May 19th is World IBD Day, to raise awareness (and funds! See bio) for Inflammatory Bowel Diseases.
Crohn’s and Ulcerative Colitis are debilitating digestive conditions, and Crohn’s was one of the major reasons that I finally stepped into my purpose as a nutritionist:
there had to more options to help people manage this health condition and have functional, fuller lives.
And there are.
Sadly, there are no cures yet, but if you have an IBD, please consider diet/nutrition/herbs/supplementation and lifestyle habits as vital tools in your fight against these diseases.
Everything to do with a person’s wellness depends upon their digestive health: let us all please show some love for guts, today.
#worldIBDday in July 2016 I was diagnosed with severe ulcerative colitis, after becoming so malnourished, dehydrated and anemic that I was hospitalized. we tried everything to save my destroyed colon; prednisone, maximum dose pentasa with mesalamine suppositories, complete bowel rest with TPN and IV steroids, humira, entyvio, remicade, azathioprine, dicyclomine, cipro and flagyl, probiotics, pantoprazole, countless supplements and a very restricted diet, all over the course of 5 months. after 5 hospitalizations, 6 blood transfusions, 2 colonoscopies and countless doctor's appointments, it reached the point where it was surgery or death. I had to say goodbye to my colon, and hello to Sid, my stoma. recovery was rough, to say the least, as I was so sick going in. but after a week in the hospital, I was sent home and had to learn to live my new life. I was grateful to be alive, even with a bag. I learned to love my bag and I found tons of support through Facebook groups and the Instagram community. some days I still struggle and I have had many other complications due to my IBD, but we're figuring it all out as we go. IBD changed my life, but not all for bad. it made me grow up and it gave me the realization that life can be hard, but it's worth it. it's okay to lean on people when you don't feel strong enough, the good ones will keep you going. I hope that someday we can find a cure for IBD, and that starts with raising awareness now.
It’s National IBD Day. I’ve been on this journey for almost 14 years now. God knows how many times I’ve wanted to give up. How many times I laid on my bathroom floor just wishing I could end it. I’m incredibly grateful for the world of medicine and my support group for helping me see that I am more than my symptoms. #crohnsdisease#ulcerativecolitis#inflammatoryboweldisease
In honor of #worldibdday , here’s a little recap of my IBD journey and the first picture of me without my colon.
At the end of my first semester in college in 2011, I began to have diarrhea. I was home for Christmas break and saw several doctors. After extensive tests and almost having my gallbladder wrongfully removed, the found out I had C Diff. It took about 6 months of antibiotics to finally get things cleared up.
Fast forward to fall/winter of 2012 and I was still dealing with random stomach issues. Bloating, cramping, diarrhea here and there. Tons of tests were run again, and a colonoscopy was done and the results all came back relatively normal, but I knew something wasn’t right.
From then on I dealt with more stomach issues. The diarrhea bouts would increase, but I dealt with it because apparently nothing was wrong and I was starting to feel like maybe I was just crazy.
Winter of 2014 is when things started to get serious. Starting in November, my diarrhea got really bad. I was going several times a day, dealing with bloating and some significant weight loss. This happened during first semester finals of my senior year of college and about two months after I’d gotten engaged. Not an ideal time to be dealing with this.
I saw a new GI when I was home for Christmas break and she took one look at me and said something was wrong. We scheduled a colonoscopy and sure enough, I was diagnosed with UC.
Now we enter two years of treatments. Remicade, Humira, and Entyvio. They all failed me and I was left feeling worse than ever.
I met my surgeon for the first time in August of 2017 and we decided that if I wanted to feel better, my colon had to come out. My 2 step surgery that was supposed to start on October 31 turned into an emergent 3 step surgery that started on September 21.
I’m happier and healthier than ever without my colon and I’ll never look back. I pray that one day there will be a cure for IBD. Having your intestines removed is not a cure, but for now, we will fight on with whatever guts we’ve got left.
It's #WorldIBDDay . As somebody living with #ulcerativecolitis , I never knew what an #IBD was before my diagnosis. I had heard about #crohnsdisease in passing, but I had no idea what it was.
