 My Daughter & I also walked the halls. I just wish I didn’t have FLIP FLOPS on today. 😉 I plan on having my shake tonight when I get home. BTW, surgery went well. 🙌 Praying for healing. . . . #findaway  #getmoving  #hospitalstay  #stairsworkout  #momlife  #activelifestyle  #outofbreath  #sweatisfatcrying  #flipflops  #nike  #sunglassesselfie 
I just don't think any one list has every I-wouldn't-have-thought-of-that item for preparing for staying at the hospital.  You don't want to over-pack, but you don't want to be unprepared.  What do you think are must-pack items for a hospital bag for mom and baby?  I, obviously, suggested a phone charger. 😉
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#longislandshortcake #longisland #longislandny #newyork #suffolkcounty #maternity #firsttimemom #newmom #bringinghomebaby #baby #newborn #motherhood #hospital #hospitalstay #inpatient #pregnancy #maternityward #pregnant #suitcase #packing #suitcase #hospitalbag #blog #blogger #bloggerlife #bloggers #longislandblogger #newyorkblogger
I just don't think any one list has every I-wouldn't-have-thought-of-that item for preparing for staying at the hospital. You don't want to over-pack, but you don't want to be unprepared. What do you think are must-pack items for a hospital bag for mom and baby? I, obviously, suggested a phone charger. 😉 . . #longislandshortcake  #longisland  #longislandny  #newyork  #suffolkcounty  #maternity  #firsttimemom  #newmom  #bringinghomebaby  #baby  #newborn  #motherhood  #hospital  #hospitalstay  #inpatient  #pregnancy  #maternityward  #pregnant  #suitcase  #packing  #suitcase  #hospitalbag  #blog  #blogger  #bloggerlife  #bloggers  #longislandblogger  #newyorkblogger 
Getting checked in the room. #SuttonJameson #hospitalstay #postsurgery #firstambulanceride
So I thought I'd finally introduce you to the temporary Peggy Sue (my PEG tube). They managed to place a slightly smaller tube (corflo french gage 18) and I've been very lucky that its not leaking too much, infact its leaking less than my last tube. It has a ballon in my stomach to keep it from falling out, which is a lot more comfortable in my stomach than the bolster in the last tube. The bumper on the outside I still need to get the hang of as its a bit stiff because its new. Its making my tube stick out more as its keeps the tube straight out whereas my last tube tucked it to the side. But this actually seems to be better on my stoma (the hole it comes out of). It also has a little extension on it so that I get 2 connectors on the end. The pain in my stoma is much better today, however im still struggling with pain when I have anything in my stomach. Which is a problem. I've lost 2Kg in the last week and have been dehydrated because of not tolerating anything which is a problem. Fingers crossed this gets better. 
#pegtube #pegtubereplacement #gtube #gtubeawareness #pegtubeawareness #feedingtube #feedingtubeawareness #hospitalstay #dripstand #smallbutmighty #strongerthanilook #dysmotility #tubie #tubielife #spooniewarrior #spoonie #chronicallyill #invisableillness #hospitallife #gastroissues #gastrointestinal #gastrointestinalproblems
So I thought I'd finally introduce you to the temporary Peggy Sue (my PEG tube). They managed to place a slightly smaller tube (corflo french gage 18) and I've been very lucky that its not leaking too much, infact its leaking less than my last tube. It has a ballon in my stomach to keep it from falling out, which is a lot more comfortable in my stomach than the bolster in the last tube. The bumper on the outside I still need to get the hang of as its a bit stiff because its new. Its making my tube stick out more as its keeps the tube straight out whereas my last tube tucked it to the side. But this actually seems to be better on my stoma (the hole it comes out of). It also has a little extension on it so that I get 2 connectors on the end. The pain in my stoma is much better today, however im still struggling with pain when I have anything in my stomach. Which is a problem. I've lost 2Kg in the last week and have been dehydrated because of not tolerating anything which is a problem. Fingers crossed this gets better. #pegtube  #pegtubereplacement  #gtube  #gtubeawareness  #pegtubeawareness  #feedingtube  #feedingtubeawareness  #hospitalstay  #dripstand  #smallbutmighty  #strongerthanilook  #dysmotility  #tubie  #tubielife  #spooniewarrior  #spoonie  #chronicallyill  #invisableillness  #hospitallife  #gastroissues  #gastrointestinal  #gastrointestinalproblems 
