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New @cosmiclotus.co #endometriosis Blog post up now on the website! The subject I chose this time is “Where the U.S. Health Care System & Providers Fail Women Living with Endo - A Personal Journey”. Link in bio!
New @cosmiclotus.co #endometriosis  Blog post up now on the website! The subject I chose this time is “Where the U.S. Health Care System & Providers Fail Women Living with Endo - A Personal Journey”. Link in bio!
New #endometriosis Blog post up now on the website! The subject I chose this time is “Where the U.S. Health Care System & Providers Fail Women Living with Endo - A Personal Journey”. Link in bio!
New #endometriosis  Blog post up now on the website! The subject I chose this time is “Where the U.S. Health Care System & Providers Fail Women Living with Endo - A Personal Journey”. Link in bio!
Jenni @rheum.chronicles shared with us a Guest Blog on how she dealt with #Spondyloarthritis symptoms and difficulties coming from this condition while doing work placements for #physiotherapy course. Great read with useful tips! You can find it in our Guest Blog section on ASone: 
http://asone.nass.co.uk/work-placement-spondyloarthritis/

#ankylosingspondylitis #axialspondyloarthritis  #invisibleillness #chronicillness #chronicpain #backpain #autoinflammatory #autoimmune #rheumatoidarthritis #inflammatoryarthritis #arthritis #activism #volunteer #fundraising #socialgood #nonprofit #dosomething #charity #instagood #studentlife #worklife #workplacement
Jenni @rheum.chronicles shared with us a Guest Blog on how she dealt with #Spondyloarthritis  symptoms and difficulties coming from this condition while doing work placements for #physiotherapy  course. Great read with useful tips! You can find it in our Guest Blog section on ASone: http://asone.nass.co.uk/work-placement-spondyloarthritis/ #ankylosingspondylitis  #axialspondyloarthritis   #invisibleillness  #chronicillness  #chronicpain  #backpain  #autoinflammatory  #autoimmune  #rheumatoidarthritis  #inflammatoryarthritis  #arthritis  #activism  #volunteer  #fundraising  #socialgood  #nonprofit  #dosomething  #charity  #instagood  #studentlife  #worklife  #workplacement 
Life with #chronicillness #chronicillnesslife. Doctors be like “you’re in #pain every day, everywhere, all over your body? Let’s wait for the #bloodwork and go from there....”
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And I’m over here like #dying #actualdeath while we wait for results that will definitely be normal because they always are.... #spoonieproblems #invisibleillness #rarebutreal #millionsmissing #makeitvisible ——
#chronicillnesswarrior #chronicallyill #spoonielife #spoonie #fibromyalgia #myalgicencephalomyelitis #mecfs #chronicfatiguesyndrome #chronicpain #chronicfatigue #irritablebowelsyndrome #ibs #mentalhealth #cfs #depression #anxiousaf #anxiety #anxious #depressed
Life with #chronicillness  #chronicillnesslife . Doctors be like “you’re in #pain  every day, everywhere, all over your body? Let’s wait for the #bloodwork  and go from there....” —— And I’m over here like #dying  #actualdeath  while we wait for results that will definitely be normal because they always are.... #spoonieproblems  #invisibleillness  #rarebutreal  #millionsmissing  #makeitvisible  —— #chronicillnesswarrior  #chronicallyill  #spoonielife  #spoonie  #fibromyalgia  #myalgicencephalomyelitis  #mecfs  #chronicfatiguesyndrome  #chronicpain  #chronicfatigue  #irritablebowelsyndrome  #ibs  #mentalhealth  #cfs  #depression  #anxiousaf  #anxiety  #anxious  #depressed 
Off to have a barium swallow x-ray.
Sounds like fun 😱.
Especially as you have to drink a milky drink.
Which isn’t so fun when you are lactose intolerant . . .
And you have quite bad period pain and just want to stay at home on the sofa and watch a movie and catch up on the talks in the migraine world summit.
But in the spirit of gratitude, at least it isn’t raining and the hospital is a local one so I don’t have to travel too far.
Hope you have a low pain day.
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#fibromyalgia #pots #eds #ehlersdanlossyndrome #migraine #headache #mcas #mcad #spoonie #chronicillness #health #bariumswallow #xray #invisibleillness
Off to have a barium swallow x-ray. Sounds like fun 😱. Especially as you have to drink a milky drink. Which isn’t so fun when you are lactose intolerant . . . And you have quite bad period pain and just want to stay at home on the sofa and watch a movie and catch up on the talks in the migraine world summit. But in the spirit of gratitude, at least it isn’t raining and the hospital is a local one so I don’t have to travel too far. Hope you have a low pain day. . #fibromyalgia  #pots  #eds  #ehlersdanlossyndrome  #migraine  #headache  #mcas  #mcad  #spoonie  #chronicillness  #health  #bariumswallow  #xray  #invisibleillness 
Опять утро, опять новый день!
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А у меня к сожалению нового ничего, также болею😷, также с высокой температурой🌡️
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#anxiety #mentalhealthday #mentalgains #healthymind #healthandwellness #mindfullness #mind #bipolar #mentalhealthawarness #livingfree #healthylife #overthinking #mentalhealthrecovery #prilaga #control #wellness #depression #invisibleillness #mindset #mentalhealthsupport #mentalwellness #mentalstrength #help #recovery #stress #health #mentalhealth #bewell #mentalhealthwarrior #mentalhealthmatters
Опять утро, опять новый день! . А у меня к сожалению нового ничего, также болею😷, также с высокой температурой🌡️ . . . #anxiety  #mentalhealthday  #mentalgains  #healthymind  #healthandwellness  #mindfullness  #mind  #bipolar  #mentalhealthawarness  #livingfree  #healthylife  #overthinking  #mentalhealthrecovery  #prilaga  #control  #wellness  #depression  #invisibleillness  #mindset  #mentalhealthsupport  #mentalwellness  #mentalstrength  #help  #recovery  #stress  #health  #mentalhealth  #bewell  #mentalhealthwarrior  #mentalhealthmatters 
Super excited to graduate from Vitae Mosaic - Naturopathic Functional Medicine practitioner training!!!! This system of taking a case, Functional testing and writing up a care plan and individualised prescription is unbelievable and means no stone will be left unturned when it comes to my clients health!! #vitaemosaic #functionalmedicine #integrativenaturopath #newcastlenaturopath #testdontguess #personalisedhealthcare #foodfirst #smallchanges #bigresults #chronicdisease #invisibleillness #healthcoach
Super excited to graduate from Vitae Mosaic - Naturopathic Functional Medicine practitioner training!!!! This system of taking a case, Functional testing and writing up a care plan and individualised prescription is unbelievable and means no stone will be left unturned when it comes to my clients health!! #vitaemosaic  #functionalmedicine  #integrativenaturopath  #newcastlenaturopath  #testdontguess  #personalisedhealthcare  #foodfirst  #smallchanges  #bigresults  #chronicdisease  #invisibleillness  #healthcoach 
Thank you for such inspiring words this morning @deepakchopra - I couldn’t agree with you more.
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Comment below if you agree or disagree with this statement.
Thank you for such inspiring words this morning @deepakchopra - I couldn’t agree with you more. . . . . . . . . Comment below if you agree or disagree with this statement.
