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Mom and I going to her first #ALS clinic on April 14th. In 6 hours, we had visits from several therapists and a neurologist who will be a critical part of her care. It's a lot to handle! 😔  #alssucks #alsawareness #als #lougehrigsdisease #mymom 💖
Weaver Elementary School in Los Alamitos chose ALSGA as their charity once again this year for their “Cares Campaign” and this morning presented me with $1200 worth of gift cards for the ALS Guardian Angels Foundation to give to ALS patients struggling with this horrible disease. We are so grateful to these kids that work so hard to help ALS families. Unfortunately a dad of one of the kids at Weaver has ALS and our hearts go out to the Penick family. 
Thanks to each & every one of you who participated in the “Cares Campaign”. Compassion, Action, Responsibility, Empathy, Support.  These kids have my heart ❤️❤️❤️
(Sorry for the bad lighting but zoom in to read their signs. So special)  #weaverrocks #kidswithbighearts #alssucks #giftcards #thankyoucarescampaign
Weaver Elementary School in Los Alamitos chose ALSGA as their charity once again this year for their “Cares Campaign” and this morning presented me with $1200 worth of gift cards for the ALS Guardian Angels Foundation to give to ALS patients struggling with this horrible disease. We are so grateful to these kids that work so hard to help ALS families. Unfortunately a dad of one of the kids at Weaver has ALS and our hearts go out to the Penick family. Thanks to each & every one of you who participated in the “Cares Campaign”. Compassion, Action, Responsibility, Empathy, Support. These kids have my heart ❤️❤️❤️ (Sorry for the bad lighting but zoom in to read their signs. So special) #weaverrocks  #kidswithbighearts  #alssucks  #giftcards  #thankyoucarescampaign 
We love our gorgeous Queen B Necklace! It features a distressed bronze bee dog tag which hangs upon a delicate ivory chain. 🐝
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#icebucketchallenge #als #alsicebucketchallenge #alssucks #findacure #shoplocal #shopforacause #jewelryforacause #design #handmade #uniquegifts #giveback #giftsforher #giftideas #boutiqueshopping #donate #alsassociation #buylocal #gifts #shop #betsyrocks #jewelrydesign #jewelry #accessories #accessorize #fashion #ootd #fbloggers #blogger
We love our gorgeous Queen B Necklace! It features a distressed bronze bee dog tag which hangs upon a delicate ivory chain. 🐝 . . . . . . . . . . . . . . #icebucketchallenge  #als  #alsicebucketchallenge  #alssucks  #findacure  #shoplocal  #shopforacause  #jewelryforacause  #design  #handmade  #uniquegifts  #giveback  #giftsforher  #giftideas  #boutiqueshopping  #donate  #alsassociation  #buylocal  #gifts  #shop  #betsyrocks  #jewelrydesign  #jewelry  #accessories  #accessorize  #fashion  #ootd  #fbloggers  #blogger 
Vera 💙 MawMaw  ALS took our MawMaw way too soon...We miss her so much...she was “the Best Ever”... #alssucks #findacureforals #veragray #endals #als #lougehrigsdisease
This is the view from my “stateroom” on our boat. For 30-50 days, this is where I’ll sleep for 2-3 hours at a time. Can’t wait!! #row4als #3000miles #worldstoughestrow #spindriftrowing #spindrift_rowing #alsassociation #alsa #alscrowd #alssucks #twac2018 #comfyandcozy
Thursdays with Hank!! Looks like I am chauffeuring today!! 'Bout to drive him fast around some curvy country roads & get his adrenaline or blood pressure up one!! #bigbro #lilsis #helovesarace #ALSsucks
Thursdays with Hank!! Looks like I am chauffeuring today!! 'Bout to drive him fast around some curvy country roads & get his adrenaline or blood pressure up one!! #bigbro  #lilsis  #helovesarace  #ALSsucks 
Remaining positive!!!! Got a 5K in. What a beautiful day. Why live anywhere else. Miami-Dade ALS 5K coming in a few weeks. Help support for a cure. . #barbiestrong #ALSsucks #sweetsweat #cdctraining
