Share your fundraising campaign onto social media to get your family, friends and community involved! It's a great opportunity to share let your supporters learn more about what you're doing and your reason for supporting the cause! ❤️⠀
Want to join the #ScotiabankCharityChallenge with #TeamCPABC ? Sign up with us today with the link in our bio☝️
Last night this girl performed with her high school choir and it was amazing! Watching her on stage singing and having fun, seeing her with her friends off stage, and our own after show personal review of highlights, fills my heart with joy. With all the challenges facing her, this girl still shines. I am honored to be her mom and I cherish every moment with her. She’s growing too fast and I can’t seem to keep up sometimes, but I am enjoying the ride.
This week we'd like to give a big THANK YOU to the volunteers that share our vision for independence. Who generously gift their time and energy.
The role each and every one of you play at VisAbility, and the work you do for people living with a disability, is deeply meaningful. Your work is seen, it is highly appreciated and it makes a difference.
You have helped deliver life-changing services. And helped transform lives.
Scroll to see a small portion of our incredible volunteers! #nvw2018#VisAbility#VisAbilityAU#VisAbilityWA
Over the last few years, we've had HUNDREDS of volunteers involved with Autism Swim - be it helping us at events, business advisory, students, parents and friends. The organisation started with one person and a mission, and now we're operating in five countries, and changing a huge number of lives. We have only been able to do it because of you. Time is the most valuable asset we all have, and choosing to give some of yours is one of the greatest gifts you can give. Thank you. Happy National Volunteers Week.
There are moments in motherhood where I sometimes wish I was a working mom. I sometimes feel like I don’t have much purpose or what I do doesn’t really count because I stay at home. With all the school battles and kid meltdowns and teenage drama, I can feel less than valuable as I muddle through each moment. And then there’s this...among many more, that I get to walk alongside my kids. I get to be there for the moments in their lives that matter to them. Today I am at my little one’s first walk a thon for school. She was so cute holding hands with her little friends and walking together, and I got to see it. I know what I do matters and I know that being there for every moment I can be, matters. Raising these kids, fighting for their needs, and holding them through their breaking point matters. I may not get a paycheck but these kids are worth far more than that and I AM valuable and I have a greater purpose.
🥂Tip 3: Offer incentives to your donors! Rewards are great motivators, and a surefire way to help you meet your fundraising goal quicker! 🙌 ⠀
Register today for the #ScotiabankCharityChallenge with the link in our bio. Make sure you use one of our charity codes for a discounted registration fee!
Nope, these are not our MTeam members, but another amazing group of people - hats off and a well-deserved bottle of rosé for this team of ladies in New York who are sending out 1,000 letters to potential donors to encourage them to support research into #FoxG1 . See our story highlight for more on this rare genetic condition that is close to our hearts. 🦊 #volunteering
Meet Ryder! #littlestwarriorwednesday
Ryder has Williams Syndrome and his mom @_ashleymontano shared with us a little of Ryder’s story:
“The first handful of doctors we had seen had all told us the same news, "Ryder was going to die.” Little did we know our lives were forever about to change, Thank God. In walked an older gentleman that smelled just like my grandpa used to, he started examining Ryder, he looked over and told us, “he has Williams Syndrome". He was older and couldn't figure out how to get google on his computer. I literally couldn't wait to get to the car so I could figure out what this syndrome was!”
To read the rest of Ryder’s story visit our blog (link in bio) #williamssyndrome#williamssyndromeawareness#williamssyndromewarrior#williamssyndromeawarenessmonth#wsawareness#spreadawareness
How do you Push limit's???? Easy, you just wake up, be grateful for life, know your mission, OWN IT, then go out & SLAY "PUSH GIRLS'' STYLE! 💙💋 ~Push Girls For Daily powerful Motivation, check out: @chairliesangels
#WSawareness Day 22 -
I am an individual with Williams Syndrome
I want you to know •
• don’t underestimate me I can do more than you think • I love to do many of the same things you like • I have a love and passion for music
•I want to be included • Focus on my ability not my disability
• I am listening so please don’t talk about me as if I’m not present • I can be your best friend • WS is what I have not who I am • Give me time and I will teach you just as much as you teach me
💙❤️💚 GIVEWAY 💙❤️💚 To help raise as much awareness about WS as possible, a fellow WS Mom who is raising awareness for all children in this “special needs world” over @beautifulconditions, is giving away some free T-Shirts from her shop: @outshinelabels. By everyone following us on Social Media, and helping to share each other’s Accounts, we’re creating a larger voice for ALL of our special kiddos who, even when we team up & work together are considered “minorities” in this World we all live in.