I can think of no better way to shake of a stressful day then to play with my watercolors! The start of my Schminke Horadam Aquarell mixing chart, 125th anniversary limited edition set. Yup, life is good! Tomorrow is a new day.  #watercolor #Schmincke #125thanniversary #limitesedition #horadamaquarell #colormixing #fluidmovementart #artisart #artfreesyoursoul #invisibleillness #CVID #Lupus #destress #autoimmunedisease #disabilitycantstopme #spoonieforlife #livingonespoonatatime #heartbrainsoulforart #arttherapy #sooneobesingleyay #exhusbandstress #exhusbandssuck
I can think of no better way to shake of a stressful day then to play with my watercolors! The start of my Schminke Horadam Aquarell mixing chart, 125th anniversary limited edition set. Yup, life is good! Tomorrow is a new day. #watercolor  #Schmincke  #125thanniversary  #limitesedition  #horadamaquarell  #colormixing  #fluidmovementart  #artisart  #artfreesyoursoul  #invisibleillness  #CVID  #Lupus  #destress  #autoimmunedisease  #disabilitycantstopme  #spoonieforlife  #livingonespoonatatime  #heartbrainsoulforart  #arttherapy  #sooneobesingleyay  #exhusbandstress  #exhusbandssuck 
Celebratory lunch with mum today after finding a dress for my friend's weddings in about 1/2 hour and especially excited to be well enough to actually go buy a dress. Bodes well for being well enough to go to said weddings 🎉😄 Wearing another Laura @lauratheleopard dress today which I absolutely love, might be my favourite so far. Spoonie fashion tip no.154: Lipstick and sunglasses are the best for faking looking put together. #syw18 #shoplauraswardrobe #spooniefashion #disabledandcute #bodypositivity #fashun #iwearwhatiwant #florals #retro #vintage #sunglasses #fakeittillyoumakeit #spoonie #spoonielife #chronicillness #chronicpain #invisibleillness #makeitvisible #butyoudontlooksick #crps #dystonia #fibromyalgia #chronicmigraines #hyperacusis #tmj #ibs #chronictendonopathy #chronicallyfabulous #chronicallyawesome #chronicbadass
Celebratory lunch with mum today after finding a dress for my friend's weddings in about 1/2 hour and especially excited to be well enough to actually go buy a dress. Bodes well for being well enough to go to said weddings 🎉😄 Wearing another Laura @lauratheleopard dress today which I absolutely love, might be my favourite so far. Spoonie fashion tip no.154: Lipstick and sunglasses are the best for faking looking put together. #syw18  #shoplauraswardrobe  #spooniefashion  #disabledandcute  #bodypositivity  #fashun  #iwearwhatiwant  #florals  #retro  #vintage  #sunglasses  #fakeittillyoumakeit  #spoonie  #spoonielife  #chronicillness  #chronicpain  #invisibleillness  #makeitvisible  #butyoudontlooksick  #crps  #dystonia  #fibromyalgia  #chronicmigraines  #hyperacusis  #tmj  #ibs  #chronictendonopathy  #chronicallyfabulous  #chronicallyawesome  #chronicbadass 
do trees know when the tree next to them starts losing its leaves?

#thoughtoftheday 🤔😆 #littlemoments #littlethings #whataworld 🙏
Let's talk about momments like this. When you take the #time to get outside. An you realize it's the small things that matter. You get one life. You may never know what kind of transformation you are making in someone else's life. 
#gainingweightiscool
#health #chronicillness 
#transformationTuesday #transformation  #progress  #recovery  #muscle #legionofboom #fitspo #motivation #noExcuses #neversettle #nevergiveup #bodybuilding  #gastroparesis #eds #lupus #autoimmune #fitness #fit  #fitfam #strongnotskinny #iam1stphorm  #invisibleillness  #back  #osteoporosis #fatigue #pots
Let's talk about momments like this. When you take the #time  to get outside. An you realize it's the small things that matter. You get one life. You may never know what kind of transformation you are making in someone else's life. #gainingweightiscool  #health  #chronicillness  #transformationTuesday  #transformation  #progress  #recovery  #muscle  #legionofboom  #fitspo  #motivation  #noExcuses  #neversettle  #nevergiveup  #bodybuilding  #gastroparesis  #eds  #lupus  #autoimmune  #fitness  #fit  #fitfam  #strongnotskinny  #iam1stphorm  #invisibleillness  #back  #osteoporosis  #fatigue  #pots 
The long walk home is an initiative created by @just_1_woman, the #just1womanfoundation for greater awareness and support for #invisibleillness #mentalhealth and #suicideprevention ! Watch this space or the foundation HQ for further details about the launch and our steps.
Zzz 😴 good night loves 😍

#servicedogintraining #servicedog #sdit #bipolardisorder #mentalillness #invisibleillness #roughcollie #roughcolliepuppy #collie #anxiety #migraine #psychiatricservicedog 
Check out our awesome Pawtners! 
@servicedogkendyl 
@snicky_snack 
@thebrindlepups
CW: discussion of mental health ••• These photos were taken months apart, and Gnar had never done this to me before, but Bane used to do this all the time. Small moments like this remind me that he'll always be with me. My life has changed so much in just a few short months. I lost my lifeline, battled through some of the most intense suicidal thoughts I'd experienced in a long time, was diagnosed with a new terrifying condition, gained a new furry partner and friends, and moved across the country as a last ditch effort to save myself. Some nights are worse than others, and sometimes im not confident that I can survive. But even on nights like tonight, when my body is failing, my brain is convincing me of so many awful things, and I am terrified of what's to come, I know it's worth it. I'm snuggled up with Gnar, I have some pretty damn wonderful friends and partners, and all the incredible memories Bane gave me. I'm scared of a future without Bane, and the reality of having a progressive and fatal illness, but I'm trying to keep going, and that's all that matters right now. Remember that what I share online is not the full story. I hide alot of my struggles and symptoms from people around me because it is scary. I'm just trying to make it, and that's okay. We do not owe an explanation for everything and it's okay to not be okay ❤️take care of yourself and remember that what others think about you does not define you. Be safe, and take it one moment at a time. You can do this. •••
Check out @cypressavenueworks for awesome paracord and sensory friendly gear!
15% off: CAWFRIENDSANDFAMILY
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#medicalalertservicedog #servicedog #spoonie #chronicillness #ptsdservicedog #servicedog #servicedogintraining #spoonie #ptsd #invisibleillness #chronicillness #tasktrained #ptsd #ehlersdanlossyndrome #multiplesystematrophy #posturalorthostatictachycardiasyndrome #pots #EDS #pnes #mcad #psoriaticarthropathy #multiplesystematrophy #autismservicedog #neurodivergent #mobilityservicedog #chewyinfluencer #Banetheservicedane #servicelegendgnar #cypressavenueworks #cawambassadors #cawsensoryfriendlyteam
CW: discussion of mental health ••• These photos were taken months apart, and Gnar had never done this to me before, but Bane used to do this all the time. Small moments like this remind me that he'll always be with me. My life has changed so much in just a few short months. I lost my lifeline, battled through some of the most intense suicidal thoughts I'd experienced in a long time, was diagnosed with a new terrifying condition, gained a new furry partner and friends, and moved across the country as a last ditch effort to save myself. Some nights are worse than others, and sometimes im not confident that I can survive. But even on nights like tonight, when my body is failing, my brain is convincing me of so many awful things, and I am terrified of what's to come, I know it's worth it. I'm snuggled up with Gnar, I have some pretty damn wonderful friends and partners, and all the incredible memories Bane gave me. I'm scared of a future without Bane, and the reality of having a progressive and fatal illness, but I'm trying to keep going, and that's all that matters right now. Remember that what I share online is not the full story. I hide alot of my struggles and symptoms from people around me because it is scary. I'm just trying to make it, and that's okay. We do not owe an explanation for everything and it's okay to not be okay ❤️take care of yourself and remember that what others think about you does not define you. Be safe, and take it one moment at a time. You can do this. ••• Check out @cypressavenueworks for awesome paracord and sensory friendly gear! 15% off: CAWFRIENDSANDFAMILY ••• #medicalalertservicedog  #servicedog  #spoonie  #chronicillness  #ptsdservicedog  #servicedog  #servicedogintraining  #spoonie  #ptsd  #invisibleillness  #chronicillness  #tasktrained  #ptsd  #ehlersdanlossyndrome  #multiplesystematrophy  #posturalorthostatictachycardiasyndrome  #pots  #EDS  #pnes  #mcad  #psoriaticarthropathy  #multiplesystematrophy  #autismservicedog  #neurodivergent  #mobilityservicedog  #chewyinfluencer  #Banetheservicedane  #servicelegendgnar  #cypressavenueworks  #cawambassadors  #cawsensoryfriendlyteam 
Methotrexate (MTX) is an accepted first-line drug for patients diagnosed with RA. Oral MTX was what my rheumatologist started me on after my diagnosis. However, researchers are now asking if this well-known and affordable drug is being used to its full potential. https://rheumatoidarthritis.net/?p=18632
2H4s4NQ
#repost #chronicillness #pain #disease #invisibleillness #prevention #wellness #health #medicine #research #ladygaga #rheumatoidarthritis #fatigue #struggle #arthritis #healthcare #highereducation #consulting
Methotrexate (MTX) is an accepted first-line drug for patients diagnosed with RA. Oral MTX was what my rheumatologist started me on after my diagnosis. However, researchers are now asking if this well-known and affordable drug is being used to its full potential. https://rheumatoidarthritis.net/?p=18632 2H4s4NQ #repost  #chronicillness  #pain  #disease  #invisibleillness  #prevention  #wellness  #health  #medicine  #research  #ladygaga  #rheumatoidarthritis  #fatigue  #struggle  #arthritis  #healthcare  #highereducation  #consulting 
Things I am happy about & grateful for upon waking up this morning:
💚 A TN Facebook group reached out to me after seeing my feature on @themightysite & wanted to share me on their page
💛The minute I get up, I'm going to be covered in happy little cats, the same as every morning, who are dying to play & have cuddles with me.. & mainly want their breakfast!
