"You have been called to trust your God and work hard."
It's not one or the other ✌
Today I'm wrapping up the last day of Trust, Hustle, & Rest (YouVersion Bible App) - and this hit me...
I've been in the same cycle for my entire adult life: hustle, crash, hustle, burn out, hustle, get sick. I did it again this week as I attempted to do all the things; I rarely surrender to rest.
'In the words of Pastor Timothy Keller: “We are to think of Sabbath as an act of trust. God appointed the Sabbath to remind us that he is working and resting. To practice Sabbath is a disciplined and faithful way to remember that you are not the one who keeps the world running, who provides for your family, not even the one who keeps your work projects moving forward.”
Why is it so critical that we manage the tension between trusting and hustling well? 💥 Because at the end of the day, when we rely on our hustling without trusting in God, we are either trying to play God or steal His glory, either of which leads to restlessness. 💥 Christian, take heart! These Biblical commands are not in conflict with each other. You have been called to trust your God and work hard. And when we embrace this tension, we can rest well knowing we are in right partnership with our Caller.'
I hope you take the time to rest today, too. Enjoy today or pick another day as your Sabbath this week. If Papa only worked six days a week, why do we believe seven will bless us more?
Light a candle, friend. Say a prayer. Breathe. Surrender to God's best - instead of yours. This is where our mental health gets better. Our bodies can stronger. And our relationships grow. In spaces of rest 💕 Love to you!! J. xox
I thought it might be time to formally introduce myself! Hi! 👋🏻 My name is Kaitlyn and I am on a journey to heal myself from the inside out. I was diagnosed with Crohn’s disease in 2008 and am currently on Humira. I refuse to let my diagnosis control my life and I push myself everyday to put my best self forward. My husband has been encouraging me to try a Keto based diet for years but I wasn’t mentally ready to commit. About 6 weeks ago something changed in my brain and I was READY!! My husband and I have two beautiful boys aged 6 and 3. We live in the spectacular province of Nova Scotia- pictured in this photo 😍 Thanks for joining me on my journey and I hope we can encourage each other ❤️ I’d love to hear about you below or you can ask my any questions 👇🏻 #intro#keto#journey#health#crohns#wellness#beach#novascotia#lowcarb#ketolifestyle#introduction#weightlossjourney#me#crohnsdisease#crohnswarrior
Living with #crohnsdisease or any other colon disease is not easy..
i have been diagnosed for a year and undiagnosed for about 10 or more... I take medication and continue with the trial and error of what i can put in my body...
Along with having Crohns I also have a mother who has had #colonrectalcancer 3 times over the past 30 yrs..
She is still with us and now lives with a permanent #ileostomy
One of my best friends has extreme #ulcerativecolitis and also has a permanent #ileostomy (they both are extreme cases but are apart of the story and the solution)
One thing I've learned is that most people I discuss this disease with no very little about it and they r living with it!
There are so many rules..so many DO'S n DO NOTS...
So my plan is to start a discussion.👂👂👂
Periodically i will share my struggle, triumps and loses.. I hope that some of you will join in. Share your experiences, your pain , your gains and improvements.
This disease is no joke and i think we all need to stop acting so scared of the #DOODIE !! The pain can be debilitating...
The fear of people thinking your contagious or disgusting 💩💩💩Yea i said it!!!
We are human we are in pain.
Its ok to talk about it!!
Different things work for different people ..
Lets start the conversation!
🤗🤗🤗 Do you know what #FODMAPS are?
Really feelin like a smoothie this morning!
I made this cherry-cacao smoothie, and it is packed full of nutrients and tastes ahhhhhmazing!
-1/2 cup frozen cherries
-1 tbsp organic cacao (use carob if I’m AIP elimination)
-1 tbsp maple syrup
-2 scoops collagen peptides
-1 large scoop @co_yo_usa vanilla yogurt
-water to thin it out
Blend it all up and enjoy!