Really missing my dad today. I wish he could see my nice house, amazing husband, 5 cat children (yes, my dad was a cat man), see that I finally graduated...it hurts that he's not here. We had a tough relationship when I was young but were getting closer during adulthood so it really feels like ALS stole that relationship from us. Be grateful for your (sometimes crazy) parents and love them while you can... #dad #als #alschallenge #alssucks #amyotrophiclateralsclerosis #lougehrigsdisease #terminalillness #parents
Really missing my dad today. I wish he could see my nice house, amazing husband, 5 cat children (yes, my dad was a cat man), see that I finally graduated...it hurts that he's not here. We had a tough relationship when I was young but were getting closer during adulthood so it really feels like ALS stole that relationship from us. Be grateful for your (sometimes crazy) parents and love them while you can... #dad  #als  #alschallenge  #alssucks  #amyotrophiclateralsclerosis  #lougehrigsdisease  #terminalillness  #parents 
A beautiful day we will never forget welcoming baby girl "River" to this world 
#als #alssucks #lougherigsdisease #stephenhawking #icebucketchallenge #winningthefight #gofundme #help #love #weneedhelp #helpus #baby #family #mother #father #daughter
Thank you everyone for your kindness and generosity. Thanks to you River's parents are able to provide for her during this difficult time❤

#als #alssucks #lougherigsdisease #stephenhawking #icebucketchallenge #winningthefight #gofundme #help #love #weneedhelp #helpus #baby #family #mother #father #daughter
Brittany and Cole would like to thank everyone for helping them through this difficult time. Together we raised over $4000 dollars to help with then with their living expenses. 
#als #alssucks #lougherigsdisease #stephenhawking #icebucketchallenge #winningthefight #gofundme #help #love #weneedhelp #helpus #baby #family #mother #father #daughter
Vid part 2 of 2 
Please we need your help Brittany is my best friend who was diagnosed with ALS and recently became a mother to a beautiful baby girl "River". I knew Brittany before her diagnosis and was there when the doctors told her the heart breaking news. I have been helping Brittany emotionally and finacially ever since. I admire her courage and strength to keep living her life and not letting ALS to slow her down. Please read her story. Together we can make a difference!  Strength in numbers! Please share and help if you can ❤ I set up a gofundme account to help them through this difficult time. Click on the link is in my bio to read the full story ❤

https://www.gofundme.com/living-expenses-for-mother-with-als

#als #alssucks #lougherigsdisease #stephenhawking #icebucketchallenge #winningthefight #gofundme #help #love #weneedhelp #helpus #baby #family #mother #father #daughter
Vid part 2 of 2 Please we need your help Brittany is my best friend who was diagnosed with ALS and recently became a mother to a beautiful baby girl "River". I knew Brittany before her diagnosis and was there when the doctors told her the heart breaking news. I have been helping Brittany emotionally and finacially ever since. I admire her courage and strength to keep living her life and not letting ALS to slow her down. Please read her story. Together we can make a difference! Strength in numbers! Please share and help if you can ❤ I set up a gofundme account to help them through this difficult time. Click on the link is in my bio to read the full story ❤ https://www.gofundme.com/living-expenses-for-mother-with-als #als  #alssucks  #lougherigsdisease  #stephenhawking  #icebucketchallenge  #winningthefight  #gofundme  #help  #love  #weneedhelp  #helpus  #baby  #family  #mother  #father  #daughter 
My earliest and my fondest of memories with my dad involve him reading the entire Chronicles of Narnia series, and other writings by CS Lewis every single night growing up. Falling asleep to his voice was when I felt the most safe and comforted.
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I had always wanted to get an Aslan tattoo in honor of my dad....but when lion tattoos started to become a trend I was seriously bummed out. But all this week since dad died all I could think was the quote from the series, "But courage, child: we are all between the paws of the true Aslan." So I knew it was the perfect tribute. .