1️⃣⭐️Like this photo, then head to @beautifulconditions & @outshinelabels & follow them
2️⃣ tag a few friends on this post
3️⃣⭐️That's it! Quick and easy! >>⭐️BONUS ENTRIES:
>>Like my last three photos and comment when done!
This giveaway will end on Friday May 25th The winner will be announced within 24 hours and will have 24 hours to claim. This is not sponsored or endorsed by Instagram. Must be 18 years or older to enter.
❤️💚💙GOOD LUCK! ❤️💚💙
🎊 #TeamCPABC#GIVEAWAY ! 🎉 ⠀
The NEXT 4 people to sign up for the #ScotiabankCharityChallenge with #TeamCPABC will receive this gift basket! 🎀⠀
Don't wait! Sign up now with the link in our bio 👆⠀
Make sure you use one of our charity codes 18CPABC5K (5k race) or 18CPABC21K (half marathon) for a discounted fee!
📣Not a paid post- I just felt the need to share this for anyone who’s thinking about trying out a TENS Unit. I found this cheap & easy unit at CVS after my new primary recommend that I give it a try. She was baffled that I didn’t want Tramadol or to try another preventative for fibro pain, and said that this was the only other thing she could think of. And for once, the ‘Idk’ option worked! I’ve been switching between hip, back, shoulder, and knee positions for two days, and I’ve spent A LOT of time on this thing, but my deep muscle pain is definitely getting better! My ankles feel less like they’re breaking when I walk, and the raw/fragile feeling in my shoulders/neck is starting to strengthen. It’s not a miracle cure or a quick fix, but it is absolutely helping. When I go back next week, I’ll be asking about getting a higher grade unit through insurance. I was on the fence about buying one for a while, mostly because of the cost, also because of my nerve pain, but I’m so glad I gave this a chance. ⚡️🏆
When you sign up for the Scotiabank Charity Challenge: #TeamCPABC , you'll receive an access to your very own fundraising page, where you'll be able to add photos and share your story to appeal to your friends, family and colleagues! 💙⠀
Sign up today with the link in our bio ☝️
For those of you who missed it. Here’s the moment. I was overwhelmed by the applause so much. Even for some one as experienced As I when it comes to talking to crowds. No member of the Monash community has ever seen me walk. This may well have been the final chance, I’ll ever have to walk as my rheumatoid arthritis continues to deteriorate my body. I battled through so much pain across that stage as I am on antibiotics for bronchitis. I went against doctors advice to do this. But boy did it surprise everyone. #cp#disabilityawareness#disabilityrights#disabilityadvocate#disability#cerebralpalsy#wheelchair#monashuniversity#bachelorsdegree#criminology#criminaljusticemajor#sociology For those of you asking, I’m doing my #masterofsocialwork currently and who knows there maybe plans to undertake a doctorate degree later, but for now it’s one degree at a time. ......
@embracedisability @icaniwillaustralia @emmahusarmp @drtarimack @fortheloveofsmiley @dr.rachhale @drfleurcattrall
Day 21: “What has EDS taken from you?” This list could be a mile long unfortunately. Chronic illness, such as EDS, which I suffer from, affects every aspect of your life. It has taken away control of my body and how it reacts in most situations, my reliability, my friendships, my career as a hair stylist, my independence and more. I rely on my husband, family and friends to help me with getting to appointments, and even caring for the house. Tasks like cooking that I used to love, are now a huge chore most days. We have our neighbour come over every few weeks to help clean our house (that’s what she does for work), and we’ve had to get a church member to help cut our grass once a week. I’m so thankful for their support, but it’s a constant struggle dealing with the guilt of being in my 20’s and unable to keep up with these things. I’m so thankful for therapy, and my wonderful psychologist helping me talk through these things. While EDS has taken a lot for me, I don’t want it to take ME too! #edsawareness#edschallenge#eds#edsawarenessmonth#ehlersdanlossyndrome#pots#posturalorthostatictachycardiasyndrome#mcad#mcas#disabilityawareness#goodbadandugly#spoonielife#zebrastrong#disabilityadvocate#spoonie
Another year, another fantastic Round Table Conference!
. . .
Our team members (pictured) Kary, David and Dinesh flew to Sydney to attend the Annual #RoundTableConference for information access for people with a print disability. After months of hard work, (especially from our very own Conference Coordinator, Dinesh) the three-day event went off without a hitch. #tbt#VisAbility#VisAbilityAU#VisAbilityWA#Rydges @rydgeshotels
. . .
Scroll for snaps inc. the Round Table Exec Team and the winner of the VisAbility Exhibitor Prize at the cocktail party.