Finally home!!! I was discharged around 8pm yesterday and was thrilled to wake up in my own bed this morning! No more X-rays, blood draws, heparin shots, chest tubes. Thank you to everyone who provided their help and support, I don’t know how I will ever repay you! I could not have done this without everyone’s thoughts and prayers and visits and #somanygifts. I will miss the incredible medical team at MUSC but am looking forward to visiting and forfeiting my patient status! @musc #art4E @seduran325 @suzanne23133 @jennifermscott @palmettosweetheart @oliviajm96 @clintonmcdavis @nataliegaildavis @fromtheseeyesiseetheworld @handsoffmysack @jhansoccer @eleanorjojo09 @lgibbs48 @cer8910 @loosewheel2 @brandigianni @elbadrea @jdsunflower3 @soniakohler @gangsta_trevy #spontaneouspneumothorax #hospitalstay #chesttube #IV #heartmonitor #wheelchair #nurses #pleurodesis #lungsurgery
Finally home!!! I was discharged around 8pm yesterday and was thrilled to wake up in my own bed this morning! No more X-rays, blood draws, heparin shots, chest tubes. Thank you to everyone who provided their help and support, I don’t know how I will ever repay you! I could not have done this without everyone’s thoughts and prayers and visits and #somanygifts . I will miss the incredible medical team at MUSC but am looking forward to visiting and forfeiting my patient status! @musc #art4E  @seduran325 @suzanne23133 @jennifermscott @palmettosweetheart @oliviajm96 @clintonmcdavis @nataliegaildavis @fromtheseeyesiseetheworld @handsoffmysack @jhansoccer @eleanorjojo09 @lgibbs48 @cer8910 @loosewheel2 @brandigianni @elbadrea @jdsunflower3 @soniakohler @gangsta_trevy #spontaneouspneumothorax  #hospitalstay  #chesttube  #IV  #heartmonitor  #wheelchair  #nurses  #pleurodesis  #lungsurgery 
This is my life for the next 2 weeks. 11 #prescriptions 1 #shot to my abdomen, and flushing a #drain so my #pancreaticjuice has a place to go (4 times a day). Also, no processed sugar because my pancreatic function isn't completely back yet. 
It's not #pretty, but it's my #reality I'm also taking the time to post all of this because when I was #diagnosed I had no place to look for #solidarity I had no frame of reference to prepare. All of the case studies were from cancer patients, and that is SO scary, and it's not representative of a #pseudopapillarytumor 
If going through this, and sharing my reality can help just one other young woman, I feel like it's worth it.
#pharmacy #distalpancreatectomy #splenectomy #hospitalstay #pseudopapillary #pseudopapillaryneoplasm #recovery #prescription #surgery #tumor #cancerfree #staples
This is my life for the next 2 weeks. 11 #prescriptions  1 #shot  to my abdomen, and flushing a #drain  so my #pancreaticjuice  has a place to go (4 times a day). Also, no processed sugar because my pancreatic function isn't completely back yet. It's not #pretty , but it's my #reality  I'm also taking the time to post all of this because when I was #diagnosed  I had no place to look for #solidarity  I had no frame of reference to prepare. All of the case studies were from cancer patients, and that is SO scary, and it's not representative of a #pseudopapillarytumor  If going through this, and sharing my reality can help just one other young woman, I feel like it's worth it. #pharmacy  #distalpancreatectomy  #splenectomy  #hospitalstay  #pseudopapillary  #pseudopapillaryneoplasm  #recovery  #prescription  #surgery  #tumor  #cancerfree  #staples 
Prayers out to a friend and her loved ones during a very difficult time.  #prayers #addiction #hospitalstay #prayerwarriors #alcoholism #lungfailure #seizures #loveyou
Happy that momma is making great progress! Used some of my #babybatbeauty lippie in the color #venus to make myself look less corpse like earlier. (It has been a long 48 hours)
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#lipstick #corpsecover #makeup #pinklips #momma #hospitalstay #lips
This picture was taken 2 days after my surgery!! The best surgeon ever! If you are looking to get your heart ♥️ fixed, Dr. Ramchandani is your man!! His bedside manner is the best I have experienced from any doctor, and he is a surgeon!! God is great that I found him and he did my Aortic Valve replacement without opening me up completely. It was a non evasive surgery and that is why I get to go home NOW! Oh yeah!! Thanks everyone for your prayers and well wishes!!#bestsurgeon #methodisthospital #hospitalstay #heartsurgery #goinghome #godisgreat🙏 #thanksforalloftheprayers
