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Look at this cute shirt my auntie Brenda gave me (along with an adorable matching tutu and hat🙌🏼) #SavannahLanier you make this #SesameStreet shirt look the best 💙💚💛🧡❤️
Thank you @brenda_l_ford .
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#Birthday #kidsofinstagram #ChangingTheFaceOfBeauty #NothingDownAboutIt #Dsdn #IWillShoutYourWorth #MoreAlikeThanDifferent
JR’s early intervention teacher recommended this black board to make colored objects stand out more...and man does it work!! He loves the colors! #dsdn #upsyndrome #nothingdownaboutit #downsyndrome #downsyndromeawareness #theluckyfew
I had the privilege of connecting with Taylor Gardner, Founder and CEO of @thegardenfoundationlv Please follow all of the amazing things she and her team are doing to provide meaningful opportunities for individuals with special needs in her community. It was a pleasure getting to hear all she has planned for this foundation. Truly impactful!!! It’s always a great conversation in talking with another sibling! 
www.thegardenfoundationlv.org
I had the privilege of connecting with Taylor Gardner, Founder and CEO of @thegardenfoundationlv Please follow all of the amazing things she and her team are doing to provide meaningful opportunities for individuals with special needs in her community. It was a pleasure getting to hear all she has planned for this foundation. Truly impactful!!! It’s always a great conversation in talking with another sibling! www.thegardenfoundationlv.org
We had such a pretty weekend so we spent most of it outside! Adley loved it! She is definitely an outside girl! Swipe >>> to see Adley holding the cutest baby turtle!! 🐢🤗😍🌞 .
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Onesie from @countadventuresnotchromosomes 💙 
Bow from @alohabowss use code baseball10 to save 💗
We had such a pretty weekend so we spent most of it outside! Adley loved it! She is definitely an outside girl! Swipe >>> to see Adley holding the cutest baby turtle!! 🐢🤗😍🌞 . . . Onesie from @countadventuresnotchromosomes 💙 Bow from @alohabowss use code baseball10 to save 💗
Just another reason to smile on this Monday afternoon 💙💛 Thanks for sharing @extra_exton 💙💛 Up Syndrome (in blue and yellow). Available in all sizes. Link in profile👆🏻
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#alilsomethingextra #ds #t21 #321 #downsyndrome  #upsyndrome #theluckyfew #morealikethandifferent #changingthefaceofbeauty #t21love #lifeisbetterwithyou #nothingdownaboutit #t21awareness #rockthe21 #rockin #rockinit #photooftheday #dsdn #dsrocks #downsyndromeawareness #teamds #downsyndromelove #extrachromosome #specialneeds #downsyndromerocks
Just another reason to smile on this Monday afternoon 💙💛 Thanks for sharing @extra_exton 💙💛 Up Syndrome (in blue and yellow). Available in all sizes. Link in profile👆🏻 . . . #alilsomethingextra  #ds  #t21  #321  #downsyndrome  #upsyndrome  #theluckyfew  #morealikethandifferent  #changingthefaceofbeauty  #t21love  #lifeisbetterwithyou  #nothingdownaboutit  #t21awareness  #rockthe21  #rockin  #rockinit  #photooftheday  #dsdn  #dsrocks  #downsyndromeawareness  #teamds  #downsyndromelove  #extrachromosome  #specialneeds  #downsyndromerocks 
Myah will be needing her lip cut after all. She is going to be numb and have a slight sedative to have her lip clipped. A couple stitches, she will be a little sore but nothing major. We are waiting for a call to set everything up. .
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#2moms #321 #extrachromosomeextracute #trisomy21 #t21 #morealikethandifferet #trisomy21love #downsyndrome #downsyndromeawareness #downsyndromelove  #like #twomoms #downrightperfect #nothingdownaboutit #toddlerswithstyle #toddlersofinstagram #myahnicoleflores #theluckyfew #dsdn #changingthefaceofbeauty #brandrep #momlife #momblogger #momarazzi #motherhood #motherhoodunplugged #vscomom #bloggermom
Myah will be needing her lip cut after all. She is going to be numb and have a slight sedative to have her lip clipped. A couple stitches, she will be a little sore but nothing major. We are waiting for a call to set everything up. . . . . . . #2moms  #321  #extrachromosomeextracute  #trisomy21  #t21  #morealikethandifferet  #trisomy21love  #downsyndrome  #downsyndromeawareness  #downsyndromelove  #like  #twomoms  #downrightperfect  #nothingdownaboutit  #toddlerswithstyle  #toddlersofinstagram  #myahnicoleflores  #theluckyfew  #dsdn  #changingthefaceofbeauty  #brandrep  #momlife  #momblogger  #momarazzi  #motherhood  #motherhoodunplugged  #vscomom  #bloggermom 
Adulting 😊 and I’m nailing iiiiiit. 😄 What makes you feel like you’ve adulted today?
 #nailedit #adulting
Adulting 😊 and I’m nailing iiiiiit. 😄 What makes you feel like you’ve adulted today? #nailedit  #adulting 
Looking for Waldo🔎
Looking for Waldo🔎
So ABA was cancelled today. But sissy is stepping to do some pretend play. She is the only one who gets Peanut to engage in not only toys but her. Peanut adores Jaylen and I am so proud of the young lady she is becoming!