It took 8 medications, 2.5 years of high dose #prednisone , 4 total years and an amazing doctor to get me into remission. The medication that finally worked for me was #Remicade , which I post about every 8 weeks. My infusions cost about $23,000... each. That nearly $150,000 per YEAR. And it's not a cure. There are people who are not as fortunate as I am to have incredible insurance to cover my last resort medication. When I started Remicade, we had started conversations about removing my colon. If the remicade didn't work, it would be the path we had to take. And I'm so lucky it worked. I hope that by the time the remicade stops working for me there will be another option. .
I shared my personal story with IBD on my personal Facebook a few days ago in honor of #worldibdday . I also shared it to my Crohn’s & Colitis event (link in bio) under discussion, if anyone is interested in reading it! It’s too long to paste in Instagram 💜 keep fighting fellow #ibdwarriors
It’s world IBD day! 🌏 I stand for those living each and every day with this invisible disease. I’m touched by all of the voices speaking their truth with their personal IBD story. Each one of you is so very, very strong. I was diagnosed in 2015 and have suffered several flares since my diagnosis (including a 9 month long flare, ugh). Ulcerative Colitis has given me so much more gratitude for the good days, the times when my body is happy, balanced, and normal. I can only hope for a day when we can all celebrate in health and remission. Until that day, we must advocate and support each other. 💜💜💜 #worldibdday#ibdawareness#ccfa
Happy #WorldIBDDay ! We celebrate and raise awareness together every year. You guys have seen a lot of my pics and pretty much know my story but I’m glad we were able to have a sit down / candid conversation together. IBD is not an easy disease to deal with but having support and being able to share life with so many amazing people who can relate makes it easier. I really appreciate every single person I’ve spoken with today and truly wish you guys the best. If you didn’t get a chance to watch my #IBDBeyondBorders Instagram live with the @crohnscolitisfoundation - you can go to their page & watch the livestream now (of course it’s not live anymore). Thank you to every one of you who continue to support me through my highs, my bratty days and my actual lows 😅. Love you guys! If we haven’t gotten a chance to connect before, send me a message! I don’t bite. Let’s talk. SoMe has so many benefits for patients , one being access to people we would have no way otherwise connected with! 💜 Let’s take advantage of that together.
Today is #WorldIBDDay and if I didn't have an #IBD myself I'd never really understand this meme to its fullest. Unfortunately #IBD - Inflammatory Bowel Disease is an incurable auto immune disease that affects me personally along with millions of others. Sometimes when things are a bit slow @popwildlife it's usually because orders and customers always come before social media on days when I don't have help I make sure orders are always out even if I'm not able to post as much. It wasn't until I started following more shop pages that I realized how many of us have illness in common, we are all true warriors for working through the struggles! 💜As for finding a popwildlife worthy meme to spread #IBDAwareness , it's very interesting to know that such a classic film scene is inspired by an IBD it truly sucks to have to live with these symptoms every day. To all those other shop runners and supporters who suffer from a #chronicillness I support your fight! 💜 #crohnies#crohnslife#purpleribbon#crohnsdisease#ulcerativecolitis#inflammatoryboweldisease#chronicillness#autoimmunedisease#popwildlife#thriftalina
World IBD Day.
Chipmunk cheeks. Moon face. Fat.
When I was diagnosed with Ulcerative Colitis over 20 years ago, there were no treatments specifically designed for inflammatory bowel diseases (IBD). I was on corticosteroids and immunosuppressants usually prescribed for transplant patients. I tried every diet and holistic therepy under the sun. Nothing helped when my body decided to flare.
While spending time with family this weekend memorializing my late grandmother, I've done a bit of reflection. No matter what happens, life goes on. Being sick, life goes on. A death of a loved one, life still goes on.
In every picture of me with tell tale Prednisone steroid face, I'm not letting life go on without me. I played softball, did martial arts, got into arts and crafts, I had friends over for my birthday.
I'm not trying to put on a strong face and say that being sick didn't suck. Because it did. It sucked a lot. It sucked my time, health, finances, my mental, emotional, and physical strength.
I've had a pretty good run of good days lately and I don't take them for granted. Hopefully you don't take your good days for granted, either.
Try this Combo: Sautéed Chicken with Lemon Basil, Zucchini with Toasted Sesame Seeds and Basmati Rice! 🍴👌🏼 Think about cooking with more fresh and dried herbs. They add lots of nutrients and flavor without adding calories. Spice it up with oregano, thyme, cinnamon, basil, marjoram, dill, parsley, chives, turmeric...(healthy low FODMAP doesn't have to be hard!)
