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My audience, worrying about the scary, thumpy weights! Chest and tris today, starting last time through the Build section before I move on 😊. I'm a bit bored tbh. The 50min workouts drag on a bit. But it's worth persevering, because if I get stronger my joints will get more stable, and I'll be able to more easily and safely do other workouts on BOD 😍. As well as day to day stuff I hope. Today I have a kneecap wrenching every time I lift my leg, a painful pulled rib, and my collarbone was clunking about during the tricep push-ups (🤢)! Glad that's done, going to have a snack and have a look at the library books I picked up this morning, about gut health. Think I know most of what there is to know after all the years of gut troubles, but it's nice to go back and look over the basics every now and then, and might find a new tweak to try ☺️. #workout #strengthworkout #strengthtraining #weighttraining #bodybeast #chest #triceps #spoonie #chronicfatigue #hypermobility #hypermobilitysyndrome #gettingfitter #gettingstronger #plussizefitness #HAES #zebrastrong #chronicfighter #fitfam #noexcuses #noexcusemoms #whatsyourreason #deathfatz #eds #ehlersdanlos #edsathletes #glutenfree #glutenintolerance #ibs #guthealth #schnauzer
My audience, worrying about the scary, thumpy weights! Chest and tris today, starting last time through the Build section before I move on 😊. I'm a bit bored tbh. The 50min workouts drag on a bit. But it's worth persevering, because if I get stronger my joints will get more stable, and I'll be able to more easily and safely do other workouts on BOD 😍. As well as day to day stuff I hope. Today I have a kneecap wrenching every time I lift my leg, a painful pulled rib, and my collarbone was clunking about during the tricep push-ups (🤢)! Glad that's done, going to have a snack and have a look at the library books I picked up this morning, about gut health. Think I know most of what there is to know after all the years of gut troubles, but it's nice to go back and look over the basics every now and then, and might find a new tweak to try ☺️. #workout  #strengthworkout  #strengthtraining  #weighttraining  #bodybeast  #chest  #triceps  #spoonie  #chronicfatigue  #hypermobility  #hypermobilitysyndrome  #gettingfitter  #gettingstronger  #plussizefitness  #HAES  #zebrastrong  #chronicfighter  #fitfam  #noexcuses  #noexcusemoms  #whatsyourreason  #deathfatz  #eds  #ehlersdanlos  #edsathletes  #glutenfree  #glutenintolerance  #ibs  #guthealth  #schnauzer 
Restingday today, just been vacuum, been at mum's and after that stayed at home 😪 #exhaustion
Restingday today, just been vacuum, been at mum's and after that stayed at home 😪 #exhaustion 
So I’m gonna have pink hair for a week... until the green💞💚 (she couldn’t get the color out) #spoonielife #spooniegirl #pots #eds #potsawareness #edsawareness #chronicillness #chronicpain #chronicfatigue #chronicmigraines #chronicfighter #chronicillnesswarrior
So exhausted  but I've had perfect day 🌞
At first I went out with mum and the dogs to Stendörren before going to mums man for dinner and a walk. When I got home I was supposed to go out with Dex a quicky but got stuck on the yard with the being 🤷 I don't really feel like doing anything tomorrow but sleep, rest and take naps 😴 #beautifulday
So exhausted but I've had perfect day 🌞 At first I went out with mum and the dogs to Stendörren before going to mums man for dinner and a walk. When I got home I was supposed to go out with Dex a quicky but got stuck on the yard with the being 🤷 I don't really feel like doing anything tomorrow but sleep, rest and take naps 😴 #beautifulday 
So hot for running when having had no time to adjust to the change in the weather. Phew! The first pic is one of the places I swim, seen from the other side of the river. I quite fancied jumping in 🤣. Am wondering when running will start to feel a bit easier again, the muscle pain in my legs is making it purgatory at the moment! And was super slow today, 19 min miles 😮- wondering if Strava didn't detect me waiting at the pedestrian crossings because didn't feel so much slower than usual. Ah well, did it. Now for a hair wash, Greek salad for lunch and then am going to watch Hidden Figures with my boys 😊. #running #trailrunning #roadrunning #fatrunner #runnersofig #momswhorun #spoonierunner #chronicfatigue #hypermobility #hypermobilitysyndrome #gettingfitter #gettingstronger #plussizefitness #HAES #zebrastrong #chronicfighter #fitfam #noexcuses #noexcusemoms #whatsyourreason #deathfatz #eds #ehlersdanlos #edsathletes #yorkshire #swimming #wildswimming #outdoorswimming #sunnyday
So hot for running when having had no time to adjust to the change in the weather. Phew! The first pic is one of the places I swim, seen from the other side of the river. I quite fancied jumping in 🤣. Am wondering when running will start to feel a bit easier again, the muscle pain in my legs is making it purgatory at the moment! And was super slow today, 19 min miles 😮- wondering if Strava didn't detect me waiting at the pedestrian crossings because didn't feel so much slower than usual. Ah well, did it. Now for a hair wash, Greek salad for lunch and then am going to watch Hidden Figures with my boys 😊. #running  #trailrunning  #roadrunning  #fatrunner  #runnersofig  #momswhorun  #spoonierunner  #chronicfatigue  #hypermobility  #hypermobilitysyndrome  #gettingfitter  #gettingstronger  #plussizefitness  #HAES  #zebrastrong  #chronicfighter  #fitfam  #noexcuses  #noexcusemoms  #whatsyourreason  #deathfatz  #eds  #ehlersdanlos  #edsathletes  #yorkshire  #swimming  #wildswimming  #outdoorswimming  #sunnyday 
Ready for a new day 🌞
Yesterday I was cleaning, doing grocery shopping and barbecuing with the neighbours at the yard. 😊 I was so exhausted when I got home I went to bed around 9. 
Today I'm going away with mum, where we don't know yet. 😎 #summerheat
Ready for a new day 🌞 Yesterday I was cleaning, doing grocery shopping and barbecuing with the neighbours at the yard. 😊 I was so exhausted when I got home I went to bed around 9. Today I'm going away with mum, where we don't know yet. 😎 #summerheat 
This is how I feel after doing beasty shoulders AND abs. I may have 😢 a bit during the abs! Slept only about 4 hrs last night and lots of stressful and tiring stuff going on, this was a bit much really. Anyway, now this supposed "non-working invalid" needs to get a shake, walk the dog, do some laundry and have a shower before I make lunch! When I summon the energy to get up off the floor, that is. At least I got the grocery shop sorted, including washing flour off things so I dont get glutened 🙄. Anyway, done ☺️.
Autocorrect changed "invalid" to "invaluable"- I'll take that 🤣! #workout #strengthworkout #strengthtraining #bodybeast #shoulderday #abs #spoonie #chronicfatigue #hypermobility #hypermobilitysyndrome #gettingfitter #gettingstronger #plussizefitness #HAES #zebrastrong #chronicfighter #fitfam #noexcuses #noexcusemoms #whatsyourreason #deathfatz #eds #ehlersdanlos #edsathletes #glutenfree #glutenintolerance
This is how I feel after doing beasty shoulders AND abs. I may have 😢 a bit during the abs! Slept only about 4 hrs last night and lots of stressful and tiring stuff going on, this was a bit much really. Anyway, now this supposed "non-working invalid" needs to get a shake, walk the dog, do some laundry and have a shower before I make lunch! When I summon the energy to get up off the floor, that is. At least I got the grocery shop sorted, including washing flour off things so I dont get glutened 🙄. Anyway, done ☺️. Autocorrect changed "invalid" to "invaluable"- I'll take that 🤣! #workout  #strengthworkout  #strengthtraining  #bodybeast  #shoulderday  #abs  #spoonie  #chronicfatigue  #hypermobility  #hypermobilitysyndrome  #gettingfitter  #gettingstronger  #plussizefitness  #HAES  #zebrastrong  #chronicfighter  #fitfam  #noexcuses  #noexcusemoms  #whatsyourreason  #deathfatz  #eds  #ehlersdanlos  #edsathletes  #glutenfree  #glutenintolerance 
One major spike aside(dunno which to blame-the grapes or the granola bar), today was a good day.  I’m slowly trying to narrow down my range.  It started at 70-180, then I narrowed it 70-170, and now I’m trying to cut it down again, 70-160.  Hopefully I don’t get too pissed off at my high alerts over the next few days... 🙃🙂
Also, that spike peaked a few minutes after I got to work... I peaked at my receiver and was sooo not expecting that kind of reading. 😂 Was very tempted to take a preemptive corrective unit, but as you can tell by the graph, my decision to wait was the right one.  It’s sooo hard to not stack insulin when you spike up so high... I sometimes will in the morning, just because I know I have a really bad dawn effect, and I have a pretty regular breakfast, so I know how high is too high for that amount of carbs.  I almost never have lows in the morning, and if I do, it’s usually because I’m running a 5K or another race. 