💙 I get to see my work friends (even if I can't be bothered with work today!) in about an hour & a half, as I've had four days off
💜 I'm going to give my nan a ring  this morning to see if she's free this afternoon, so we can pay my grandparents a visit
❤ Today is the day I really start focusing on losing weight - I have a GP appointment at the end of the week & I'm going to eat as good as I possibly can from today onwards..
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What are you grateful for & happy about today? 😊💕
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#tn #strong #thepaincorner #lifestyleblogger #chronicpain #quoteoftheday #motivation #blogger #endometriosis #positivequotes #happy #trigeminalneuralgia #pain #lifestyle #chronicillness #invisibleillness #chronicfatigue #quoteoftheday #qotd #mentalhealth #letstalk #fibromyalgia #endo #disability #goodvibesonly #pink #gratitude
Things I am happy about & grateful for upon waking up this morning: 💚 A TN Facebook group reached out to me after seeing my feature on @themightysite & wanted to share me on their page 💛The minute I get up, I'm going to be covered in happy little cats, the same as every morning, who are dying to play & have cuddles with me.. & mainly want their breakfast! 💙 I get to see my work friends (even if I can't be bothered with work today!) in about an hour & a half, as I've had four days off 💜 I'm going to give my nan a ring this morning to see if she's free this afternoon, so we can pay my grandparents a visit ❤ Today is the day I really start focusing on losing weight - I have a GP appointment at the end of the week & I'm going to eat as good as I possibly can from today onwards.. . . What are you grateful for & happy about today? 😊💕 . . . #tn  #strong  #thepaincorner  #lifestyleblogger  #chronicpain  #quoteoftheday  #motivation  #blogger  #endometriosis  #positivequotes  #happy  #trigeminalneuralgia  #pain  #lifestyle  #chronicillness  #invisibleillness  #chronicfatigue  #quoteoftheday  #qotd  #mentalhealth  #letstalk  #fibromyalgia  #endo  #disability  #goodvibesonly  #pink  #gratitude 
Did you answer correctly yesterday? Check out our stories in AUB if you haven’t already!

#Repost @theinsideoutchallenge with @get_repost
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Not all disabilities and illnesses are visible. Mental health is unfortunately still not regarded with the same importance as physical health, and a part of this is because there is not always a visible indication. Take the #insideoutchallenge and show the world what mental illness feels like to you! 
_________________________________________________ #mentalhealth #mentalhealthawareness #mentalillness #mentalhealthmatters #mentalhealthadvocate #mentalhealthwarrior #hiddenillness #invisibleillness #breakthestigma #endthestigma
Did you answer correctly yesterday? Check out our stories in AUB if you haven’t already! #Repost  @theinsideoutchallenge with @get_repost ・・・ Not all disabilities and illnesses are visible. Mental health is unfortunately still not regarded with the same importance as physical health, and a part of this is because there is not always a visible indication. Take the #insideoutchallenge  and show the world what mental illness feels like to you! _________________________________________________ #mentalhealth  #mentalhealthawareness  #mentalillness  #mentalhealthmatters  #mentalhealthadvocate  #mentalhealthwarrior  #hiddenillness  #invisibleillness  #breakthestigma  #endthestigma 
Happy birthday to my rock n roll hubby whose hair is getting more beautiful and hard to tame every day. I'm proud of you for oh so many reasons and will be forever envious of your locks. 💛
#birthdaylove #mybetterhalf #rocknrollhusband #adventurecouple #partnerincrime #hairenvy #myfaceistheresomewhere
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#outdoorcouple #coupleswhotravel #coupleswhoexplore #couplesthattravel #earthcouples #adventuretogether #greatoutdoors #gosomewhere #outdoorlife #hikingandhappiness #freshairandfreedom #neverstopexploring #wanderers #getoutstayout #welivetoexplore #fuckyoucfs #chronicfatigue #invisibleillness #chronicfatiguesyndrome #meawareness #cfsme #cfsawareness #cfsrecovery
Happy birthday to my rock n roll hubby whose hair is getting more beautiful and hard to tame every day. I'm proud of you for oh so many reasons and will be forever envious of your locks. 💛 #birthdaylove  #mybetterhalf  #rocknrollhusband  #adventurecouple  #partnerincrime  #hairenvy  #myfaceistheresomewhere  . . . . . . . . . . #outdoorcouple  #coupleswhotravel  #coupleswhoexplore  #couplesthattravel  #earthcouples  #adventuretogether  #greatoutdoors  #gosomewhere  #outdoorlife  #hikingandhappiness  #freshairandfreedom  #neverstopexploring  #wanderers  #getoutstayout  #welivetoexplore  #fuckyoucfs  #chronicfatigue  #invisibleillness  #chronicfatiguesyndrome  #meawareness  #cfsme  #cfsawareness  #cfsrecovery 
It's Macromirrorjuana Monday again boys and girls 📸🌱📸 All hail the space llama 👽 Stay lit fam 🤙

Marfan fact: Marfan Syndrome is caused by a defect or mutation in the gene that determines the structure of fibrillin-1, a protein that is an important part of connective tissue. Marfan syndrome affects the skeleton, eyes, heart, blood vessels, nervous system, skin, and respiratory system. Unfortunately, there is no cure but constant monitoring and regular check ups are important in assuring a decent quality of life.

#cannabis #marijuana #weed #ganja #mmj #maryjane #cannabiscommunity #420 #420photography #710 #710society #topshelf #loudunderlenses #successfulstoner #playingwithfire #elevated365 #staylifted #outofthisworld #macromob #macromirrorjuana #strictlyloud #legalize #heady #psychedelic #smokeweedeveryday #weshouldsmoke #marfansyndrome #invisibleillness  #creaturesofcannabis #orionsbeltphoto
It's Macromirrorjuana Monday again boys and girls 📸🌱📸 All hail the space llama 👽 Stay lit fam 🤙 Marfan fact: Marfan Syndrome is caused by a defect or mutation in the gene that determines the structure of fibrillin-1, a protein that is an important part of connective tissue. Marfan syndrome affects the skeleton, eyes, heart, blood vessels, nervous system, skin, and respiratory system. Unfortunately, there is no cure but constant monitoring and regular check ups are important in assuring a decent quality of life. #cannabis  #marijuana  #weed  #ganja  #mmj  #maryjane  #cannabiscommunity  #420  #420photography  #710  #710society  #topshelf  #loudunderlenses  #successfulstoner  #playingwithfire  #elevated365  #staylifted  #outofthisworld  #macromob  #macromirrorjuana  #strictlyloud  #legalize  #heady  #psychedelic  #smokeweedeveryday  #weshouldsmoke  #marfansyndrome  #invisibleillness   #creaturesofcannabis  #orionsbeltphoto 
Even as spring cracks around the edges, things have seemed pretty dark even by daylight lately. I'm debating another social media hiatus, but I don't know that my February one helped much anyway.