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Then today, while in line at the store, there was a single box of "Turkish Delight." (another reference from Narnia). My sister and I knew exactly that dad was near. .
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I love you dearest daddy. You'll always be on my mind and close to my heart.
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Thank you to my love @sadiebartchtattoos for making this happen. #alssucks #fuckals #alsawareness #deaddadsclub #missyoudad #rip
My earliest and my fondest of memories with my dad involve him reading the entire Chronicles of Narnia series, and other writings by CS Lewis every single night growing up. Falling asleep to his voice was when I felt the most safe and comforted. . . I had always wanted to get an Aslan tattoo in honor of my dad....but when lion tattoos started to become a trend I was seriously bummed out. But all this week since dad died all I could think was the quote from the series, "But courage, child: we are all between the paws of the true Aslan." So I knew it was the perfect tribute. . . Then today, while in line at the store, there was a single box of "Turkish Delight." (another reference from Narnia). My sister and I knew exactly that dad was near. . . I love you dearest daddy. You'll always be on my mind and close to my heart. . . Thank you to my love @sadiebartchtattoos for making this happen. #alssucks  #fuckals  #alsawareness  #deaddadsclub  #missyoudad  #rip 
She’s here!!! This adventure has taken another big step towards reality!  Can wait to get her on the water next week!  Thank you @sugarhouseawning and Canvas for making our custom cover!  #row4als #3000miles #twac2018 #worldstoughestrow #alsassociation #alsa #alscrowd #alssucks #spindriftrowing #madebythesea #alsarockymountainregional
Help our dear friends out!! Link to donate in bio. #fuckals #gofundme #keephope #alssucks #als #kindness
My dad is fighting stage 4 metastatic prostate cancer and we got some disappointing news yesterday. Instead of shoving a gallon of chocolate ice cream down my throat, I think I'll get out some feelings at the gym. When my mom was terribly ill, I turned to food and sleep. I refuse to be that person again! 👊
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#jennisjourney #losingweightin2018 #weightloss #workingonmyafter #slowandsteadywinstherace #fitness #keepgoing #dontgiveup #mymomismyguardianangel #mydadsfighting #cancersucks #alssucks
My dad is fighting stage 4 metastatic prostate cancer and we got some disappointing news yesterday. Instead of shoving a gallon of chocolate ice cream down my throat, I think I'll get out some feelings at the gym. When my mom was terribly ill, I turned to food and sleep. I refuse to be that person again! 👊 . . . . . . #jennisjourney  #losingweightin2018  #weightloss  #workingonmyafter  #slowandsteadywinstherace  #fitness  #keepgoing  #dontgiveup  #mymomismyguardianangel  #mydadsfighting  #cancersucks  #alssucks 
What a blessing to know such a love like this. 
In sickness and health, you guys kicked a**. Happy Anniversary!
Salute 🥂🍾💛
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#alssucks #lovewins
What a blessing to know such a love like this. In sickness and health, you guys kicked a**. Happy Anniversary! Salute 🥂🍾💛 . #alssucks  #lovewins 
My buddy Jason passed away from ALS. In the new issue of bored I mistakenly wrote MLS. At least it gives me an excuse to post this epic photo of Jason by @corpoglenny. 
Rest In Peace Jason. 
#alssucks #rabethica #boredzine #terribletypos #jpskatecrap
When life gives you lemons, you paint! 🍋🎨 My Uncle John is punching ALS in the face with art! 👊🏽
(Repost: @johns.angels.xo )
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#johnnyangel #johnsangels #ultrarunner #runner #run # #als #running #lougehrigsdisease #alssucks #gotnothingonme #aiga #samoan #samoanstrong #islandboy #polynesian #alsawareness #johnboy #celebratelife #whenlifegivesyoulemons #artist #cherryblossom #painting #art #inspiration
When life gives you lemons, you paint! 🍋🎨 My Uncle John is punching ALS in the face with art! *
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#johnnyangel #johnsangels #ultrarunner #runner #run # #als #running #lougehrigsdisease #alssucks #gotnothingonme #aiga #samoan #samoanstrong #islandboy #polynesian #alsawareness #johnboy #celebratelife #whenlifegivesyoulemons #artist #cherryblossom #painting #art #inspiration
Max’s Ride is this weekend! If you are in Austin, come have FUN and support local families with ALS. 
