I spent today at an AAC study day which was a mixture of useful information and real insight. This is Javed who gave a talk about how he communicates: ‘talking is far more important than walking’ #aac#disability
It is #autismawarenessmonth , so I’ve been thinking even more than usual about my 2 handsome nephews, Mark & Luke. Today I wanted to share this picture of Luke with Ri from last summer (though FYI Luke refers to Ri as either 1. Riley Portugal Berry or 2. Riley Poor). 🙎🏻♂️
Luke wants to be a YouTube star (see today’s story for a snippet of his first trial run), reviewing foods and such, and he has absolute confidence in his abilities to do whatever it is that he aims to do. He also won’t let anything or anyone place labels on him - ex. I’ve been witness to his siblings teasing him, as siblings do, poking his belly and calling him chubby. His response - “I’m not chubby. MY BODY IS PERFECT!!” And Luke means it. He knows who he is 💯, is totally authentic, and really does see himself as perfect on all levels. He has expressed that he sees no point in attending any extra “autism” related classes (speech, etc.) because he isn’t autistic. So there you have it- my magical nephew who knows that labels can’t tell the story of who he is. Let’s just imagine for a moment what our world would look like if we all embodied the 100% self acceptance that Luke awards himself. I think I will do that - if only for today - just to see what it feels like. You are perfect. I am perfect. We are all perfect. 💥 Oh, and #hotpersoninawheelchair 💗 ✌️ 🌏
It's no easy feat to snag a coveted job at a massive tech company. Doing so while blind and partially deaf is even harder. But 26-year-old Michael Forzano did in 2013 when he scored a software engineer position on Amazon's retail accessibility team. Forzano's blindness since birth and partial deafness since age 5 haven't stopped him from writing code that makes online shopping accessible for the disabled.
I get involved with all sorts of work, but think this kind of work has to be the most taxing and rewarding at the same time.. Worktop lifters and wall unit lifters are common place in accessible kitchens for those with Disabilities.. This kitchen has 4 large lifters, with sinks, taps and hobs in. They are all formed in Corian, and all have safety switches on the rise and fall.. As you can imagine, the plumbing and electrics are a tad different to account for the rise and fall... #carpenter#kitchendesign#kitchenfitter#worktop#corian#accesible#disability
Our Associate Board’s #BattleoftheBikes event is just around the corner! We can’t wait to cycle for a cause with the @autismspeaks_chicago team this Friday at @studiothreechi. 🚴 💪 It’s not too late to reserve a bike and help us surpass our fundraising goal of $35K for people with disabilities. Let’s do this!
How’s this for a #tongueouttuesday ...we’re going to Disney! This plan has been in the works for a few months now, and while we aren’t going until the end of summer I wanted to share the news ✨🐶 This will not only be my first *ever* trip to Disney, but also a girl’s trip with Emily (@service.doodle) whom I love so dearly. Though my health is certainly a concern right now, I’ve been looking forward to this special vacation which will be a wonderful break after I complete my academics for this collegiate school year and go through some rigorous testing/appts with different specialists to get some medical things under control. Luckily I still have time to get back to a more functional state, but looking ahead to the future never hurts 😊 It’s easy to think about all the things that prevent you from doing something - whether you have an illness, a disability, or any kind of obstacle in your way - we’ve all been there. So any taste of freedom, of independence, of just a bit of happiness is something more than worth savoring. Find the good. 💕🐾 •Visual Description: Percie faces the camera with her tongue out, wearing a pair of Mickey Mouse Ears with a pink bow.*
Do you even lift? 😎💪🏽 Check out this AutoLift we installed for a new client today! 🚗 This incredibly useful device allows you to easily carry your scooter or wheelchair wherever you want to go, without losing any trunk space. Want more details? Give us a call and ask us about the “swing away” option!
Being able to share my story, my beliefs and what I've learnt so far is always such a humbling experience.
Thank you for having me @sussexuni @sussexsport.
Looking forward to more talks this summer.
Email email@example.com for enquiries. 😁🤙🏼
Today I was at work when I received a call from GOSH, I missed the call and thought that was fine as they always leave an answer phone message... however this wasn’t the case, they called again. .
Then all I heard was the repeat tests came back the same and the results were still low meaning her kidneys were probably onto the next level of failure. That we have to go to see the renal specialists in the next couple of weeks. For now we are going to have a prescription come through tomorrow to start her on medication. We will have repeat bloods when we go to the hospital, then we will see what the next stages are. .
Our report we had through earlier this week also said about the results and if this was going to happen then we are more looking at the nastier of conditions. .
Who knows she may surprise us and be absolutely fine and have normal levels next visit. .
