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#Ileostomy medias

Photos

Spent my awake time being useful!
Used Coloplast with my last 2 ostomies, but intend to order samples before the next one arrives so I can test some out!
Which bags do you use?

#IBDSuperHeroes #OstomyAwareness #OstomyBag #Ostomate #Ostomy #Ileostomy #Colostomy #Colitis #IBD #Jpouch #Pouchitis #UlcerativeColitis #IBDLife #IBDAwareness #InflammatoryBowelDisease #IBDWarrior #ChronicIllness #InvisibleIllness #Spoonie #CrohnsDisease #Crohns
How good is delivery day??!! First time ordering by myself and everything came. One more milestone achieved 😊
How good is delivery day??!! First time ordering by myself and everything came. One more milestone achieved 😊
Spending the day in San Francisco for back to back appointments. I have a small break, so I grabbed my blanket to lie down on the ground in the park and soak up some sun. *
If we are being honest, my body was screaming to lie down. People are walking by, laughing as they walk by cause who’s this crazy person laying down? Be confident in making sure you give your body what it needs friends, even at the risk of looking a little funny. *
Now, excuse me while I enjoy the sun and try not to fall asleep 😴🤷🏼‍♀️
Spending the day in San Francisco for back to back appointments. I have a small break, so I grabbed my blanket to lie down on the ground in the park and soak up some sun. * If we are being honest, my body was screaming to lie down. People are walking by, laughing as they walk by cause who’s this crazy person laying down? Be confident in making sure you give your body what it needs friends, even at the risk of looking a little funny. * Now, excuse me while I enjoy the sun and try not to fall asleep 😴🤷🏼‍♀️
GRATITUDE... when I was in hospital, I found the physical and emotional recovery really tough. Without realising it, I used gratitude as one strategy to get me through the day whether it was a kind nurse or just the morning sun streaming through the window I was fortunate enough to have, it was those little moments that got me through. 
Now that I am at home and life is heading towards a new normal, I need to remind myself to not get caught up in the things not going well and focus again on the things I am grateful for like

Rainy, cooler weather so that I can wear my warm and comfy clothes

Spending the day at home with my three gorgeous boys and husband

Coffee... always coffee... What are you grateful for today?
GRATITUDE... when I was in hospital, I found the physical and emotional recovery really tough. Without realising it, I used gratitude as one strategy to get me through the day whether it was a kind nurse or just the morning sun streaming through the window I was fortunate enough to have, it was those little moments that got me through. Now that I am at home and life is heading towards a new normal, I need to remind myself to not get caught up in the things not going well and focus again on the things I am grateful for like Rainy, cooler weather so that I can wear my warm and comfy clothes Spending the day at home with my three gorgeous boys and husband Coffee... always coffee... What are you grateful for today?
LAST DAY OF CLASSES ! This afternoon, I sat through my final class of school - I still can’t believe it. All that’s left are my final exams and projects, and I can officially say that I have a Master’s Degree. It hasn’t been easy, especially with juggling classwork alongside plenty of medical appointments, but I am so close to the end and it’s all been worth it. Next up - “adulting,” whatever that means !
LAST DAY OF CLASSES ! This afternoon, I sat through my final class of school - I still can’t believe it. All that’s left are my final exams and projects, and I can officially say that I have a Master’s Degree. It hasn’t been easy, especially with juggling classwork alongside plenty of medical appointments, but I am so close to the end and it’s all been worth it. Next up - “adulting,” whatever that means !
Aghhh. I went too hard at physical therapy (my own doing) ... lol kept asking my PT if I could do another set, add more weight etc.

I missed and LOVE feeling my muscles BURN. 
But now DOMS has kicked in and... #TrainSmart #IShouldKnowBetter #GotTooExcited
Aghhh. I went too hard at physical therapy (my own doing) ... lol kept asking my PT if I could do another set, add more weight etc. I missed and LOVE feeling my muscles BURN. But now DOMS has kicked in and... #TrainSmart  #IShouldKnowBetter  #GotTooExcited 
This is a memory of my days in the hospital! I am grateful to only have good memories,even though had a very rough long battle to live the wonderful life I am able to live today! I am so grateful for having the best hospital and medical team E V E R!! My HB was down to 4.4 here...I thought I would be in and out but I got my same private room again...watch me now @ericastraveling .
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#crohnsdisease #crohns #crohnswarrior #blood #ileostomy #ostomy #iv #medicine #instadaily #ulcerativecolitis #spoonie #warrior #ibd #ibdawareness #disease #health #invisibleillness #stoma #chronicillness #tbt #fighter #strong #cancer #cancersurvivor #blessed #life #nevergiveup #icandoit #believe #instahealth
This is a memory of my days in the hospital! I am grateful to only have good memories,even though had a very rough long battle to live the wonderful life I am able to live today! I am so grateful for having the best hospital and medical team E V E R!! My HB was down to 4.4 here...I thought I would be in and out but I got my same private room again...watch me now @ericastraveling . . . #crohnsdisease  #crohns  #crohnswarrior  #blood  #ileostomy  #ostomy  #iv  #medicine  #instadaily  #ulcerativecolitis  #spoonie  #warrior  #ibd  #ibdawareness  #disease  #health  #invisibleillness  #stoma  #chronicillness  #tbt  #fighter  #strong  #cancer  #cancersurvivor  #blessed  #life  #nevergiveup  #icandoit  #believe  #instahealth 
Had a fabulous day at the Pelican Healthcare & Respond head office in Cardiff today. I’m giving their new Platinum Vitamin E bags a try as i have very sensitive skin.. so far so good 😁😍 #ostomy #stoma #ileostomy #convex #pelicanhealthcare #respond
@richardhazelby_mountaineering leading up a mountain of choss! Cracking days climbing @mmmajka
.................................................................................................................................................................................................................................
#climbing #trad #neverstopexploring #accesstheinaccessable #tradclimbing #slate #wales #llanberis #choss #rock #outdoor #adventure #lead #fitness #health #training #strength #crohns #ileostomy #fiveten #mammut #busstop
@richardhazelby_mountaineering leading up a mountain of choss! Cracking days climbing @mmmajka ................................................................................................................................................................................................................................. #climbing  #trad  #neverstopexploring  #accesstheinaccessable  #tradclimbing  #slate  #wales  #llanberis  #choss  #rock  #outdoor  #adventure  #lead  #fitness  #health  #training  #strength  #crohns  #ileostomy  #fiveten  #mammut  #busstop 
My biggest pet peeve is someone saying, “My friends daughter had that and they were able to cure her...” blah blah blah. People are sometimes ignorant about chronic illness yet they choose to spew things out of their mouth which they can’t back up or confirm. I hate to come off as rude, but I really needed to rant about that. Please comment below and share something you’d wish people would stop telling you about your disease. #chronicillness #entyvio #crohnsdisease #prednisone #ileostomy #asthma #spoonie #autoimmune #invisibleillness
My biggest pet peeve is someone saying, “My friends daughter had that and they were able to cure her...” blah blah blah. People are sometimes ignorant about chronic illness yet they choose to spew things out of their mouth which they can’t back up or confirm. I hate to come off as rude, but I really needed to rant about that. Please comment below and share something you’d wish people would stop telling you about your disease. #chronicillness  #entyvio  #crohnsdisease  #prednisone  #ileostomy  #asthma  #spoonie  #autoimmune  #invisibleillness 
Ostomy hack!!✔️
(Disclaimer-I’m not sure if it’s best to use these, I’ve just notice that they’ve helped a lot when changing my bag and cleaning Todd. I also use water, baby wash, and the viva paper towels)
•
Im sure fellow ostomates know this but to any new ones, flushable wipes or even baby wipes in general are perfect for cleaning your stoma!
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As you know when changing your bag, your stoma can be cover in poop lol but it’s important not to scrub it or go crazy trying to clean it. You can really irritate or even damage your stoma by doing it. The best advice I got about this was “treat your stoma the way you would treat your eyes. You wouldn’t sit there and rub or scrub your eyes. So don’t do it to your stoma.”
•
I just thought I’d pass along a little hack for some of the new ostomates here!! I hope this helps!💛
- shared from @vees.ileostomy