#dontmakefun #iwas19 #nofashionsense #butbestdadintheworld
#maxsride #als #cowboyharley #atx #austin #austinfit #alsa #advocacyday #rarediseases “rare” #icebucketchallenge #worthycauses
Every piece of Betsy Rocks Jewelry tells a story... A story of pain and loss, but also of hope and faith. Thank you for joining the story and honoring Betsy with us.
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#icebucketchallenge #als #alsicebucketchallenge #alssucks #findacure #shoplocal #shopforacause #jewelryforacause #design #handmade #uniquegifts #giveback #giftsforher #giftideas #boutiqueshopping #donate #alsassociation #buylocal #gifts #shop #betsyrocks #jewelrydesign #jewelry #accessories #accessorize #fashion #ootd #fbloggers #blogger
Every piece of Betsy Rocks Jewelry tells a story... A story of pain and loss, but also of hope and faith. Thank you for joining the story and honoring Betsy with us. . . . . . . . . . . . . . . #icebucketchallenge  #als  #alsicebucketchallenge  #alssucks  #findacure  #shoplocal  #shopforacause  #jewelryforacause  #design  #handmade  #uniquegifts  #giveback  #giftsforher  #giftideas  #boutiqueshopping  #donate  #alsassociation  #buylocal  #gifts  #shop  #betsyrocks  #jewelrydesign  #jewelry  #accessories  #accessorize  #fashion  #ootd  #fbloggers  #blogger 
Game Day! 
I’m channeling my inner @kyle_lowry7 in prep for my finance exam! 
And for a little comfort & support, I’m wearing my sweet MIL’s sweater she got on our trip to Jasper. I sure miss my friend, especially during all these changes but I hold her close to my heart & focus on making her proud! .
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#gameday #workhard #hustle #finishstrong #goaldigger #family #restinpeace #motherinlaw #alssucks #foreverinourhearts #nanny #makeherproud #mama
Sorrento lilies for Joella.  Flowers sure brighten up a room. #lougerhigsdisease  #alssucks
May 5th is the Charlotte ALS Walk in South Park. This is our team shirt link is in the bio to buy. LAST DAY IS TOMORROW!! #alssucks #walkforacure #patspals2018
Got another 2 miles in. Done for the day. #ALSsucks #sweetsweat #cdctraining
Found Santa on beach today. Told him I want a Cure for ALS this year.
#cureals #alsisamonster #alssucks #santa #iwantacure
Many didn't get the chance to know my daddy and his heart. Here are some tributes to give you a small glimpse of the man he was. 
I love you daddy.