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#peanut #bigsissy #jaylen #sisters #foreverfriends #bestfriends #pretendplay #downsyndrome #autism #theluckyfew #t21 #dsdn
We do lots of free play around our house, but I also try to set aside time each day for working on target goals for Hazel. I can usually sneak this work into play but sometimes it looks like flash cards and sitting still for a bit. This is hard for me - as an early childhood educator I’m all about PLAY and lots of it, and doing flash cards and having a two year old sit to work goes a bit against my instinct as a teacher! BUT!! Hazel makes some big strides during structured therapy time - both with me and with our in home and outpaitent therapists! We recently started a new at home speech program and these photos are from our session this morning working on blending sounds. I try to keep things fun, with lots of high fives and praise during tough activities, and breaking them up with things she likes - like putting cards in boxes and singing songs. I’m still struggling to find a good balance of messy hands on play and more structured activities and I think that’s ok! .
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My friend Emily shared this speech program with me. She is a speech and language pathologist who also has a toddler with Down syndrome. She’s been sharing tons of speech tips at @togetherweebloom - and if you are working on speech with your little one, I highly recommend following her! . .

#dsdn #theluckyfew #morealikethandifferent #upsyndrome #nothingdownaboutit #downsyndromeawareness #changingthefaceofbeauty #instacute #speechtherapy #downsyndromeeducationinternational #seeandlearn
We do lots of free play around our house, but I also try to set aside time each day for working on target goals for Hazel. I can usually sneak this work into play but sometimes it looks like flash cards and sitting still for a bit. This is hard for me - as an early childhood educator I’m all about PLAY and lots of it, and doing flash cards and having a two year old sit to work goes a bit against my instinct as a teacher! BUT!! Hazel makes some big strides during structured therapy time - both with me and with our in home and outpaitent therapists! We recently started a new at home speech program and these photos are from our session this morning working on blending sounds. I try to keep things fun, with lots of high fives and praise during tough activities, and breaking them up with things she likes - like putting cards in boxes and singing songs. I’m still struggling to find a good balance of messy hands on play and more structured activities and I think that’s ok! . . . My friend Emily shared this speech program with me. She is a speech and language pathologist who also has a toddler with Down syndrome. She’s been sharing tons of speech tips at @togetherweebloom - and if you are working on speech with your little one, I highly recommend following her! . . #dsdn  #theluckyfew  #morealikethandifferent  #upsyndrome  #nothingdownaboutit  #downsyndromeawareness  #changingthefaceofbeauty  #instacute  #speechtherapy  #downsyndromeeducationinternational  #seeandlearn 
Sleep sweet boy!!! #myheart#myson #hammelbaby #babymehki #the luckyfew #downsyndrome #dsdn #love
***FOOD POST***
Breakfast was weetabix with cinnamon. 
Lunch was left over pasta from yesterday and half an apple and banana muffin. 
Dinner (pictured) today was sweet corn with a fish finger and potato croquet. The sweet corn was demolished quickly. Amelia it seems doesn’t like batter so she at the insides of the fish finger and potato croquet. 
She then had some chocolate for pudding ☺️
#weaning#babyweaning#blw#babyledweaning #babyfood#babyblog#instababy#babyspam#downsyndromeawareness#downsyndromeblog#mumsofinstagram#motherhood#childhoodunplugged#lifewithds#theluckyfew#dsdn#changingthefaceofbeauty#xtra21#bornthisway#baby#babygirl#firstbaby#instababy#blog#blogging#instablogging#mumblog#mumblogging#pbloggeruk#ukparentingblog#daughtergoals
***FOOD POST*** Breakfast was weetabix with cinnamon. Lunch was left over pasta from yesterday and half an apple and banana muffin. Dinner (pictured) today was sweet corn with a fish finger and potato croquet. The sweet corn was demolished quickly. Amelia it seems doesn’t like batter so she at the insides of the fish finger and potato croquet. She then had some chocolate for pudding ☺️ #weaning #babyweaning #blw #babyledweaning  #babyfood #babyblog #instababy #babyspam #downsyndromeawareness #downsyndromeblog #mumsofinstagram #motherhood #childhoodunplugged #lifewithds #theluckyfew #dsdn #changingthefaceofbeauty #xtra21 #bornthisway #baby #babygirl #firstbaby #instababy #blog #blogging #instablogging #mumblog #mumblogging #pbloggeruk #ukparentingblog #daughtergoals 
Repost @stalwartapparel
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We are working on new designs, and we want to hear from you! What summer colors do you want to see in the shop? One commenter will get a 15% off code to use anytime! .