#ileostomy #ileostomyawareness #ostomy #ostomates #ostomate #ostomybag #ostomywarrior #warrior #stoma #chronicillness #chronicpain #hiddenillness #invisvibleillness #girlwithguts #loveyourself #bodypositivity #positivevibes #countyourblessings #nocolonstillrollin #ittakesguts #chronicallymotivated #lifehack #ostomyhack #ostomyawareness #ibdsuperheroes #spoonie #loveyourstoma #getyourbellyout #chronicloveclub
Ostomy hack!!✔️ (Disclaimer-I’m not sure if it’s best to use these, I’ve just notice that they’ve helped a lot when changing my bag and cleaning Todd. I also use water, baby wash, and the viva paper towels) • Im sure fellow ostomates know this but to any new ones, flushable wipes or even baby wipes in general are perfect for cleaning your stoma! • As you know when changing your bag, your stoma can be cover in poop lol but it’s important not to scrub it or go crazy trying to clean it. You can really irritate or even damage your stoma by doing it. The best advice I got about this was “treat your stoma the way you would treat your eyes. You wouldn’t sit there and rub or scrub your eyes. So don’t do it to your stoma.” • I just thought I’d pass along a little hack for some of the new ostomates here!! I hope this helps!💛 - shared from @vees.ileostomy #ileostomy  #ileostomyawareness  #ostomy  #ostomates  #ostomate  #ostomybag  #ostomywarrior  #warrior  #stoma  #chronicillness  #chronicpain  #hiddenillness  #invisvibleillness  #girlwithguts  #loveyourself  #bodypositivity  #positivevibes  #countyourblessings  #nocolonstillrollin  #ittakesguts  #chronicallymotivated  #lifehack  #ostomyhack  #ostomyawareness  #ibdsuperheroes  #spoonie  #loveyourstoma  #getyourbellyout  #chronicloveclub 
June 2016 ➡️ April 2018
Last week I turned in my capstone proposal: 70+ pages of a comprehensive integrated communications proposal and the final chapter in my journey to my Master of Science in Integrated Marketing Communications degree.
I was accepted into the program just months before my first surgery and began my first class the day before my surgery.
Over 50% of my coursework was done from a hospital bed.
Keeping up with the max amount of classes each semester in addition to 4 major surgeries and countless hospital stays has been one of the most challenging things I have ever done.
•••
Almost 2 years ago, I was 72 pounds and so sick that I could no longer walk. Now, in a few weeks, I get to walk across the stage and accept my diploma- happy and healthy- and I have no words to describe my excitement.
Never give up on your dreams. You are capable of far more than you could ever imagine.
June 2016 ➡️ April 2018 Last week I turned in my capstone proposal: 70+ pages of a comprehensive integrated communications proposal and the final chapter in my journey to my Master of Science in Integrated Marketing Communications degree. I was accepted into the program just months before my first surgery and began my first class the day before my surgery. Over 50% of my coursework was done from a hospital bed. Keeping up with the max amount of classes each semester in addition to 4 major surgeries and countless hospital stays has been one of the most challenging things I have ever done. ••• Almost 2 years ago, I was 72 pounds and so sick that I could no longer walk. Now, in a few weeks, I get to walk across the stage and accept my diploma- happy and healthy- and I have no words to describe my excitement. Never give up on your dreams. You are capable of far more than you could ever imagine.
Last night was so much fun with my fav guys 😁 so glad Jen and the Boiz are back together again @stuartmcalister94 @thetajshow @heelbusby, even if I did end up being sick all night because alcohol and antibiotics don’t mix 😂 it was so fun to go out and be like everyone else in their 20s rather than feeling like the perpetual patient ☺️ definitely looking forward to the next time we go out, hopefully it’s outside of Glasgow! 🤞 today was a rough start with me being sick but after getting some meds to stay down, things settled enough for me to get some sleep then head out for my second appointment of the week with my doctor. We’ve basically got to a point where I need a referral to urology alongside my gynaecology one and they need to work with my gastroenterology team and my colorectal team... basically I’m taking full advantage of the NHS and I’m so thankful to have access to it because I’d never have made it to this point without the care of the NHS. 💖 We definitely think that my issues with pain, blood and all the other issues are either related to my Crohn’s or my Endometriosis complications and once we get to the bottom of those, I should be feeling better! ☺️ it’s a bit tedious and I’m starting to get fed up of always having to be at the GP’s or hospital but at least we’re on track to sort that! I’ve also had to make the decision that I need to go on long term stronger anxiety meds than I’m on currently and keep those up alongside my antidepressants because we’re hoping that with the help of those and a new psychologist I’ll start to feel ready to go out more on my own because I don’t want to regret not doing everything to enjoy myself while I’m not at hospital! 😮 #blogger #girlboss #author #health #life #ibd #crohns #ileostomy #hair #invisibleillness #chronicillness #glasgow #student #nhs #recovery #spoonie #depression #mentalhealth #bodypositive #instagood #photooftheday #lifestyle #ibdawareness #barbiebutt #effyourbeautystandards #spooniestrong #autoimmune #fightlikeagirl #endometriosis #anxiety
Last night was so much fun with my fav guys 😁 so glad Jen and the Boiz are back together again @stuartmcalister94 @thetajshow @heelbusby, even if I did end up being sick all night because alcohol and antibiotics don’t mix 😂 it was so fun to go out and be like everyone else in their 20s rather than feeling like the perpetual patient ☺️ definitely looking forward to the next time we go out, hopefully it’s outside of Glasgow! 🤞 today was a rough start with me being sick but after getting some meds to stay down, things settled enough for me to get some sleep then head out for my second appointment of the week with my doctor. We’ve basically got to a point where I need a referral to urology alongside my gynaecology one and they need to work with my gastroenterology team and my colorectal team... basically I’m taking full advantage of the NHS and I’m so thankful to have access to it because I’d never have made it to this point without the care of the NHS. 💖 We definitely think that my issues with pain, blood and all the other issues are either related to my Crohn’s or my Endometriosis complications and once we get to the bottom of those, I should be feeling better! ☺️ it’s a bit tedious and I’m starting to get fed up of always having to be at the GP’s or hospital but at least we’re on track to sort that! I’ve also had to make the decision that I need to go on long term stronger anxiety meds than I’m on currently and keep those up alongside my antidepressants because we’re hoping that with the help of those and a new psychologist I’ll start to feel ready to go out more on my own because I don’t want to regret not doing everything to enjoy myself while I’m not at hospital! 😮 #blogger  #girlboss  #author  #health  #life  #ibd  #crohns  #ileostomy  #hair  #invisibleillness  #chronicillness  #glasgow  #student  #nhs  #recovery  #spoonie  #depression  #mentalhealth  #bodypositive  #instagood  #photooftheday  #lifestyle  #ibdawareness  #barbiebutt  #effyourbeautystandards  #spooniestrong  #autoimmune  #fightlikeagirl  #endometriosis  #anxiety 
Don't look back, unless it's to see how far you've come 💓

From a scared 12 year old at the beginning of her Crohn's journey, to a 31 years old that slays it, bag and all!
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#trowback #crohnsdisease
Don't look back, unless it's to see how far you've come 💓 From a scared 12 year old at the beginning of her Crohn's journey, to a 31 years old that slays it, bag and all! . #trowback  #crohnsdisease 
After being poorly and my surgery, my hairs particularly suffering - so I now take these tablets to help, recommend by my hair dresser @laurenchristmasmakeup 💇🏻
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What recommendations do you have to help grow and thicken up your hair? 💁🏻
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#nocolonstillrollin #ileostomy #ulcerativecolitis #crohnsdisease #crohns #ibd #stoma #stomalife #doodle #stomadoodle #crohnsandcolitisuk
Finally able to get out and enjoy some warm weather! For so long I was using all of my spoons just to get through the day...I had none left over to do things just for fun! Now I can do what I need to in a day and still have spoons leftover for things I have wanted to do for so long! Yay healing! 💜✨💩🥄 #whatbag 📸: @shanedearmond
Finally able to get out and enjoy some warm weather! For so long I was using all of my spoons just to get through the day...I had none left over to do things just for fun! Now I can do what I need to in a day and still have spoons leftover for things I have wanted to do for so long! Yay healing! 💜✨💩🥄 #whatbag  📸: @shanedearmond
#Repost @svyatoslav.semenets (@get_repost)
・・・
Точный диагноз Святославу поставили не сразу. Впервые его прооперировали через сутки после рождения, (т.е. 26 декабря 2015 г), тогда же взяли образцы кишки на гистологию. Но впереди были новогодние и рождественские каникулы, так что заключение из патлаборатории мы ждали почти две недели. Наверно поэтому, сразу после операции я мало догадывалась об необходимости долгосрочного парентерального питания и перспективе провести в стационаре Охматдета следующие 14 месяцев. Больше всего, в тот период, меня шокировало знакомство с илестомой - отрезком кишки, выведенным прямо на живот. Фактически, это искуственный задний проход, через который происходит опорожнение кишечника. Только в отличии от естественного анального отверстия, у стомы нет никаких сфинктеров, стомированные люди не чувствуют позывов к опорожнению и не могут контролировать этот процесс. Чем короче участок кишки, выведенный на стому, тем более жидкий стул, а в случае Святослава, он вообще очень жидкий и частый, а при попадании на кожу вызывает ожеги. Вы ведь знаете, что желудочный сок по большей части состоит из соляной кислоты? Проходя через полный цикл пищеварения она нейтрализуется, но не в короткой кишке Святослава. Попадая на его живот, соляная кислота разъедает детскую нежную кожу до язв. Мы используем специальные защитные мази, чтобы хоть как-то предотвратить этот процесс. Они наносятся вокруг стомы, под мешочек-калоприемник. Раз в сутки (а иногда и чаще) мешочек приходится менять на новый, каждый раз обрабатывая ранки новой порцией лечебной пасты. Со временем Святик привык к такой весьма неприятной процедуре и переносит ее практически без слез.
Кроме илеостомы у нашего мальчика еще выведена гастростома - отверстие из желудка. Если вам интересно, я напишу в следующем посте о ее функции и сложностях ухода.