For now, my crab apple tree. Shot with my Diana F+ on Kodak T-Max 400. ..
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#analog #analogphotography #analoglife #invisibleillness #depression #ocd #invisible #spring #dark #lomo #lomography #kodak #kodakfilm #tmax
Do you ever go to bed after a bad day and pray that tomorrow will be a better?
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If you think and do the same things every day, every difficult situation, every time you are confronted by something you fear, then you will always feel the same way. It's almost guaranteed. 
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If you are able to learn ways to change the way you think, therefore allowing you to change the way you behave, you increase the possibility of a better feeling, more positive emotions, and improved wellbeing.
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The difficulty is often knowing how to make the change. Talk to friends, a therapist, read self help books, sign up to doing something different. Whatever you do, it's time to take a different approach. 
To find out more, or get some guidance on how to start making those positive changes follow me, share with friends, or get in contact. 
www.yourtimetalkingtherapy.co.uk
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#mondaymotivation #help #healthymind #overthinking #healthylife #invisibleillness #wellness #healthandwellness #anxiety #stress #mentalhealthmatters #mindset #insanity #mentalhealthsupport #depression #recovery #mentalhealthawareness #mind #mentalhealth #health #mentalwellness #mentalhealthrecovery #motivationalquote #quotes #quoteoftheday #quote #changeyourmindsetchangeyourlife #change #changeisgood #changeyourlife
Do you ever go to bed after a bad day and pray that tomorrow will be a better? _________________________________ If you think and do the same things every day, every difficult situation, every time you are confronted by something you fear, then you will always feel the same way. It's almost guaranteed. _________________________________ If you are able to learn ways to change the way you think, therefore allowing you to change the way you behave, you increase the possibility of a better feeling, more positive emotions, and improved wellbeing. _________________________________ The difficulty is often knowing how to make the change. Talk to friends, a therapist, read self help books, sign up to doing something different. Whatever you do, it's time to take a different approach. To find out more, or get some guidance on how to start making those positive changes follow me, share with friends, or get in contact. www.yourtimetalkingtherapy.co.uk . . #mondaymotivation  #help  #healthymind  #overthinking  #healthylife  #invisibleillness  #wellness  #healthandwellness  #anxiety  #stress  #mentalhealthmatters  #mindset  #insanity  #mentalhealthsupport  #depression  #recovery  #mentalhealthawareness  #mind  #mentalhealth  #health  #mentalwellness  #mentalhealthrecovery  #motivationalquote  #quotes  #quoteoftheday  #quote  #changeyourmindsetchangeyourlife  #change  #changeisgood  #changeyourlife 
CHECKING IN! -> It has been a busy, productive day and I haven't had time to get on here. 
Fruit & Veggie Fast ended today! 
Started off the day with a fresh juice and then had some amazing, AMAZING tortillas for lunch & Dinner!
I AM SO STOKED ON THIS CASSAVA FLOUR!!! The tortillas don't look very pretty, but BOY did they taste GOOD!!! 4 ingredients and grain and gluten free. Why have I never heard about this before?!?
NSV's - Energetic momma, handled basketball practice by myself, no anxiety, no fatigue and STILL going through my body's current version of pms. 🙌 Plus, I can see a ton of weightloss in my face. It's probably just water retention gone way down from clean eating - but, EITHER WAY, it feels great! 💪
My house, in general, is a mess, but, I conquered a HUGE project today (the garage) so I am celebrating THAT. And will conquer the rest tomorrow (like the endless laundry and the backed up kitchen sink from the garbage disposal I plugged AGAIN -> that left the countertops full of dirty dishes🙈).
YOU GUYS! I feel like a better mom! There is no price tag for that. 
Hope you all had a gorgeous and happy Monday. Keep loving yourselves healthy! Every step counts and you are worth it!
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#nsv #happymomma #healthwins #monday #cassavaflour #grainfree #glutenfree #foodchoices #lunch #dinner #feelingbetter #healthjourney #selflovejourney #weightlossjourney #invisibleillness #pcos #pmdd #liverdisease #nutrition #detox #healthbattle #winning #onestepatatime
CHECKING IN! -> It has been a busy, productive day and I haven't had time to get on here. Fruit & Veggie Fast ended today! Started off the day with a fresh juice and then had some amazing, AMAZING tortillas for lunch & Dinner! I AM SO STOKED ON THIS CASSAVA FLOUR!!! The tortillas don't look very pretty, but BOY did they taste GOOD!!! 4 ingredients and grain and gluten free. Why have I never heard about this before?!? NSV's - Energetic momma, handled basketball practice by myself, no anxiety, no fatigue and STILL going through my body's current version of pms. 🙌 Plus, I can see a ton of weightloss in my face. It's probably just water retention gone way down from clean eating - but, EITHER WAY, it feels great! 💪 My house, in general, is a mess, but, I conquered a HUGE project today (the garage) so I am celebrating THAT. And will conquer the rest tomorrow (like the endless laundry and the backed up kitchen sink from the garbage disposal I plugged AGAIN -> that left the countertops full of dirty dishes🙈). YOU GUYS! I feel like a better mom! There is no price tag for that. Hope you all had a gorgeous and happy Monday. Keep loving yourselves healthy! Every step counts and you are worth it! ° ° #nsv  #happymomma  #healthwins  #monday  #cassavaflour  #grainfree  #glutenfree  #foodchoices  #lunch  #dinner  #feelingbetter  #healthjourney  #selflovejourney  #weightlossjourney  #invisibleillness  #pcos  #pmdd  #liverdisease  #nutrition  #detox  #healthbattle  #winning  #onestepatatime 
Word to @aeroflot special assistance staff, my legs greatly appreciate you. 💎 #BrittBackpacksWorld: I take breaks when I walk because I have #ataxia, sometimes the tremors are frequent and mad noticeable. Other times my legs seem completely normal. That's #invisibleillness for you though. Do me a favor & keep that in mind next time you see someone your perception doesn't believe is in need of special assistance.
Word to @aeroflot special assistance staff, my legs greatly appreciate you. 💎 #BrittBackpacksWorld : I take breaks when I walk because I have #ataxia , sometimes the tremors are frequent and mad noticeable. Other times my legs seem completely normal. That's #invisibleillness  for you though. Do me a favor & keep that in mind next time you see someone your perception doesn't believe is in need of special assistance.