Today is #WorldIBDday and I’m here to raise awareness about IBD, or Inflammatory Bowel Disease. IBD is an umbrella term that describes diseases that cause chronic inflammation of your digestive tract. The two most popular types of IBD are Crohn’s Disease and ulcerative colitis. IBD does not currently have a cure, and is categorized as an autoimmune disease. -
I was diagnosed with Crohn’s Disease in July of 2016 and since then it has been an uphill battle to find my “healthy” again. IBD doesn’t just affect the digestive tract – it affects the body in so many other ways as well. Chronic fatigue, pain, psoriasis, and arthritis are just a few ways IBD affects me currently. I’m on my third treatment option, an IV infusion of Remicade.
IBD is a terrible disease that affects everyone diagnosed differently. Over the last two years I have learned patience, compassion, strength, and humility. I have gained a strong appreciation for my medical team, especially my nurses who make me feel so safe and comfortable during my infusions. Most importantly I have learned to be patient and kind to everyone I meet. Not all illnesses are visible at first glance, and it is so important to remember that. -
This World IBD Day I ask that you take a minute to read about IBD, learn about some of its effects, and be kind to someone who you may not know has an invisible illness.
From our struggles we find our purpose. It’s #WorldIBDday . A time to spread awareness about Crohn’s and Ulcerative Colitis. A time to share stories of resilience and inspire others to do the same.
I'm in my third decade with this disease. It's been and continues to be a journey. Bedside tutors in high school, having to leave college, countless hospitalizations, pregnancy complications (my GI actually begged me not to get pregnant again because it was too stressful for him), nasty heavy duty drugs, mixed with periods of complete remission and "normal life". Those who have this understand that you can be in beautiful remission one day only to be blindsided the next and what that feels like to live in a constant state of please God don't let it happen. .
It sucks for me and the 5 million others who take on these debilitating diseases. BUT----- I am grateful for this disease for many reasons. It is what led me to exercise and nutrition. It inspired me to look deeper into what I put into my body. It helped me figure out that endorphins play a role in my remission ----and my mood always. It has taught me about the mind body (GUT) connection and how that works for me (and also against me). It has led me to practice behaviors that keep my mind strong and stress levels low. Ok... lower than if I wasn't practicing. :) It motivates me to stay as strong and healthy as I can for when it strikes me next. It has inspired me to share what I know to help others wtstruggle. .
It also has given me a RESILIENCE and PERSEVERANCE that makes me who I am.
Above all, the coolest gift this disease has given me is the realization that we really have very little control of things---BUT focusing on and controlling the things we can gives us immense power. It can take us from the victim mentality to the wellness warrior mentality. That mind shift alone can change so much for so many. .
Power and love to all the IBD warriors out there!
When I was 12 I ALMOST lost my life to this weird and strange disease. Your body (immune system) attacks its own organs!! Who does that?? Lol, seriously though. It was the scariest phase of my life. Being so young and being faced with a decision to fight for my life OR give up and die. At 55 lbs I had to make a choice fast! In the bottom right photo I am smiling (I thought I was finally gaining weight but it was actually the side of effects of the steroids...Moon Face 😒). I wasn't happy though...just enjoying those brief and rare moments when I felt like a normal kid with my family. Today is #WorldIBDDay !! I'm excited about finally sharing my childhood illness story in my #memoir and to advocate for a cure! Thank God I don't look like what I've been through (finally gained some weight...after 2 kiddos 😎😏**Top Left photo) I appreciate LIFE more than ever! This month is #MentalHealthAwarenessMonth . Many of us effected by #IBD also struggle with #mentalhealth issues such as depression and anxiety. Let's make it a priority to take care of ourselves. We only have one life to live. Live it to the fullest!
Happy #worldIBDday , y’all. 🌎 The Crohn’s and Colitis foundation always has these personalized IBD infographics that are awesome, but only scratch the surface. IBD is a baffling disease, but it sure does create some fighters. 💪🏻 As always, I’m an open book, so feel free to ask me questions if you’re curious! 💩 Thankful for the internet, because it’s brought me some community. Shout out to @ibd.bri for constantly supporting and inspiring me IN SO MANY WAYS. ✨💕
IBD knows no borders.
IBD does not discriminate based on race, religion, or socio-economic status.
IBD affects both children and adults.