Anyways, I’m rambling on because it’s late and this is what my mind does when it’s too close to midnight.  Goodnight!  Wishing good blood sugars on you all!
#diabetes #type1 #typeone #typeonediabetes #type1diabetes #typeonediabadass #insulinaddict #dexcom #partialcyborg #organonmanual #pancreas #pancreaticallychallenged #typeonestrong #spoonie #chronicallyawesome #chronicfighter #chronicallybeautiful #t1d
One major spike aside(dunno which to blame-the grapes or the granola bar), today was a good day. I’m slowly trying to narrow down my range. It started at 70-180, then I narrowed it 70-170, and now I’m trying to cut it down again, 70-160. Hopefully I don’t get too pissed off at my high alerts over the next few days... 🙃🙂 Also, that spike peaked a few minutes after I got to work... I peaked at my receiver and was sooo not expecting that kind of reading. 😂 Was very tempted to take a preemptive corrective unit, but as you can tell by the graph, my decision to wait was the right one. It’s sooo hard to not stack insulin when you spike up so high... I sometimes will in the morning, just because I know I have a really bad dawn effect, and I have a pretty regular breakfast, so I know how high is too high for that amount of carbs. I almost never have lows in the morning, and if I do, it’s usually because I’m running a 5K or another race. Anyways, I’m rambling on because it’s late and this is what my mind does when it’s too close to midnight. Goodnight! Wishing good blood sugars on you all! #diabetes  #type1  #typeone  #typeonediabetes  #type1diabetes  #typeonediabadass  #insulinaddict  #dexcom  #partialcyborg  #organonmanual  #pancreas  #pancreaticallychallenged  #typeonestrong  #spoonie  #chronicallyawesome  #chronicfighter  #chronicallybeautiful  #t1d 
Out on a play date with Dex and Diva + her homans in the woods 🐶 #niceevening
Out on a play date with Dex and Diva + her homans in the woods 🐶 #niceevening 
When you're scratching your back where you're not supposed to reach and your shoulder goes out... yeah... happens all the time 🤷 #normalday
When you're scratching your back where you're not supposed to reach and your shoulder goes out... yeah... happens all the time 🤷 #normalday 
First swim of the year! And what a day for it! Then home for breakfast in the garden. I wish I could take a photo of the smell of that grapefruit 😁. I'm obsessed with grapefruit at the moment!

Water felt warmer than I expected, so I was able to stay in for a decent while even though I haven't been since New Year. Ended up having to get dressed after while chatting to some dog walkers which was a challenge for my first swim in a while 🤣. But they were very friendly and one of them says she might go home and get her wetsuit now she'd seen me swimming. Then a guy who swims there turned up, so that was nice ☺️. #swimming #outdoorswimming #coldwaterswimming #riverswimming #river #coldwatertherapy #endorphins #sunshine #beautiful #breakfast #garden #grapefruit #spoonie #chronicfatigue #hypermobility #hypermobilitysyndrome #gettingfitter #gettingstronger #plussizefitness #HAES #zebrastrong #chronicfighter #fitfam #noexcuses #noexcusemoms #whatsyourreason #deathfatz #eds #ehlersdanlos #edsathletes
First swim of the year! And what a day for it! Then home for breakfast in the garden. I wish I could take a photo of the smell of that grapefruit 😁. I'm obsessed with grapefruit at the moment! Water felt warmer than I expected, so I was able to stay in for a decent while even though I haven't been since New Year. Ended up having to get dressed after while chatting to some dog walkers which was a challenge for my first swim in a while 🤣. But they were very friendly and one of them says she might go home and get her wetsuit now she'd seen me swimming. Then a guy who swims there turned up, so that was nice ☺️. #swimming  #outdoorswimming  #coldwaterswimming  #riverswimming  #river  #coldwatertherapy  #endorphins  #sunshine  #beautiful  #breakfast  #garden  #grapefruit  #spoonie  #chronicfatigue  #hypermobility  #hypermobilitysyndrome  #gettingfitter  #gettingstronger  #plussizefitness  #HAES  #zebrastrong  #chronicfighter  #fitfam  #noexcuses  #noexcusemoms  #whatsyourreason  #deathfatz  #eds  #ehlersdanlos  #edsathletes 
Sunny spring weather at last 😍. This morning I did Body Beast back and bis, and then up to the moors for a bit of a stroll with the doggo. Beautiful! My legs were sooo sore last night but put Mg oil on my muscles, and Weleda arnica balm on my knees and feet, and slept pretty well and it'd eased off by this morning ☺️. #workout #strengthworkout #strengthtraining #bodybeast #backandbiceps #spoonie #chronicfatigue #hypermobility #hypermobilitysyndrome #gettingfitter #gettingstronger #plussizefitness #HAES #zebrastrong #chronicfighter #fitfam #noexcuses #noexcusemoms #whatsyourreason #deathfatz #eds #ehlersdanlos #edsathletes #schnauzer #walking #walkswithmydog #moors #sunshine #spring
Sunny spring weather at last 😍. This morning I did Body Beast back and bis, and then up to the moors for a bit of a stroll with the doggo. Beautiful! My legs were sooo sore last night but put Mg oil on my muscles, and Weleda arnica balm on my knees and feet, and slept pretty well and it'd eased off by this morning ☺️. #workout  #strengthworkout  #strengthtraining  #bodybeast  #backandbiceps  #spoonie  #chronicfatigue  #hypermobility  #hypermobilitysyndrome  #gettingfitter  #gettingstronger  #plussizefitness  #HAES  #zebrastrong  #chronicfighter  #fitfam  #noexcuses  #noexcusemoms  #whatsyourreason  #deathfatz  #eds  #ehlersdanlos  #edsathletes  #schnauzer  #walking  #walkswithmydog  #moors  #sunshine  #spring 
So it's getting harder and harder to write about my life without mention Dexter. Dexter is a pup, 14 weeks old, that's been living with us for 6 weeks. He's a tough little guy and Nea loves him! They plays, cuddles, sleeps together and shares everything. I've not been hiding him, I've just not felt like telling the whole world that I bought a puppy after I put down Kiana I've just felt like... like a failure when it come to dogs. But here he is! And as I said, Nea loves him. Nea have been much calmer, grown up and not as outgoing since he moved in. And Meeko loves him too, they are wrestling all the time, and Meeko is the one who starts. So my little Furfamily grew, from 2 to 3. And I have to say I love it even though a mini terrier was far away from the plan 😂😊 his life in our family from the day he moved in until now and rest of his life you can see on his own page @dextertheterrierist  #oups
So it's getting harder and harder to write about my life without mention Dexter. Dexter is a pup, 14 weeks old, that's been living with us for 6 weeks. He's a tough little guy and Nea loves him! They plays, cuddles, sleeps together and shares everything. I've not been hiding him, I've just not felt like telling the whole world that I bought a puppy after I put down Kiana I've just felt like... like a failure when it come to dogs. But here he is! And as I said, Nea loves him. Nea have been much calmer, grown up and not as outgoing since he moved in. And Meeko loves him too, they are wrestling all the time, and Meeko is the one who starts. So my little Furfamily grew, from 2 to 3. And I have to say I love it even though a mini terrier was far away from the plan 😂😊 his life in our family from the day he moved in until now and rest of his life you can see on his own page @dextertheterrierist #oups 
Ran without the dog today. It's so different! A lot easier but less interesting 🤣. Legs so sore after yesterday's workout, my calves and feet were on 🔥, but somehow managed to beat my PB for 2 miles although my mile time was slower than last week 🙃. Now I need to do Body Beast Abs because realised last night that I missed them last week, was supposed to do them along with shoulders. Going to have some #kefir first though 😁. #running #trailrunning #fatrunner #runnersofig #momswhorun #spoonierunner #chronicfatigue #hypermobility #hypermobilitysyndrome #gettingfitter #gettingstronger #plussizefitness #HAES #zebrastrong #chronicfighter #fitfam #noexcuses #noexcusemoms #whatsyourreason #deathfatz #eds #ehlersdanlos #edsathletes #yorkshire #workout #bodybeast #abworkout