My heart my world @tonia_jones_ is the strongest woman i have the pleasure of calling my god mother..her heart is as pure as it come #crohnsdisease has blessed my god mother with the mind that shows u can conquer anything with the right mind-state
The existing evidence seems pretty clear: a low-fibre diet that is rich in animal fat, animal protein, dairy products, omega-6’s, artificial emulsifiers and artificial flavours increases the risk of developing Crohn’s disease and may even worsen the condition. But can a whole food plant-based diet put patients with active Crohn’s disease into clinical remission? We’re going to find out. Funding approved! #crohnsdiet#thedoctorskitchen#crohnsdisease#vegandoctors#putittothetest#nutrition_facts_org
I did enjoy watching the royal wedding yesterday! Couldn't help myself. It was a beautiful service. I was also with everyone in spirit for world IBD day (I was wearing purple) but didn't join in as I don't have IBD and hence no personal stories to share to raise awareness. I saw great things being talked about and shared on Twitter.
Ordered some new earphones to bring into hospital with me so I can listen to music, and a cool jug that fits in the fridge door and holds 2 litres, so I can drink from it over the day to make sure I am staying hydrated (I already know that is going to be challenging). Have been in awful pain with my bowels, partly due to increasing my movicol up to 3 a day to get things moving, but they make me feel so sick and give me cramps. Nice to think after Wednesday I'll never have to have movicol again!
Day 13. Without storms, how could we appreciate the beauty of the sun? Been raining for days. Flood watches issued. When it seems like it won't end, the key is to remember times when the end wasn't in sight and how it all worked out.
A little moment ago I was lying in bed, and in my mind I was reflecting on the week that was had - as I now tend to do on a Sunday. And then it hit me.
Today marked 15 years since my diagnosis with IBD (Crohn’s Disease at the time.) I actually don’t remember the exact day clearly at all, but I do remember the weeks, even months around it. I was 12 years old at the time and had difficulty comprehending why I was bleeding when I pooped, why I was so lethargic and fainting every few days and why the excruciating pains in my stomach would go on for days and sometimes weeks at a stretch. I didn’t understand what IBD meant or what it meant to have a chronic illness, one that would never go away. And at this time, never did I imagine I would go through what I have been through in these last 15 years.
15 is probably the only number that stands out for me right now. When I think back through all these years, the number of stomach aches and cramps, poops and farts, doctors and specialists, appointments and admissions, blood tests and collapsed veins, colonoscopy, endoscopy and sigmoidoscopy procedures, X-rays, enemas, flare ups and complications and all of the accidents, drugs and side effects, IV infusions, blood and iron infusions, Remicade treatments, research testings, the tears, the happy days, the hard days... you get the point - they’ve all been countless.
I’ve got this quote I read earlier in the year written on my bedroom mirror which says, ‘what’s coming, will come and we’ll meet it when it does,’ and I guess that’s how the last 15 years has gone, and how every day forward will be.
I am lucky - I’ve had the support of family, friends and most importantly my doctors, specialists, therapists and surgeons who continually give me the inspiration and encouragement to face and accept what needs to be done. Today I am grateful for the struggles that have strengthened me. ✨
Yesterday, may 19th, it was world IBD day (I'm a day late, I didn't get to it).
And this raises the question for me: how to make an invisible illness visible?
IBD, which stands for Inflammatory Bowel Disease, is a crippling disease. It's an autoimmune illness that causes the digestive system to get inflamed, chronically.
This causes stomach ache and cramps, fluctuations, diarrhoea, nausea, (low) fevers, exhaustion, bloating, constipation, vomiting, heartburn, joint pain, infected eyes, irritated skin, a low immune system, depression, obstructions in the intestine, fistulas, anaemia, ulcers in the mouth, weight loss, malnutrition, food intolerances, dizzyness, feeling faint, bloody and slimy stools, anal fissures, hemorrhoids, loss of appetite, bowel perforations, increased risk of colon cancer, and side effects from medications.
It is a very serious disease that can NOT be cured, though it can be treated.