REAL STORY SERIES 📝🎗💛
Christie | 26 | Auckland, NZ 🇺🇸
@christie_lundy
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Hi Endo gals! I’d love to tell my story about Endo which is surprisingly positive... my mum had endo and had multiple miscarriages which meant she recognised it in me when I was 12. By the time I was 20 I had already had 3 laps, and I had another one for appendicitis which was actually caused by a really huge ovarian cyst. BUT my story is strangely positive because the depo injection works well for me for symptom management and I have know for 14 years (I’m 26) that I might not be able to have kids so no matter how much I’d like them, I’ve always thought realistically that my life should still be amazing if I can’t have them. So, a bit different to normal stories... but even if you’re like me and your endo has a naughty tendency to head up to your bowels and bladder etc. it’s not all doom and gloom - you can be lucky sometimes! 💕💕💕
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#endometriosis #theendoproject #endostory #myendostory #endometriosisawareness #adenomyosis #pelvicpain #chronicillness #invisibleillness #womenshealth #endosisters #endostrong #endocommunity #endowarrior
REAL STORY SERIES 📝🎗💛 Christie | 26 | Auckland, NZ 🇺🇸 @christie_lundy — Hi Endo gals! I’d love to tell my story about Endo which is surprisingly positive... my mum had endo and had multiple miscarriages which meant she recognised it in me when I was 12. By the time I was 20 I had already had 3 laps, and I had another one for appendicitis which was actually caused by a really huge ovarian cyst. BUT my story is strangely positive because the depo injection works well for me for symptom management and I have know for 14 years (I’m 26) that I might not be able to have kids so no matter how much I’d like them, I’ve always thought realistically that my life should still be amazing if I can’t have them. So, a bit different to normal stories... but even if you’re like me and your endo has a naughty tendency to head up to your bowels and bladder etc. it’s not all doom and gloom - you can be lucky sometimes! 💕💕💕 . . #endometriosis  #theendoproject  #endostory  #myendostory  #endometriosisawareness  #adenomyosis  #pelvicpain  #chronicillness  #invisibleillness  #womenshealth  #endosisters  #endostrong  #endocommunity  #endowarrior 
It is always an exciting day when new #pumppeelz arrive!
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Bug has a new pump, new meter, and new (in-warranty replacement) Dexcom receiver to decorate tomorrow!
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We love @pumppeelz
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They are great quality, don't leave any sticky residue behind, are easy to apply, and literally last forever on your devices!
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#decoratingdiabetes #dexcom #t1dfamily #type1family #kidswitht1d #kidswithdiabetes #t1d #type1diabetes #typeonediabetes #t1dkid #type1preschooler #t1dkids  #t1dtoddler #t1toddler #type1toddler #t1warrior #insulindependent #pumpinginsulin #type1diabeticlife #childrenwithdiabetes #bugandmrfox #autoimmunedisorder #invisibleillness #chronicillness #typeonekids #type1teenager #t1dteenager #patchpeelz #medtronic630g
It is always an exciting day when new #pumppeelz  arrive! . Bug has a new pump, new meter, and new (in-warranty replacement) Dexcom receiver to decorate tomorrow! . We love @pumppeelz . They are great quality, don't leave any sticky residue behind, are easy to apply, and literally last forever on your devices! . #decoratingdiabetes  #dexcom  #t1dfamily  #type1family  #kidswitht1d  #kidswithdiabetes  #t1d  #type1diabetes  #typeonediabetes  #t1dkid  #type1preschooler  #t1dkids  #t1dtoddler  #t1toddler  #type1toddler  #t1warrior  #insulindependent  #pumpinginsulin  #type1diabeticlife  #childrenwithdiabetes  #bugandmrfox  #autoimmunedisorder  #invisibleillness  #chronicillness  #typeonekids  #type1teenager  #t1dteenager  #patchpeelz  #medtronic630g 
Call for Entry: An invitation for chronic illness patients to share their voices. 
During a steep decline in my health in 2016, before I was diagnosed with Myasthenia Gravis, Sphincter of Oddi Dysfunction, possible parathyroid disease, neuropathy of unknown Etiology, primary immunodeficiency disease, CIRS, Lyme relapse, and the list goes on.... I struggled mightily with how to make sense of my health, my life, and my identity.  I started taking experimental self portraits and writing about my life as a patient on a journey of many unknowns, and my project www.unknownetiology.com was born. 
But it was never just about me and it was never about just my experiences.  It was about volunteering to be a voice for an experience I know so many chronically ill patients have.  Navigating healthcare can be arduous, complex, belittling, inhumane, overwhelming, abusive, soul crushing, dangerous, and at times it gets it right.  At times, it can save your life. 
Now I want to invite you to join me!
With your help, I hope to create a platform for the voices of those with chronic, invisible, rare, dismissed, misdiagnosed, and ignored diseases and experiences.  This is for all of us.  A place to share what we have seen, endured, learned, and triumphed over.  This is not only to honor our victories and shed light on our darkest days; this is, at its heart, the beginning of something bigger. 
The world needs our stories.  Medicine needs them.  We need them.  Change can only happen when we do, and that change starts with a small chorus of voices.  You and me.  Until we sing so loudly the whole world can hear us.  Are you with me?

I believe you and your story are important. We are all worthy of so much more from the medical community and the world around us.

Your voice gives me purpose and hope. 
Email: info@unknownetiology.com to request your interview link.  #chronicillness #invisibleillness #invisibledisability #raredisease #myastheniagravis #ms #lupus #autoimmunedisease #interview #honoryourgrief #lymedisease #sphincterofoddidysfunction #neuropathy #chronicpain #chronicfatigue #cfsme #millionsmissing #primaryimmunodeficiency #selfportrait #lymie
Call for Entry: An invitation for chronic illness patients to share their voices. During a steep decline in my health in 2016, before I was diagnosed with Myasthenia Gravis, Sphincter of Oddi Dysfunction, possible parathyroid disease, neuropathy of unknown Etiology, primary immunodeficiency disease, CIRS, Lyme relapse, and the list goes on.... I struggled mightily with how to make sense of my health, my life, and my identity. I started taking experimental self portraits and writing about my life as a patient on a journey of many unknowns, and my project www.unknownetiology.com was born. But it was never just about me and it was never about just my experiences. It was about volunteering to be a voice for an experience I know so many chronically ill patients have. Navigating healthcare can be arduous, complex, belittling, inhumane, overwhelming, abusive, soul crushing, dangerous, and at times it gets it right. At times, it can save your life. Now I want to invite you to join me! With your help, I hope to create a platform for the voices of those with chronic, invisible, rare, dismissed, misdiagnosed, and ignored diseases and experiences.  This is for all of us. A place to share what we have seen, endured, learned, and triumphed over. This is not only to honor our victories and shed light on our darkest days; this is, at its heart, the beginning of something bigger. The world needs our stories. Medicine needs them. We need them. Change can only happen when we do, and that change starts with a small chorus of voices. You and me. Until we sing so loudly the whole world can hear us. Are you with me? I believe you and your story are important. We are all worthy of so much more from the medical community and the world around us. Your voice gives me purpose and hope. Email: info@unknownetiology.com to request your interview link. #chronicillness  #invisibleillness  #invisibledisability  #raredisease  #myastheniagravis  #ms  #lupus  #autoimmunedisease  #interview  #honoryourgrief  #lymedisease  #sphincterofoddidysfunction  #neuropathy  #chronicpain  #chronicfatigue  #cfsme  #millionsmissing  #primaryimmunodeficiency  #selfportrait  #lymie 
Call for Entry: An invitation for chronic illness patients to share their voices. 
During a steep decline in my health in 2016, before I was diagnosed with Myasthenia Gravis, Sphincter of Oddi Dysfunction, possible parathyroid disease, neuropathy of unknown Etiology, primary immunodeficiency disease, CIRS, Lyme relapse, and the list goes on.... I struggled mightily with how to make sense of my health, my life, and my identity.  I started taking experimental self portraits and writing about my life as a patient on a journey of many unknowns, and my project www.unknownetiology.com was born. 
But it was never just about me and it was never about just my experiences.  It was about volunteering to be a voice for an experience I know so many chronically ill patients have.  Navigating healthcare can be arduous, complex, belittling, inhumane, overwhelming, abusive, soul crushing, dangerous, and at times it gets it right.  At times, it can save your life. 
Now I want to invite you to join me!
With your help, I hope to create a platform for the voices of those with chronic, invisible, rare, dismissed, misdiagnosed, and ignored diseases and experiences.  This is for all of us.  A place to share what we have seen, endured, learned, and triumphed over.  This is not only to honor our victories and shed light on our darkest days; this is, at its heart, the beginning of something bigger. 