Ran without the dog today. It's so different! A lot easier but less interesting 🤣. Legs so sore after yesterday's workout, my calves and feet were on 🔥, but somehow managed to beat my PB for 2 miles although my mile time was slower than last week 🙃. Now I need to do Body Beast Abs because realised last night that I missed them last week, was supposed to do them along with shoulders. Going to have some #kefir  first though 😁. #running  #trailrunning  #fatrunner  #runnersofig  #momswhorun  #spoonierunner  #chronicfatigue  #hypermobility  #hypermobilitysyndrome  #gettingfitter  #gettingstronger  #plussizefitness  #HAES  #zebrastrong  #chronicfighter  #fitfam  #noexcuses  #noexcusemoms  #whatsyourreason  #deathfatz  #eds  #ehlersdanlos  #edsathletes  #yorkshire  #workout  #bodybeast  #abworkout 
Sitting in the sun after a walk in woods and watching the dogs play in the sand 🐶 #niceday
Sitting in the sun after a walk in woods and watching the dogs play in the sand 🐶 #niceday 
Up early, out with the dogs, feeling of my body falling apart and the whole world spinning... so we went back to bed with painkillers. Now we're up again and I'm a bit better. I made brunch and got company by Nea as usual. I think we're going to the woods today! I really need that kind of theraphy today 😌 #badmorning
Up early, out with the dogs, feeling of my body falling apart and the whole world spinning... so we went back to bed with painkillers. Now we're up again and I'm a bit better. I made brunch and got company by Nea as usual. I think we're going to the woods today! I really need that kind of theraphy today 😌 #badmorning 
May have prebolused a little too early... 😅 I checked on my meter and I’m actually closer to 60.  I dosed for a chicken pot pie(56 grams of carbs) about 20-30 minutes before I ate it.  I’ve been spiking every time I eat  so I decided to be aggressive with my previous since I’m chilling at home either my mom, so it’s the safest environment for it.  I can feel the carbs kicking in now, but man, that did not feel good... 😅
#diabetes #type1 #typeone #typeonediabetes #type1diabetes #typeonediabadass #insulinaddict #dexcom #partialcyborg #organonmanual #pancreas #pancreaticallychallenged #typeonestrong #spoonie #chronicallyawesome #chronicfighter #chronicallybeautiful #t1d #urgentlow #hypo #hypoglycemia #lowbloodsugar
May have prebolused a little too early... 😅 I checked on my meter and I’m actually closer to 60. I dosed for a chicken pot pie(56 grams of carbs) about 20-30 minutes before I ate it. I’ve been spiking every time I eat so I decided to be aggressive with my previous since I’m chilling at home either my mom, so it’s the safest environment for it. I can feel the carbs kicking in now, but man, that did not feel good... 😅 #diabetes  #type1  #typeone  #typeonediabetes  #type1diabetes  #typeonediabadass  #insulinaddict  #dexcom  #partialcyborg  #organonmanual  #pancreas  #pancreaticallychallenged  #typeonestrong  #spoonie  #chronicallyawesome  #chronicfighter  #chronicallybeautiful  #t1d  #urgentlow  #hypo  #hypoglycemia  #lowbloodsugar 
Got some new tape. It’s not all in your usual places I know. But I have to do it myself for now and anything to help with the aches and pains is better than nothing. Anyone got any tips for knees? Whenever I try the damn stuff peels odd and mine are killing me.
Got some new tape. It’s not all in your usual places I know. But I have to do it myself for now and anything to help with the aches and pains is better than nothing. Anyone got any tips for knees? Whenever I try the damn stuff peels odd and mine are killing me.
Leg day 💖. Was getting ready, thinking "Ugh, I'm so tired,this is the last thing I want to do, just want to go and lie down with a book etc etc". Then I decided, no, no more of that, it's back to normal routine today, holiday is over, let's get back into a better frame of mind. I remembered that I don't have to exercise, I get to exercise. It's true. I am very fortunate to be able to do a workout like this. Heck, a couple of years ago I'd resigned myself to never being able to do lunges properly, because of my subluxing knees. And now here I am able to go a fair bit lower and with 10kg of added weight. Plus Bulgarian squats! And the stronger my legs, the better they can carry me up mountains, and that's always a good thing! 😊💚 #workout #strengthworkout #strengthtraining #bodybeast #legday #lowerbody #lunges #bulgariansquats #spoonie #chronicfatigue #hypermobility #hypermobilitysyndrome #gettingfitter #gettingstronger #plussizefitness #HAES #zebrastrong #chronicfighter #fitfam #noexcuses #noexcusemoms #whatsyourreason #deathfatz #eds #ehlersdanlos #edsathletes #schnauzer #mountainlover
Leg day 💖. Was getting ready, thinking "Ugh, I'm so tired,this is the last thing I want to do, just want to go and lie down with a book etc etc". Then I decided, no, no more of that, it's back to normal routine today, holiday is over, let's get back into a better frame of mind. I remembered that I don't have to exercise, I get to exercise. It's true. I am very fortunate to be able to do a workout like this. Heck, a couple of years ago I'd resigned myself to never being able to do lunges properly, because of my subluxing knees. And now here I am able to go a fair bit lower and with 10kg of added weight. Plus Bulgarian squats! And the stronger my legs, the better they can carry me up mountains, and that's always a good thing! 😊💚 #workout  #strengthworkout  #strengthtraining  #bodybeast  #legday  #lowerbody  #lunges  #bulgariansquats  #spoonie  #chronicfatigue  #hypermobility  #hypermobilitysyndrome  #gettingfitter  #gettingstronger  #plussizefitness  #HAES  #zebrastrong  #chronicfighter  #fitfam  #noexcuses  #noexcusemoms  #whatsyourreason  #deathfatz  #eds  #ehlersdanlos  #edsathletes  #schnauzer  #mountainlover 
Good morning! I'm so sore today, so exhausted. Everything hurts but it was so worth it! I've been sleeping until 12.30 and now I'm eating brunch, a pink vomit (oatmeal with raspberry) before playing ts4 and gather some strength for go grocery shopping 😌 #exhaustion
Good morning! I'm so sore today, so exhausted. Everything hurts but it was so worth it! I've been sleeping until 12.30 and now I'm eating brunch, a pink vomit (oatmeal with raspberry) before playing ts4 and gather some strength for go grocery shopping 😌 #exhaustion 
" When you want to sleep... But your a mom. " 
AND you have a Chronicle Illness(Fibromyalgia)!!!!!!!!!
"Try" juggling Motherhood And dealing with all the Chronic Shit. Such a Pleasure 🤢😠☠️😢 #whenyouwanttosleep#youramom#notgoingtohappen#chronicfighter#fibromyalgia#beingamom#alwaysonduty #fibromyalgie#lotgenoten#limburg#belgie#weneedawareness#aandachtvoorfibromyalgie#spoonie💜
Finally done with the touch up of the photos from this week! Here's some randoms, some of them isn't done for "standing" photography though but who cares 🤷 #photography
Finally done with the touch up of the photos from this week! Here's some randoms, some of them isn't done for "standing" photography though but who cares 🤷 #photography 
Nea did better than expected today! We were away where it was alot of other dogs and Nea was in the dogyard, she could see us all and had a GSD in the yard next to her. She didn't care at all expect for when she left, Nea got sad 😂 So proud of her today 😍 now I'm tired after yet another day with dogs, grown ups and kids 😴 #exhausted
Nea did better than expected today! We were away where it was alot of other dogs and Nea was in the dogyard, she could see us all and had a GSD in the yard next to her. She didn't care at all expect for when she left, Nea got sad 😂 So proud of her today 😍 now I'm tired after yet another day with dogs, grown ups and kids 😴 #exhausted 
After brain CAT scan.... Out and about to buy swim wear! Hoping swimming will help with my chronic back disc degeneration and of course Fibro trigger points! 
