So exhausted but I've had perfect day 🌞
At first I went out with mum and the dogs to Stendörren before going to mums man for dinner and a walk. When I got home I was supposed to go out with Dex a quicky but got stuck on the yard with the being 🤷 I don't really feel like doing anything tomorrow but sleep, rest and take naps 😴 #beautifulday
Ready for a new day 🌞
Yesterday I was cleaning, doing grocery shopping and barbecuing with the neighbours at the yard. 😊 I was so exhausted when I got home I went to bed around 9.
Today I'm going away with mum, where we don't know yet. 😎 #summerheat
One major spike aside(dunno which to blame-the grapes or the granola bar), today was a good day. I’m slowly trying to narrow down my range. It started at 70-180, then I narrowed it 70-170, and now I’m trying to cut it down again, 70-160. Hopefully I don’t get too pissed off at my high alerts over the next few days... 🙃🙂
Also, that spike peaked a few minutes after I got to work... I peaked at my receiver and was sooo not expecting that kind of reading. 😂 Was very tempted to take a preemptive corrective unit, but as you can tell by the graph, my decision to wait was the right one. It’s sooo hard to not stack insulin when you spike up so high... I sometimes will in the morning, just because I know I have a really bad dawn effect, and I have a pretty regular breakfast, so I know how high is too high for that amount of carbs. I almost never have lows in the morning, and if I do, it’s usually because I’m running a 5K or another race.
Anyways, I’m rambling on because it’s late and this is what my mind does when it’s too close to midnight. Goodnight! Wishing good blood sugars on you all!
So it's getting harder and harder to write about my life without mention Dexter. Dexter is a pup, 14 weeks old, that's been living with us for 6 weeks. He's a tough little guy and Nea loves him! They plays, cuddles, sleeps together and shares everything. I've not been hiding him, I've just not felt like telling the whole world that I bought a puppy after I put down Kiana I've just felt like... like a failure when it come to dogs. But here he is! And as I said, Nea loves him. Nea have been much calmer, grown up and not as outgoing since he moved in. And Meeko loves him too, they are wrestling all the time, and Meeko is the one who starts. So my little Furfamily grew, from 2 to 3. And I have to say I love it even though a mini terrier was far away from the plan 😂😊 his life in our family from the day he moved in until now and rest of his life you can see on his own page @dextertheterrierist #oups
Up early, out with the dogs, feeling of my body falling apart and the whole world spinning... so we went back to bed with painkillers. Now we're up again and I'm a bit better. I made brunch and got company by Nea as usual. I think we're going to the woods today! I really need that kind of theraphy today 😌 #badmorning
Got some new tape. It’s not all in your usual places I know. But I have to do it myself for now and anything to help with the aches and pains is better than nothing. Anyone got any tips for knees? Whenever I try the damn stuff peels odd and mine are killing me.
Good morning! I'm so sore today, so exhausted. Everything hurts but it was so worth it! I've been sleeping until 12.30 and now I'm eating brunch, a pink vomit (oatmeal with raspberry) before playing ts4 and gather some strength for go grocery shopping 😌 #exhaustion
Nea did better than expected today! We were away where it was alot of other dogs and Nea was in the dogyard, she could see us all and had a GSD in the yard next to her. She didn't care at all expect for when she left, Nea got sad 😂 So proud of her today 😍 now I'm tired after yet another day with dogs, grown ups and kids 😴 #exhausted
So, after coming home I didn't want to sit inside longer than I had to due to the beautiful weather and 17 degrees! I went outside and just came in. 😴
So tired and my body is aching! Make up off, hair up, lime water made, legs high and TS4 starting up 👌 tomorrow is a new day 😊 #goodday
Kimmys baptism done 😍
Took alot of pictures and due to Lightroom and my computer not being friends I got 756 pictures to go through when it works. And still I want to do more photographing! It's such lovely weather 🌞 #baptism
Today I feel okay guess it was all just in my head
I just need to try harder I guess
Yeah everyone else in the world seems to be doing alright
Yeah, I'm alright for tonight
Can we let the pain and the happy mix
Can the two coexist? The beauty next to the mess
Because I swear I have them both already beating in my chest
If that makes me crazy the numbers don't lie
But I don't call that crazy I call it being alive ~ #songlyrics
A long day today!