The world needs our stories.  Medicine needs them.  We need them.  Change can only happen when we do, and that change starts with a small chorus of voices.  You and me.  Until we sing so loudly the whole world can hear us.  Are you with me?

I believe you and your story are important. We are all worthy of so much more from the medical community and the world around us.

Your voice gives me purpose and hope. 
Email: info@unknownetiology.com to request your interview link.  #chronicillness #invisibleillness #invisibledisability #raredisease #myastheniagravis #ms #lupus #autoimmunedisease #interview #honoryourgrief #lymedisease #sphincterofoddidysfunction #neuropathy #chronicpain #chronicfatigue #cfsme #millionsmissing #primaryimmunodeficiency #selfportrait #lymie
Call for Entry: An invitation for chronic illness patients to share their voices. During a steep decline in my health in 2016, before I was diagnosed with Myasthenia Gravis, Sphincter of Oddi Dysfunction, possible parathyroid disease, neuropathy of unknown Etiology, primary immunodeficiency disease, CIRS, Lyme relapse, and the list goes on.... I struggled mightily with how to make sense of my health, my life, and my identity. I started taking experimental self portraits and writing about my life as a patient on a journey of many unknowns, and my project www.unknownetiology.com was born. But it was never just about me and it was never about just my experiences. It was about volunteering to be a voice for an experience I know so many chronically ill patients have. Navigating healthcare can be arduous, complex, belittling, inhumane, overwhelming, abusive, soul crushing, dangerous, and at times it gets it right. At times, it can save your life. Now I want to invite you to join me! With your help, I hope to create a platform for the voices of those with chronic, invisible, rare, dismissed, misdiagnosed, and ignored diseases and experiences.  This is for all of us. A place to share what we have seen, endured, learned, and triumphed over. This is not only to honor our victories and shed light on our darkest days; this is, at its heart, the beginning of something bigger. The world needs our stories. Medicine needs them. We need them. Change can only happen when we do, and that change starts with a small chorus of voices. You and me. Until we sing so loudly the whole world can hear us. Are you with me? I believe you and your story are important. We are all worthy of so much more from the medical community and the world around us. Your voice gives me purpose and hope. Email: info@unknownetiology.com to request your interview link. #chronicillness  #invisibleillness  #invisibledisability  #raredisease  #myastheniagravis  #ms  #lupus  #autoimmunedisease  #interview  #honoryourgrief  #lymedisease  #sphincterofoddidysfunction  #neuropathy  #chronicpain  #chronicfatigue  #cfsme  #millionsmissing  #primaryimmunodeficiency  #selfportrait  #lymie 
Better late than never! I don’t talk about this too much outside of family and close friends, but I’m one of the few with an ultra rare disease known as Porphyria. There is no cure and treatment is hard to come by - sometimes impossible. This week is Porphyria Awareness Week and the American Porphyria Foundation is working hard to raise awareness, focus on research and education, and advocate on behalf of their members. I’m hoping to share bits of my story, some information, and make a contribution. #Porphyria #PorphyriaAwarenessWeek #SpreadtheWord #PAW2018 #raredisease #raiseawareness #spoonie #community #chronicillness #invisibleillness #heath #lifestyle #blogger #bloggerstyle #style #photo #travel #fitness #advocate #educate #motivation #happy #livelovelaugh #goodvibes
Better late than never! I don’t talk about this too much outside of family and close friends, but I’m one of the few with an ultra rare disease known as Porphyria. There is no cure and treatment is hard to come by - sometimes impossible. This week is Porphyria Awareness Week and the American Porphyria Foundation is working hard to raise awareness, focus on research and education, and advocate on behalf of their members. I’m hoping to share bits of my story, some information, and make a contribution. #Porphyria  #PorphyriaAwarenessWeek  #SpreadtheWord  #PAW2018  #raredisease  #raiseawareness  #spoonie  #community  #chronicillness  #invisibleillness  #heath  #lifestyle  #blogger  #bloggerstyle  #style  #photo  #travel  #fitness  #advocate  #educate  #motivation  #happy  #livelovelaugh  #goodvibes 
I used to love make up and then I started to make major choices to clean up my act when it came to what I used on my body, in my house, and in my life. At the time I didn’t find a ton of make up I loved so I experimented a lot less. In addition I felt so poorly from chronic health problems that putting make up on went on the back burner in life. I’m happy to say I’m slowly but surely improving how I feel and the safer beauty world has really stepped up its game! 
My whole face here is Beautycounter make up @beautycounter except my lip gloss which is lip whip by @karigranskin and one of the eye colors called celestial sphere eye soot I have is from @ritueldefille
Message me for details on anything Beautycounter and how you can get it into your hands.
I used to love make up and then I started to make major choices to clean up my act when it came to what I used on my body, in my house, and in my life. At the time I didn’t find a ton of make up I loved so I experimented a lot less. In addition I felt so poorly from chronic health problems that putting make up on went on the back burner in life. I’m happy to say I’m slowly but surely improving how I feel and the safer beauty world has really stepped up its game! My whole face here is Beautycounter make up @beautycounter except my lip gloss which is lip whip by @karigranskin and one of the eye colors called celestial sphere eye soot I have is from @ritueldefille Message me for details on anything Beautycounter and how you can get it into your hands.
GUYS! I am slacking on my blog post, I’m sorry! The weekend ended up busier than I had planned, but in a good way. I should have it up within a few hours or so. 🤞🏼🤞🏼🤞🏼
GUYS! I am slacking on my blog post, I’m sorry! The weekend ended up busier than I had planned, but in a good way. I should have it up within a few hours or so. 🤞🏼🤞🏼🤞🏼
I’m in a period of major transition and new beginnings. Sometimes I forget I am not in this alone. When I remember that my higher power whom I choose to call God is with me there is indeed nothing to fear. 
Surrender and trust, every day! ❤️❤️🙏🏻🙏🏻🙏🏻✨✨
I’m in a period of major transition and new beginnings. Sometimes I forget I am not in this alone. When I remember that my higher power whom I choose to call God is with me there is indeed nothing to fear. Surrender and trust, every day! ❤️❤️🙏🏻🙏🏻🙏🏻✨✨
Silent queen✨There are days where all you can do is wait in silence that this pain would disappear. But you always have to wear your invisible crown and don’t give up. #fibromyalgiasucks #painwarrior #invisibleillness #humidity #focusonbetterdays #souffrirensilence #artistherapy #createevenifpainful #zazaroxy
So this is my tribe 🦁🦁🦁🦁 my peeps 🐠🐠🐠🐠 my go-to’s 🦓🦓🦓🦓 my life-mate’s 🐣🐣🐣🐣 my inspiration 🦋🦋🦋🦋 my happiness 😃😃😃😃 my craziness 🤪🤪🤪🤪 my everything!!! #family #familylife #goodtimes #laughing #silly #funny #mypeeps #myworld #myeverything #holdthemoments #cherish #celebratelife #havefun #donttakethingssoseriously #lifestyle #soulmates #surroundyourselfwithgoodpeople #capture_today #embracelife #mykindaparty #momlife #momwithchronicillness #invisibleillness #familytime #selfies #bedtimeselfie #andthatshowweroll #crazies 😁
So this is my tribe 🦁🦁🦁🦁 my peeps 🐠🐠🐠🐠 my go-to’s 🦓🦓🦓🦓 my life-mate’s 🐣🐣🐣🐣 my inspiration 🦋🦋🦋🦋 my happiness 😃😃😃😃 my craziness 🤪🤪🤪🤪 my everything!!! #family  #familylife  #goodtimes  #laughing  #silly  #funny  #mypeeps  #myworld  #myeverything  #holdthemoments  #cherish  #celebratelife  #havefun  #donttakethingssoseriously  #lifestyle  #soulmates  #surroundyourselfwithgoodpeople  #capture_today  #embracelife  #mykindaparty  #momlife  #momwithchronicillness  #invisibleillness  #familytime  #selfies  #bedtimeselfie  #andthatshowweroll  #crazies  😁
One thing that yesterday taught me, is that awareness and support from the mainstream medical system is vital. 