#помочьСвятославу #Святикхочетжить  #ileostomy
🔸 Святослав Семенец, 2 года
🔸 24.12.2015 г.р.
🔸️ г. Киев, Украина
🔸 Диагноз - синдром короткой кишки, синдром мальабсорбции, спаечная болезнь.
🔸 Сбор на операцию по закрытию стомы в клинике Bnai-Zion, Израиль
💶Сумма сбора - 42000 евро
💶Осталось собрать - 32362,53 евро
⏳Срок сбора до 31.05.2018
#Repost  @svyatoslav.semenets (@get_repost) ・・・ Точный диагноз Святославу поставили не сразу. Впервые его прооперировали через сутки после рождения, (т.е. 26 декабря 2015 г), тогда же взяли образцы кишки на гистологию. Но впереди были новогодние и рождественские каникулы, так что заключение из патлаборатории мы ждали почти две недели. Наверно поэтому, сразу после операции я мало догадывалась об необходимости долгосрочного парентерального питания и перспективе провести в стационаре Охматдета следующие 14 месяцев. Больше всего, в тот период, меня шокировало знакомство с илестомой - отрезком кишки, выведенным прямо на живот. Фактически, это искуственный задний проход, через который происходит опорожнение кишечника. Только в отличии от естественного анального отверстия, у стомы нет никаких сфинктеров, стомированные люди не чувствуют позывов к опорожнению и не могут контролировать этот процесс. Чем короче участок кишки, выведенный на стому, тем более жидкий стул, а в случае Святослава, он вообще очень жидкий и частый, а при попадании на кожу вызывает ожеги. Вы ведь знаете, что желудочный сок по большей части состоит из соляной кислоты? Проходя через полный цикл пищеварения она нейтрализуется, но не в короткой кишке Святослава. Попадая на его живот, соляная кислота разъедает детскую нежную кожу до язв. Мы используем специальные защитные мази, чтобы хоть как-то предотвратить этот процесс. Они наносятся вокруг стомы, под мешочек-калоприемник. Раз в сутки (а иногда и чаще) мешочек приходится менять на новый, каждый раз обрабатывая ранки новой порцией лечебной пасты. Со временем Святик привык к такой весьма неприятной процедуре и переносит ее практически без слез. Кроме илеостомы у нашего мальчика еще выведена гастростома - отверстие из желудка. Если вам интересно, я напишу в следующем посте о ее функции и сложностях ухода. #помочьСвятославу  #Святикхочетжить  #ileostomy  🔸 Святослав Семенец, 2 года 🔸 24.12.2015 г.р. 🔸️ г. Киев, Украина 🔸 Диагноз - синдром короткой кишки, синдром мальабсорбции, спаечная болезнь. 🔸 Сбор на операцию по закрытию стомы в клинике Bnai-Zion, Израиль 💶Сумма сбора - 42000 евро 💶Осталось собрать - 32362,53 евро ⏳Срок сбора до 31.05.2018
For anyone who may be having a hard time reaching out, here's a loving reminder from @littlearthlings: It's OK to ask for help, no matter what. ♥️ You're not a bad person for having a hard time and you deserve support for whatever you're going through.
•••
#invisibleillness #mentalhealth #mentalhealthawareness #mentalillness #mentalhealthmatters #mentalhealthday #chronicfatigue #chronicillness #spoonie #spoonielife #mentalillnessawareness #mentalillnessrecovery #edrecovery #anxietyattack #fibromyalgia #fibro #lupus #ileostomy #cancer #disability #ehlersdanlossyndrome #potssyndrome #autism #endometriosis #endowarrior #depression #anxiety
For anyone who may be having a hard time reaching out, here's a loving reminder from @littlearthlings: It's OK to ask for help, no matter what. ♥️ You're not a bad person for having a hard time and you deserve support for whatever you're going through. ••• #invisibleillness  #mentalhealth  #mentalhealthawareness  #mentalillness  #mentalhealthmatters  #mentalhealthday  #chronicfatigue  #chronicillness  #spoonie  #spoonielife  #mentalillnessawareness  #mentalillnessrecovery  #edrecovery  #anxietyattack  #fibromyalgia  #fibro  #lupus  #ileostomy  #cancer  #disability  #ehlersdanlossyndrome  #potssyndrome  #autism  #endometriosis  #endowarrior  #depression  #anxiety 
All hanging out.
Covered up.
Tucked in.
.
I definitely don’t hide my stoma away like I thought I would have to. And depending what mood I’m in depends if it makes an appearance or not..
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And I have the comfiest new gym leggings from #adidas which I love!
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#ileostomy #ostomy #stoma #stomabag #ostomylife #ostomyfitness #ostomyawareness #ibd #uc #colitis #ulcerativecolitis #crohnsandcolitis #crohnsandcolitisuk #surgery #recovery #health #positivity #adidas #thisgirlcan #nocolonstillrollin
All hanging out. Covered up. Tucked in. . I definitely don’t hide my stoma away like I thought I would have to. And depending what mood I’m in depends if it makes an appearance or not.. . And I have the comfiest new gym leggings from #adidas  which I love! . . #ileostomy  #ostomy  #stoma  #stomabag  #ostomylife  #ostomyfitness  #ostomyawareness  #ibd  #uc  #colitis  #ulcerativecolitis  #crohnsandcolitis  #crohnsandcolitisuk  #surgery  #recovery  #health  #positivity  #adidas  #thisgirlcan  #nocolonstillrollin 
About to rip off my bag and throw it on the ground then yell "I CAN'T TAKE THIS SHIT ANYMORE!" Blah! It is what it is. Maybe I should change it outside. It's gorgeous today!
About to rip off my bag and throw it on the ground then yell "I CAN'T TAKE THIS SHIT ANYMORE!" Blah! It is what it is. Maybe I should change it outside. It's gorgeous today!
The aftermath of my first solo walk with them since surgery. #IBDSuperHeroes #ostomy #doglife #ucwarrior #cureibd #recovery #bettereveryday #ileostomy #mypups #ibd
My lovely colleagues at DisAbility Cornwall gave me these beautiful flowers as today was my last day working for them. It was the end of my years contract delivering a pilot disability employment program and although I’m sad to leave I’m immensely proud of what I’ve accomplished. This was my first job post surgery and therefore my first job with my ileostomy and I couldn’t have wished for a more supportive employer. Now to apply for another job 😬 #endofanera #newjob #goodbyework #tulips #thankyouflowers #thanksandgoodbye #supportiveemployer #disabilitycharity #disabilitycornwall #disabilityconfident #disabilityconfidentemployer #ileostomy #ileostomyawareness #ileostomygirl
My lovely colleagues at DisAbility Cornwall gave me these beautiful flowers as today was my last day working for them. It was the end of my years contract delivering a pilot disability employment program and although I’m sad to leave I’m immensely proud of what I’ve accomplished. This was my first job post surgery and therefore my first job with my ileostomy and I couldn’t have wished for a more supportive employer. Now to apply for another job 😬 #endofanera  #newjob  #goodbyework  #tulips  #thankyouflowers  #thanksandgoodbye  #supportiveemployer  #disabilitycharity  #disabilitycornwall  #disabilityconfident  #disabilityconfidentemployer  #ileostomy  #ileostomyawareness  #ileostomygirl 
Well this afternoon I popped into town before my hospital appointment.
Mission was a traveling outfit for the lakes. Long distance traveling in a car and jeans drives me mad with an ileostomy. I’m fed up with leggings and most of my comfy clothes I’ve thrown away because they remind me off being sick.
So I bought the softest top and tapered trousers from @marksandspencer felt like nothing was touching my skin. They are brilliant for us ostomates. I’ve added the prices and style numbers on the photos. These are UK style numbers and prices. #ostomyfashion #marksandspencer #taperedtrousers #taperedpants #travelingoutfit #lakedistrict #ileostomy #ileostomystyle #ostomylife #stoma #traveling
Well this afternoon I popped into town before my hospital appointment. Mission was a traveling outfit for the lakes. Long distance traveling in a car and jeans drives me mad with an ileostomy. I’m fed up with leggings and most of my comfy clothes I’ve thrown away because they remind me off being sick. So I bought the softest top and tapered trousers from @marksandspencer felt like nothing was touching my skin. They are brilliant for us ostomates. I’ve added the prices and style numbers on the photos. These are UK style numbers and prices. #ostomyfashion  #marksandspencer  #taperedtrousers  #taperedpants  #travelingoutfit  #lakedistrict  #ileostomy  #ileostomystyle  #ostomylife  #stoma  #traveling 
When the weather is nice and your new PCP is in the same building as a Starbucks... 😉 My previous PCP no longer accepted my insurance as of March, so I had to switch to a different one. I had my first appointment with her today, and she was so sweet! Fun fact: My grandmother (‘Sitou’) is Lebanese, and so is my PCP, so we got to exchange some Arabic phrases! 🇱🇧
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#ostomate #ileostomy #ostomy #stoma #girlswithguts #ostomyawareness #chronicillness #invisibleillness #spoonie #chronicallymotivated #eds #ehlersdanlossyndrome #zebrastrong #asthma #dysautonomia #orthostatichypotension #pots #mastcellactivationsyndrome #endometriosis #endowarrior #klippelfeilsyndrome
When the weather is nice and your new PCP is in the same building as a Starbucks... 😉 My previous PCP no longer accepted my insurance as of March, so I had to switch to a different one. I had my first appointment with her today, and she was so sweet! Fun fact: My grandmother (‘Sitou’) is Lebanese, and so is my PCP, so we got to exchange some Arabic phrases! 🇱🇧 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #ostomate  #ileostomy  #ostomy  #stoma  #girlswithguts  #ostomyawareness  #chronicillness  #invisibleillness  #spoonie  #chronicallymotivated  #eds  #ehlersdanlossyndrome  #zebrastrong  #asthma  #dysautonomia  #orthostatichypotension  #pots  #mastcellactivationsyndrome  #endometriosis  #endowarrior  #klippelfeilsyndrome 
Did you know...? #AlienDay2018 #AliensDay 
#ThursdayThoughts