IBD affects more than 10 million people worldwide.🌎💜
I suffer from Crohn’s Disease and was diagnosed with IBD in 2006. At times IBD stripped me of my self-esteem, dignity, and humanity. It took time, but I picked myself up. Each time. Flare after flare, tear after tear, I held on to hope that life would get better. 🙏🏼
One morning, while in a yoga class, I came to a life changing realization. In that moment, I decided to peacefully coexist with the disease, instead of trying to fight and eradicate it from my body. 🧘♀️ 💡 ⠀⠀⠀ ⚡️
I had spent years hating my colon and digestive tract because of my life constantly having to revolve around either being in a flare, or the fear of flaring. It was a vicious cycle, and it took its toll. Until I accepted it for what it was.✌🏼😳
We, as an IBD community, are stronger together. Together, we can change the world. And we are, one step a time! 🙌🏼💜
In honor of World IBD day I’ve decided to talk about something that I don’t very often—my IBD diagnosis. I don’t mention this a lot because it’s quite complicated. (If you all don’t follow @sara_ringer hop over to here page and watch her most recently youtube video on the IBD spectrum!) IBD has always seemed black and white to me—either Ulcerative Colitis or Crohn’s disease (the two main types of inflammatory bowel disease). For me, and many others, it’s not quite that simple. I suffer from a classic case of colitis, however the inflammation spreads through the entire lining of my colon—not so typical. Upon more and more testing I’ve been able to learn that my entire GI system is riddled with ulceration and inflation—my esophagus, stomach, and large intestines being affected the most. This has been going on for years, every time I have a colonoscopy BAMN glowing like rudolf’s nose. Yet every single biopsy has come back “inconclusive” “colitis without uncerlations” “unknown inflammatory disease.” It’s hard to talk about/explain something that even my doctor’s aren’t quite sure of! I’ve had multiple surgeries including a partial colectomy, ileostomy, patches for esophageal and gastric ulcers—the whole nine yards. I talk about my motility disorders a lot on here, but this has been a huge piece of my life too. Public accidents, running into bathrooms ignoring the “employee only” signs, colonoscopies and colonoscopies and colonoscopies. Butt burn. Living in the bathroom on the bad days, always keeping a spare pair of pants and underwear on me, not wearing pads for my period but for the fissures that wouldn’t stop bleeding. Today is world IBD, for all of the bathroom queens, ostomy rockers, and clean out heroes out there. I raise my tube of calmoseptine and solute you. #ibd#idbqueens#idbawareness#worldibdday#idbday#buttburn#ostomate#ostomybags#ostomyawareness#ostomywarrior#ileostomylife#idbsurvivors#tpn#piccline#totalparenteralnutrition#centrallinefed#tpndependent#ivfood#cipo#globaldysmotility#gastroparesis#gidisorders#ileostomy#gtube#jtube#inflammatoryboweldisease
Today is May 19th!! Happy World IBD Day!!! One year and nine months ago, I heard the words "Inflammatory Bowel Disease" for the very first time. Little did I know, those words would mark the beginning of a lifelong journey that would change my life forever. I am one of 5 million individuals around the world living with Inflammatory Bowel Disease. It brings debilitating symptoms and powerful medications with nasty side effects -- and there is no cure. I am so thankful for treatment, which has helped me to heal immensely, and for the people who have journeyed with me along the way. But I am also eager to continue to spread awareness, to fight for hope and a cure!! #standupkeepfighting#dearcrohns#worldibdday
Today is #worldIBDday and there is much to discuss. I’ve learned over the course of my diagnosis people often misunderstand IBD or confuse it with IBS. It’s important to remember IBD is an autoimmune disease that is lifelong and has no cure. IBD (Crohn’s and Ulcerative Colitis) presents with ulcerations and complications in the digestive tract, and in the case of Crohn’s Disease, the entire digestive system can be affected - “from gums to bum”!! This includes ulcerations, pain, and inflammation in your mouth, esophagus, stomach, small and large intestines and your rectum. It is not a “sexy” disease. People don’t like talking about it because of the stigma around a digestive disease - even from your biggest supporters you can expect some “eew’s” and contorted faces when talking about your struggles, symptoms or surgeries. But this is our reality. Our everyday. And this is why we have this day, this month. To talk about it. To raise awareness. To share our realities. We do this in the hopes of better understanding and continuing the conversation. Wear purple to support your friends and loved ones. Donate some time when someone needs to talk. Listen with the intent of understanding. Let’s strive to find a cure. Help us continue the conversation. 💜💜💜 #IBD#chronicillness#invisibleillness#crohns#colitis#autoimmunedisease#medical#educate#advocate#support#awareness#girlswithguts#strongwomen#crohnstakesguts#battletested#inflammatoryboweldisease