This picture was taken 2 days after my surgery!! The best surgeon ever! If you are looking to get your heart ♥️ fixed, Dr. Ramchandani is your man!! His bedside manner is the best I have experienced from any doctor, and he is a surgeon!! God is great that I found him and he did my Aortic Valve replacement without opening me up completely. It was a non evasive surgery and that is why I get to go home NOW! Oh yeah!! Thanks everyone for your prayers and well wishes!!#bestsurgeon  #methodisthospital  #hospitalstay  #heartsurgery  #goinghome  #godisgreat 🙏 #thanksforalloftheprayers 
Hospital Stay **Wounds and mombod  on last slide so close your eyes if you're a baby***
1. ER meds finally taking the edge off 12+hours of pain. 2. Oh hey meds work. Say goodbye to babies 😏 3. Surprise, you have pancreatitis on top of an angry gallbladder that wants out, but we can't take it out till the pancreatitis heals. Prepare for more pain, no food or water, and clear your schedule for at least 5 days. 🙄 4. Family is the best and everybody tried to help make my room not so terrible and keep me entertained and happy 💛 5. Post-op Selfie. Dark day. Don't fucking ignore massive pains in your bodies and think you wont die guys, it's not worth it 😕 6. Home. Bandages and blood and gore cleaned up but ill have 4 really fugly scars when its done. Maybe the one in my belly button will be hidden pretty well though. 🙄
#reallife #hardesthingiveeverdone #pancreatitiscansuckit
#hospitalstay #gallbladderremoval
Hospital Stay **Wounds and mombod on last slide so close your eyes if you're a baby*** 1. ER meds finally taking the edge off 12+hours of pain. 2. Oh hey meds work. Say goodbye to babies 😏 3. Surprise, you have pancreatitis on top of an angry gallbladder that wants out, but we can't take it out till the pancreatitis heals. Prepare for more pain, no food or water, and clear your schedule for at least 5 days. 🙄 4. Family is the best and everybody tried to help make my room not so terrible and keep me entertained and happy 💛 5. Post-op Selfie. Dark day. Don't fucking ignore massive pains in your bodies and think you wont die guys, it's not worth it 😕 6. Home. Bandages and blood and gore cleaned up but ill have 4 really fugly scars when its done. Maybe the one in my belly button will be hidden pretty well though. 🙄 #reallife  #hardesthingiveeverdone  #pancreatitiscansuckit  #hospitalstay  #gallbladderremoval 
Just walked for 25 minutes and could have walked away for more! Determined to go home to my family today!  Thanks everyone for your prayers and well wishes!! #familyfirst #familymatters #hospitalstay #determinedtogohome #anythingispossible #livingBIG #beingratitude
Getting a bit fed up of staring at these curtains now. #hospitalstay #appendicitis #iwanttogohome
When Codey, Charlie and I started down this scary and uncertain road on Friday afternoon ... never did we imagine we would end up where we are today. Loved. By so many. Supported. By more friends, family & strangers than we even knew existed in our world. We never knew just how many of you we needed to be able to brave the storm ... endure the challenges ... and overcome each obstacle that had been set before our tiny warrior princess. She is something to behold when she knows her family is standing behind her. Watch out! This force is growing stronger, her courage is off the charts, and the fight with in is undeniable. I'm sure you are waiting for an update so here is what we know so far: plastics work looks good ... trauma came by last night to investigate an opacity on her lung tissue that was found on the CT scan (PSA for parents - push for your kids. I didnt in the ER and I am praying every second that we didnt miss something) ... breathing is great ... we are still on significant pain meds (coming off those is what I am silently freaking out about) ... waiting for full team to come by later today to give report. Goal: TO GO HOME TODAY! Any updates will be shared as soon as we know something solid. WE CANT THANK YOU ENOUGH. Each of you have our gratitude and have left an everlasting mark on our hearts. Remember, what you put out is what you get back in. Be good. Do good. Love your family no matter what. In an instant, with one single action, one single decision ... your road could lead off the edge of a cliff and your safety net ... your family ... will simply vanish.