The seriousness of the disease varies with each patient, and each patient reacts differently to the various medications.
My IBD is one of the worse kinds; I have battled for years trying to find the right medication. After trying them ALL, my doctor had me undergo surgery to remove 25 cm of my intestines. This definitely improved my health, since that part of the bowel was so obstructed it would have killed me, but it didn't decrease my disease itself. That's when my doctor gave up on me and referred me to the specialist hospital AMC, where I participated in a medical trial for 5 years. This has been my rescue.
I have had almost every symptom and still suffer from most of them. IBD isn't usually deadly, but I did almost die after surgery complications.
IBD is similar to IBS; Irritable Bowel Syndrome. This is not a dangerous illness, but it does decrease one's quality of life.
I suffer from both severe IBD and severe IBS.
These pictures and videos are my way of making IBD visible.
If you don't recognise the girl in the pictures; don't worry, that's just me 😉
Sidenote: the middle left photo of the last collage is me in the hospital for my transition, not for IBD.
New blog post up now: “For better, for worse - World IBD Day 2018”. Days like today really remind me why I use so much energy raising awareness for chronic illnesses. When I started this battle, I began it alone, no one could understand what I was really going through. IBD/Crohn’s/colitis, they’re all life-changing diseases that have NO cure. I may have to live with crohn’s forever, but if a life surrendered to this disease means I can help and support so many other people, then I will surrender gladly. Check out my blog post through the link in my bio and never be afraid to message me any questions you have. I will always answer and always support. I am Incredible, Brave and Determined, and you can be too💪🏻💜
Vegan caldo verde and empanada (I left it because I’ve never been a fan of pastry) at Global Tribe this afternoon. Basically a potato and kale soup with seitan based chorizo which was amazing!!! I love being able to go to places and eat food that I know is good for me and full of health🥦💪🏻
Have you ever been proud of yourself but been too afraid to admit it? Pride can often be mistaken as a negative emotion, self-indulgent or narcissistic.. why is it like that? Today I did new things and I did them well. Over the last month I’ve overcome a lot of health issues and come through stronger than ever. I never wanted to be proud of myself because I never wanted to be big-headed but pride isn’t bad, it’s a great emotion and I think it’s time we celebrate who we are a little bit more. Why be ashamed of your achievements? Life is blooming hard and we are all surviving - be proud of yourself, always.
I love beans! Just because I do my best to cook fresh food as much as I can, there is literally nothing wrong with making an easy meal! Beans are packed with protein which naturally I don’t get enough of!! Don’t avoid certain foods, eat what you enjoy and fill up on nutritious food🥑👍🏻😄
I’m on cloud 9 today🌤 Seriously, if I have learnt anything from the past couple of months of feeling unwell, stressed and sad, it’s that carrying on is so worth it! I believed in myself, I pushed myself and I kept going when I felt like completely giving up. I’m nowhere near where I want to be but I’m in a much better place. New job, teaching music, playing and doing what I love on my terms. Life is worth it, even when it feels like it isn’t🤞🏻☀️💜
Being vegan and having Crohn’s has meant that I can be quite awkward to cater for. For a long time I avoided group meals and parties because I didn’t want to be the ‘odd one out’ and make life hard for everyone. But I’ve learnt that my diet is important and I shouldn’t put that on hold! Here is my beautiful salad for a BBQ tonight; I can join in, eat food that works for me and not feel worried! Yum yum 🥗🌤
Yesterday I felt something I hadn’t for a while - passion. I found the passion to pick up my saxophone and play and the passion to look into pursuing music properly again. When I left university, I told myself I’d never go back into education and with that I lost my desire to play, but I don’t need a degree to make music. I have a passion for music and I love to play, so why wait any longer? Don’t stop what you love, life is too short💜