Almost out of spoons! 🥄🥄🥄🥄🥄🥄🥄🥄 Had acupuncture yesterday which was a godsend!  #fibromyalgia #fibrowarrior #chronicfighter #mindfulness #spoonie
After brain CAT scan.... Out and about to buy swim wear! Hoping swimming will help with my chronic back disc degeneration and of course Fibro trigger points! Almost out of spoons! 🥄🥄🥄🥄🥄🥄🥄🥄 Had acupuncture yesterday which was a godsend! #fibromyalgia  #fibrowarrior  #chronicfighter  #mindfulness  #spoonie 
So, after coming home I didn't want to sit inside longer than I had to due to the beautiful weather and 17 degrees! I went outside and just came in. 😴 
So tired and my body is aching! Make up off, hair up, lime water made, legs high and TS4 starting up 👌 tomorrow is a new day 😊 #goodday
So, after coming home I didn't want to sit inside longer than I had to due to the beautiful weather and 17 degrees! I went outside and just came in. 😴 So tired and my body is aching! Make up off, hair up, lime water made, legs high and TS4 starting up 👌 tomorrow is a new day 😊 #goodday 
3.4 miles today, no jacket and got warm enough to have a rosy face ☺️. Spring at last! Dog was a huge pain, lagging behind to sniff everything in the world 🤣, so slow, slow, slow!
#running #trailrunning #fatrunner #runnersofig #momswhorun #spoonierunner #chronicfatigue #hypermobility #hypermobilitysyndrome #gettingfitter #gettingstronger #plussizefitness #HAES #zebrastrong #chronicfighter #fitfam #noexcuses #noexcusemoms #whatsyourreason #deathfatz #eds #ehlersdanlos #edsathletes #yorkshire  #schnauzer
3.4 miles today, no jacket and got warm enough to have a rosy face ☺️. Spring at last! Dog was a huge pain, lagging behind to sniff everything in the world 🤣, so slow, slow, slow! #running  #trailrunning  #fatrunner  #runnersofig  #momswhorun  #spoonierunner  #chronicfatigue  #hypermobility  #hypermobilitysyndrome  #gettingfitter  #gettingstronger  #plussizefitness  #HAES  #zebrastrong  #chronicfighter  #fitfam  #noexcuses  #noexcusemoms  #whatsyourreason  #deathfatz  #eds  #ehlersdanlos  #edsathletes  #yorkshire  #schnauzer 
Kimmys baptism done 😍
Took alot of pictures and due to Lightroom and my computer not being friends I got 756 pictures to go through when it works. And still I want to do more photographing! It's such lovely weather 🌞 #baptism
Kimmys baptism done 😍 Took alot of pictures and due to Lightroom and my computer not being friends I got 756 pictures to go through when it works. And still I want to do more photographing! It's such lovely weather 🌞 #baptism 
Today I feel okay guess it was all just in my head
I just need to try harder I guess
Yeah everyone else in the world seems to be doing alright
Yeah, I'm alright for tonight
Can we let the pain and the happy mix
Can the two coexist? The beauty next to the mess
Because I swear I have them both already beating in my chest
If that makes me crazy the numbers don't lie
But I don't call that crazy I call it being alive ~ #songlyrics
Today I feel okay guess it was all just in my head I just need to try harder I guess Yeah everyone else in the world seems to be doing alright Yeah, I'm alright for tonight Can we let the pain and the happy mix Can the two coexist? The beauty next to the mess Because I swear I have them both already beating in my chest If that makes me crazy the numbers don't lie But I don't call that crazy I call it being alive ~ #songlyrics 
A long day today! 
First a 4km walk and 3km bicycling with Nea, then sitting on the yard with Anna a while before cleaning again. After that I cuddled my animals and let Meeko do the dishes before going to the stable with Madde to take some photos of one of her ponys! It'll be interesting to see if there were any good photos 😅
Now - take my meds and soon go to sleep. #goodday
A long day today! First a 4km walk and 3km bicycling with Nea, then sitting on the yard with Anna a while before cleaning again. After that I cuddled my animals and let Meeko do the dishes before going to the stable with Madde to take some photos of one of her ponys! It'll be interesting to see if there were any good photos 😅 Now - take my meds and soon go to sleep. #goodday 
Good morning! I do not feel like a zombie... but if everyone saw me out with Dexter at 4am; I WAS NOT DRUNK. Promise! 
I slept well. I fell asleep fast and I woke up with just some short half scary dreams. I woke up when Dexter needed to go out which I also was scared of not doing and I fell asleep right after to wake up at 10.30am. During that time though I had a really weird dream. I dreamt I was going to the baptism for Kimmy and we got cought by terrorists. 😵 now I'm going to eat my purple vomit (oatmeal with blueberries) and then go out with the dogs 😎 #sofarsogood
Good morning! I do not feel like a zombie... but if everyone saw me out with Dexter at 4am; I WAS NOT DRUNK. Promise! I slept well. I fell asleep fast and I woke up with just some short half scary dreams. I woke up when Dexter needed to go out which I also was scared of not doing and I fell asleep right after to wake up at 10.30am. During that time though I had a really weird dream. I dreamt I was going to the baptism for Kimmy and we got cought by terrorists. 😵 now I'm going to eat my purple vomit (oatmeal with blueberries) and then go out with the dogs 😎 #sofarsogood 
• VREDE • 😣😖🤭
Folk der kender mig, ville ikke nødvendigvis tænke, at jeg var en, der har svært ved at være vred. Jeg har ikke svært ved at ‘blive’ vred, men jeg har svært ved at ‘være’ vred. At tillade mig selv at være det. Måske fordi jeg har oplevet meget ukonstruktiv vrede i mit liv. Måske også fordi, jeg har svært ved at tage plads - også selvom jeg ofte ikke kan lade være, ekspressiv, verbal og følsom, som jeg er. Når jeg er presset, reagerer jeg - både udadtil og indadtil... Men det med vrede er altså ikke let for mig. 🤨
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Hver gang jeg er til test på min afd. får ambulanten sagt noget, der frustrerer mig. Ofte føles min situation negligeret, eller hun gør sig klog på noget, hun ikke kan - eller skal. Det er ikke i nogen ond mening. Det ved jeg godt. Men jeg begynder at stille spørgsmålstegn ved min egen dømmekraft og om, jeg måske gør min situation værre, end den er, og om jeg kunne tage mig mere sammen eller noget... Jeg begynder at tvivle på mine valg og beslutninger ift. medicin etc. .
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Hun mener det så vel, og det gør det ikke lettere at blive vred. For det bli’r jeg. Hvis jeg er ærlig med mig selv, så pisser det mig af! Hvem er hun til at bedømme mig og min situation?! Hun kender jo knapt en my af, hvad jeg står med!! Hun har ingen reel forudsætning for at mene noget og udtale sig om det. Men alligevel har jeg svært ved at være vred og måske lade vreden få udløb. .
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Jeg mener ikke, at jeg skal lade vreden komme ud over for hende, det kommer der nok ikke noget konstruktivt ud af. Men det er ikke godt for mig, ikke at lade mig selv være vred. For det er jeg jo, og hvis jeg ikke lader mig selv være det, så vender jeg vreden indad. Så bliver det til selvkritik og selvbebrejdelse og usikkerhed. Så slår jeg på mig selv. Av!
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Det er ikke let at være patient. Det er ikke let at leve med kronisk sygdom. Livet er ikke enkelt og let... Jeg prøver at tale pænt til og om mig selv. Jeg forsøger at behandle mig selv godt og respektfuldt. Hvis det skal lykkes, må jeg tillade mig selv at være vred og sige undskyld, når det ikke lykkes. Jeg ER vred!
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Hvordan har du det med vrede?