When Codey, Charlie and I started down this scary and uncertain road on Friday afternoon ... never did we imagine we would end up where we are today. Loved. By so many. Supported. By more friends, family & strangers than we even knew existed in our world. We never knew just how many of you we needed to be able to brave the storm ... endure the challenges ... and overcome each obstacle that had been set before our tiny warrior princess. She is something to behold when she knows her family is standing behind her. Watch out! This force is growing stronger, her courage is off the charts, and the fight with in is undeniable. I'm sure you are waiting for an update so here is what we know so far: plastics work looks good ... trauma came by last night to investigate an opacity on her lung tissue that was found on the CT scan (PSA for parents - push for your kids. I didnt in the ER and I am praying every second that we didnt miss something) ... breathing is great ... we are still on significant pain meds (coming off those is what I am silently freaking out about) ... waiting for full team to come by later today to give report. Goal: TO GO HOME TODAY! Any updates will be shared as soon as we know something solid. WE CANT THANK YOU ENOUGH. Each of you have our gratitude and have left an everlasting mark on our hearts. Remember, what you put out is what you get back in. Be good. Do good. Love your family no matter what. In an instant, with one single action, one single decision ... your road could lead off the edge of a cliff and your safety net ... your family ... will simply vanish.
While sitting In the hospital,all my clothing has been LuLaRoe.  I have been comfortable all week long and today I wore my cute Kermit Classic T and my Sarah with black leggings. Mom has to be comfy to help her son heal. #lularoe #lularoecollectionfordisney #kermit #hospitalstay #sarah

#lularoesarah #lularoepro #hospitalclothes #simplycomfortable #autismmom #hssurvivor #hidradenitissuppurativa #theblogissue #thatlularoelife #mom #dogmom #disneyaddict #fashion #over45 #shopwithus #firewife #stuckinfrisco #wemissnevada #carsonvalley #775 #disneyfashion #disney
While sitting In the hospital,all my clothing has been LuLaRoe. I have been comfortable all week long and today I wore my cute Kermit Classic T and my Sarah with black leggings. Mom has to be comfy to help her son heal. #lularoe  #lularoecollectionfordisney  #kermit  #hospitalstay  #sarah  #lularoesarah  #lularoepro  #hospitalclothes  #simplycomfortable  #autismmom  #hssurvivor  #hidradenitissuppurativa  #theblogissue  #thatlularoelife  #mom  #dogmom  #disneyaddict  #fashion  #over45  #shopwithus  #firewife  #stuckinfrisco  #wemissnevada  #carsonvalley  #775  #disneyfashion  #disney 
Doing a 3 day eeg to see whats going on when he has all these seizures. This boy is so strong and even though this isn't fun he manages to smile through it all. #babyboy #toddler #hospitalstay #hospital #eeg #seizures #tuberoussclerosis #ihatethisdisease
Daddy got miss Peanut a new snuggly for her early birthday present. She literally hasn’t let it go since this morning. We have possibly a few more days here in the hospital.  She has a bad viral infection that is causing her throat to be swollen. With her narrow trachea any swelling can cause problems. They are planning on monitoring her and assisting her as much as they can. Thank you for all the love and prayers. Even if we haven’t responded, we’ve read each comment. Looks like Peanut will be celebrating year three with the amazing nurses and doctors at Radys 👍🏼
@kimjones15 it makes me think of you 😘
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#peanut #jana #downsyndrome #downrightperfect #theluckyfew #autism #hospitalstay
Daddy got miss Peanut a new snuggly for her early birthday present. She literally hasn’t let it go since this morning. We have possibly a few more days here in the hospital. She has a bad viral infection that is causing her throat to be swollen. With her narrow trachea any swelling can cause problems. They are planning on monitoring her and assisting her as much as they can. Thank you for all the love and prayers. Even if we haven’t responded, we’ve read each comment. Looks like Peanut will be celebrating year three with the amazing nurses and doctors at Radys 👍🏼 @kimjones15 it makes me think of you 😘 . . #peanut  #jana  #downsyndrome  #downrightperfect  #theluckyfew  #autism  #hospitalstay 