With the excitement of a little wedding happening I almost forgot to post about another important event going on today as it’s World IBD Day. IBD is inflammatory bowel disease which is an umbrella term for Ulcerative Colitis and Crohns. As many of you will know I have Ulcerative Colitis and have struggled with it for the past 10 years. I devised the recipe for my Tummy Soothing Brew to help me with my symptoms. The disease is incurable so I can’t promise miracles from drinking this tea but I find it helps me. IBD is a hidden disability that some find difficult to talk about so I like to do my bit to raise awareness 🙌🏻 #worldibdday#inflammatoryboweldisease#ulcerativecolitis#crohnsdisease#tummysoothingtea#worldibdday2018
It’s #IBDawarenessday Hospital pics are from 2015... Living w/ Crohn’s disease I learned that my stomach talks to me but not in a good way. I had pain in my abdomen for years and never knew why until a few years ago. Being diagnosed in 2013 w/ Crohns was a hard year for me because I finally knew the reason why I was in pain. It also meant that I’d have many obstacles to face according to my doctors. For a good while I let the disease consume me. There were days where I felt like shit and wanted to give up. In 2015-2016 I had a full year of nothing but flare ups and small bowel obstructions that made me take time off from school. There were days when I just wanted to give up on school because of all the stress and flare ups that’d cause me to throw up and be bed ridden for days. I also got depressed because I wasn’t graduating w/ my friends. I even ended up taking antidepressants for 2 years. Today I am happy to say I got off of those in January and that I am officially done w/ my undergraduate career. There are not enough words to describe how grateful I am for my family and friends that have supported me on my journey of recovery and my everyday battles. If you look at me today and compare it to past years you probably would of never thought there’s something “wrong” w/ me. Everyone has their own journey through life and it’s up to you to make the most of it. Your willpower and drive will get you places only if you believe in yourself. #nevergiveup#noshame#youareloved#gooddaysandbaddays#justkeeppushing#Crohnsdisease#invisibledisease#crohnswarrior#crohnsadvocate#crohnie#inflammatoryboweldisease#digestivedisease#testyourlimits#multiplejourneys#purpleribbon#firsttattoo#buildyourselfupnotdown#graduating#csulb#polisci#classof2018
Bit late to the party...but happy world IBD day guys!! I was a bit unsure on what to post. I get that today is about raising awareness for IBD and showing the effect it can have on anyone with the disease and the people closest to them, but tbh I'm fed up with moaning about it. Every year so far I have looked back at my life with crohns and I just don't want to this year. Yeah I've been to hell and back. Yeah I'm still pretty sick but I've been feeling a bit off lately. For years in fact.
When I'm in one of my better periods and I'm not consumed by everything that is crohns, I have a strange feeling that I couldn't quite put my finger on before. It's not an empty feeling but more like an itch. It would irritate the life out of me as I could not figure out what was causing it.
It wasn't until the past 2 months ,where I have been living alone with the luxury of space and control, both physically and mentally, that I finally figured it out.
I'm getting greedy again.
Now you're probably thinking 'wtf is she going on about? Crazy nutter...' but let me explain....And then you can call me crazy.
Before I became ill, I never settled. I was that girl who rewrote essays and did several versions of practical work just to get all A' s at college. I rejected all other university interviews and only went to one, because I wanted to go to a specific one and I was determined to get into it. I completely changed my dissertation subject 2 weeks before the deadline and worked none stop for days on end because I wasn't 100% satisfied with my work. ( FYI: I got an A 😏) In other words, I was a girl who knew what I wanted and had the confidence in myself to accept no other outcome. Even at times when I got the end result that I originally wanted, I yearned for more. I constantly wanted to be better and set new goals so i always evolved.
I lost that passion when I became ill. It was unavoidable and I settled for being okay but now the itch is back. I want more. Not neccesarilly from my career and general day to day life. Right now I am content with where I am ( although this wi probably also change as I grow), but it's more to do with myself as a... ( cont in comments)