Oh the anaphylaxis 😣 my throat has been closing up so often that it feels bruised, and my abdomen is on fire from coughing, which is making the swelling from my IBS flare even more painful. Aren’t clashing chronic conditions the best? 🙄 All the up and down from taking care of Mom is finally catching up to me, and I’ve spent almost all day sleeping or medicating in this exact spot. Pepper is starting to get stir crazy and has been needing extra attention this afternoon. She keeps throwing a toy for herself, chasing it, and making sure we watch to tell her how cute she is 🤹🏻♀️ When she’s tired, she hops right back up with me. My hair’s a disaster, but isn’t she cute? 🦁🍬
Hey hey hey it’s Day 21 of Williams Syndrome awareness month! Today I want to talk about LEARNING. Something that’s very difficult for most individuals with WS.💙❤️💚
Most people with Williams syndrome will have mild to severe learning differences and cognitive challenges. Young children with Williams Syndrome often experience developmental delays. Milestones such as walking, talking, and toilet training are often achieved somewhat later than is considered normal. Distractibility is a common problem in mid-childhood, which can improve as the children get older.
Older children and adults with Williams syndrome often demonstrate intellectual "strengths and weaknesses." There are some intellectual areas (such as speech, long term memory, and social skills) in which performance is quite strong, while other intellectual areas (such as fine motor and spatial relations) show significant weakness.
Ryder has severe delays, his open heart surgery in 2014 really set him back. He just learned how to re-walk last April, and he really only does it around the house, he gets tried very easily. We are inching towards getting him a communication device since he’s mastered a yes and no switch question. Ryder is also delayed in speech, he does have some vocalizations and some words. But he mostly cries or whines when he needs something or will pull you to what his preferred choice is. I hope one day we can potty train Ryder, this is something I have faith will happen on his own time. I’m happy with whatever he’s doing so long as he’s happy. 😊
So you signed up for the #ScotiabankCharityChallenge and you've got a training plan to follow, but now you need a strategy to tackle the fundraising part...⠀
💡 We present to you #TeamCPABC 's Top 7 Fundraising Tips to help you reach your fundraising goal!⠀
If you want to join our team but haven't signed up yet, head over to our bio ☝️ Make sure to use our charity pin codes to enjoy a discounted fee!
CAN I HELP YOU?🤝
One of the most difficult while simultaneously helpful things about being disabled is the amount of people who reach out to help you. It’s both endearing yet annoying. For quite a long time some able bodied people have viewed persons with disabilities to be helpless. While some of us, especially with disabilities know this isn’t true. I can drive my own car, take care of my dog, clean the house, go out alone (with Atlas), open doors, get up curbs, and basically live my life with some help from Atlas and Jaina. However, people in public often don’t know this or even understand this. They just see me in a wheelchair with a service dog, and often run to my aid unwarranted. The thing is.. I don’t mind their generosity. That’s not what it’s about. Its about the assumptions. When someone sees me go to open a door, they don’t even let me TRY before they run over and just open the door for me. They assume I can’t open it. When I reach for something it’s just ASSUMED I can’t get it. So it’s handed to me. When I go to a store I’m asked if I need help by every employee that works there... twice. When only one employee asks an able bodied person once. This is being treated differently. It’s not mean or malicious however it makes a statement saying, “I don’t think they can do it.” So what’s the solution? I think everyone’s stance on this varies. In my opinion I’d rather someone ASK. Ask me if I need the door opened or ask me if you can reach something for me. Consequently, most people with disabilities will ask someone for help if they need it. If I need help I have no problem asking. I just don’t appreciate unwarranted help. Personally, I enjoy a challenge. I enjoy trying to navigate the life I’ve been given. Because if I don’t try for myself and have to problem solve, when will I ever learn? How could I possibly keep working towards independence if everyone does everything for me?
ASK ME IF I NEED HELP♿️🐾
Can’t get over this gorgeous drawing by fellow sooonie, Lauren Palmateer (@rennyrenders ) 💕 if only my hands allowed me to do detail work like this 👌🏻🤩 Art therapy is such a wonderful way to heal and process pain, and I’m always amazed by the hidden talents we possess that may have otherwise gone unnoticed. I never would have started painting if I were healthy enough to be working or reading. I never would have taken the time to garden or take photos or learn to make soap and candles. Any time I’ve lost the ability to do something I love, I’ve been able to find something else to take its place. But I wouldn’t have found those new passions if not for a perpetually open mind and the endless potential of art as self expression 🍋🌿🎨 (Not that I don’t miss my past loves every day 🎼🎹💃🏼🏐🏃♀️👩🏻🔬👩🏻🏫📑👩🏻🍳)