 #als #alssucks #rip #homewithhissavior
Many didn't get the chance to know my daddy and his heart. Here are some tributes to give you a small glimpse of the man he was. I love you daddy. #als  #alssucks  #rip  #homewithhissavior 
She’s finished!!! 😍😍😍 Thank you @spindrift_rowing for building us such a beautiful boat!! Next week @row4als will test her out as we row from Miami to Charleston.  Follow along on Facebook, Instagram, or our website.  #row4als #alsassociation #alscrowd #alssucks #twac2018 #taliskeratlanticchallenge #3000miles #worldstoughestrow #madebythesea #spindrift_rowing #beatals
2 miles done. Beautiful outside. #ALSsucks #sqeetsweat #cdctraining
Broken foot
Broken foot
🏃🏻‍♀️Today’s the day! I worked so hard for the past 6 months raising money for #TeamChallengeALS and spreading awareness of the disease on top of training for the longest distance race of my life. Over $8,000 & 100 miles later, I still can’t even put into words how amazing this feels. But I honestly wouldn’t have been able to get to this day without the love and support from EVERYONE IN MY LIFE. Every call, text, DM, comment, card- you name it, I’ve gotten it from the most amazing people. Thank you for lifting me through this journey when I didn’t have to strength to do it myself - now I’m hoping the crowds (and Bema) will do the same today 🙌🏼This #MarathonVirgin is ready to run in the rain for those who can’t! I LOVE YOU ALL, LET’S DO THIS! 💙💛💙💛
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#WhatLiftsYou #BostonMarathon #BostonMarathon2018 #RunBoston #Boston #Marathon #MarathonTraining #TogetherForward #ThisIsBoston #BostonStrong #TeamBema #alssucks #fuckals #fucktheforecast #igrunners #igboston #womensrunningcommunity
🏃🏻‍♀️Today’s the day! I worked so hard for the past 6 months raising money for #TeamChallengeALS  and spreading awareness of the disease on top of training for the longest distance race of my life. Over $8,000 & 100 miles later, I still can’t even put into words how amazing this feels. But I honestly wouldn’t have been able to get to this day without the love and support from EVERYONE IN MY LIFE. Every call, text, DM, comment, card- you name it, I’ve gotten it from the most amazing people. Thank you for lifting me through this journey when I didn’t have to strength to do it myself - now I’m hoping the crowds (and Bema) will do the same today 🙌🏼This #MarathonVirgin  is ready to run in the rain for those who can’t! I LOVE YOU ALL, LET’S DO THIS! 💙💛💙💛 - - - #WhatLiftsYou  #BostonMarathon  #BostonMarathon2018  #RunBoston  #Boston  #Marathon  #MarathonTraining  #TogetherForward  #ThisIsBoston  #BostonStrong  #TeamBema  #alssucks  #fuckals  #fucktheforecast  #igrunners  #igboston  #womensrunningcommunity 
Visit Pointe du Bois and spend some time on this special bench dedicated to Louise. #damspecialbench #wemissyou #alssucks #pointedubois
thanks @fibostrong for keeping everyone informed #alssucks
thanks @fibostrong for keeping everyone informed #alssucks 
Today marks one month since my dad passed. It seems like it's been so much longer, but it also feels like it was just yesterday. It's weird how time can fly by, but be in slow motion at the same time. Every single day, I am reminded of him; whether it be a song on the radio by an artist that we went to their concert together. Or a big rig on the freeway (he was a truck driver). I still have my emotional moments but for the most part, I'm ok. I'm ok because I know that he's free. Free from the pain and free from the prison that was his body. I can't imagine what he went through. Standing there, watching him go through everything he went through broke my heart. I'm so relieved that he's free from that. And that he has his body back and that it works the way it's supposed to again. 
Today is also my grandma's (his mom) birthday. I hope you they are together, celebrating. It's their first birthday together in over 20 years. Happy Birthday grandma Terry. Enjoy celebrating with your baby.