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#vrede #dumågerneværeher #deterok #selvkærlighed #ærlighed #sofiessofa
• VREDE • 😣😖🤭 Folk der kender mig, ville ikke nødvendigvis tænke, at jeg var en, der har svært ved at være vred. Jeg har ikke svært ved at ‘blive’ vred, men jeg har svært ved at ‘være’ vred. At tillade mig selv at være det. Måske fordi jeg har oplevet meget ukonstruktiv vrede i mit liv. Måske også fordi, jeg har svært ved at tage plads - også selvom jeg ofte ikke kan lade være, ekspressiv, verbal og følsom, som jeg er. Når jeg er presset, reagerer jeg - både udadtil og indadtil... Men det med vrede er altså ikke let for mig. 🤨 . . Hver gang jeg er til test på min afd. får ambulanten sagt noget, der frustrerer mig. Ofte føles min situation negligeret, eller hun gør sig klog på noget, hun ikke kan - eller skal. Det er ikke i nogen ond mening. Det ved jeg godt. Men jeg begynder at stille spørgsmålstegn ved min egen dømmekraft og om, jeg måske gør min situation værre, end den er, og om jeg kunne tage mig mere sammen eller noget... Jeg begynder at tvivle på mine valg og beslutninger ift. medicin etc. . . Hun mener det så vel, og det gør det ikke lettere at blive vred. For det bli’r jeg. Hvis jeg er ærlig med mig selv, så pisser det mig af! Hvem er hun til at bedømme mig og min situation?! Hun kender jo knapt en my af, hvad jeg står med!! Hun har ingen reel forudsætning for at mene noget og udtale sig om det. Men alligevel har jeg svært ved at være vred og måske lade vreden få udløb. . . Jeg mener ikke, at jeg skal lade vreden komme ud over for hende, det kommer der nok ikke noget konstruktivt ud af. Men det er ikke godt for mig, ikke at lade mig selv være vred. For det er jeg jo, og hvis jeg ikke lader mig selv være det, så vender jeg vreden indad. Så bliver det til selvkritik og selvbebrejdelse og usikkerhed. Så slår jeg på mig selv. Av! . . Det er ikke let at være patient. Det er ikke let at leve med kronisk sygdom. Livet er ikke enkelt og let... Jeg prøver at tale pænt til og om mig selv. Jeg forsøger at behandle mig selv godt og respektfuldt. Hvis det skal lykkes, må jeg tillade mig selv at være vred og sige undskyld, når det ikke lykkes. Jeg ER vred! . . Hvordan har du det med vrede? . #vrede  #dumågerneværeher  #deterok  #selvkærlighed  #ærlighed  #sofiessofa 
I spent my day ☹️ at the office of Neurological Surgery to discuss surgery options to help me with my tremors 🏥 I’ve tried so many medications and none of them seem to work. Also I’m on #coumadin so a lot of medicines I can’t take 🤕 I was extremely scared and nervous 😬 and wanted to cancel but I got the strength and I did it 🥊 #tremors #brainandspine #EssentialTremors #spasticity #spinalcord #movementdisorder #surgery #annoyed #Depressed #neurologicalsurgery #BrainandSpine #parkinsonsdisease #fibromyalgia #dystonia #chronicillness #chronicfighter #warfarin #spoonie #spooniewarrior 🎗
I spent my day ☹️ at the office of Neurological Surgery to discuss surgery options to help me with my tremors 🏥 I’ve tried so many medications and none of them seem to work. Also I’m on #coumadin  so a lot of medicines I can’t take 🤕 I was extremely scared and nervous 😬 and wanted to cancel but I got the strength and I did it 🥊 #tremors  #brainandspine  #EssentialTremors  #spasticity  #spinalcord  #movementdisorder  #surgery  #annoyed  #Depressed  #neurologicalsurgery  #BrainandSpine  #parkinsonsdisease  #fibromyalgia  #dystonia  #chronicillness  #chronicfighter  #warfarin  #spoonie  #spooniewarrior  🎗
A long but nice day - I sure will sleep like a baby tonight. 
After morning walk I was cleaning a bit. Then I was out in the sun at the yard and walking Meeko. After that I took Nea for a workout, 1h walk with #dragweight. Home again I prepared the dinner and cut my thumb, before going to dog training. Dog training for 1h. Home again and make dinner. Now I've taken my new medication so I hope I'll sleep well and that I won't be a zombie... 😴 #whataday
A long but nice day - I sure will sleep like a baby tonight. After morning walk I was cleaning a bit. Then I was out in the sun at the yard and walking Meeko. After that I took Nea for a workout, 1h walk with #dragweight . Home again I prepared the dinner and cut my thumb, before going to dog training. Dog training for 1h. Home again and make dinner. Now I've taken my new medication so I hope I'll sleep well and that I won't be a zombie... 😴 #whataday 
After a long night with a midnight low of 59, I woke up to this beautiful accuracy. 😊 Thankful I didn’t have an early shift today so I was able to sleep in a little bit.
#diabetes #type1 #typeone #typeonediabetes #type1diabetes #typeonediabadass #insulinaddict #dexcom #partialcyborg #organonmanual #pancreas #pancreaticallychallenged #typeonestrong #spoonie #chronicallyawesome #chronicfighter #chronicallybeautiful #t1d
You know it's spring when you change your jacket to vest 👐 
Morningwalk with Anna and Diva done! Yesterday I put on Neas ticbrick, hopefully we'll have more luck this year as I start with it early 😋 #springweather
You know it's spring when you change your jacket to vest 👐 Morningwalk with Anna and Diva done! Yesterday I put on Neas ticbrick, hopefully we'll have more luck this year as I start with it early 😋 #springweather 
Ended up with every weight out today- heaviest for shoulder shrugs, lightest for the evilness/ awesomeness known as "Sagi's six way" 😁. Left shoulder, always the troublesome one, playing up today. But I know if I work within my limits but carefully push it, I do see improvement. At least, that's what happened in the past. Hopefully the discomfort is a sign I'm managing to push into the zone where I'll really see change again ☺️. #workout #strengthworkout #strengthtraining #bodybeast #shoulderday #shoulders #shoulderpain #spoonie #chronicfatigue #hypermobility #hypermobilitysyndrome #gettingfitter #gettingstronger #plussizefitness #HAES #zebrastrong #chronicfighter #fitfam #noexcuses #noexcusemoms #whatsyourreason #deathfatz #eds #ehlersdanlos #edsathletes #schnauzer
Ended up with every weight out today- heaviest for shoulder shrugs, lightest for the evilness/ awesomeness known as "Sagi's six way" 😁. Left shoulder, always the troublesome one, playing up today. But I know if I work within my limits but carefully push it, I do see improvement. At least, that's what happened in the past. Hopefully the discomfort is a sign I'm managing to push into the zone where I'll really see change again ☺️. #workout  #strengthworkout  #strengthtraining  #bodybeast  #shoulderday  #shoulders  #shoulderpain  #spoonie  #chronicfatigue  #hypermobility  #hypermobilitysyndrome  #gettingfitter  #gettingstronger  #plussizefitness  #HAES  #zebrastrong  #chronicfighter  #fitfam  #noexcuses  #noexcusemoms  #whatsyourreason  #deathfatz  #eds  #ehlersdanlos  #edsathletes  #schnauzer 
Currently hanging in my car outside of dance class... I’ve eaten some carbs, and I’m just waiting a few minutes to check.  I want to go home...