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#smalbusiness #apparel #stalwartapparel #cincinnati #summer #warmweather #ocean #ohio #shopsmall #downsyndrome #downsyndromeawareness #trisomy21 #t21 #morealikethandifferent #theluckyfew #nicu #dsdn #wovenwith47 #tshirt #handmade #familyowned #nothingdownaboutit #nothingdownabouther #upsyndrome #chd #chdaware #clothing #giveaway #coupon #discount
Repost @stalwartapparel ・・・ We are working on new designs, and we want to hear from you! What summer colors do you want to see in the shop? One commenter will get a 15% off code to use anytime! . . . . . #smalbusiness  #apparel  #stalwartapparel  #cincinnati  #summer  #warmweather  #ocean  #ohio  #shopsmall  #downsyndrome  #downsyndromeawareness  #trisomy21  #t21  #morealikethandifferent  #theluckyfew  #nicu  #dsdn  #wovenwith47  #tshirt  #handmade  #familyowned  #nothingdownaboutit  #nothingdownabouther  #upsyndrome  #chd  #chdaware  #clothing  #giveaway  #coupon  #discount 
My daily photos from daycare are everything 🙌🏻💕 #picassozo
My daily photos from daycare are everything 🙌🏻💕 #picassozo 
Working on head control with Lucy is one of the hardest things. She is almost 16 months old and can only hold her head up on her own for about 5-10 minutes a few times a day. But coming from that number being 0 minutes 0 times a day, we will take it. She is always cracking us up and makes the best of things when they are extremely hard for her. Go Lucy go! 💪💗 {also, no hearing aids because the poor thing has a double ear infection 😔} #physicaltherapy #headcontrol #downsyndrome #downsyndromeawareness #joubertsyndrome #downsyndromelove #nothingdownaboutit #congenitalheartdefect #openheartsurgery #zipperclub #heartwarrior #sleepapnea #lowmuscletone #t21 #trisomy21 #theluckyfew #dsdn #upsyndrome #changingthefaceofbeauty #bilateralhearingloss #hearingaids #downmagazine #upwithdown #sharingdownsyndromearizona @sharingdsarizona
Working on head control with Lucy is one of the hardest things. She is almost 16 months old and can only hold her head up on her own for about 5-10 minutes a few times a day. But coming from that number being 0 minutes 0 times a day, we will take it. She is always cracking us up and makes the best of things when they are extremely hard for her. Go Lucy go! 💪💗 {also, no hearing aids because the poor thing has a double ear infection 😔} #physicaltherapy  #headcontrol  #downsyndrome  #downsyndromeawareness  #joubertsyndrome  #downsyndromelove  #nothingdownaboutit  #congenitalheartdefect  #openheartsurgery  #zipperclub  #heartwarrior  #sleepapnea  #lowmuscletone  #t21  #trisomy21  #theluckyfew  #dsdn  #upsyndrome  #changingthefaceofbeauty  #bilateralhearingloss  #hearingaids  #downmagazine  #upwithdown  #sharingdownsyndromearizona  @sharingdsarizona
This pregnancy was much different than my son, so the early arrival was a welcomed familiarity. I was very sick with Aurora for five months, unable to keep down sips of water, landing in the ER at times. The doctors reassured me everything was normal and not to worry. The prolonged sickness gave me new perspective on what a  blessing good health is and the perceived control we have over our bodies being an illusion. Little did I know this would be a reoccurring theme. #rorysbirthstory
This pregnancy was much different than my son, so the early arrival was a welcomed familiarity. I was very sick with Aurora for five months, unable to keep down sips of water, landing in the ER at times. The doctors reassured me everything was normal and not to worry. The prolonged sickness gave me new perspective on what a blessing good health is and the perceived control we have over our bodies being an illusion. Little did I know this would be a reoccurring theme. #rorysbirthstory 
We are working on new designs, and we want to hear from you! What summer colors do you want to see in the shop? One commenter will get a 15% off code to use anytime! .
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#smalbusiness #apparel #stalwartapparel #cincinnati #summer #warmweather #ocean #ohio #shopsmall #downsyndrome #downsyndromeawareness #trisomy21 #t21 #morealikethandifferent #theluckyfew #nicu #dsdn #wovenwith47 #tshirt #handmade #familyowned #nothingdownaboutit #nothingdownabouther #upsyndrome #chd #chdaware #clothing #giveaway #coupon #discount
We are working on new designs, and we want to hear from you! What summer colors do you want to see in the shop? One commenter will get a 15% off code to use anytime! . . . . . #smalbusiness  #apparel  #stalwartapparel  #cincinnati  #summer  #warmweather  #ocean  #ohio  #shopsmall  #downsyndrome  #downsyndromeawareness  #trisomy21  #t21  #morealikethandifferent  #theluckyfew  #nicu  #dsdn  #wovenwith47  #tshirt  #handmade  #familyowned  #nothingdownaboutit  #nothingdownabouther  #upsyndrome  #chd  #chdaware  #clothing  #giveaway  #coupon  #discount 
A week ago I requested an OT eval because Bernadette rarely reaches for toys, grasps them with two hands, or brings them to her mouth. The OT is going to think I’m a liar. But I swear a week ago, this wasn’t happening 🤣🤣🤣🤷🏼‍♀️🤷🏼‍♀️🤷🏼‍♀️#dsdn #ourupswithdown #morealikethandifferent #trisomy21 #t21 #theluckyfew #💛💙 #downsyndrome #makingmealiar #downrightawesome #bernadette
He watches Bryan play one video game and look what happens 😂😂
He watches Bryan play one video game and look what happens 😂😂
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Ich habe keine Ahnung warum das Bild so eine scheiß Qualität hat😒 
Aber hoffentlich gefällt es euch trotzdem✨💝
Ihr könnt mir gerne Bilder, Videoausschnitte und Zitate senden ,weil ich die bestimmt mal brauchen werde oda sooo🤓💓
Markiert von mir aus gerne @marc_cyborg 💓 müsst ihr aber net.
Liken und kommentieren wäre auch ganz nett.. Sonst Pickel👀

Bis zum nächsten Post [Kommen noch ein paar Hashtags.. Könnt ihr ignorieren oder durch lesen ..Kommt drauf an wie hobbylos ihr seid 💗:_.]