What have I been doing today? Getting a tumour the size of a golf ball and half my thyroid gland cut out.. thanks to my legend of a husband for this hospital gift 🎁 #thyroidectomy #thyroidproblems #thyroidcancerawareness #operation #operationgame #canula #hospitalstay #nhs #nhsappreciation #byebyetumour #thyroidawarenessweek #thyroidawarenessmonth #thyroidawareness #checkyourneck #notdead
Here we go again. I'm just praying her doctors can figure something out for her. #dad #dadlife #sickwife #Crohnsflare #chronsdisease #strongwife #hospitalstay #shesreadytogo
So here’s what’s going on. Since Saturday night Peanut has randomly started screaming out in pain. These burst last about 1-3 hours of her constantly crying. She has no fever, all blood work came back clear and even the ultrasound they did on her intestines was good. We have no idea what is hurting her so bad. She was awake screaming almost all night. This isn’t like her at all. They did x-rays early this morning. We are just waiting for the team to come in and figure out what the plan is. Please pray for our Peanut. We have felt so helpless watching her in so much pain. We just need answers so we can help her. .
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#peanut #jana #sickbaby #prayforpeant #hospitalstay
So here’s what’s going on. Since Saturday night Peanut has randomly started screaming out in pain. These burst last about 1-3 hours of her constantly crying. She has no fever, all blood work came back clear and even the ultrasound they did on her intestines was good. We have no idea what is hurting her so bad. She was awake screaming almost all night. This isn’t like her at all. They did x-rays early this morning. We are just waiting for the team to come in and figure out what the plan is. Please pray for our Peanut. We have felt so helpless watching her in so much pain. We just need answers so we can help her. . . #peanut  #jana  #sickbaby  #prayforpeant  #hospitalstay 
2 years 10 months 07 days

Black Sheep 🐏 : " Kaylen, am I handsome? "
White Sheep 🐑 : " Hehe... that's for me! "

Kaylen's fever finally broke. She still couldn't maintain her oxygen level so we gotta stay a few more days.

#kkhospital #hospitalstay #day8 #sunnies #24weeker #micropreemie #preemies #twins #boygirltwins #twinstagram #sgbaby #sg50baby
1 week of food freedom. 
I have learned a lot this week. I can have treats and not feel guilty! I had cookies, cheesecake, and not one bit of guilt. 
I also tried some new vegetables and will try more this week. 
I lost 3 pounds and so close to 4 pounds. 
We have amazing progress reported in our group! Everyone has lost and some as many as 8-10+ pounds in a week! 
We have a few spots left to start and truly enjoy losing weight where nothing is off limits! Drop me a comment or message for all the details! 
It’s time for you to find your freedom from food!
1 week of food freedom. I have learned a lot this week. I can have treats and not feel guilty! I had cookies, cheesecake, and not one bit of guilt. I also tried some new vegetables and will try more this week. I lost 3 pounds and so close to 4 pounds. We have amazing progress reported in our group! Everyone has lost and some as many as 8-10+ pounds in a week! We have a few spots left to start and truly enjoy losing weight where nothing is off limits! Drop me a comment or message for all the details! It’s time for you to find your freedom from food!
This tiny hand...it’s been a very long night with very little sleep .
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#peanut #jana #hospitalstay #sickbaby #longnight #downsyndrome #downsyndromelove #autism #theluckyfew
So I’ve been a little quiet lately. You’ll see from my photos where I spent my weekend due to pesky kidney stones 🙄But I’m home! And back being mum, although I’m keeping it easy. 