#diabetes #type1 #typeone #typeonediabetes #type1diabetes #typeonediabadass #insulinaddict #dexcom #partialcyborg #organonmanual #pancreas #pancreaticallychallenged #typeonestrong #spoonie #chronicallyawesome #chronicfighter #chronicallybeautiful #t1d #hypoglycemia #lowbloodsugar
I got my new meds today. I've been pushing it because I don't want it. But I promised to give it a try so here we go... after that I sat on the yard in the sun a while 🌞 #ptsdmeds
I got my new meds today. I've been pushing it because I don't want it. But I promised to give it a try so here we go... after that I sat on the yard in the sun a while 🌞 #ptsdmeds 
This is me contemplating yet another wet, muddy, slippy run 🤣. Dog is saying, "Hurry up, what are we waiting for?!". Even worse today, even in the park. Calves and feet felt very sore and tight, but seems I went a decent pace considering conditions, so maybe that's why. Maybe not completely recovered from the five miler last week too. Anyway, done ☺️. #running #trailrunning #fatrunner #runnersofig #momswhorun #spoonierunner #chronicfatigue #hypermobility #hypermobilitysyndrome #gettingfitter #gettingstronger #plussizefitness #HAES #zebrastrong #chronicfighter #fitfam #noexcuses #noexcusemoms #whatsyourreason #deathfatz #eds #ehlersdanlos #edsathletes #yorkshire  #schnauzer
This is me contemplating yet another wet, muddy, slippy run 🤣. Dog is saying, "Hurry up, what are we waiting for?!". Even worse today, even in the park. Calves and feet felt very sore and tight, but seems I went a decent pace considering conditions, so maybe that's why. Maybe not completely recovered from the five miler last week too. Anyway, done ☺️. #running  #trailrunning  #fatrunner  #runnersofig  #momswhorun  #spoonierunner  #chronicfatigue  #hypermobility  #hypermobilitysyndrome  #gettingfitter  #gettingstronger  #plussizefitness  #HAES  #zebrastrong  #chronicfighter  #fitfam  #noexcuses  #noexcusemoms  #whatsyourreason  #deathfatz  #eds  #ehlersdanlos  #edsathletes  #yorkshire  #schnauzer 
Everyday is an ongoing struggle.
Everyday is an ongoing struggle.
6.5h skyping and playing TS4 with my sister! We had a bowling challenge where we bought the bowling pack and built a bowling alley... with a time limit of 1.5h! And I won because mine was better 😎👐 But I thought Mayas was very good too and I liked the one she made more 😂 
After that we continued playing, we hang up when it was time for dinner. Now I've eaten and are watching L word and Nea playing with once was a ball 🤔😅 #ts4
6.5h skyping and playing TS4 with my sister! We had a bowling challenge where we bought the bowling pack and built a bowling alley... with a time limit of 1.5h! And I won because mine was better 😎👐 But I thought Mayas was very good too and I liked the one she made more 😂 After that we continued playing, we hang up when it was time for dinner. Now I've eaten and are watching L word and Nea playing with once was a ball 🤔😅 #ts4 
Beasty back and bis 😁! Upped the weights and was pretty happy with how it went. Like how my glutes were sore after!

Then went into town with my peoples, picked up a library book and had coffee 😍

#cafenero #library #ilovelibraries #booklover #yrsasigurdardottir #backandbiceps #workout #strengthworkout #strengthtraining #bodybeast #spoonie #chronicfatigue #hypermobility #hypermobilitysyndrome #gettingfitter #gettingstronger #plussizefitness #HAES #zebrastrong #chronicfighter #fitfam #noexcuses #noexcusemoms #whatsyourreason #deathfatz #eds #ehlersdanlos #edsathletes
Beasty back and bis 😁! Upped the weights and was pretty happy with how it went. Like how my glutes were sore after! Then went into town with my peoples, picked up a library book and had coffee 😍 #cafenero  #library  #ilovelibraries  #booklover  #yrsasigurdardottir  #backandbiceps  #workout  #strengthworkout  #strengthtraining  #bodybeast  #spoonie  #chronicfatigue  #hypermobility  #hypermobilitysyndrome  #gettingfitter  #gettingstronger  #plussizefitness  #HAES  #zebrastrong  #chronicfighter  #fitfam  #noexcuses  #noexcusemoms  #whatsyourreason  #deathfatz  #eds  #ehlersdanlos  #edsathletes 
#todaysquote 
Today I've been having migraine so I slept most of the day. In the afternoon I went out and hang on the yard with neighbours. It was nice. Now I'm tired, but making soup, feeling good mixing it all on my own - just hope it's eatable. 😂 #goodday
#todaysquote  Today I've been having migraine so I slept most of the day. In the afternoon I went out and hang on the yard with neighbours. It was nice. Now I'm tired, but making soup, feeling good mixing it all on my own - just hope it's eatable. 😂 #goodday 
Muy feliz de formar parte del vídeo de mi hermana @carolhills 😭😭😭
Salí de mis 4 paredes de trabajo, trabajo y más trabajo para recordar que lo que en algún momento me ha quebrado, es lo que hoy me levanta. .
El mensaje de esta canción es muy fuerte y profundo, esperen este vídeo. 🔥🔥🔥 Y la verdad que así como dice la canción... No me disculparé por mis pedazos a pegar, no me voy a avergonzar🎵
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Yo también me uno a este movimiento de Imperfecta. 
#soyimperfecta #grabación #carolhills #musicasv #chronicfighter #fibrofighter
Muy feliz de formar parte del vídeo de mi hermana @carolhills 😭😭😭 Salí de mis 4 paredes de trabajo, trabajo y más trabajo para recordar que lo que en algún momento me ha quebrado, es lo que hoy me levanta. . El mensaje de esta canción es muy fuerte y profundo, esperen este vídeo. 🔥🔥🔥 Y la verdad que así como dice la canción... No me disculparé por mis pedazos a pegar, no me voy a avergonzar🎵 . Yo también me uno a este movimiento de Imperfecta. #soyimperfecta  #grabación  #carolhills  #musicasv  #chronicfighter  #fibrofighter 
A walk and workout with Nea 💪 #niceview
A walk and workout with Nea 💪 #niceview 
#Lupus story of the week. Diane Croteau was diagnosed in 1998 after 10 years of suffering from lupus related symptoms and seizures.  After dealing with her regular doctor and getting no answers she went to Hanover Hospital. After a night of getting questioned by doctors and nurses they admitted her with the thoughts of her having Systemic Lupus. She spent a month in the hospital. The day after admission she went to the eye doctor and was blind in one eye. She would have gone blind in the other within two weeks and be dead in four months had she not gone to the hospital.  Her advice to others living with Lupus is to never take "it’s all in your head" for an answer from a doctor. If you are feeling it and other people notice something isn’t right then get a second or third opinion if necessary.  Today, Diane is on the board of Monadnock Family Services and speaks for the Inshape health program whenever possible.  The inshape program with Weight Watchers helped Diane lose 110 pounds. The picture of Diane is her before and after she lost 110 pounds from staying active and being on weight watchers.
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#lupuswarrior #lupuschick #chronicillness #chronicfighter #lupusawareness #lupusstrong #lupusstory #LFNE #lupussucks #lupusadvocate #autoimmunedisease
#Lupus  story of the week. Diane Croteau was diagnosed in 1998 after 10 years of suffering from lupus related symptoms and seizures. After dealing with her regular doctor and getting no answers she went to Hanover Hospital. After a night of getting questioned by doctors and nurses they admitted her with the thoughts of her having Systemic Lupus. She spent a month in the hospital. The day after admission she went to the eye doctor and was blind in one eye. She would have gone blind in the other within two weeks and be dead in four months had she not gone to the hospital. Her advice to others living with Lupus is to never take "it’s all in your head" for an answer from a doctor. If you are feeling it and other people notice something isn’t right then get a second or third opinion if necessary. Today, Diane is on the board of Monadnock Family Services and speaks for the Inshape health program whenever possible. The inshape program with Weight Watchers helped Diane lose 110 pounds. The picture of Diane is her before and after she lost 110 pounds from staying active and being on weight watchers. . . . #lupuswarrior  #lupuschick  #chronicillness  #chronicfighter  #lupusawareness  #lupusstrong  #lupusstory  #LFNE  #lupussucks  #lupusadvocate  #autoimmunedisease 
Look who came to visit me at work @creed_the_sd ! Izzy is so tiny compared to him. But she believes she is a big dog at heart ❤️ Both are sporting their @lexi_leather_creations gear. Go check out some of the other gear she has created too! 