#restinpeace #wemissyou #weloveyou #ALSsucks #onemonth
Today marks one month since my dad passed. It seems like it's been so much longer, but it also feels like it was just yesterday. It's weird how time can fly by, but be in slow motion at the same time. Every single day, I am reminded of him; whether it be a song on the radio by an artist that we went to their concert together. Or a big rig on the freeway (he was a truck driver). I still have my emotional moments but for the most part, I'm ok. I'm ok because I know that he's free. Free from the pain and free from the prison that was his body. I can't imagine what he went through. Standing there, watching him go through everything he went through broke my heart. I'm so relieved that he's free from that. And that he has his body back and that it works the way it's supposed to again. Today is also my grandma's (his mom) birthday. I hope you they are together, celebrating. It's their first birthday together in over 20 years. Happy Birthday grandma Terry. Enjoy celebrating with your baby. #restinpeace  #wemissyou  #weloveyou  #ALSsucks  #onemonth 
ALS walk for my wonderful husband John 💃🏻💃🏻#alssucks #nowhiteflags #support #fundraiser #als #lougehrigsdisease #lovefamilyandfriends
If only we could see a glimpse of how big of a celebration they are having in heaven today. Happy birthday daddio! #alssucks #kickals
If only we could see a glimpse of how big of a celebration they are having in heaven today. Happy birthday daddio! #alssucks  #kickals 
ALS walk to remember Dr Steve, our super Steve.  Thank you to all who donated, join us if you’re local 4/28 
https://www.crowdrise.com/o/en/campaign/simons-clan @tes2213 #poppers #cookies #cakepops #decoratedcookies #customcookies #huntersville #davidson #cornelius #mooresville #birkdale #ilovecookies #ilovecakepops #cakeonastick #cookieart #cookieartist #sayitwithcookies #cookiesofinstagram #als #alssucks #dentist #toothcookies
Saturday, April 28, 2018. 6p - 9p It's our Annual Toast to Hope event to benefit the @alsawisconsin. Tickets onsale now! https://bit.ly/2IVneCd #craftbeer #foodtasting #toasttohope #ithd #irontownhd #toga #vsals #alssucks #nowhiteflags
Thank you @winterparkresort @alsassociations for a fantastic day “Skiing to defeat ALS”. It was a wonderful yet humbling day...
#alssucks
Thank you @winterparkresort @alsassociations for a fantastic day “Skiing to defeat ALS”. It was a wonderful yet humbling day... #alssucks 
⬆️ Proud runner for #TeamChallengeALS right here! A huge THANK YOU to everyone that has donated, together we raised over $8,000!! 🙌🏼 My campaign is still open until #MarathonMonday so check out the link in my bio to support an amazing & worthy cause! -
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#alsawareness #alssucks #fuckals #ALSAssociation #BostonMarathon #bostonmarathon2018 #RoadToBoston #BostonBound #ThisIsBoston #MarathonTraining #TogetherForward
Nach Atemnot am Dienstag Morgen...🚑..🏥...4 Tage Intensivstation...nun endlich wieder zu Hause...dafür mit neuem "Mitbewohner"...vorläufig nur Nachts mit Beatmung 😕
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#hope #hoffnung #munich #minga #089 #München #Perlach #als #alsfighter #amyotrophelateralsklerose #amyotrophiclateralsclerosisawareness #amyotrophiclateralsclerosis #alssucks #beatals #nowhiteflags
Four years ago I was in Europe with my Mom and Michael. Sometimes I feel like I’ll explode with missing her. The ache has felt especially sharp as we are rounding the corner of a year without her.
Four years ago I was in Europe with my Mom and Michael. Sometimes I feel like I’ll explode with missing her. The ache has felt especially sharp as we are rounding the corner of a year without her.
Watched this and held my family tight. Balled the whole way through. #nowhiteflags #fatherson #alssucks #warrior #hero #saint #nola
✨LET’S CREATE A WORLD WITHOUT ALS✨This horrible disease has affected my family deeply as we lost my dear mother-in-law just last September. Please consider coming in for these current specials to help raise awareness for ALS. $5 from each of these treatments will be donated to the ALS Foundation. 