#marcseibold #love #video #amv #fanpage #tumblr #smile #yousopreciouswhenyousmile #meme #food #loveislove #funk #dsdn #dasschaffstdunie #cutecut #cute #cut #germany #berlin #fangirl #mine #tumblrboy #beautiful #aestheic #beautifulsmile #boy #tumblrgirl #drawing #draw #paint
's post Ich habe keine Ahnung warum das Bild so eine scheiß Qualität hat😒 Aber hoffentlich gefällt es euch trotzdem✨💝 Ihr könnt mir gerne Bilder, Videoausschnitte und Zitate senden ,weil ich die bestimmt mal brauchen werde oda sooo🤓💓 Markiert von mir aus gerne @marc_cyborg 💓 müsst ihr aber net. Liken und kommentieren wäre auch ganz nett.. Sonst Pickel👀 Bis zum nächsten Post [Kommen noch ein paar Hashtags.. Könnt ihr ignorieren oder durch lesen ..Kommt drauf an wie hobbylos ihr seid 💗:_.] #marcseibold  #love  #video  #amv  #fanpage  #tumblr  #smile  #yousopreciouswhenyousmile  #meme  #food  #loveislove  #funk  #dsdn  #dasschaffstdunie  #cutecut  #cute  #cut  #germany  #berlin  #fangirl  #mine  #tumblrboy  #beautiful  #aestheic  #beautifulsmile  #boy  #tumblrgirl  #drawing  #draw  #paint 
Pequeña pero valiente!!! Feliz semana!
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#babygap #gap #babygirl #downsyndrome #downsyndromecutie #dsdn
Kicking off the week with this handsome guy! 💙💛 Repost from @down.for.adventures. Tag your pictures with #dsdn for the chance to be featured. #downsyndrome #downsyndromeawareness
On Saturday, Gracyn asked me why I used to cry when we went to doctor appointments while I was pregnant with Baker. I’m not sure what triggered those memories but she definitely remembers those moments. We’ve always talked a lot about Down syndrome and heart defects with her so I told her she was right. I did cry. I had a rough couple of weeks when we first learned of Baker’s diagnosis and often times those emotions played out in front of the girls. I cried because I was scared about our family’s future and Baker’s future. I was worried about his heart. I was sad, thinking our life would be drastically different. I also told her that it was okay that I cried, that it was okay to have all the feels because look at us now. Almost a year has passed since we learned of #BakersHeart❤️ and his Ds diagnosis. I’m not worried about our family’s future. Baker’s heart is fixed. Sure, I may have moments of feeling discouraged when I see him working hard towards the next milestone that hasn’t quite clicked yet but deep down I know he’ll get there. I look at pictures like this one and am instantly reminded that our life isn’t that different at all. One of the best big sisters reading to her baby brother while the other one plays nearby. I still cry every now and then but mostly happy tears knowing he’ll be all right. They’re all gonna be all right. 💙#TeamHeartBaker #downsyndrome #everythingsgonnabealright
On Saturday, Gracyn asked me why I used to cry when we went to doctor appointments while I was pregnant with Baker. I’m not sure what triggered those memories but she definitely remembers those moments. We’ve always talked a lot about Down syndrome and heart defects with her so I told her she was right. I did cry. I had a rough couple of weeks when we first learned of Baker’s diagnosis and often times those emotions played out in front of the girls. I cried because I was scared about our family’s future and Baker’s future. I was worried about his heart. I was sad, thinking our life would be drastically different. I also told her that it was okay that I cried, that it was okay to have all the feels because look at us now. Almost a year has passed since we learned of #BakersHeart ❤️ and his Ds diagnosis. I’m not worried about our family’s future. Baker’s heart is fixed. Sure, I may have moments of feeling discouraged when I see him working hard towards the next milestone that hasn’t quite clicked yet but deep down I know he’ll get there. I look at pictures like this one and am instantly reminded that our life isn’t that different at all. One of the best big sisters reading to her baby brother while the other one plays nearby. I still cry every now and then but mostly happy tears knowing he’ll be all right. They’re all gonna be all right. 💙#TeamHeartBaker  #downsyndrome  #everythingsgonnabealright 
Happy Monday everyone. 😊
Today we are heading to the oral surgeon to see if Myah needs her lip clipped again. I think she does so we’re preparing for a little bit of blood. Hopefully its not to bad. .
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#2moms #321 #extrachromosomeextracute #trisomy21 #t21 #morealikethandifferet #trisomy21love #downsyndrome #downsyndromeawareness #downsyndromelove  #like #twomoms #downrightperfect #nothingdownaboutit #toddlerswithstyle #toddlersofinstagram #myahnicoleflores #theluckyfew #dsdn #changingthefaceofbeauty #brandrep #momlife #momblogger #momarazzi #motherhood #motherhoodunplugged #vscomom #bloggermom
Happy Monday everyone. 😊 Today we are heading to the oral surgeon to see if Myah needs her lip clipped again. I think she does so we’re preparing for a little bit of blood. Hopefully its not to bad. . . . . #2moms  #321  #extrachromosomeextracute  #trisomy21  #t21  #morealikethandifferet  #trisomy21love  #downsyndrome  #downsyndromeawareness  #downsyndromelove  #like  #twomoms  #downrightperfect  #nothingdownaboutit  #toddlerswithstyle  #toddlersofinstagram  #myahnicoleflores  #theluckyfew  #dsdn  #changingthefaceofbeauty  #brandrep  #momlife  #momblogger  #momarazzi  #motherhood  #motherhoodunplugged  #vscomom  #bloggermom 
What are these things on my head!!! 😱😱😱😂😂😂 grandma always finds the most random things that all the grand kids love. #dsdn #ourupswithdown #morealikethandifferent #theluckyfew #downsyndrome #t21 #💛💙 #nothingdownaboutit #trisomy21
В парке у дома выросли желтые пушистики на кустах😍
Просто пройти мимо и не сфотать - нереально😁. Любовь у меня к ним с детства))
Лиска тоже оценила)) #доча #дочка  #сд #синдромдауна #синдромлюбви #солнечныедети #дети #trisomy21 #dsdn #downsyndrome #t21 #весна #тепло #пушистик #модель #солнце
В парке у дома выросли желтые пушистики на кустах😍 Просто пройти мимо и не сфотать - нереально😁. Любовь у меня к ним с детства)) Лиска тоже оценила)) #доча  #дочка  #сд  #синдромдауна  #синдромлюбви  #солнечныедети  #дети  #trisomy21  #dsdn  #downsyndrome  #t21  #весна  #тепло  #пушистик  #модель  #солнце 
Ahhh Happy Monday!!!! 2 more days till vacation!!!! 😄💖
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Ya'll this little girl cracks me up... swipe to see what its like to try and get a picture!?! And how cute is this outfit and headband my aunt @one_craft_queen made addi.
