Weaver Elementary School in Los Alamitos chose ALSGA as their charity once again this year for their “Cares Campaign” and this morning presented me with $1200 worth of gift cards for the ALS Guardian Angels Foundation to give to ALS patients struggling with this horrible disease. We are so grateful to these kids that work so hard to help ALS families. Unfortunately a dad of one of the kids at Weaver has ALS and our hearts go out to the Penick family.
Thanks to each & every one of you who participated in the “Cares Campaign”. Compassion, Action, Responsibility, Empathy, Support. These kids have my heart ❤️❤️❤️
(Sorry for the bad lighting but zoom in to read their signs. So special) #weaverrocks#kidswithbighearts#alssucks#giftcards#thankyoucarescampaign
Really missing my dad today. I wish he could see my nice house, amazing husband, 5 cat children (yes, my dad was a cat man), see that I finally graduated...it hurts that he's not here. We had a tough relationship when I was young but were getting closer during adulthood so it really feels like ALS stole that relationship from us. Be grateful for your (sometimes crazy) parents and love them while you can... #dad#als#alschallenge#alssucks#amyotrophiclateralsclerosis#lougehrigsdisease#terminalillness#parents
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Please we need your help Brittany is my best friend who was diagnosed with ALS and recently became a mother to a beautiful baby girl "River". I knew Brittany before her diagnosis and was there when the doctors told her the heart breaking news. I have been helping Brittany emotionally and finacially ever since. I admire her courage and strength to keep living her life and not letting ALS to slow her down. Please read her story. Together we can make a difference! Strength in numbers! Please share and help if you can ❤ I set up a gofundme account to help them through this difficult time. Click on the link is in my bio to read the full story ❤
My earliest and my fondest of memories with my dad involve him reading the entire Chronicles of Narnia series, and other writings by CS Lewis every single night growing up. Falling asleep to his voice was when I felt the most safe and comforted.
I had always wanted to get an Aslan tattoo in honor of my dad....but when lion tattoos started to become a trend I was seriously bummed out. But all this week since dad died all I could think was the quote from the series, "But courage, child: we are all between the paws of the true Aslan." So I knew it was the perfect tribute. .
Then today, while in line at the store, there was a single box of "Turkish Delight." (another reference from Narnia). My sister and I knew exactly that dad was near. .
I love you dearest daddy. You'll always be on my mind and close to my heart.
Thank you to my love @sadiebartchtattoos for making this happen. #alssucks#fuckals#alsawareness#deaddadsclub#missyoudad#rip
Today marks one month since my dad passed. It seems like it's been so much longer, but it also feels like it was just yesterday. It's weird how time can fly by, but be in slow motion at the same time. Every single day, I am reminded of him; whether it be a song on the radio by an artist that we went to their concert together. Or a big rig on the freeway (he was a truck driver). I still have my emotional moments but for the most part, I'm ok. I'm ok because I know that he's free. Free from the pain and free from the prison that was his body. I can't imagine what he went through. Standing there, watching him go through everything he went through broke my heart. I'm so relieved that he's free from that. And that he has his body back and that it works the way it's supposed to again.
Today is also my grandma's (his mom) birthday. I hope you they are together, celebrating. It's their first birthday together in over 20 years. Happy Birthday grandma Terry. Enjoy celebrating with your baby.
I've been at my parent's house for the past week, and will be staying through next week. My mom was diagnosed with ALS 2 months ago and my dad has severe COPD, made worse by a nicked diaphragm during heart surgery. It's so so hard seeing my mom and dad go through this. I am so grateful for my #poncefamily5 💖 @e_a_ponce is such an amazing dad and husband. He takes over where I let go. He is my rock. And, my 3 awesome children @ninja_penguin16 @mattman18000 @crypticpotato work as a team in these rough patches of life. My heart is blessed, even under such scary circumstances! #family#blessings#alssucks#als#copd#myparentsaremyworld
Happy heavenly birthday to the best Godmother I could have wished for. Thank you Aunt Laura for always encouraging me, pushing me, & supporting me. You were one of the strongest & most badass people I’ve ever had the pleasure to know & more importantly been able to call family. I will be forever grateful for all you taught me & your constant kind & encouraging words of support always. We miss you & love you lots. #ALSsucks