I think many #IBD sufferers can relate to this! 🙈 @ibdsuperheroes 😚💋 #IBDBatman #IBDSuperheroes #CrohnsDisease #Crohns #CureCrohnsColitis #IBDLife #FundRaising #IBDAwareness #Cure #Crohns #Colitis #Stoma #Ileostomy #TogetherWeAreStronger #InvisibleIllness #sickbutinvisible ~ @ibd_batman
Our customer spotlight today is on Grant. Here's what his mom has to say about Gus Gear: ⠀
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"Thank you so much! I don't think I've worked with a company that has been so helpful before. We are in love with the pouch covers. I can't believe all the details that you put into them. I think this is the first product we've ordered that I haven't found something that could be improved on. ⠀
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You've made this just a little bit easier for us and I can't tell you enough how much you've helped my son.  I am being very honest when I say your covers made something devastating to Grant somehow ok. ⠀
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People truly don't notice his pouch at all, and if they do they think it's a shirt or fanny pack. Nobody has ever guessed what it actually is. He normally keeps his pouch hidden, but he proudly wanted me to take a picture when we got the covers."⠀
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Love hearing these stories from our customers!  Do you have a story you'd like to share with us? Tag us in a post or DM us to be featured!⠀
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#productreview⠀
#GusGearLove #customerspotlight⠀⠀
#qualityoflife #healthcare #vascularaccess #totalparenteralnutrition⠀⠀⠀⠀
#feedingtube #tubie #autism #gusgear #ostomy #dysautonomia #ileostomy#colostomy #centrallines #gtube #chronicillness #shortgutsowhat #shortgutsyndrome #shortgut #broviac #hickman #sbs #raredisease #gastroschisis #hirschsprungsdisease #NEC
Our customer spotlight today is on Grant. Here's what his mom has to say about Gus Gear: ⠀ 🌟⠀ "Thank you so much! I don't think I've worked with a company that has been so helpful before. We are in love with the pouch covers. I can't believe all the details that you put into them. I think this is the first product we've ordered that I haven't found something that could be improved on. ⠀ 🌟 You've made this just a little bit easier for us and I can't tell you enough how much you've helped my son. I am being very honest when I say your covers made something devastating to Grant somehow ok. ⠀ 🌟⠀ People truly don't notice his pouch at all, and if they do they think it's a shirt or fanny pack. Nobody has ever guessed what it actually is. He normally keeps his pouch hidden, but he proudly wanted me to take a picture when we got the covers."⠀ 🌟⠀ Love hearing these stories from our customers! Do you have a story you'd like to share with us? Tag us in a post or DM us to be featured!⠀ 🌟 #productreview ⠀ #GusGearLove  #customerspotlight ⠀⠀ #qualityoflife  #healthcare  #vascularaccess  #totalparenteralnutrition ⠀⠀⠀⠀ #feedingtube  #tubie  #autism  #gusgear  #ostomy  #dysautonomia  #ileostomy #colostomy  #centrallines  #gtube  #chronicillness  #shortgutsowhat  #shortgutsyndrome  #shortgut  #broviac  #hickman  #sbs  #raredisease  #gastroschisis  #hirschsprungsdisease  #NEC 
HURRAY FOR THE FABULOUS BAG COVERS!!! so I posted a picture on my story of my 2 knew lacy bag covers and had lots of people messaging me asking where I got them and how much they loved them like me, so I thought id write a post about them... it's very very difficult with a bag of poo attached to your tummy to feel confident anymore, let alone sexy. what's also such a pain is that most ostomy bag companies (other than the sensura mio grey bags or confidence be by salts)  only have this horrible opaque coloured bag that as soon as you poo or get the bag wet you can see everything you've had to eat for lunch. NOT NICE NOT NICE AT ALL. And if your allergic like me to both of those then you've had it. So let's face it that makes your confidence lack even more. I've tried bag covers before and they've either not fit, had horrible patterns and materials or not had an opening at the bottom. But these babies are perfect. I chose to get a black pair and a white pair, they're both lacy if you scroll through the pictures you can see and have an opening at the bottom so you don't have to remove the entire thing when emptying your dinner! I chose a lacy design as I didn't want them to stand out and draw more attention to the bag and also that all my knickers are lacy so they match perfectly. I've posted pics with high waisted and normal knickers on as I know not everyone wants to wear good old high granny pants but I have to say I prefer it. You can see that whether you wear little pants or big they match and blend in (well as much as a bag on your tummy can blend in). Elaine the lovely lady who made them for me has many different patterns and materials, makes your bag cover to fit and for me posted and made them on the day I ordered. She does a fab deal of 2 for £9 and only £1 delivery. I'm going on holiday soon and as soon as I've picked my bikinis I will me buying more covers to match. To message her and order some yourself go onto Facebook and type in - Elaine's stoma covers. She is a lovely lady and I'm sure if your looking for a certain material or pattern she would be happy to make you one in that. HAPPY SHOPPING GUYS!! #bagcovers #bagshopping #ostomycover #baglady
HURRAY FOR THE FABULOUS BAG COVERS!!! so I posted a picture on my story of my 2 knew lacy bag covers and had lots of people messaging me asking where I got them and how much they loved them like me, so I thought id write a post about them... it's very very difficult with a bag of poo attached to your tummy to feel confident anymore, let alone sexy. what's also such a pain is that most ostomy bag companies (other than the sensura mio grey bags or confidence be by salts) only have this horrible opaque coloured bag that as soon as you poo or get the bag wet you can see everything you've had to eat for lunch. NOT NICE NOT NICE AT ALL. And if your allergic like me to both of those then you've had it. So let's face it that makes your confidence lack even more. I've tried bag covers before and they've either not fit, had horrible patterns and materials or not had an opening at the bottom. But these babies are perfect. I chose to get a black pair and a white pair, they're both lacy if you scroll through the pictures you can see and have an opening at the bottom so you don't have to remove the entire thing when emptying your dinner! I chose a lacy design as I didn't want them to stand out and draw more attention to the bag and also that all my knickers are lacy so they match perfectly. I've posted pics with high waisted and normal knickers on as I know not everyone wants to wear good old high granny pants but I have to say I prefer it. You can see that whether you wear little pants or big they match and blend in (well as much as a bag on your tummy can blend in). Elaine the lovely lady who made them for me has many different patterns and materials, makes your bag cover to fit and for me posted and made them on the day I ordered. She does a fab deal of 2 for £9 and only £1 delivery. I'm going on holiday soon and as soon as I've picked my bikinis I will me buying more covers to match. To message her and order some yourself go onto Facebook and type in - Elaine's stoma covers. She is a lovely lady and I'm sure if your looking for a certain material or pattern she would be happy to make you one in that. HAPPY SHOPPING GUYS!! #bagcovers  #bagshopping  #ostomycover  #baglady 
Repost from @themightysite using @RepostRegramApp - If you're struggling with an invisible illness, it's sometimes easy for others to dismiss what you're going through because "you look healthy" or "you seem OK today."
•••
If you can relate, here's a little message from @bymariandrew who has guillain-barré syndrome, an autoimmune condition: "I’m sending lots of love to everyone with health issues, and a bit of extra love for those struggling with misunderstood/invisible illnesses. It is the most isolating and terrifying thing I’ve been through and I hated every second of it. I’m not a better, stronger or more saintly person for having gone through it, but I am a lot more empathetic to the enormous difficulties of people with disabilities of any sort. I hope the world will become a more hospitable place for everybody of varying abilities. I hope to be a part of it."
•••
#invisibleillness #chronicillness #spoonie #spooniestrong #spoonielife #spooniesunite #spooniesister #chronsdisease #chrons #ileostomy #lymedisease #lymewarrior #lupus #lupuswarrior #fibro #fibrofighter #fibromyalgia #autoimmune #autoimmunedisease #chronicpain #chronicfatigue #ulcerativecolitis #diabetes #ehlersdanlossyndrome #themightysite #ibs #guillianbarresyndrome
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[image description: a drawing of a female wearing a blue shirt with flames on it, on a light blue color block from The Mighty next to a black handwritten speech bubble that says, “You look great!” Underneath, also in black handwritten text, it says, “An invisible illness is like being on fire, the smoke alarm constantly ringing. But the alarm is silent and the flames are camouflage. So why would anyone give up their seat for me?”]
Repost from @themightysite using @RepostRegramApp - If you're struggling with an invisible illness, it's sometimes easy for others to dismiss what you're going through because "you look healthy" or "you seem OK today." ••• If you can relate, here's a little message from @bymariandrew who has guillain-barré syndrome, an autoimmune condition: "I’m sending lots of love to everyone with health issues, and a bit of extra love for those struggling with misunderstood/invisible illnesses. It is the most isolating and terrifying thing I’ve been through and I hated every second of it. I’m not a better, stronger or more saintly person for having gone through it, but I am a lot more empathetic to the enormous difficulties of people with disabilities of any sort. I hope the world will become a more hospitable place for everybody of varying abilities. I hope to be a part of it." ••• #invisibleillness  #chronicillness  #spoonie  #spooniestrong  #spoonielife  #spooniesunite  #spooniesister  #chronsdisease  #chrons  #ileostomy  #lymedisease  #lymewarrior  #lupus  #lupuswarrior  #fibro  #fibrofighter  #fibromyalgia  #autoimmune  #autoimmunedisease  #chronicpain  #chronicfatigue  #ulcerativecolitis  #diabetes  #ehlersdanlossyndrome  #themightysite  #ibs  #guillianbarresyndrome  ******************** [image description: a drawing of a female wearing a blue shirt with flames on it, on a light blue color block from The Mighty next to a black handwritten speech bubble that says, “You look great!” Underneath, also in black handwritten text, it says, “An invisible illness is like being on fire, the smoke alarm constantly ringing. But the alarm is silent and the flames are camouflage. So why would anyone give up their seat for me?”]
Be kind to yourselves! If all you can do is sit up in bed today, I am proud of you! That may be all you can do today, but you did it. Celebrate the small milestones, and take the good with the bad. 💜 #chronicillness #crohnsdisease #autoimmuneawareness #takestepsforcrohnsandcolitis #spoonie #ileostomy #feedingtube
Finally getting used to looking at myself in the mirror and seeing my bag. I typically “free bag” it when I’m at home but almost always wear my @stealthbelt when I’m out in public. The extra support and leakage protection the #stealthbelt provides is incredibly confidence inspiring. Definitely going to order a second one soon so that I always have one available to wear when one is in the wash. #nocolonstillrollin #colitis #ileostomy #ostomy #ostomyproblems #ulcerativecolitis #nocolonstillrollin #bodypositivity #loveyourbody #baglife
Finally getting used to looking at myself in the mirror and seeing my bag. I typically “free bag” it when I’m at home but almost always wear my @stealthbelt when I’m out in public. The extra support and leakage protection the #stealthbelt  provides is incredibly confidence inspiring. Definitely going to order a second one soon so that I always have one available to wear when one is in the wash. #nocolonstillrollin  #colitis  #ileostomy  #ostomy  #ostomyproblems  #ulcerativecolitis  #nocolonstillrollin  #bodypositivity  #loveyourbody  #baglife 
Having an ostomy means... End this sentence in the least amount of words!
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To me having an ostomy means FREEDOM 💜
Having an ostomy means... End this sentence in the least amount of words! . . To me having an ostomy means FREEDOM 💜
Holy guacamole! She's gonna blow!!! 😂🤣😂☄ first time in I think 8 months I have slept through the night! Cracks me up though.. it catches all of Frankees farts 😂🤣 Frankee is definetly more active during the night and so clever she can blow up a balloon 🎈🎈🎈🎈
- shared from @emma_uc_warrior