Ahhh Happy Monday!!!! 2 more days till vacation!!!! 😄💖 . Ya'll this little girl cracks me up... swipe to see what its like to try and get a picture!?! And how cute is this outfit and headband my aunt @one_craft_queen made addi.
"Victoria (@nothingdownabout_victoria) is 3 years old. She loves to swim, listen to music and play the drums. She never misses a chance to dance. Victoria has a great personality. No matter where we go, she will make new friends. She loves people and people love talking to her. Down syndrome does not seem to have stopped her from doing anything. She doesn't care how many times it takes her to reach her goals, how many stumbles or how many setbacks. She's persistent, and already moving mountains.Victoria has taught me more about love and life than I could ever teach her!" #yoocandoanything #yoocan #downsyndrome #theluckyfew #blessed #nothingdownaboutit #t21 #trisomy21 #dsdn #upsyndrome #changingthefaceofbeauty #upwithdown #love #family #picoftheday #instagood #smile #fighter #warrior
"Victoria (@nothingdownabout_victoria) is 3 years old. She loves to swim, listen to music and play the drums. She never misses a chance to dance. Victoria has a great personality. No matter where we go, she will make new friends. She loves people and people love talking to her. Down syndrome does not seem to have stopped her from doing anything. She doesn't care how many times it takes her to reach her goals, how many stumbles or how many setbacks. She's persistent, and already moving mountains.Victoria has taught me more about love and life than I could ever teach her!" #yoocandoanything  #yoocan  #downsyndrome  #theluckyfew  #blessed  #nothingdownaboutit  #t21  #trisomy21  #dsdn  #upsyndrome  #changingthefaceofbeauty  #upwithdown  #love  #family  #picoftheday  #instagood  #smile  #fighter  #warrior 
When you FINALLY get the constipation struggle under control!! We are celebrating! It has been a real struggle with Willow since getting her home, but especially since introducing more food. We ended up having to take her off dairy and she gets a morning concoction of natural remedies/supplements. #dsdn #nothingdownaboutit #constipationbegone #theluckyfew #celebratethesmallthings #nomorecryingwhilepooping #saynotomiralax
Low muscle tone, HARD worker 💪🏼 This baby has already put more solid effort into taking steps than I’ve put into my last two years at the office 😴
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#EvieLove #DownSyndrome #TheLuckyFew #NothingDownAboutIt #T21 #CTFOB #Trisomy21 #DownSyndromeAwareness #ChangingTheFaceOfBeauty #DownSyndromeRocks #DSDN #MoreAlikeThanDifferent #UpSyndrome #DownSyndromeLove #LIFEisbetterwithyou #SaveDownSyndrome
12 months later finding the words to describe Rory's birth experience still feels impossible. So, I want to start out with this. There are no words to describe the love, pain , losses, gains, confusion, hope and fear we felt and will continue to feel when reflecting on this day for the entirety of our lives. As badly as I wish we could rewind time, allowing us the chance to welcome her in the appropriate way we can't.  This fact will forever be the heartbreak of my life. Nevertheless, we move forward. We advocate for future families to have a better diagnosis experience and we celebrate this child every single day. .
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As with all things in life there are far better stories and far worse stories than ours. We are forever grateful to Our Heavenly Father for the favor he has shown our sweet Aurora. .
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Let me begin.... On May 2nd I woke up at 2:30am in no pain, checked my phone and proceeded to the bathroom just like every morning before in my 9 months of pregnancy. Within 30 minutes of waking I started to have back pain, the pain intensified and lasted 60 seconds, dissipating for 3 min to start back up again. I was in Labor, Rory was 7 days early just like her brother Owen was 3 years prior. #rorysbirthstory
12 months later finding the words to describe Rory's birth experience still feels impossible. So, I want to start out with this. There are no words to describe the love, pain , losses, gains, confusion, hope and fear we felt and will continue to feel when reflecting on this day for the entirety of our lives. As badly as I wish we could rewind time, allowing us the chance to welcome her in the appropriate way we can't. This fact will forever be the heartbreak of my life. Nevertheless, we move forward. We advocate for future families to have a better diagnosis experience and we celebrate this child every single day. . . As with all things in life there are far better stories and far worse stories than ours. We are forever grateful to Our Heavenly Father for the favor he has shown our sweet Aurora. . . Let me begin.... On May 2nd I woke up at 2:30am in no pain, checked my phone and proceeded to the bathroom just like every morning before in my 9 months of pregnancy. Within 30 minutes of waking I started to have back pain, the pain intensified and lasted 60 seconds, dissipating for 3 min to start back up again. I was in Labor, Rory was 7 days early just like her brother Owen was 3 years prior. #rorysbirthstory 
Yesterday we were lucky enough to attend the Family Gala Premiere of Sherlock Gnomes! What a fantastic day and amazing experience. Francesca took it all in her stride despite the complete hustle bustle of it. .