Currently their minds are stuck in rooms where there are no windows and not being able to see what’s really out there in the real world doesn’t help anyone or anything.

My role as “Just 1 Woman Foundation” founder is to change that view, opening up the eyes of all that stand as beings of this beautiful land.
*********
#just1woman #just1womanfoundation #invisibleillness #mentalhealth #suicideprevention #mentalhealthadvocate #words #wisdom #realworld #openingminds #openingviews #awareness #support #bemoremindful #breatheinlife
One thing that yesterday taught me, is that awareness and support from the mainstream medical system is vital. Currently their minds are stuck in rooms where there are no windows and not being able to see what’s really out there in the real world doesn’t help anyone or anything. My role as “Just 1 Woman Foundation” founder is to change that view, opening up the eyes of all that stand as beings of this beautiful land. ********* #just1woman  #just1womanfoundation  #invisibleillness  #mentalhealth  #suicideprevention  #mentalhealthadvocate  #words  #wisdom  #realworld  #openingminds  #openingviews  #awareness  #support  #bemoremindful  #breatheinlife 
Hello everyone, 
I'm so sorry that I've been MIA for awhile, but there's a lot that has been happening with my health. 
So, my doctors tried to bring my prednisone dose down from 25mg after trying so many times to bring it down and since then my health has gotten worse with my asthma, allergies, severe stomach pain, severe back pain, severe left hip pain, severe vomiting, severe dry reaching, very high temperatures and more, so my doctor is very worried that this could be something more serious, so now I have a temperature chart that I have to do once everyday and when I get severe symptoms, I have to do my pulse, and when I get a high temperature and can go out despite how severe it gets I have to have a blood test. 
The doctor said to currently stay on the 25mg of prednisone and when I can to try and see if I can the dosage down due to I'm on presinsone for my asthma, stomach issues, spine issues, hip issues and more. 
They want to try and get the dosage down due to I'll be on it for the rest of my life. 
Last night I also had a severe allergy to a charcoal cleanser from @bioreus that I've been using on and off for awhile, and the pictures attached are the result of it. In the next photo I have attached the product, so if anyone has sensitive skin & severe allergies can see what can happen. It's very itchy and burns at the same time. 
I'm continuing to have more specialist appointments, multiple tests and treatments. 
And remember that you are doing an amazing job fighting these demons you have to face everyday. You're strength and determination has gotten you this far and will continue to shine throughout your journey. Never give up no matter what happens. Keep strong and positive!! 💪 💖
#Blogger #Irritablebowelsyndrome  #colonicpolyps #neuropathicpain #nervepain #silentreflux #cyclicvomitingsyndrome #Gravesdisease #asthma #eczema #chronicgastrists 
#gluteusmediustendinopathy #labrumtear #paravertebralcyst #scheuermannskyphosis  #degentrativediscdisease #Scoliosisstrong #spineissues #hipissues #lungissues #stomachissues #bentnotbroken #invisibleillness #hematoma #Porencehaliccyst #brainissues #braindamage #Rarebraindisorder #Porencephaly #allergies
Hello everyone, I'm so sorry that I've been MIA for awhile, but there's a lot that has been happening with my health. So, my doctors tried to bring my prednisone dose down from 25mg after trying so many times to bring it down and since then my health has gotten worse with my asthma, allergies, severe stomach pain, severe back pain, severe left hip pain, severe vomiting, severe dry reaching, very high temperatures and more, so my doctor is very worried that this could be something more serious, so now I have a temperature chart that I have to do once everyday and when I get severe symptoms, I have to do my pulse, and when I get a high temperature and can go out despite how severe it gets I have to have a blood test. The doctor said to currently stay on the 25mg of prednisone and when I can to try and see if I can the dosage down due to I'm on presinsone for my asthma, stomach issues, spine issues, hip issues and more. They want to try and get the dosage down due to I'll be on it for the rest of my life. Last night I also had a severe allergy to a charcoal cleanser from @bioreus that I've been using on and off for awhile, and the pictures attached are the result of it. In the next photo I have attached the product, so if anyone has sensitive skin & severe allergies can see what can happen. It's very itchy and burns at the same time. I'm continuing to have more specialist appointments, multiple tests and treatments. And remember that you are doing an amazing job fighting these demons you have to face everyday. You're strength and determination has gotten you this far and will continue to shine throughout your journey. Never give up no matter what happens. Keep strong and positive!! 💪 💖 #Blogger  #Irritablebowelsyndrome  #colonicpolyps  #neuropathicpain  #nervepain  #silentreflux  #cyclicvomitingsyndrome  #Gravesdisease  #asthma  #eczema  #chronicgastrists  #gluteusmediustendinopathy  #labrumtear  #paravertebralcyst  #scheuermannskyphosis  #degentrativediscdisease  #Scoliosisstrong  #spineissues  #hipissues  #lungissues  #stomachissues  #bentnotbroken  #invisibleillness  #hematoma  #Porencehaliccyst  #brainissues  #braindamage  #Rarebraindisorder  #Porencephaly  #allergies 
You"ll Have 😁Good days
☹Bad days
😫Overehelming days
💤Too tired days
😃I am awesome days
☹I cant go on days

And every day you'll still show up 👍We are MENTAL HEALTH WARRIORS.

@prilaga #mindset #mentalhealthmatters #mentalhealthwarrior #mentalhealthrecovery #help #healthymind #wellness #invisibleillness #mentalhealthawarness #healthylife #prilaga #fitness #overthinking #mentalhealthday #depression #livingfree #bewell #bipolar #mentalgains #mindfullness #mentalhealth #mind #mentalwellness #anxiety #healthandwellness #mentalstrength #stress #recovery #mentalhealthsupport #health
You"ll Have 😁Good days ☹Bad days 😫Overehelming days 💤Too tired days 😃I am awesome days ☹I cant go on days And every day you'll still show up 👍We are MENTAL HEALTH WARRIORS. @prilaga #mindset  #mentalhealthmatters  #mentalhealthwarrior  #mentalhealthrecovery  #help  #healthymind  #wellness  #invisibleillness  #mentalhealthawarness  #healthylife  #prilaga  #fitness  #overthinking  #mentalhealthday  #depression  #livingfree  #bewell  #bipolar  #mentalgains  #mindfullness  #mentalhealth  #mind  #mentalwellness  #anxiety  #healthandwellness  #mentalstrength  #stress  #recovery  #mentalhealthsupport  #health 
yes, you do
yes, you do
Yummy #breakfast #pizza with #eggs #pineapple #goatcheese and topped with #ginger Baked on a #glutenfree @udisglutenfree thin crust. This will be about 4 servings for me!😂
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#dairyfree #sugarfree #soyfree #healthlyliving #healthyeating #healing #chronicillness #invisibleillness #ibdwarrior #ulcerativecolitis #crohnsdisease #crps #rasucks #rheumaticdisease #rheumatoidarthritis
That’s right! I will stick to my dreams thanks very much! Who is with me? What are you dreaming of?
I’m dreaming of living in a place that’s sunny more than it’s not, owning my own home with my husband, and running my own successful business!