#ostomate #ibdwarrior #barbiebum #nocolonstillrollin #ileostomy #stoma #frankeethestoma #ibd #ibdawareness #spoonie #inflammatoryboweldisease #colitis #ulcerativecolitis #ibdawareness #ibdsuperheroes#Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #InflammatoryBowelDisease #CureIBD #IBDawareness #IBDproblems #IBDwarrior #IBDfighter #IBDproblems - #regrann
Holy guacamole! She's gonna blow!!! 😂🤣😂☄ first time in I think 8 months I have slept through the night! Cracks me up though.. it catches all of Frankees farts 😂🤣 Frankee is definetly more active during the night and so clever she can blow up a balloon 🎈🎈🎈🎈 - shared from @emma_uc_warrior #ostomate  #ibdwarrior  #barbiebum  #nocolonstillrollin  #ileostomy  #stoma  #frankeethestoma  #ibd  #ibdawareness  #spoonie  #inflammatoryboweldisease  #colitis  #ulcerativecolitis  #ibdawareness  #ibdsuperheroes #Crohns  #Colitis  #IBD  #CrohnsDisease  #UlcerativeColitis  #InflammatoryBowelDisease  #CureIBD  #IBDawareness  #IBDproblems  #IBDwarrior  #IBDfighter  #IBDproblems  - #regrann 
Repost @svyatoslav.semenets
by @media.repost:
Точный диагноз Святославу поставили не сразу. Впервые его прооперировали через сутки после рождения, (т.е. 26 декабря 2015 г), тогда же взяли образцы кишки на гистологию. Но впереди были новогодние и рождественские каникулы, так что заключение из патлаборатории мы ждали почти две недели. Наверно поэтому, сразу после операции я мало догадывалась об необходимости долгосрочного парентерального питания и перспективе провести в стационаре Охматдета следующие 14 месяцев.
Больше всего, в тот период, меня шокировало знакомство с илестомой - отрезком кишки, выведенным прямо на живот. Фактически, это искуственный задний проход, через который происходит опорожнение кишечника. Только в отличии от естественного анального отверстия, у стомы нет никаких сфинктеров, стомированные люди не чувствуют позывов к опорожнению и не могут контролировать этот процесс. Чем короче участок кишки, выведенный на стому, тем более жидкий стул, а в случае Святослава, он вообще очень жидкий и частый, а при попадании на кожу вызывает ожеги.
Вы ведь знаете, что желудочный сок по большей части состоит из соляной кислоты? Проходя через полный цикл пищеварения она нейтрализуется, но не в короткой кишке Святослава. Попадая на его живот, соляная кислота разъедает детскую нежную кожу до язв. Мы используем специальные защитные мази, чтобы хоть как-то предотвратить этот процесс. Они наносятся вокруг стомы, под мешочек-калоприемник. Раз в сутки (а иногда и чаще) мешочек приходится менять на новый, каждый раз обрабатывая ранки новой порцией лечебной пасты. Со временем Святик привык к такой весьма неприятной процедуре и переносит ее практически без слез.
Кроме илеостомы у нашего мальчика еще выведена гастростома - отверстие из желудка. Если вам интересно, я напишу в следующем посте о ее функции и сложностях ухода.