First a 4km walk and 3km bicycling with Nea, then sitting on the yard with Anna a while before cleaning again. After that I cuddled my animals and let Meeko do the dishes before going to the stable with Madde to take some photos of one of her ponys! It'll be interesting to see if there were any good photos 😅
Now - take my meds and soon go to sleep. #goodday
Good morning! I do not feel like a zombie... but if everyone saw me out with Dexter at 4am; I WAS NOT DRUNK. Promise!
I slept well. I fell asleep fast and I woke up with just some short half scary dreams. I woke up when Dexter needed to go out which I also was scared of not doing and I fell asleep right after to wake up at 10.30am. During that time though I had a really weird dream. I dreamt I was going to the baptism for Kimmy and we got cought by terrorists. 😵 now I'm going to eat my purple vomit (oatmeal with blueberries) and then go out with the dogs 😎 #sofarsogood
• VREDE • 😣😖🤭
Folk der kender mig, ville ikke nødvendigvis tænke, at jeg var en, der har svært ved at være vred. Jeg har ikke svært ved at ‘blive’ vred, men jeg har svært ved at ‘være’ vred. At tillade mig selv at være det. Måske fordi jeg har oplevet meget ukonstruktiv vrede i mit liv. Måske også fordi, jeg har svært ved at tage plads - også selvom jeg ofte ikke kan lade være, ekspressiv, verbal og følsom, som jeg er. Når jeg er presset, reagerer jeg - både udadtil og indadtil... Men det med vrede er altså ikke let for mig. 🤨
Hver gang jeg er til test på min afd. får ambulanten sagt noget, der frustrerer mig. Ofte føles min situation negligeret, eller hun gør sig klog på noget, hun ikke kan - eller skal. Det er ikke i nogen ond mening. Det ved jeg godt. Men jeg begynder at stille spørgsmålstegn ved min egen dømmekraft og om, jeg måske gør min situation værre, end den er, og om jeg kunne tage mig mere sammen eller noget... Jeg begynder at tvivle på mine valg og beslutninger ift. medicin etc. .
Hun mener det så vel, og det gør det ikke lettere at blive vred. For det bli’r jeg. Hvis jeg er ærlig med mig selv, så pisser det mig af! Hvem er hun til at bedømme mig og min situation?! Hun kender jo knapt en my af, hvad jeg står med!! Hun har ingen reel forudsætning for at mene noget og udtale sig om det. Men alligevel har jeg svært ved at være vred og måske lade vreden få udløb. .
Jeg mener ikke, at jeg skal lade vreden komme ud over for hende, det kommer der nok ikke noget konstruktivt ud af. Men det er ikke godt for mig, ikke at lade mig selv være vred. For det er jeg jo, og hvis jeg ikke lader mig selv være det, så vender jeg vreden indad. Så bliver det til selvkritik og selvbebrejdelse og usikkerhed. Så slår jeg på mig selv. Av!
Det er ikke let at være patient. Det er ikke let at leve med kronisk sygdom. Livet er ikke enkelt og let... Jeg prøver at tale pænt til og om mig selv. Jeg forsøger at behandle mig selv godt og respektfuldt. Hvis det skal lykkes, må jeg tillade mig selv at være vred og sige undskyld, når det ikke lykkes. Jeg ER vred!
Hvordan har du det med vrede?
A long but nice day - I sure will sleep like a baby tonight.
After morning walk I was cleaning a bit. Then I was out in the sun at the yard and walking Meeko. After that I took Nea for a workout, 1h walk with #dragweight . Home again I prepared the dinner and cut my thumb, before going to dog training. Dog training for 1h. Home again and make dinner. Now I've taken my new medication so I hope I'll sleep well and that I won't be a zombie... 😴 #whataday
You know it's spring when you change your jacket to vest 👐
Morningwalk with Anna and Diva done! Yesterday I put on Neas ticbrick, hopefully we'll have more luck this year as I start with it early 😋 #springweather
6.5h skyping and playing TS4 with my sister! We had a bowling challenge where we bought the bowling pack and built a bowling alley... with a time limit of 1.5h! And I won because mine was better 😎👐 But I thought Mayas was very good too and I liked the one she made more 😂
After that we continued playing, we hang up when it was time for dinner. Now I've eaten and are watching L word and Nea playing with once was a ball 🤔😅 #ts4
Today I've been having migraine so I slept most of the day. In the afternoon I went out and hang on the yard with neighbours. It was nice. Now I'm tired, but making soup, feeling good mixing it all on my own - just hope it's eatable. 😂 #goodday
Muy feliz de formar parte del vídeo de mi hermana @carolhills 😭😭😭
Salí de mis 4 paredes de trabajo, trabajo y más trabajo para recordar que lo que en algún momento me ha quebrado, es lo que hoy me levanta. .