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#morealikethandifferent #theluckyfew #SherlockGnomes #paramountUK #siblings #family #dsawareness #dsdn #teamzebedee #zebedeemodel #zebedeemanagement #t21 #t21love #t21cutie #t21rocks #downrightperfect #upsyndrome #premiere #eltonjohn #downsyndromeawareness
Yesterday we were lucky enough to attend the Family Gala Premiere of Sherlock Gnomes! What a fantastic day and amazing experience. Francesca took it all in her stride despite the complete hustle bustle of it. . . . . . . . . #morealikethandifferent  #theluckyfew  #SherlockGnomes  #paramountUK  #siblings  #family  #dsawareness  #dsdn  #teamzebedee  #zebedeemodel  #zebedeemanagement  #t21  #t21love  #t21cutie  #t21rocks  #downrightperfect  #upsyndrome  #premiere  #eltonjohn  #downsyndromeawareness 
Monday face. •
(Not really my Monday face cuz I’m still on mat leave 😏) •
#t21 #wouldntchangeathing #lifeisbetterwithyou #downsyndrome #downsyndromebaby #homiewithanextrachromie #dsdn
Sötaste💕
Sötaste💕
Oh. My. Goodness. Tank can put full weight on his legs.  It's not all the time, it's not for long, but he can do it!!! Proud is an understatement lil guy.  Have I mentioned how much I love weekends with my boys?!?
Oh. My. Goodness. Tank can put full weight on his legs. It's not all the time, it's not for long, but he can do it!!! Proud is an understatement lil guy. Have I mentioned how much I love weekends with my boys?!?
When it’s FINALLY double digit temperatures, the entire city heads outside to enjoy the weather☀️ Hope your weekend was a good one!
#getoutside
#lifewithkids
When it’s FINALLY double digit temperatures, the entire city heads outside to enjoy the weather☀️ Hope your weekend was a good one! #getoutside  #lifewithkids 
Somebody has been working on his thumb!! ♥️ #dsdn #upsyndrome #nothingdownaboutit #downsyndrome #downsyndromeawareness #downmagazine
Say an extra prayer for this little girl. Tuesday morning she goes in to get tubes put in her ears, FINALLY! One of them has finally grown enough and the other is close enough. Praying it takes care of the infections and she passes her hearing tests afterwards.
Say an extra prayer for this little girl. Tuesday morning she goes in to get tubes put in her ears, FINALLY! One of them has finally grown enough and the other is close enough. Praying it takes care of the infections and she passes her hearing tests afterwards.
It’s me and you boo. 💕 #mommyandme #warriors #warriorprincess
Donate to Down Syndrome Diagnosis Network this spring by shopping on Amazon! http://bit.ly/1Aemca2 
#dsdn #downsyndrome #amazonsmile #downsyndromeawareness
The happiest baby in the world?

#dsdn #theluckyfew #nothingdownaboutit #upsyndrome
2️⃣1️⃣💛💙What I once felt she would never do ( pull herself up to standing 😊) she is now doing at twenty one months!  She is one determined, loving, stubborn, little girl that I love with all my heart. Being a special needs parent is at times worry full but most of all full of joy. How crazy is it that she’ll be 2 in three short months!? .
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#misscamilafaith #lifeisbetterwithyou #t21  #trisomy21 #downsydrome #alilsomethingextra #trisomy21rocks #ds #dsdn #lifewithds #downsyndromecutie #downsyndromlove #downsyndromerocks #theluckyfew #downrightperfect #upsyndrome #chd #chdawareness #chdwarrior #zipperclub #downsyndromeisbeautifull  #alllifeisprecious #morealikethandiffrent #chromosomecutie #changingthefaceofbeauty #upwithdown
2️⃣1️⃣💛💙What I once felt she would never do ( pull herself up to standing 😊) she is now doing at twenty one months! She is one determined, loving, stubborn, little girl that I love with all my heart. Being a special needs parent is at times worry full but most of all full of joy. How crazy is it that she’ll be 2 in three short months!? . . . . . . #misscamilafaith  #lifeisbetterwithyou  #t21  #trisomy21  #downsydrome  #alilsomethingextra  #trisomy21rocks  #ds  #dsdn  #lifewithds  #downsyndromecutie  #downsyndromlove  #downsyndromerocks  #theluckyfew  #downrightperfect  #upsyndrome  #chd  #chdawareness  #chdwarrior  #zipperclub  #downsyndromeisbeautifull  #alllifeisprecious  #morealikethandiffrent  #chromosomecutie  #changingthefaceofbeauty  #upwithdown 
What are YOU having for dinner? 😂 Seriously, I turn my back for 2 seconds and these two are in the dining room table. And Charlie, that taco tongue is out of control! 🤣 #downsyndrome #twinswithdownsyndrome #t21 #theluckyfew #lifeisbetterwithyou #upsyndrome #morealikethandifferent #dsdn
Circus boy learning new skills with his amazing teacher Marjorie. Loving this therapy phase. #circus #art #focus #dsdn #lifeisgood #t21 #coolkids #goodmorning #sindromededown #maternidade #momlife #love #april #hesworthy #theluckyfew #changingthefaceofbeauty #mundoazul #sensoryplay
Hoy es un día para rendir homenaje a nuestro planeta y reconocer a la Tierra como nuestro hogar y nuestra madre, así como lo han expresado distintas culturas a lo largo de la historia, demostrando la interdependencia entre sus muchos ecosistemas y los seres vivos que la habitamos. Feliz día de la tierra.