Finally feel excited for my future.. Over the past year, especially since leaving university, I have felt so lost. I didn’t know what I wanted to be, who I was, what I would make of life and it’s really stressed me out. For some reason I thought that I needed a path to follow, I had to be something amazing and have life planned out perfectly but I’ve realised I don’t. The last couple of weeks I have really focused on myself and what I want from life; to be honest with you all, I’ve been consumed with mental illness and struggling majorly with my Crohn’s, but I took time out, rested up, thought about my life and spent a few days getting away from everything with one of my greatest supports, Jordan. I have no idea what the future will bring for me, but I know whatever happens, it’s gonna be great..💭
Vegan Pad Thai!!!! Stir fried broccoli, kale and mushrooms and vegan spring rolls!! Such a gorgeous meal out with Jordan in SoHo. Needed this trip to relax me and get me ready to life successfully again🍜🥂👫
I just can’t get over how perfect yesterday was. It felt so good to be away from all the madness of life, spend time in the sunshine with my favourite people and relax, completely. This is what my Crohn’s and body needed🌤
My diet is the most important thing to me to help support and nurture my stomach. A plant-based diet really works for me as my gut finds natural, whole-foods, the easiest to digest properly. Everyone has different needs with Crohn’s and this is just what works for me! Here’s me a while ago drinking a pure berry fruit juice and a beautiful salad made with leaves, seeds, avocado and quinoa🥑 Eat well, feel well🙌🏻💜
Time off means time to make real food to heal my body💪🏻 Pea, broccoli, chard and courgette soup with hints of garlic, ginger, chilli and other tasty spices. Topped with toasted flaked almonds and crushed chilli flakes🌶🥦 Divine😍
New blog post on how chronic illness brings guilt to the lives of sufferers. It has taken me up until now to realise that it isn’t my responsibility to be the perfect person for everyone around me, I am enough as I am. The link for this is in my bio, check it out☺️
What a lush salad🥗 A whole head of romain lettuce, an avocado (some mashed in and some on top), cucumber, baby plum tomatoes, pink salt, black pepper, lemon zest and chipotle chilli flakes🥒🥑🌶 Simple and delightful😍
Well needed time alone to reflect on the past few weeks... lots of change, lots of illness and lots of hard times. Self reflection is always a key part of recovery, I’m identifying my self worth and challenging myself to reach heights I told myself I couldn’t. No longer going to let Crohn’s or mental illness rule me.. 💭
Ultimate comfort food on this rainy, miserable day🌧 Homemade ‘meatballs’ made using button mushrooms, white beans, onion, garlic and all the spices🌶 Accompanied by garlicky kale, homemade marinara sauce, fresh parsley and green chillis.. oh and seasoned wedges! What a feast! All vegan too😉🌵
Good things come to those who wait...💭 Literally can’t wait to start feeling better, less ill and more in control of my life. I’m constantly tired and worried but I’m dealing with it and things will get better. Start of a new chapter soon📖
“You don’t look ill” - one of the most annoying and frustrating phrases anyone can say to someone suffering with an invisible illness. Crohn’s disease, along with other diseases is an internal and invisible illness. Some days I’m pale and I have blotchy skin, some days I wear makeup and put on a pretty outfit; some days I look fit and healthy and other days I’m so bloated I look pregnant. Whatever I look like, or wear, or do, I am still ill and in pain, just sometimes I decide to enjoy myself a little bit. Never judge a person by their looks, you never know what they could be really suffering from🤷🏼♀️
After many requests, I have finally made a YouTube channel! Quite a few people have asked me to create a platform where I can raise awareness for both chronic and mental illnesses, whilst freely discussing how I cope with everything! I haven’t created this to become a famous ‘YouTuber’, I simply just want to make everyone’s ailments easier to talk about! Let’s fight the stigma together💪🏻💜(The link to my first video is in my bio!)x
Coffee date after the first day of my music holiday club with @codswallopcic and my trusty partner @jordandinsdale94 !! We explored graphic scores and how music inspires us to feel different emotions. Can’t wait for another busy day of music tomorrow focusing on improvisation!🎷🥁🎺🎶