El mensaje de esta canción es muy fuerte y profundo, esperen este vídeo. 🔥🔥🔥 Y la verdad que así como dice la canción... No me disculparé por mis pedazos a pegar, no me voy a avergonzar🎵
Yo también me uno a este movimiento de Imperfecta.
#Lupus story of the week. Diane Croteau was diagnosed in 1998 after 10 years of suffering from lupus related symptoms and seizures. After dealing with her regular doctor and getting no answers she went to Hanover Hospital. After a night of getting questioned by doctors and nurses they admitted her with the thoughts of her having Systemic Lupus. She spent a month in the hospital. The day after admission she went to the eye doctor and was blind in one eye. She would have gone blind in the other within two weeks and be dead in four months had she not gone to the hospital. Her advice to others living with Lupus is to never take "it’s all in your head" for an answer from a doctor. If you are feeling it and other people notice something isn’t right then get a second or third opinion if necessary. Today, Diane is on the board of Monadnock Family Services and speaks for the Inshape health program whenever possible. The inshape program with Weight Watchers helped Diane lose 110 pounds. The picture of Diane is her before and after she lost 110 pounds from staying active and being on weight watchers.
Meeting with my psychiatrist went well but I feel completely drained. It was a tough conversation. I got new meds, or the old one back, to try even though I don't want it. But I don't want it because I remember how off, tired and gone I was during the period I took them... now I got a lower dose and different agenda but still. Well... maybe I will go get it and be a good girl trying it or I wont, and never get to know if it worked or not. 😐
Food is eaten and cat is cuddled. Soon I will go to bed... #toughchoice
Went to my cardiologist appointment this morning and we have a..focus I’m not sure plan is the right term but we have STEPS that’s the word. I need to follow some steps to try and help my POTS. I really had no idea my blood pressure was so low and that’s why I can feel so fatigued. I have salt tablets now(as if I wasn’t salty enough 😉) sooo more French fries and grits! It’s going to take some adjustments to my regular life routine but it might help. In my opinion we still aren’t moving forward with my GI issues. I’m dizzy because I can’t eat not my HR. My next step is to try and get a doctor to hear me out when I say I need nutrition NOW. I just can’t function but I mean they’re doing their best to asses my symptoms and treat them. Everything so far is POTS and EDS related(surprise surprise) I am still processing because my mind just has to re-realize that this stuff is forever. My symptoms may be able to be managed in the future but I will always have POTS and EDS and it’s going to take a LONG time to find that zone where I’m stable and it’s a lot to process.
BUT Abby and I went to Build-A-Bear and I got a bunny because they don’t have a cow and I’m very upset about that. Meet Sibley the hospital bunny! I got her a lab coat, cast, ace bandage, and added the NG tube! My new buddy to hug when I’m sad about my health. Pippi was amazing the whole time around the kids and the stuffing machine. Just astounding. Also our cherry trees bloomed so it’s officially spring even though it’s 55 degree outside.
Yesterday I noticed a slightly odd behaviour from Meeko. He was Jumping up and down the shoe rack and eating something... it took me a while before I realised he was stealing treats from my dog jacket! 😂 I have no idea why he came up with it, none of my animals have ever came up with the idea of stealing the treats from my jacket and of all the dogs I've had I've just been waiting for Nea to do it. But not the cat. 😂 #toosmart
• FRIHED • 👌🏻💕
Har været fuldstændig smadret de sidste par dage efter en superhyggelig (alkoholfri) tøsedate lørdag aften. Var dog i kirke i går og det var godt, men var så træt og var slet ikke på toppen. I dag endnu mere udmattet, dårlig, grådlabil og modløs og måtte trække mig til sengen. Men til sidst kom jeg ud!💪🏻😅
Jeg har fået lov at låne min fars el-cykel med hjem fra det fynske, og jeg er helt vildt begejstret!!!👏🏻😃 Den fik mig helt til fjorden og tilbage op ad alle bakkerne! Sikke en frihed... Frisk luft. Fantastisk natur. Nyt liv til min sjæl. Mit hjerte flyder over af taknemmelighed!😊🙌🏻
Jeg håber du har haft en god påske? Måske var den krævende som min, men god alligevel. Med denne afslutning føler jeg mig ekstra forkælet😊♥️