#servicedog #visiting #bestfriend #medicalalertdog #diabeticalertdog #type1diabetes #potsie #spoonie #chronicfighter #lexisleathercreations
A evening walk with Anna and Diva 🐶 #sunset
A evening walk with Anna and Diva 🐶 #sunset 
Beasty leg day, done! Having one of those "Why the F am I bothering with this when I don't feel better and have barely got any fitter in 6 years of hard work?" phases at the moment. When everything is a trade-off, and progress so infinitesimal, it's hard to know. I keep going mainly because I don't have any other ideas left to try that actually give me any hope of significant change. Only "get fitter and stronger". Well, here's a cute pic of my dog! ☺️ #workout #strengthworkout #strengthtraining #bodybeast #legday #spoonie #chronicfatigue #hypermobility #hypermobilitysyndrome #gettingfitter #gettingstronger #plussizefitness #HAES #zebrastrong #chronicfighter #fitfam #noexcuses #noexcusemoms #whatsyourreason #deathfatz #eds #ehlersdanlos #edsathletes #schnauzer
Beasty leg day, done! Having one of those "Why the F am I bothering with this when I don't feel better and have barely got any fitter in 6 years of hard work?" phases at the moment. When everything is a trade-off, and progress so infinitesimal, it's hard to know. I keep going mainly because I don't have any other ideas left to try that actually give me any hope of significant change. Only "get fitter and stronger". Well, here's a cute pic of my dog! ☺️ #workout  #strengthworkout  #strengthtraining  #bodybeast  #legday  #spoonie  #chronicfatigue  #hypermobility  #hypermobilitysyndrome  #gettingfitter  #gettingstronger  #plussizefitness  #HAES  #zebrastrong  #chronicfighter  #fitfam  #noexcuses  #noexcusemoms  #whatsyourreason  #deathfatz  #eds  #ehlersdanlos  #edsathletes  #schnauzer 
Meeting with my psychiatrist went well but I feel completely drained. It was a tough conversation. I got new meds, or the old one back, to try even though I don't want it. But I don't want it because I remember how off, tired and gone I was during the period I took them... now I got a lower dose and different agenda but still. Well... maybe I will go get it and be a good girl trying it or I wont, and never get to know if it worked or not. 😐
Food is eaten and cat is cuddled. Soon I will go to bed... #toughchoice
Meeting with my psychiatrist went well but I feel completely drained. It was a tough conversation. I got new meds, or the old one back, to try even though I don't want it. But I don't want it because I remember how off, tired and gone I was during the period I took them... now I got a lower dose and different agenda but still. Well... maybe I will go get it and be a good girl trying it or I wont, and never get to know if it worked or not. 😐 Food is eaten and cat is cuddled. Soon I will go to bed... #toughchoice 
This would be me if I didn't have my dogs. We'll see what my psychiatrist have to say about my #depression today 🤷
This would be me if I didn't have my dogs. We'll see what my psychiatrist have to say about my #depression  today 🤷
Oh dear 😂! I did try to smile! Not feeling it today, as you can possibly tell. Extra woozy and spacey, and sore from my run. Also starting to suspect am now regaining the weight I lost last year, without changing anything. Scares me because I don't know the cause or what's going to happen. But ah well, whatever, can only do my best- keep working out, eating well, sleeping, meditating, foam rolling, doing my stretches, pacing myself, etc etc.... even if I still feel like crap, my whole body hurts, and I keep getting fatter 🙄. Sorry, not very BoPo of me, I know. But when weight gain is a symptom of a mystery condition, and I don't mean 10lbs, I mean well over 100lbs gain... well that's scary. But my focus has to stay on being as healthy and well as I can be.

ETA: I'm not looking for weightloss advice, thanks xx

Anyway, workout done! ☺️ #workout #strengthworkout #strengthtraining #bodybeast #chest #triceps #spoonie #chronicfatigue #hypermobility #hypermobilitysyndrome #gettingfitter #gettingstronger #plussizefitness #HAES #zebrastrong #chronicfighter #fitfam #noexcuses #noexcusemoms #whatsyourreason #deathfatz #eds #ehlersdanlos #edsathletes
Oh dear 😂! I did try to smile! Not feeling it today, as you can possibly tell. Extra woozy and spacey, and sore from my run. Also starting to suspect am now regaining the weight I lost last year, without changing anything. Scares me because I don't know the cause or what's going to happen. But ah well, whatever, can only do my best- keep working out, eating well, sleeping, meditating, foam rolling, doing my stretches, pacing myself, etc etc.... even if I still feel like crap, my whole body hurts, and I keep getting fatter 🙄. Sorry, not very BoPo of me, I know. But when weight gain is a symptom of a mystery condition, and I don't mean 10lbs, I mean well over 100lbs gain... well that's scary. But my focus has to stay on being as healthy and well as I can be. ETA: I'm not looking for weightloss advice, thanks xx Anyway, workout done! ☺️ #workout  #strengthworkout  #strengthtraining  #bodybeast  #chest  #triceps  #spoonie  #chronicfatigue  #hypermobility  #hypermobilitysyndrome  #gettingfitter  #gettingstronger  #plussizefitness  #HAES  #zebrastrong  #chronicfighter  #fitfam  #noexcuses  #noexcusemoms  #whatsyourreason  #deathfatz  #eds  #ehlersdanlos  #edsathletes 
A foggy morning walk before lunch and after that I'm going to Nyköping 😊 #fog
A foggy morning walk before lunch and after that I'm going to Nyköping 😊 #fog 
Went to my cardiologist appointment this morning and we have a..focus I’m not sure plan is the right term but we have STEPS that’s the word. I need to follow some steps to try and help my POTS. I really had no idea my blood pressure was so low and that’s why I can feel so fatigued. I have salt tablets now(as if I wasn’t salty enough 😉) sooo more French fries and grits! It’s going to take some adjustments to my regular life routine but it might help. In my opinion we still aren’t moving forward with my GI issues. I’m dizzy because I can’t eat not my HR. My next step is to try and get a doctor to hear me out when I say I need nutrition NOW. I just can’t function but I mean they’re doing their best to asses my symptoms and treat them. Everything so far is POTS and EDS related(surprise surprise) I am still processing because my mind just has to re-realize that this stuff is forever. My symptoms may be able to be managed in the future but I will always have POTS and EDS and it’s going to take a LONG time to find that zone where I’m stable and it’s a lot to process. 
BUT Abby and I went to Build-A-Bear and I got a bunny because they don’t have a cow and I’m very upset about that. Meet Sibley the hospital bunny! I got her a lab coat, cast, ace bandage, and added the NG tube! My new buddy to hug when I’m sad about my health. Pippi was amazing the whole time around the kids and the stuffing machine. Just astounding. Also our cherry trees bloomed so it’s officially spring even though it’s 55 degree outside.
#cherryblossom #selfie #redhead #buildabear #tubie #ngtube #eds #pots #ehlersdanlossyndrome #spoonie #chronicillness #chronicfighter #servicedog
Went to my cardiologist appointment this morning and we have a..focus I’m not sure plan is the right term but we have STEPS that’s the word. I need to follow some steps to try and help my POTS. I really had no idea my blood pressure was so low and that’s why I can feel so fatigued. I have salt tablets now(as if I wasn’t salty enough 😉) sooo more French fries and grits! It’s going to take some adjustments to my regular life routine but it might help. In my opinion we still aren’t moving forward with my GI issues. I’m dizzy because I can’t eat not my HR. My next step is to try and get a doctor to hear me out when I say I need nutrition NOW. I just can’t function but I mean they’re doing their best to asses my symptoms and treat them. Everything so far is POTS and EDS related(surprise surprise) I am still processing because my mind just has to re-realize that this stuff is forever. My symptoms may be able to be managed in the future but I will always have POTS and EDS and it’s going to take a LONG time to find that zone where I’m stable and it’s a lot to process. BUT Abby and I went to Build-A-Bear and I got a bunny because they don’t have a cow and I’m very upset about that. Meet Sibley the hospital bunny! I got her a lab coat, cast, ace bandage, and added the NG tube! My new buddy to hug when I’m sad about my health. Pippi was amazing the whole time around the kids and the stuffing machine. Just astounding. Also our cherry trees bloomed so it’s officially spring even though it’s 55 degree outside. #cherryblossom  #selfie  #redhead  #buildabear  #tubie  #ngtube  #eds  #pots  #ehlersdanlossyndrome  #spoonie  #chronicillness  #chronicfighter  #servicedog 
Reached another level. The bed is now permanently set up downstairs. Definatly easier and well i can actually go straight to bed now (still with help) but i just feel deflated. Is this the beginning of the end? .