#помочьСвятославу #Святикхочетжить  #ileostomy
🔸 Святослав Семенец, 2 года
🔸 24.12.2015 г.р.
🔸️ г. Киев, Украина
🔸 Диагноз - синдром короткой кишки, синдром мальабсорбции, спаечная болезнь.
🔸 Сбор на операцию по закрытию стомы в клинике Bnai-Zion, Израиль
💶Сумма сбора - 42000 евро
💶Осталось собрать - 32362,53 евро
⏳Срок сбора до 31.05.2018

Рекви
Repost @svyatoslav.semenets by @media.repost: Точный диагноз Святославу поставили не сразу. Впервые его прооперировали через сутки после рождения, (т.е. 26 декабря 2015 г), тогда же взяли образцы кишки на гистологию. Но впереди были новогодние и рождественские каникулы, так что заключение из патлаборатории мы ждали почти две недели. Наверно поэтому, сразу после операции я мало догадывалась об необходимости долгосрочного парентерального питания и перспективе провести в стационаре Охматдета следующие 14 месяцев. Больше всего, в тот период, меня шокировало знакомство с илестомой - отрезком кишки, выведенным прямо на живот. Фактически, это искуственный задний проход, через который происходит опорожнение кишечника. Только в отличии от естественного анального отверстия, у стомы нет никаких сфинктеров, стомированные люди не чувствуют позывов к опорожнению и не могут контролировать этот процесс. Чем короче участок кишки, выведенный на стому, тем более жидкий стул, а в случае Святослава, он вообще очень жидкий и частый, а при попадании на кожу вызывает ожеги. Вы ведь знаете, что желудочный сок по большей части состоит из соляной кислоты? Проходя через полный цикл пищеварения она нейтрализуется, но не в короткой кишке Святослава. Попадая на его живот, соляная кислота разъедает детскую нежную кожу до язв. Мы используем специальные защитные мази, чтобы хоть как-то предотвратить этот процесс. Они наносятся вокруг стомы, под мешочек-калоприемник. Раз в сутки (а иногда и чаще) мешочек приходится менять на новый, каждый раз обрабатывая ранки новой порцией лечебной пасты. Со временем Святик привык к такой весьма неприятной процедуре и переносит ее практически без слез. Кроме илеостомы у нашего мальчика еще выведена гастростома - отверстие из желудка. Если вам интересно, я напишу в следующем посте о ее функции и сложностях ухода. #помочьСвятославу  #Святикхочетжить  #ileostomy  🔸 Святослав Семенец, 2 года 🔸 24.12.2015 г.р. 🔸️ г. Киев, Украина 🔸 Диагноз - синдром короткой кишки, синдром мальабсорбции, спаечная болезнь. 🔸 Сбор на операцию по закрытию стомы в клинике Bnai-Zion, Израиль 💶Сумма сбора - 42000 евро 💶Осталось собрать - 32362,53 евро ⏳Срок сбора до 31.05.2018 Рекви
Seriously considering running the Chicago #rocknrollhalfmarathon in July with friends, so either this was Day 1 of training with @rochellefitnessdance from @aaptiv  or just a fun purple themed run.
No fundraising or #teamchallenge for this one, I just want to see if I can get to half marathon shape without injury and muscle issues and have fun.
#runningwithcrohns #ileostomate #ileostomy #ostomyrunner
@euphoria_mag is live!! Big welldone to @lilyraine97 for all her hard work in not just creating a magazing for IBD awareness and ostomies but for bringing people together. Wishing you every success 💜 #ibdawareness #ibdmagazine #ileostomy #colostomy #crohnsandcolitis #ibd #stoma #ostomy #ostomate #ostomyfashion
So here it is the new Euphoria ostomy magazine, now live online today, take a look, www.euphoriamag.co.uk #ostomy #euphoria #magazine #ostomyawareness #ostomybag #ostomate #ostomyfashion #ostomates #ostomylife #fashion #colostomy #urostomy #ileostomy #crohns #crohnsdisease #colitis #bowelcancer #ibd #riverisland #topshop
This will either love me or hate me with being a ostomate. Oh heck beans on seeded toasted! So fancy it for lunch. 
I’m so experimenting with food at the moment because I’m so fed up of a ileostomy diet of rubbish. #beansontoast #ileostomy #ileostomylife #stoma #balanceddiet #gettingbackontrack #startingtolovefoodagain #ostomate #food #lunch
Would you know to look at me that I have an ileostomy? Probably not because clothes hide a multitude of "sins" as the saying goes. Not that I think my stoma is a sin as it gave me my life back, allowed me to fall pregnant again. The same goes with make up. Can you tell that I'm sick? That I have pain more than no pain? That I suffer with my mental health?  Again probably not. You are recommended to not judge a book by its cover and you shouldn't with a person #bagwhatbag #ileostomy #patientadvocate #blogger #ostolady #chronicallysick #mentalhealthawareness
Would you know to look at me that I have an ileostomy? Probably not because clothes hide a multitude of "sins" as the saying goes. Not that I think my stoma is a sin as it gave me my life back, allowed me to fall pregnant again. The same goes with make up. Can you tell that I'm sick? That I have pain more than no pain? That I suffer with my mental health? Again probably not. You are recommended to not judge a book by its cover and you shouldn't with a person #bagwhatbag  #ileostomy  #patientadvocate  #blogger  #ostolady  #chronicallysick  #mentalhealthawareness 
It just pains me that there are people out there that judge us and not weigh the situations we have been in and endured. For example, I had a boss that would ride people with special needs and handicaps because he believed that they are using their handicap as a “crutch” and that they’re faking it to get out of certain jobs at work and he rode me because of my illness and felt that I was gonna end up doing the same thing which I would never EVER do unless I truly don’t feel well then I’ll give my voice about it and believe me, despite my indomitable toughness, if I say I don’t feel good, then you better believe it! Also, I had an ex-friend that would sit back and say stupid things like “Aw, you don’t look sick!” or “Aw, you’re not tired! You can’t be tired! You work the same hours as me and I’m not tired!” It’s sad that some people just don’t understand that we have a chronic invisible illness that puts on the extra burden and wears us out quicker than the average person and then to belittle us for it?  That really just flat out annoys me!!! It’s people like that we need to cut out of our lives and move on because all they’re gonna do is drag us down and we don’t need the extra stress that we are already dealing with. 💜
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#strength #stayingstrong #willpower #strongwill #crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife #ostomyawareness