❤️❤️💪🏼💪🏼🙌🏽🙌🏽💃🏼💃🏼💋💋
That’s right! I will stick to my dreams thanks very much! Who is with me? What are you dreaming of? I’m dreaming of living in a place that’s sunny more than it’s not, owning my own home with my husband, and running my own successful business! ❤️❤️💪🏼💪🏼🙌🏽🙌🏽💃🏼💃🏼💋💋
This could not be more true for me. It is because of my #spoonieness that I am a totally different person. I use to be a workaholic. I use to try to be a perfectionist. I use to be materialistic. I use to be angry. I did not love me. When my world was turned upside down with chronic health issues, I ignored it. I never let anyone really know about my diagnoses. It was all confusing & scary & the unknown made me angry. Hearing “there are no cures but we’ll keep you as comfortable as we can & we don’t know your life span”...it made me angry. Having to explain over & over symptoms that made no sense was maddening & frustrating. Questioning yourself. Not having any tests available back then & just being told that “you have to be chronic for 6 months straight before we can do anything” was defeating. It. Was. A. Struggle. - -  It. Still. Is. - -  I. Know... Through it all, thru all the struggles, I became a different person. I realized that my life mattered. I finally put myself & my family first although my family was who I was working so hard for, I realized that it was me they needed, not the well paid employee who could give them whatever they needed. They needed me not what I could give them financially. I changed. I went to therapy to learn ways to cope with my spoonieness. It was my lifeline. I had been drowning in guilt & chronicness. In a way, I’m grateful for what my spoonieness bought to me. Indeed, thru my 32 year battles with over 19 different autoimmune “issues”, “I learnt the depth of who I am.” I can’t help but be thankful as I learned to love me. #this #sotrue #strength #truth #mytruth #spoonie #challengedtomycore #myspoonielife #myspooniejourney #chronicillness #chronicpain #chronicfatigue #invisibleillness #purpleness 💜🌻 #fibrohelpinghands #drstevemaraboliquote
This could not be more true for me. It is because of my #spoonieness  that I am a totally different person. I use to be a workaholic. I use to try to be a perfectionist. I use to be materialistic. I use to be angry. I did not love me. When my world was turned upside down with chronic health issues, I ignored it. I never let anyone really know about my diagnoses. It was all confusing & scary & the unknown made me angry. Hearing “there are no cures but we’ll keep you as comfortable as we can & we don’t know your life span”...it made me angry. Having to explain over & over symptoms that made no sense was maddening & frustrating. Questioning yourself. Not having any tests available back then & just being told that “you have to be chronic for 6 months straight before we can do anything” was defeating. It. Was. A. Struggle. - - It. Still. Is. - - I. Know... Through it all, thru all the struggles, I became a different person. I realized that my life mattered. I finally put myself & my family first although my family was who I was working so hard for, I realized that it was me they needed, not the well paid employee who could give them whatever they needed. They needed me not what I could give them financially. I changed. I went to therapy to learn ways to cope with my spoonieness. It was my lifeline. I had been drowning in guilt & chronicness. In a way, I’m grateful for what my spoonieness bought to me. Indeed, thru my 32 year battles with over 19 different autoimmune “issues”, “I learnt the depth of who I am.” I can’t help but be thankful as I learned to love me. #this  #sotrue  #strength  #truth  #mytruth  #spoonie  #challengedtomycore  #myspoonielife  #myspooniejourney  #chronicillness  #chronicpain  #chronicfatigue  #invisibleillness  #purpleness  💜🌻 #fibrohelpinghands  #drstevemaraboliquote 
This dish in the West Village @philipmarie
was absolutely incredible. 🍽🍽
Artichoke spinach stuffed chicken breast with garlic basil mashed potatoes , string beans, and orange citrus sauce.
🍗🍗🍊🍊🥔🥔
This dish in the West Village @philipmarie was absolutely incredible. 🍽🍽 Artichoke spinach stuffed chicken breast with garlic basil mashed potatoes , string beans, and orange citrus sauce. 🍗🍗🍊🍊🥔🥔
We're almost at May (crazy right!) which is Mental Health Awareness month.  Stay tuned for the #ShineAgain Project awareness campaign!  IF you  want to get involved DM me!  Meantime, I wanted to start to kick things off with this astounding fact from the #ADAA - Stay strong my friends- take things day by day -  You are not Alone <3
We're almost at May (crazy right!) which is Mental Health Awareness month. Stay tuned for the #ShineAgain  Project awareness campaign! IF you want to get involved DM me! Meantime, I wanted to start to kick things off with this astounding fact from the #ADAA  - Stay strong my friends- take things day by day - You are not Alone <3
“Why are you making a big deal of your illness Brandy? People can live for years w/it. Why are you worried?” Yes, I’ve gotten those comments!
If I said I had Cancer, AIDS, Diabetes, ESRD, etc, would I get those remarks? Probably not! I’m not taking away from those illnesses! Those people who fight those battles are my hero’s! I just used those diseases to make a point! I’ve known for years I had some type of #AIdisease. The testing became too much for me years ago, & I only started back when I did, because I had no choice. 
Why do I worry? Why am I scared? Why do I get depressed at times? Why do I panic/freak out w/each flare? Why do I stay awake at night trying to figure out who will take care of the people I love when I’m gone! Why do I feel alone most days? Why have I become an advocate for #invisibleillness ? 
Because I live with it! I face it daily! I know what it’s done, is doing , & will potentially do to my body! (Just for starters) I know my risk & my chances!
Let’s speak facts-I have a disease, that has no cure! Is it terminal? Well, that’s a tricky answer. If the actual disease doesn’t kill me, the complications that arise can & probably will one day! 
If you are just meeting me, or you see me on a regular basis, you may not see the “physical affects” this monster has had. If you haven’t seen me in a long time, you may notice a difference. I however, see them every single day. 
My symptoms started acting up again about 2 years ago. 
Side by side pics...The Pics on “left” are from the time my symptoms started again. The “right” are now! In less than 2 years my illness has stolen parts of me & changed my life!
So please, for anyone dumb enough to negatively question what we are dealing with, shut up! On good days, & w/the help of makeup, you probably couldn’t tell! On the bad days, all the make up in the world & all the filters available wont hide that I’m SICK! 
The last picture was taken recently. I’m feeling better w/meds and a healthy lifestyle! I don’t look so sick, but I don’t take any day for granted! Tomorrow may be a good day, a bad day, or my last day, but I plan to LIVE each one fully! #brandysaijourney #thankful #living #blessed #spoonie 🦋🥄💜
“Why are you making a big deal of your illness Brandy? People can live for years w/it. Why are you worried?” Yes, I’ve gotten those comments! If I said I had Cancer, AIDS, Diabetes, ESRD, etc, would I get those remarks? Probably not! I’m not taking away from those illnesses! Those people who fight those battles are my hero’s! I just used those diseases to make a point! I’ve known for years I had some type of #AIdisease . The testing became too much for me years ago, & I only started back when I did, because I had no choice. Why do I worry? Why am I scared? Why do I get depressed at times? Why do I panic/freak out w/each flare? Why do I stay awake at night trying to figure out who will take care of the people I love when I’m gone! Why do I feel alone most days? Why have I become an advocate for #invisibleillness  ? Because I live with it! I face it daily! I know what it’s done, is doing , & will potentially do to my body! (Just for starters) I know my risk & my chances! Let’s speak facts-I have a disease, that has no cure! Is it terminal? Well, that’s a tricky answer. If the actual disease doesn’t kill me, the complications that arise can & probably will one day! If you are just meeting me, or you see me on a regular basis, you may not see the “physical affects” this monster has had. If you haven’t seen me in a long time, you may notice a difference. I however, see them every single day. My symptoms started acting up again about 2 years ago. Side by side pics...The Pics on “left” are from the time my symptoms started again. The “right” are now! In less than 2 years my illness has stolen parts of me & changed my life! So please, for anyone dumb enough to negatively question what we are dealing with, shut up! On good days, & w/the help of makeup, you probably couldn’t tell! On the bad days, all the make up in the world & all the filters available wont hide that I’m SICK! The last picture was taken recently. I’m feeling better w/meds and a healthy lifestyle! I don’t look so sick, but I don’t take any day for granted! Tomorrow may be a good day, a bad day, or my last day, but I plan to LIVE each one fully! #brandysaijourney  #thankful  #living  #blessed  #spoonie  🦋🥄💜