1/2: My main goal with Vitiligo awareness is for every person who has the condition to stop saying "I suffer from Vitiligo" but instead say "I have Vitiligo"
Side note: I recorded this video once, I know I'm rambling but this is all still pretty new to me so it's evident how nervous I am... I don't have a fancy camera yet, my family is pretty loud so forgive the background noises and lastly I just want you to get to know me personally without fancy lighting and things - with all that being said I hope the message touches you ❤
I've been called weak so many times but I bet you didn't see this coming... You didn't know the raging storms I faced did you?
You didn't see the stained pillow cases from all my tears.
You had no idea how many times my brother picked up from the bathroom floor because the pain of my Endometriosis knock me out.
I'm sure you had no idea how often I'd wake up in hospital on a pain drip or how one time I was so damn high on morphine that I felt like I was floating.
Guess you had no idea that some months I basically spent my entire salary on Endometriosis specialists, after hour Doctors and medication... Yet I've been called weak so many times?
Ima take this time to correct all those people: I ain't weak - I'M A MUTHA F#CKING WORRIOR PRINCESS 💖 (I will try and share more about my Endometriosis journey 😘)
My intuition is telling me there'll be better days
I sit in silence and find whenever I meditate
My fears alleviate, my tears evaporate
My faith don't deviate, ideas don't have a date
But see I'm growing and getting stronger with every breath 🖤
I've been receiving so many questions regarding my Vitiligo and instead of just typing out a response I thought I'd try and be a little bit more interactive and record my replies/answers - this is way out of my comfort zone so please bare with me... But here goes... 🤗😨🙆
I use to worry about whether people would accept me with my new skin, I use to be terrified that guys wouldn't find me attractive anymore but then I learnt to embrace and love every little tiny spot on my body.
If you don't think I'm beautiful that's okay because I do!
Lesson: Acceptance of one's self is the first step to REAL beauty 😊💖 Don't EVER let anyone's opinion define you or your worth.
From the bottom of my heart THANK YOU @gweneth_paltrou.x for writing a poem especially for me! My heart is smiling! This is for the 1% 🌍 of the world who has Vitiligo 👩🏼🎤THE GIRL WITH VITILIGO.
this is marian,
the girl with vitiligo.
her skin says,
‘wherever you go,
you feel dull
i shine like diamonds’
she wears short shirts
and short dresses
those ones you thought of
hr already asked those questions
but from the inflection of her expressions
i came back with more than i had guessed with
i think i’m a leftist
but when she said, ‘nabeel,
write me a poem please’
it hit me right in the centre
left me breathless
fascinated by identity and eventually i asked
how she felt about her skin
she sighed, ‘where do i begin?’ every now and then
i look up again
put down my pen
siphon the thoughts of her head
her eyes and her legs
because our bodies tell stories
whether you think it’s a rorschach’s test
or that’s she’s stained
or spilled on
or grilled on
that’s your prerogative
because she says ‘I AM BEAUTIFUL
MY SKIN IS THE EARTH
LIKE CONTINENTS YOU’VE NEVER SEEN
THE LIKES OF WHICH YOU COULD NEVER DREAM OF
SO SLINK OFF
BECAUSE I AM PANGEA
I AM LAURASIA
UNAPOLOGETICALLY BEAUTIFULLY BRAZEN
I FEEL SORRY FOR YOU
a critic, nameless
I AM MARIAN,
THE GIRL WITH VITILIGO
MY SKIN SAYS,
wherever you go,
Left: Pre Vitiligo with no make up
Middle: Vitiligo with a ton of make up, colour correction, foundation ect ect (I could have basically painted a house with all the product on my face lol)
Right: Post Vitiligo and finally comfortable and happy in my new skin ❤