It just pains me that there are people out there that judge us and not weigh the situations we have been in and endured. For example, I had a boss that would ride people with special needs and handicaps because he believed that they are using their handicap as a “crutch” and that they’re faking it to get out of certain jobs at work and he rode me because of my illness and felt that I was gonna end up doing the same thing which I would never EVER do unless I truly don’t feel well then I’ll give my voice about it and believe me, despite my indomitable toughness, if I say I don’t feel good, then you better believe it! Also, I had an ex-friend that would sit back and say stupid things like “Aw, you don’t look sick!” or “Aw, you’re not tired! You can’t be tired! You work the same hours as me and I’m not tired!” It’s sad that some people just don’t understand that we have a chronic invisible illness that puts on the extra burden and wears us out quicker than the average person and then to belittle us for it? That really just flat out annoys me!!! It’s people like that we need to cut out of our lives and move on because all they’re gonna do is drag us down and we don’t need the extra stress that we are already dealing with. 💜 . #strength  #stayingstrong  #willpower  #strongwill  #crohns  #crohnsdisease  #crohnscolitis  #ileostomy  #ostomy  #ostomate  #colitis  #ulcerativecolitis  #ibd  #ibdsucks  #ibdwarrior  #crohnswarrior  #irritablebowelsyndrome  #inflammatoryboweldisease  #ulcerativecolitiswarrior  #ucwarrior  #chronicillness  #invisibleillness  #superstoma  #stomalife  #ostomyawareness 
Babies first BodyLine shoes!! I can’t wait for my JSK to get here so I can do my first Lolita coord!!🍓☀️
Babies first BodyLine shoes!! I can’t wait for my JSK to get here so I can do my first Lolita coord!!🍓☀️
Outfit of the day! I was given this top by my sister. Unsure which brand it is because she has cut the label from the back of it.
It is a absolutely amazing top with a ostomy bag. You can wear it loose or with a belt to make it into a pendulum top. I’m wearing it loose today. Plus in current colours mustard and green. 
My high waisted super skinny jeans from M&S which are a stretch material.
Ballet pumps are new look not current collect. 
Embrace your ostomy bag with style and love.
#ostomyfashion #ostomybag #ostomy #ostomate #ileostomy #ileostomybag #fashion #happiness #love #outfitoftheday #marksandspencer #newlook
Outfit of the day! I was given this top by my sister. Unsure which brand it is because she has cut the label from the back of it. It is a absolutely amazing top with a ostomy bag. You can wear it loose or with a belt to make it into a pendulum top. I’m wearing it loose today. Plus in current colours mustard and green. My high waisted super skinny jeans from M&S which are a stretch material. Ballet pumps are new look not current collect. Embrace your ostomy bag with style and love. #ostomyfashion  #ostomybag  #ostomy  #ostomate  #ileostomy  #ileostomybag  #fashion  #happiness  #love  #outfitoftheday  #marksandspencer  #newlook 
Bought an eye mask ready for my hospital stay! I sleep well at home due to my meds, but in hospital they don't always give me my full dose after a general anaesthetic which makes sleeping harder, especially when lights keep turning on so nurses can attend to patients during the night. Hoping this mask helps!
#sleepmask #eyemask #sleep #hospital #ileostomy #Surgery
Bought an eye mask ready for my hospital stay! I sleep well at home due to my meds, but in hospital they don't always give me my full dose after a general anaesthetic which makes sleeping harder, especially when lights keep turning on so nurses can attend to patients during the night. Hoping this mask helps! #sleepmask  #eyemask  #sleep  #hospital  #ileostomy  #Surgery 
I encountered a bit of an "issue" last night. An issue I 100% created, I might add. I wanted to put a few drops of baby oil into my bag as my output was pancaking, but I spilt the oil and it ended up all over the front of my bag instead 🤦🏼‍♀️
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Cue an 11pm impromptu bag change just before bed. Right when Steve was super active & going off every minute! It's very much 🚨PANIC STATIONS🚨 when this happens. A race against time to get it all done before he starts pooing again. I feel like I'm on a game show where I have to complete a task against the clock 😂 luckily, I timed it just right and Steve was kind enough to let me get through it... Just! I'll definitely stick to morning bag changes in future 🙄
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#BagChange #Output #Pancaking #StomaProblems #Ileostomy #Stoma #DontPanic #Ostomy #Ostomate #ChronicIllness #DailyRoutine #IBD #IBDWarrior #Crohns #Colitis
I encountered a bit of an "issue" last night. An issue I 100% created, I might add. I wanted to put a few drops of baby oil into my bag as my output was pancaking, but I spilt the oil and it ended up all over the front of my bag instead 🤦🏼‍♀️ . . Cue an 11pm impromptu bag change just before bed. Right when Steve was super active & going off every minute! It's very much 🚨PANIC STATIONS🚨 when this happens. A race against time to get it all done before he starts pooing again. I feel like I'm on a game show where I have to complete a task against the clock 😂 luckily, I timed it just right and Steve was kind enough to let me get through it... Just! I'll definitely stick to morning bag changes in future 🙄 . . #BagChange  #Output  #Pancaking  #StomaProblems  #Ileostomy  #Stoma  #DontPanic  #Ostomy  #Ostomate  #ChronicIllness  #DailyRoutine  #IBD  #IBDWarrior  #Crohns  #Colitis 
Feeling #Sassy AF. ———————————————————————
So ladies & gents today is the day! ✨ EUPHORIA IS LIVE ✨ LINK IN THEIR BIO ➡️➡️➡️
#Modelling for @lilyraine97 was one of the best days of my life so far (I don’t get out much) 🙌 Well done @lilyraine97 for hiding the fact I’m a #hobbit-sized human, & that I was sh*tting bricks to be in front of the #camera 💁🏼‍♀️ It’s a huge leap for #stoma #gals & #guys! And getting it out there in the #RealWorld 👯‍♀️ Talking about it (or get your kit off for it) is another step to making our #unconventional bodies, #conventional 💜———————————————————————
THE LINK IS IN THEIR BIO 🥀 GO & HAVE A LOOKSIE & TELL ME WHAT YOU THINK MY LOVELY INSTA FAMALAM 💜 All credit for this 📸 goes to @euphoria_mag & @lilyraine97
Feeling #Sassy  AF. ——————————————————————— So ladies & gents today is the day! ✨ EUPHORIA IS LIVE ✨ LINK IN THEIR BIO ➡️➡️➡️ #Modelling  for @lilyraine97 was one of the best days of my life so far (I don’t get out much) 🙌 Well done @lilyraine97 for hiding the fact I’m a #hobbit -sized human, & that I was sh*tting bricks to be in front of the #camera  💁🏼‍♀️ It’s a huge leap for #stoma  #gals  & #guys ! And getting it out there in the #RealWorld  👯‍♀️ Talking about it (or get your kit off for it) is another step to making our #unconventional  bodies, #conventional  💜——————————————————————— THE LINK IS IN THEIR BIO 🥀 GO & HAVE A LOOKSIE & TELL ME WHAT YOU THINK MY LOVELY INSTA FAMALAM 💜 All credit for this 📸 goes to @euphoria_mag & @lilyraine97
First week back at work after 9 months recovery from my body turning on me and trying to kill me and I’m exhausted! Praying that a red cardigan and a full face of makeup will give me a ‘lift’ and mask the tiredness. Just hope the #moonface goes soon. #asthmakills #asthma #ileostomy #ostomate #hypermobilityspectrumdisorder #zebra #steroidface
Messy but tasty bowl today oat bran #porridge made with the rest of yesterday’s #smoothie and topped with banana, blueberries and coconut #ileostomy #healthyeating #ostomate #hypermobilityspectrumdisorder #asthma #yum #zebra #freshfood #freshfruit
We go live tonight at 8pm GMT over on YouTube for #theibdandostomysupportshow 
We are talking about life after stoma surgery and what we have been up to in our two week break.