Here’s F trying out Tilda kids rice with a hard boiled egg, kiwi and a little Yeo. The rice portion is quite large but lots ended up on the floor chair, table... #blw #babyledweaning #minifoodie #babyfoodie #healthystart #firsttimemum #babyledweaningjourney #lunch #babyapproved #hospitalstay #lovingbeingmum #home #yeovalley #tilda
So I’ve been a little quiet lately. You’ll see from my photos where I spent my weekend due to pesky kidney stones 🙄But I’m home! And back being mum, although I’m keeping it easy. Here’s F trying out Tilda kids rice with a hard boiled egg, kiwi and a little Yeo. The rice portion is quite large but lots ended up on the floor chair, table... #blw  #babyledweaning  #minifoodie  #babyfoodie  #healthystart  #firsttimemum  #babyledweaningjourney  #lunch  #babyapproved  #hospitalstay  #lovingbeingmum  #home  #yeovalley  #tilda 
It’s a cool feeling when you can inspire your nurse from your hospital room at 4:00 am with my family story! #livingBIG! #beingratitude #inspireanywayyoucan #famiymatters #familyfirst #hospitalstay
Cheerful sunshiney lemon 🍋 vegan non-toxic nails by @heidi_hock have been lifting my spirits after a truly rubbish couple of days in hospital. I cannot tell you how much it makes a difference that when I feel truly horrendous to have visual cues that cheer me up just a little. I get to go home this afternoon hopefully :) can’t wait to see the bunnies and sleep in my own bed! Big thanks go to @ange_green_ for all the visits, especially thanks for dealing with all the vomit and needles - it is truly life affirming having a friend like you who takes me at my worst-best and everything in between 💕💕💕 & of course @janstagramzz who has been simply the best and probably deserves some sort of medal 🥇 #vegan #vegannails #yellownails #yellow #vegansofig #veganbristol #bristolvegan #chronicillness #spoonie #hospital #nontoxic #nails #nailsofinstagram #supportlocal #supportsmallbusiness #supportwomen #hospitalstay
Cheerful sunshiney lemon 🍋 vegan non-toxic nails by @heidi_hock have been lifting my spirits after a truly rubbish couple of days in hospital. I cannot tell you how much it makes a difference that when I feel truly horrendous to have visual cues that cheer me up just a little. I get to go home this afternoon hopefully :) can’t wait to see the bunnies and sleep in my own bed! Big thanks go to @ange_green_ for all the visits, especially thanks for dealing with all the vomit and needles - it is truly life affirming having a friend like you who takes me at my worst-best and everything in between 💕💕💕 & of course @janstagramzz who has been simply the best and probably deserves some sort of medal 🥇 #vegan  #vegannails  #yellownails  #yellow  #vegansofig  #veganbristol  #bristolvegan  #chronicillness  #spoonie  #hospital  #nontoxic  #nails  #nailsofinstagram  #supportlocal  #supportsmallbusiness  #supportwomen  #hospitalstay 
No matter how organized you are, how cautious you are, if you plan your life and try to predict every move in life that you might make, there will still be the unexpected events that come out of no where, that are completely out of your control.  This week has been one of those events that I would have never expected. It was an emotional rollercoaster and I thank God that we made it through what was the hardest most horrifying experience of mine and my husband's entire life (and at the same the most amazing time) .  All I can do is thank God for my healthy baby girl, my amazing husband (who is my rock), and my supportive family for being by my side. Here are a few pictures from our 5 day hospital stay (our journey from checking in, to saying good bye). And can I say that I'm an completely head over heels for our baby girl Cassandra Lynne. (So many emotions were experience this week).