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#stairs #mobility #downstairs #livingdownstairs  #hotwaterbottle #ic
 #painfulbladdersyndrome #ibs #me #chronicfatigue 
#interstitialcystitis #mobility #spoonie #spoon #spoonielife #chronicwarrior  #chronicfighter #chronicpain #chronicillness #invisibleillness 
#disability #jointpain #tired #musclepain  #normalpersonchronicpain #fibromyalgia #invisibledisease #urethrapain #vulvadyndia #bladderheath
Reached another level. The bed is now permanently set up downstairs. Definatly easier and well i can actually go straight to bed now (still with help) but i just feel deflated. Is this the beginning of the end? . . . . #stairs  #mobility  #downstairs  #livingdownstairs   #hotwaterbottle  #ic   #painfulbladdersyndrome  #ibs  #me  #chronicfatigue  #interstitialcystitis  #mobility  #spoonie  #spoon  #spoonielife  #chronicwarrior   #chronicfighter  #chronicpain  #chronicillness  #invisibleillness  #disability  #jointpain  #tired  #musclepain   #normalpersonchronicpain  #fibromyalgia  #invisibledisease  #urethrapain  #vulvadyndia  #bladderheath 
3km biking with Nea and now - fruittime 😋🥝 #fruit
3km biking with Nea and now - fruittime 😋🥝 #fruit 
Long run day ☺️. Not sure if I'm brave or just stupid, but just ran 4.8 miles! Starving now! And seized up as hell and about ten things hurt 😂.
#running #fatrunner #runnersofig #momswhorun #spoonierunner #chronicfatigue #hypermobility #hypermobilitysyndrome #gettingfitter #gettingstronger #plussizefitness #HAES #zebrastrong #chronicfighter #fitfam #noexcuses #noexcusemoms #whatsyourreason #deathfatz #eds #ehlersdanlos #edsathletes
Dog training ✔
Now tea time, I'm so cold! But it's totally worth it 😎 #teatime
Dog training ✔ Now tea time, I'm so cold! But it's totally worth it 😎 #teatime 
Yesterday I noticed a slightly odd behaviour from Meeko. He was Jumping up and down the shoe rack and eating something... it took me a while before I realised he was stealing treats from my dog jacket! 😂 I have no idea why he came up with it, none of my animals have ever came up with the idea of stealing the treats from my jacket  and of all the dogs I've had I've just been waiting for Nea to do it. But not the cat. 😂 #toosmart
Yesterday I noticed a slightly odd behaviour from Meeko. He was Jumping up and down the shoe rack and eating something... it took me a while before I realised he was stealing treats from my dog jacket! 😂 I have no idea why he came up with it, none of my animals have ever came up with the idea of stealing the treats from my jacket and of all the dogs I've had I've just been waiting for Nea to do it. But not the cat. 😂 #toosmart 
Body Beast bros! We made it through cardio. Omg that was crazy!

Just remembered I'm supposed to do abs as well 😂

ETA: Abs, done!

#workout #cardio #cardioworkout #bodybeast #spoonie #chronicfatigue #hypermobility #hypermobilitysyndrome #gettingfitter #gettingstronger #plussizefitness #HAES #zebrastrong #chronicfighter #fitfam #noexcuses #noexcusemoms #whatsyourreason #deathfatz #eds #ehlersdanlos #edsathletes #family #workoutwithkids #abs #abworkout
Body Beast bros! We made it through cardio. Omg that was crazy! Just remembered I'm supposed to do abs as well 😂 ETA: Abs, done! #workout  #cardio  #cardioworkout  #bodybeast  #spoonie  #chronicfatigue  #hypermobility  #hypermobilitysyndrome  #gettingfitter  #gettingstronger  #plussizefitness  #HAES  #zebrastrong  #chronicfighter  #fitfam  #noexcuses  #noexcusemoms  #whatsyourreason  #deathfatz  #eds  #ehlersdanlos  #edsathletes  #family  #workoutwithkids  #abs  #abworkout 
• FRIHED • 👌🏻💕
#nofilterneeded 
Har været fuldstændig smadret de sidste par dage efter en superhyggelig (alkoholfri) tøsedate lørdag aften. Var dog i kirke i går og det var godt, men var så træt og var slet ikke på toppen. I dag endnu mere udmattet, dårlig, grådlabil og modløs og måtte trække mig til sengen. Men til sidst kom jeg ud!💪🏻😅
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Jeg har fået lov at låne min fars el-cykel med hjem fra det fynske, og jeg er helt vildt begejstret!!!👏🏻😃 Den fik mig helt til fjorden og tilbage op ad alle bakkerne! Sikke en frihed... Frisk luft. Fantastisk natur. Nyt liv til min sjæl. Mit hjerte flyder over af taknemmelighed!😊🙌🏻
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Jeg håber du har haft en god påske? Måske var den krævende som min, men god alligevel. Med denne afslutning føler jeg mig ekstra forkælet😊♥️
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#frihed #nature #roskildefjord #elcykel #shitdeterfedt #spoonie #lifewithchronicillness #freedom #creation #joytomysoul #spoiledbygod #grateful #sofiessofa
• FRIHED • 👌🏻💕 #nofilterneeded  Har været fuldstændig smadret de sidste par dage efter en superhyggelig (alkoholfri) tøsedate lørdag aften. Var dog i kirke i går og det var godt, men var så træt og var slet ikke på toppen. I dag endnu mere udmattet, dårlig, grådlabil og modløs og måtte trække mig til sengen. Men til sidst kom jeg ud!💪🏻😅 . . Jeg har fået lov at låne min fars el-cykel med hjem fra det fynske, og jeg er helt vildt begejstret!!!👏🏻😃 Den fik mig helt til fjorden og tilbage op ad alle bakkerne! Sikke en frihed... Frisk luft. Fantastisk natur. Nyt liv til min sjæl. Mit hjerte flyder over af taknemmelighed!😊🙌🏻 . Jeg håber du har haft en god påske? Måske var den krævende som min, men god alligevel. Med denne afslutning føler jeg mig ekstra forkælet😊♥️ . #frihed  #nature  #roskildefjord  #elcykel  #shitdeterfedt  #spoonie  #lifewithchronicillness  #freedom  #creation  #joytomysoul  #spoiledbygod  #grateful  #sofiessofa 
Izzy's giving me her look a disapproval after moving my charging cord from underneath her. Never a dull day with her by my side!
#servicedog #medicalalertdog #type1diabetes #dysautonomia #chronicfighter
Bank Holiday Body Beasty 😁. Think I got out every weight I own, even used the little baby tiny old ones for one of the combo moves! My shoulders have historically been my most troublesome joint in terms of pain. Years of a fair amount of pain and not much sleep! New mattress, gluten free and my regime up to now have done wonders, but there's always room for improvement! Took it relatively easy this first time, then I'll gauge the right weight to use next time based on how I am tomorrow.

#workout #strengthworkout #strengthtraining #bodybeast #shoulderday #shoulders #shoulderpain #spoonie #chronicfatigue #hypermobility #hypermobilitysyndrome #gettingfitter #gettingstronger #plussizefitness #HAES #zebrastrong #chronicfighter #fitfam #noexcuses #noexcusemoms #whatsyourreason #deathfatz #eds #ehlersdanlos #edsathletes
Bank Holiday Body Beasty 😁. Think I got out every weight I own, even used the little baby tiny old ones for one of the combo moves! My shoulders have historically been my most troublesome joint in terms of pain. Years of a fair amount of pain and not much sleep! New mattress, gluten free and my regime up to now have done wonders, but there's always room for improvement! Took it relatively easy this first time, then I'll gauge the right weight to use next time based on how I am tomorrow. #workout  #strengthworkout  #strengthtraining  #bodybeast  #shoulderday  #shoulders  #shoulderpain  #spoonie  #chronicfatigue  #hypermobility  #hypermobilitysyndrome  #gettingfitter  #gettingstronger  #plussizefitness  #HAES  #zebrastrong  #chronicfighter  #fitfam  #noexcuses  #noexcusemoms  #whatsyourreason  #deathfatz  #eds  #ehlersdanlos  #edsathletes