And, if you’re a Cornhole master, come down to the Clayton Club Saloon on Saturday, May 19th. Proceeds will be donated to the ALS Association and Lou Ferrari Foundation. #alsawareness #als #alssucks #fuckals #findacure #beatals #alsassociation #louferrarifoundation #instadaily #instagood #instabeauty #follow #sanfrancisco #bayarea #concord #clayton #walnutcreek #eastbay
✨LET’S CREATE A WORLD WITHOUT ALS✨This horrible disease has affected my family deeply as we lost my dear mother-in-law just last September. Please consider coming in for these current specials to help raise awareness for ALS. $5 from each of these treatments will be donated to the ALS Foundation. And, if you’re a Cornhole master, come down to the Clayton Club Saloon on Saturday, May 19th. Proceeds will be donated to the ALS Association and Lou Ferrari Foundation. #alsawareness  #als  #alssucks  #fuckals  #findacure  #beatals  #alsassociation  #louferrarifoundation  #instadaily  #instagood  #instabeauty  #follow  #sanfrancisco  #bayarea  #concord  #clayton  #walnutcreek  #eastbay 
Being a part of #TeamChallengeALS has been such an unbelievable experience. I’ve been able to spread awareness of the disease, share some incredible patient stories, honor my grandmother’s memory, and most importantly, raise over $8,000!! 🙌🏼 Thank you to everyone that donated, went to an event, and cheered me on along the way ❤️ My campaign is still open until #MarathonMonday so check out the link in my bio to support an amazing cause! -
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#BostonMarathon #BostonMarathon2018 #RunBoston #ThisIsBoston #MarathonTraining #ALSAwareness #ALSsucks #fuckals #BostonBound #TogetherForward
Being a part of #TeamChallengeALS  has been such an unbelievable experience. I’ve been able to spread awareness of the disease, share some incredible patient stories, honor my grandmother’s memory, and most importantly, raise over $8,000!! 🙌🏼 Thank you to everyone that donated, went to an event, and cheered me on along the way ❤️ My campaign is still open until #MarathonMonday  so check out the link in my bio to support an amazing cause! - - - #BostonMarathon  #BostonMarathon2018  #RunBoston  #ThisIsBoston  #MarathonTraining  #ALSAwareness  #ALSsucks  #fuckals  #BostonBound  #TogetherForward 
I've been at my parent's house for the past week, and will be staying through next week. My mom was diagnosed with ALS 2 months ago and my dad has severe COPD, made worse by a nicked diaphragm during heart surgery. It's so so hard seeing my mom and dad go through this. I am so grateful for my #poncefamily5 💖 @e_a_ponce is such an amazing dad and husband. He takes over where I let go. He is my rock. And, my 3 awesome children @ninja_penguin16 @mattman18000 @crypticpotato work as a team in these rough patches of life. My heart is blessed, even under such scary circumstances! #family #blessings #alssucks #als #copd #myparentsaremyworld
I've been at my parent's house for the past week, and will be staying through next week. My mom was diagnosed with ALS 2 months ago and my dad has severe COPD, made worse by a nicked diaphragm during heart surgery. It's so so hard seeing my mom and dad go through this. I am so grateful for my #poncefamily5  💖 @e_a_ponce is such an amazing dad and husband. He takes over where I let go. He is my rock. And, my 3 awesome children @ninja_penguin16 @mattman18000 @crypticpotato work as a team in these rough patches of life. My heart is blessed, even under such scary circumstances! #family  #blessings  #alssucks  #als  #copd  #myparentsaremyworld 
Happy heavenly birthday to the best Godmother I could have wished for.  Thank you Aunt Laura for always encouraging me, pushing me, & supporting me.  You were one of the strongest & most badass people I’ve ever had the pleasure to know & more importantly been able to call family.  I will be forever grateful for all you taught me & your constant kind & encouraging words of support always.  We miss you & love you lots. #ALSsucks
Happy heavenly birthday to the best Godmother I could have wished for. Thank you Aunt Laura for always encouraging me, pushing me, & supporting me. You were one of the strongest & most badass people I’ve ever had the pleasure to know & more importantly been able to call family. I will be forever grateful for all you taught me & your constant kind & encouraging words of support always. We miss you & love you lots. #ALSsucks 
The time we always knew would come but never wanted to come is now near. 💔 #als #alssucks #alsawareness
This is a little article that appeared in the Davis Clipper today. It’s a great story about @row4als. A digital copy will appear on their website in a few days at: http://davisclipper.com. Thank you Louise Shaw @lrsccp and @davisclippernews for sharing our story!
#row4als #twac2018 #taliskerwhiskyatlanticchallenge #3000miles #worldstoughestrow #alsa #alsassociation #alscrowd #crowdcare #alssucks #spindrift_rowing #spindriftrowing