@megaviverotampico

#gordinchi #xtrasabroso #diadelamadretierra #pachamama #mosaicdownsyndrome #changingthefaceofbeauty #cambiandomodelos#justlikeyou #dsdn #cromossomodoamor
Hoy es un día para rendir homenaje a nuestro planeta y reconocer a la Tierra como nuestro hogar y nuestra madre, así como lo han expresado distintas culturas a lo largo de la historia, demostrando la interdependencia entre sus muchos ecosistemas y los seres vivos que la habitamos. Feliz día de la tierra. @megaviverotampico #gordinchi  #xtrasabroso  #diadelamadretierra  #pachamama  #mosaicdownsyndrome  #changingthefaceofbeauty  #cambiandomodelos #justlikeyou  #dsdn  #cromossomodoamor 
In honor of 🎉Rory's 1st Birthday🎉  I've teamed up with @ra_rosealexander for a giveaway. omne trium perfectum holds special meaning for the Down Syndrome community. It's translation means: everything that comes in threes is perfect, or, every set of three is complete. Our Little's have a third copy of the 21st chromosome. I couldn't think of a better description for our sweet girl and all her friends with a little something extra. To be entered in the giveaway LIKE this photo follow  @roryblakeisgreat + @ra_rosealexander. Comment below letting someone know what makes your little one so special. Giveaway ends May1st. ❤️
In honor of 🎉Rory's 1st Birthday🎉 I've teamed up with @ra_rosealexander for a giveaway. omne trium perfectum holds special meaning for the Down Syndrome community. It's translation means: everything that comes in threes is perfect, or, every set of three is complete. Our Little's have a third copy of the 21st chromosome. I couldn't think of a better description for our sweet girl and all her friends with a little something extra. To be entered in the giveaway LIKE this photo follow @roryblakeisgreat + @ra_rosealexander. Comment below letting someone know what makes your little one so special. Giveaway ends May1st. ❤️
2: STRONG.
Life with a baby in the hospital is hard. We were all so worn down. The kids were a mess. We were a mess. Everyone kept commending us for being so strong, but I didn’t want to be strong. I wanted to be happy. I wanted to be home soaking in the blissful newborn days. Instead I was empty. I’ve never felt as empty as I did those sleepless nights at home while Estelle was away in the NICU. In those agonizing hours that we were forced to be apart from her the attacks would come. All of the fears, doubts, and the why me? why us? questions would send me spiraling into the darkest places I’ve ever been. But then the sun would rise, and eagerly I’d get up and begin the routine that would eventually lead to that NICU room. Being with Estelle was peace. None of the fears or doubts existed in that room staring down at our beautiful girl. She was the strong one! She was enduring so much, yet her sweet spirit radiated through like a beacon of light. Through her God sent us the strength we needed to endure the longest thirteen days of our lives. -
#estellesbirthdaycountdown
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2: STRONG. Life with a baby in the hospital is hard. We were all so worn down. The kids were a mess. We were a mess. Everyone kept commending us for being so strong, but I didn’t want to be strong. I wanted to be happy. I wanted to be home soaking in the blissful newborn days. Instead I was empty. I’ve never felt as empty as I did those sleepless nights at home while Estelle was away in the NICU. In those agonizing hours that we were forced to be apart from her the attacks would come. All of the fears, doubts, and the why me? why us? questions would send me spiraling into the darkest places I’ve ever been. But then the sun would rise, and eagerly I’d get up and begin the routine that would eventually lead to that NICU room. Being with Estelle was peace. None of the fears or doubts existed in that room staring down at our beautiful girl. She was the strong one! She was enduring so much, yet her sweet spirit radiated through like a beacon of light. Through her God sent us the strength we needed to endure the longest thirteen days of our lives. - #estellesbirthdaycountdown  -
When did my girl get to be such a big girl??
When did my girl get to be such a big girl??
Who wore it best? 😂😂😂
Who wore it best? 😂😂😂
It took what felt like 9 years but it’s finally spring! Oliver’s favorite place in the whole entire world is outside. Now that it’s nice out, who wants to see new vlogs???
It took what felt like 9 years but it’s finally spring! Oliver’s favorite place in the whole entire world is outside. Now that it’s nice out, who wants to see new vlogs???
I’d say she’s happy with the bubble machine 😍😂💙💛 #princessquinn #downsyndromeawareness #downrightperfect #dsdn #instatoddler #toddlerofinstagram #toddlerlife #bubbles #babybear #theluckyfew
It's @drakerelays whoohoo! Cheering on our favorite running buddies!!! Can't wait till addi is old enough to participate!