All I know is that I’ve been wishing for answers and now their starting to come through I wish they weren’t. I had hoped it would be a simple gene mutation that just meant she would be just a little delayed but looks like she just wants to really test me. .
I’ve screamed at God/universe and myself and tonight I’m in a slump but tomorrow I’ll be back, I’ll be lifted up by my cheeky monkey smiling. .
After all if she can smile through everything I need to! .
[Image description: At the top of the image there is red text that reads "Autism Acceptance Month." Below that there is larger red text which, in bold, reads "Famous Autistic People". Under that it says the name "Satoshi Tajiri" in bold black text. There is then a paragraph to the left that reads "As a child, Satoshi Tajiri was fascinated by insects and was even nicknamed 'Dr. Bug' by other children. As an adult, Tajiri turned that interest into the world-wide phenomenon that is Pokemon - which itself makes him an inspiration to millions of people around the world. Satoshi Tajiri is also on the Autism Spectrum. Though he confirms that he does have Asperger's Syndrome, Tajiri does not talk about it in public." Then there is an image to the right showing a Japanese man smiling. He has very short hair and glasses on. You can see most of his torso in the photo, and he is wearing a black blazer with a white shirt.]
[Caption reads:] Every other day this month for #autismacceptancemonth (aka #autismawarenessmonth ) I will be posting a famous autistic person! Some are officially diagnosed, others are speculation after the person's death, but at the very least all of them are interesting!
This one made me really happy to learn!! I love Pokemon honestly
Come check us out this weekend at the Ellison Onizuka Day of Exploration where we’ll be doing free keiki IDs! It’s open & free to the public at the Blaisdell Exhibition Hall from 9am-3pm. They’ll have over 100 exciting STEM Activities and 44 STEM workshops for the family 🌎🌗 can’t wait to see you there!
This beauty is everything to me 💙 He's such an incredible human, he's given up so much. He still adores me. He's just the best 💕 I wish people would understand how fucking hard it is to be a #fulltimecarer ; people joke all the time about how he's lazy, when's he gonna get a job, doesn't he fancy working?! These jokes break my heart - Lyle LOVED working, & it's because of me he can't. He has a 'job', he cares for me, 24/7...through suicidal lows, crazy highs, seizures, suicide attempts, pain, exhaustion. He's always there for me. Today he's tried to sort out stuff with my GP (twice), phoned to sort out online shopping (twice), dressed me due to it being an extremely high pain day, shuffled furniture in the bedroom to help me with pain & lighting (seizures); cooked me two meals & washed up, got me drinks, accompanied me to the bathroom, fetched me pills, sorted the pets, & gone into town to grab some shopping - having to run back when I woke up from my nap & phoned him in tears, because I felt so poorly...he does so much for me. He deserves so much recognition 💙
🌈 I'm in so much pain and have had so many #seizures today. It's not usual anymore that I have over 15 seizures in a day. I feel so ill & tired, and now I'm getting a #migraine . God damn, I need everything to just stop a while 😥
I had an appointment today at a pain management clinic. After waiting for almost half an hour over my scheduled appointment time, I finally got to speak to the doctor. What a fucking waste of my time. He basically told me I had exhausted all pain relief medication, and as I am currently attending a CBT pain group, there’s nothing more I can do. I now just have to deal with the pain for the rest of my life. Thanks a fucking bunch 🖕🏼and right now, I am in EXCRUCIATING pain. My abdomen hurts, my legs hurt, my head hurts, my hips hurt, everything hurts. And oh, I work full time too, but I “just have to deal with the pain”. Yay me. #chronicillness#chronicpain#fibromyalgia#disability
[Image description: Text that reads "Autism Acceptance, not awareness" placed over a red galaxy background with two neon triangles.]
[Caption reads:] Autism Acceptance is much more important than Autism Awareness; people are aware of us - they just don't accept us.
As you guys know, I really make an effort to keep it as real as possible around here. Whether that means raising awareness about chin hairs or sharing about my own emotional highs and lows. When it comes to Henry’s disability however, I tend to steer away from the negatives. Not because it doesn’t exist, because it does. In fact the weeks leading up to this trip had been some of our hardest in knowing how to best guide this little guy in a crazy unpredictable world. I think I tend to focus on the positive because autism already has such a harsh stigma, and as is anything, autism is both wonderful and difficult. Our adventures together have a way of making everything else feel wonderfully small and insignificant. Potty training, social circles, tantrums, stimming, report cards, college trajectories, fictional future bullies. All of the fears and thoughts that swirl through my head on a daily basis disappear when I see the joy in Henry’s eyes at every new sight or sound or experience. I remember that all we need is each other, and as long as we have that, the rest is just background noise.
Everyone has the right to be healthy and active. We are honored to be able to help with that need and thankfull to everyone who supports us to help more people!
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