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 #newbaby #newbabygirl #newparents #helloworld #csection #perfection #sweetbabygirl #firsttimeparents #firsttimemom #stjohnshospital #newborn #newbornbaby #shesperfect #mommiesgirl #hospitalstay #blessed #love #inlove #mydaughter #myworld #daddiesgirl #daddieslittlegirl #welcometotheworld #firstbaby #stikeapose #birthstory emotions #mybirthstory #proudparents #family #tb
No matter how organized you are, how cautious you are, if you plan your life and try to predict every move in life that you might make, there will still be the unexpected events that come out of no where, that are completely out of your control. This week has been one of those events that I would have never expected. It was an emotional rollercoaster and I thank God that we made it through what was the hardest most horrifying experience of mine and my husband's entire life (and at the same the most amazing time) . All I can do is thank God for my healthy baby girl, my amazing husband (who is my rock), and my supportive family for being by my side. Here are a few pictures from our 5 day hospital stay (our journey from checking in, to saying good bye). And can I say that I'm an completely head over heels for our baby girl Cassandra Lynne. (So many emotions were experience this week). . . #newbaby  #newbabygirl  #newparents  #helloworld  #csection  #perfection  #sweetbabygirl  #firsttimeparents  #firsttimemom  #stjohnshospital  #newborn  #newbornbaby  #shesperfect  #mommiesgirl  #hospitalstay  #blessed  #love  #inlove  #mydaughter  #myworld  #daddiesgirl  #daddieslittlegirl  #welcometotheworld  #firstbaby  #stikeapose  #birthstory  emotions #mybirthstory  #proudparents  #family  #tb 
For those that know me, they know my great gram is one of my favorite people. This weekend, she gave us all a massive scare and currently sits in CICU in a RotoProne bed heavily sedated in an attempt to alleviate severe double pneumonia. Instead of going on adventures with my gramps and aunt from the west coast I see once in a blue moon, we've camped out in the hospital. .
Things are beginning to look up and I'm so grateful for my family. 😍
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#realtalk #medical #hospitalstay #icu #greatgrandma #favoriteperson #canyoutelliloveskyscenes
For those that know me, they know my great gram is one of my favorite people. This weekend, she gave us all a massive scare and currently sits in CICU in a RotoProne bed heavily sedated in an attempt to alleviate severe double pneumonia. Instead of going on adventures with my gramps and aunt from the west coast I see once in a blue moon, we've camped out in the hospital. . Things are beginning to look up and I'm so grateful for my family. 😍 . #realtalk  #medical  #hospitalstay  #icu  #greatgrandma  #favoriteperson  #canyoutelliloveskyscenes 
Not the way we expected to spend the weekend; high temperature, lots of coughing, and hospital admission for Maximo. 🤒🏨Our little guy has Bronchiolitis so we’ll stay here for a few days until his lungs clear up. 💙
Seems that the flu is coming with all strength this winter season and the highly contagious virus RSV is spreading around. 
For high-risk kids like Maximo, chest infections can be quite dangerous...😢Thankfully his paedetrician is keeping a very close eye on him making sure he recovers soon. 🙏👦
—- Definitivamente no es la forma que pensábamos pasar el finde: fiebre, mucha tos e internación para Maximo. 🤒🏨Nuestro hijito tiene Bronquiolitis así que nos vamos a quedar en el hospital por unos días hasta que los pulmones se limpien.💙 Parece que este invierno se viene con mucha gripe y Bronquiolitis a causa del virus VSR que es altamente contagioso. Para niños de alto riesgo como Maximo, las infecciones de pecho pueden ser bastante peligrosas. 😢 Por suerte su pediatra está con los ojos encima suyo y asegurándose de que se recupere pronto. 🙏👦
#bronchiolitis #maximoreschke #hospitalstay #bronquiolitis
Not the way we expected to spend the weekend; high temperature, lots of coughing, and hospital admission for Maximo. 🤒🏨Our little guy has Bronchiolitis so we’ll stay here for a few days until his lungs clear up. 💙 Seems that the flu is coming with all strength this winter season and the highly contagious virus RSV is spreading around. For high-risk kids like Maximo, chest infections can be quite dangerous...😢Thankfully his paedetrician is keeping a very close eye on him making sure he recovers soon. 🙏👦 —- Definitivamente no es la forma que pensábamos pasar el finde: fiebre, mucha tos e internación para Maximo. 🤒🏨Nuestro hijito tiene Bronquiolitis así que nos vamos a quedar en el hospital por unos días hasta que los pulmones se limpien.💙 Parece que este invierno se viene con mucha gripe y Bronquiolitis a causa del virus VSR que es altamente contagioso. Para niños de alto riesgo como Maximo, las infecciones de pecho pueden ser bastante peligrosas. 😢 Por suerte su pediatra está con los ojos encima suyo y asegurándose de que se recupere pronto. 🙏👦 #bronchiolitis  #maximoreschke  #hospitalstay  #bronquiolitis 
He is so strong!!
He's so real 😂😂😂 #fdwarrior #fibrousdisplaysia #lowwhitebloodcells #lowmagnesium #hospitalstay  #waiting