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Ps...@drakeuniversity or @champagnepapi if you need a new mascot I have the perfect little girl with all the Drake gear possible!! 💙
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#motherrunner #runningbuddies #drakerelays #cheerleader  #inspiringwomenrunners #getoutdoors #inspire #downsyndrome #theluckyfew #changingthefaceofbeauty #motherhood #ds #dsawareness #dsdn
Great memories were made this weekend. Amazing canoe trip with long time friend @harmluth. Had a lot to catch up to. Lovely weather. Great Sunday with the fabulous four. And slow summer evenings with @hen3ne. After some packed weeks it felt like holiday 👌 #canoetrip #friendship #jisperveld #family #victorjudah #weekend #spring #downsyndrome #nothingdownaboutit #kidslife #twingirls #tobyisnotdoneyet #boss #blueeyes #dsdn #brothers
#gold for the #Lancers in our first #bocce competition ever!!! #laso #area2 #sonj #dsdn
The only way to *kinda* get yard work done. One kid strapped to me and convincing the other that picking up sticks from the yard is a fun game (a game that lasted all of 5 minutes).
The only way to *kinda* get yard work done. One kid strapped to me and convincing the other that picking up sticks from the yard is a fun game (a game that lasted all of 5 minutes).
In 2016 over 700 babies SUSPECTED of having Down syndrome were aborted. Over 20 of these babies had almost spent 40 weeks in their mummies tummy’s kicking away. This number seems to be increasing each year. Currently 90% of people who find their baby has Down syndrome chose to have an abortion. 
All for lack of proper awareness. 
Hard facts to swallow 😞
#daughtergoals#baby#babyspam#firstbaby#instababy#blog#blogging#downsyndromeblog#instablog#instablogging#mumblog#mumblogging#pbloggeruk#ukparentingblog#mum#parenting#mumlife#firsttimemum#newmum#mumsofinstagram#motherhood#childhoodunplugged#lifewithds#theluckyfew#downsyndromeawareness#dsdn#changingthefaceofbeauty#xtra21#bornthisway#dsawareness
In 2016 over 700 babies SUSPECTED of having Down syndrome were aborted. Over 20 of these babies had almost spent 40 weeks in their mummies tummy’s kicking away. This number seems to be increasing each year. Currently 90% of people who find their baby has Down syndrome chose to have an abortion. All for lack of proper awareness. Hard facts to swallow 😞 #daughtergoals #baby #babyspam #firstbaby #instababy #blog #blogging #downsyndromeblog #instablog #instablogging #mumblog #mumblogging #pbloggeruk #ukparentingblog #mum #parenting #mumlife #firsttimemum #newmum #mumsofinstagram #motherhood #childhoodunplugged #lifewithds #theluckyfew #downsyndromeawareness #dsdn #changingthefaceofbeauty #xtra21 #bornthisway #dsawareness 
***FOOD POST***
So today has been another good food day! 🙌🏼
Breakfast was Greek yoghurt with chopped up kiwi. 
Lunch was homemade banana and apple muffins, baked celery with hummus and a dairylea triangle. One muffin was eaten and the cheese went. Amelia sucked the hummus off the celery and then left it 🙈
Dinner was a TV dinner as she didn’t wake up in a great mood and I didn’t think she would eat. She however polished off her pesto pasta and then a banana and peach fruit pot.
#weaning#babyweaning#blw#babyledweaning #babyfood#babyblog#instababy#babyspam#downsyndromeawareness#downsyndromeblog#mumsofinstagram#motherhood#childhoodunplugged#lifewithds#theluckyfew#dsdn#changingthefaceofbeauty#xtra21#bornthisway#baby#babygirl#firstbaby#instababy#blog#blogging#instablogging#mumblog#mumblogging#pbloggeruk#ukparentingblog#daughtergoals
***FOOD POST*** So today has been another good food day! 🙌🏼 Breakfast was Greek yoghurt with chopped up kiwi. Lunch was homemade banana and apple muffins, baked celery with hummus and a dairylea triangle. One muffin was eaten and the cheese went. Amelia sucked the hummus off the celery and then left it 🙈 Dinner was a TV dinner as she didn’t wake up in a great mood and I didn’t think she would eat. She however polished off her pesto pasta and then a banana and peach fruit pot. #weaning #babyweaning #blw #babyledweaning  #babyfood #babyblog #instababy #babyspam #downsyndromeawareness #downsyndromeblog #mumsofinstagram #motherhood #childhoodunplugged #lifewithds #theluckyfew #dsdn #changingthefaceofbeauty #xtra21 #bornthisway #baby #babygirl #firstbaby #instababy #blog #blogging #instablogging #mumblog #mumblogging #pbloggeruk #ukparentingblog #daughtergoals 
Sunshine + baby wearing = very happy boy during church this morning. I was able to hear the entire sermon out on the back deck at church, and he did so amazingly well. It's been awhile since I wore him because his gtube site has been more sensitive and irritated lately, but we've been able to resolve that issue, thankfully. The smiles and eye gazes this boy gave me...we need to wear more!! He loves to gently stroke my hair and play with my necklace too. Such a sweetie. 😍😍 #babywearinsundays #wecouldhavemissedthis
Sunshine + baby wearing = very happy boy during church this morning. I was able to hear the entire sermon out on the back deck at church, and he did so amazingly well. It's been awhile since I wore him because his gtube site has been more sensitive and irritated lately, but we've been able to resolve that issue, thankfully. The smiles and eye gazes this boy gave me...we need to wear more!! He loves to gently stroke my hair and play with my necklace too. Such a sweetie. 😍😍 #babywearinsundays  #wecouldhavemissedthis