Look forward to seeing you all and don't forget to say hi on the chat. We always like to hear your views and stories and can read them out on the show!

#live #youtube #stoma #ostomy #ibd #ileostomy #urostomy #colostomy #crohnsdisease #ulcerativecolitis #interactive
That feeling when you're ready for surgery and looking great! 😂
That feeling when you're ready for surgery and looking great! 😂
Huge shout out to this guy!! I get a lot of people messaging me about ibd for children and what it must be like. This guy right here is truly inspirational, dealing with everything from such a young age and still battling on today! Huge props buddy.
Read his story below 💪❤ @euanriby
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My problems started back in 2010 when I was 13 everything I ate went straight through me and I started seeing blood in the toilet it all went down hill very quickly, I went to hospital and had numerous tests and had to have surgery the next day, they took my whole large bowel out, I came out 7 hours later with a  ileostomy bag and tubes everywhere left hospital weighing 5 and a half stone.
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I didn’t want a bag at that age so I wanted it reversed, that failed so I decided to have it for the restOf my life and I’ve had a much better lifestyle, 
The most I ever weighed was 14.6 stone, I’m now 11.13 and I feel the best I ever have!
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When I get back to London I'll start doing more of my vlog and more about me haha.
Huge shout out to this guy!! I get a lot of people messaging me about ibd for children and what it must be like. This guy right here is truly inspirational, dealing with everything from such a young age and still battling on today! Huge props buddy. Read his story below 💪❤ @euanriby . . My problems started back in 2010 when I was 13 everything I ate went straight through me and I started seeing blood in the toilet it all went down hill very quickly, I went to hospital and had numerous tests and had to have surgery the next day, they took my whole large bowel out, I came out 7 hours later with a ileostomy bag and tubes everywhere left hospital weighing 5 and a half stone. . . I didn’t want a bag at that age so I wanted it reversed, that failed so I decided to have it for the restOf my life and I’ve had a much better lifestyle, The most I ever weighed was 14.6 stone, I’m now 11.13 and I feel the best I ever have! . When I get back to London I'll start doing more of my vlog and more about me haha.
EUPHORIA IS NOW LIVE - I suggest to view on a laptop/iPad for better quality and layout. 🥂🎉
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Just want to say a massive thank you to everyone for being so supportive welcoming me into the stoma community. Together we will break that taboo about poo!
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Special thanks to all my models giving up their time to help me achieve my goal. Also all the team that had helped with creating the magazine! Honestly so overwhelmed with the amount of interested there has been.
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PLEASE NOTE: Everything on the magazine is suggestive and recommended, I understand everyone is different with their stoma so nothing is defiant, although I hope it can at least someone in one way or another. Also as this is still currently a university project I can not change anything until I get the results back. Hope you can all understand! ———————————————
Thanks again 💖 hope to hear your feedback soon. With love x
EUPHORIA IS NOW LIVE - I suggest to view on a laptop/iPad for better quality and layout. 🥂🎉 ——————————————— Just want to say a massive thank you to everyone for being so supportive welcoming me into the stoma community. Together we will break that taboo about poo! ——————————————— Special thanks to all my models giving up their time to help me achieve my goal. Also all the team that had helped with creating the magazine! Honestly so overwhelmed with the amount of interested there has been. ——————————————— PLEASE NOTE: Everything on the magazine is suggestive and recommended, I understand everyone is different with their stoma so nothing is defiant, although I hope it can at least someone in one way or another. Also as this is still currently a university project I can not change anything until I get the results back. Hope you can all understand! ——————————————— Thanks again 💖 hope to hear your feedback soon. With love x
Repost from @svyatoslav.semenets @TopRankRepost #TopRankRepost Точный диагноз Святославу поставили не сразу. Впервые его прооперировали через сутки после рождения, (т.е. 26 декабря 2015 г), тогда же взяли образцы кишки на гистологию. Но впереди были новогодние и рождественские каникулы, так что заключение из патлаборатории мы ждали почти две недели. Наверно поэтому, сразу после операции я мало догадывалась об необходимости долгосрочного парентерального питания и перспективе провести в стационаре Охматдета следующие 14 месяцев.
Больше всего, в тот период, меня шокировало знакомство с илестомой - отрезком кишки, выведенным прямо на живот. Фактически, это искуственный задний проход, через который происходит опорожнение кишечника. Только в отличии от естественного анального отверстия, у стомы нет никаких сфинктеров, стомированные люди не чувствуют позывов к опорожнению и не могут контролировать этот процесс. Чем короче участок кишки, выведенный на стому, тем более жидкий стул, а в случае Святослава, он вообще очень жидкий и частый, а при попадании на кожу вызывает ожеги.
Вы ведь знаете, что желудочный сок по большей части состоит из соляной кислоты? Проходя через полный цикл пищеварения она нейтрализуется, но не в короткой кишке Святослава. Попадая на его живот, соляная кислота разъедает детскую нежную кожу до язв. Мы используем специальные защитные мази, чтобы хоть как-то предотвратить этот процесс. Они наносятся вокруг стомы, под мешочек-калоприемник. Раз в сутки (а иногда и чаще) мешочек приходится менять на новый, каждый раз обрабатывая ранки новой порцией лечебной пасты. Со временем Святик привык к такой весьма неприятной процедуре и переносит ее практически без слез.
Кроме илеостомы у нашего мальчика еще выведена гастростома - отверстие из желудка. Если вам интересно, я напишу в следующем посте о ее функции и сложностях ухода.

#помочьСвятославу #Святикхочетжить  #ileostomy
🔸 Святослав Семенец, 2 года
🔸 24.12.2015 г.р.
🔸️ г. Киев, Украина
🔸 Диагноз - синдром короткой кишки, синдром мальабсорбции, спаечная болезнь.
🔸 Сбор на операцию по закрытию стомы в клинике Bnai-Zion, Израиль
💶Сумма сбора - 42000 евро
💶Осталось собрать - 32362,53 евро
Repost from @svyatoslav.semenets @TopRankRepost #TopRankRepost  Точный диагноз Святославу поставили не сразу. Впервые его прооперировали через сутки после рождения, (т.е. 26 декабря 2015 г), тогда же взяли образцы кишки на гистологию. Но впереди были новогодние и рождественские каникулы, так что заключение из патлаборатории мы ждали почти две недели. Наверно поэтому, сразу после операции я мало догадывалась об необходимости долгосрочного парентерального питания и перспективе провести в стационаре Охматдета следующие 14 месяцев. Больше всего, в тот период, меня шокировало знакомство с илестомой - отрезком кишки, выведенным прямо на живот. Фактически, это искуственный задний проход, через который происходит опорожнение кишечника. Только в отличии от естественного анального отверстия, у стомы нет никаких сфинктеров, стомированные люди не чувствуют позывов к опорожнению и не могут контролировать этот процесс. Чем короче участок кишки, выведенный на стому, тем более жидкий стул, а в случае Святослава, он вообще очень жидкий и частый, а при попадании на кожу вызывает ожеги. Вы ведь знаете, что желудочный сок по большей части состоит из соляной кислоты? Проходя через полный цикл пищеварения она нейтрализуется, но не в короткой кишке Святослава. Попадая на его живот, соляная кислота разъедает детскую нежную кожу до язв. Мы используем специальные защитные мази, чтобы хоть как-то предотвратить этот процесс. Они наносятся вокруг стомы, под мешочек-калоприемник. Раз в сутки (а иногда и чаще) мешочек приходится менять на новый, каждый раз обрабатывая ранки новой порцией лечебной пасты. Со временем Святик привык к такой весьма неприятной процедуре и переносит ее практически без слез. Кроме илеостомы у нашего мальчика еще выведена гастростома - отверстие из желудка. Если вам интересно, я напишу в следующем посте о ее функции и сложностях ухода. #помочьСвятославу  #Святикхочетжить  #ileostomy  🔸 Святослав Семенец, 2 года 🔸 24.12.2015 г.р. 🔸️ г. Киев, Украина 🔸 Диагноз - синдром короткой кишки, синдром мальабсорбции, спаечная болезнь. 🔸 Сбор на операцию по закрытию стомы в клинике Bnai-Zion, Израиль 💶Сумма сбора - 42000 евро 💶Осталось собрать - 32362,53 евро
Didn't sleep to well last night insides are having a riot. Just realised to my horror it is my morning school run time and doing the walk of what in the hell is she wearing 🙈🙈. Straight to the gym after... The added perks of working from home means I can slack off until I feel like it. Time to see if endorphins help with the cramps?!?! #diet2018 #ileostomy #ostomydiet #weightloss #ostomyblogger #stomalife #ostomates #crohnslife #crohns #autoimmunedisease #advocate #sepsissurvivor #sepsis #dryeyes #psoriasis #gymclothes #gymbunny
Didn't sleep to well last night insides are having a riot. Just realised to my horror it is my morning school run time and doing the walk of what in the hell is she wearing 🙈🙈. Straight to the gym after... The added perks of working from home means I can slack off until I feel like it. Time to see if endorphins help with the cramps?!?! #diet2018  #ileostomy  #ostomydiet  #weightloss  #ostomyblogger  #stomalife  #ostomates  #crohnslife  #crohns  #autoimmunedisease  #advocate  #sepsissurvivor  #sepsis  #dryeyes  #psoriasis  #gymclothes  #gymbunny 
When you have what feels like a monumental afternoon of places you need to be and people you need to see and all you want to do is lie in bed with a tea and hot water bottle 🙄
Since having surgery, I am finding it tiring to get back into socialising. It feels hard even though I mostly enjoy myself when I am actually there. Hoping this is a normal phase and that as my energy increases and confidence grows again, it doesn't feel so big to have to see people and be places. 
Anyone else feel the same?
When you have what feels like a monumental afternoon of places you need to be and people you need to see and all you want to do is lie in bed with a tea and hot water bottle 🙄 Since having surgery, I am finding it tiring to get back into socialising. It feels hard even though I mostly enjoy myself when I am actually there. Hoping this is a normal phase and that as my energy increases and confidence grows again, it doesn't feel so big to have to see people and be places. Anyone else feel the same?
I'm quickly learning that 1am bag change hot dates are a part of life with Stan... At least this time he didn't poo on me during the process!! 💩😂 If you look real close you can see I'm still smiling...and that Lil Fuzz had to be in on the action 😊🐈 #stomalife #lovemystoma #3weekspostop #ileostomy #crohnswarrior #barbiebutt
I'm quickly learning that 1am bag change hot dates are a part of life with Stan... At least this time he didn't poo on me during the process!! 💩😂 If you look real close you can see I'm still smiling...and that Lil Fuzz had to be in on the action 😊🐈 #stomalife  #lovemystoma  #3weekspostop  #ileostomy  #crohnswarrior  #barbiebutt