Fifth day introducing Walnuts and Pumpkin seeds. So think I am doing well with the nuts so that’s great. Tomorrow I introduce broccoli, asparagus and maybe some more herbs.
Chicken Drum sticks
Olive Oil (tbsp)
MCT oil (tsp)
Biona Essential Daily oil (tbsp) X2
Pumpkin seeds X2
Olive Oil (tbsp)
MCT oil (tsp)
COCONUT TURMERIC RICE WITH SPICY TEMPEH 🌿🌼🥥 (low fodmap, gluten free, vegan) can you tell this melbourne weather has me missing bali?? I loved the amount of fresh and vegan food in the warungs, but being buffet style always meant loooooads of garlic 😵 here’s an easy low fodmap sambal goreng, sauteed not fried, with some simple coconut turmeric rice that can act as a base for so many easy meals ❤️ recipe on the blog!! // LINK IN BIO 👆🏼👆🏼👆🏼
Day two of three week yoga retreat - the instructor talked today about the importance of loving your workout and not pushing yourself too far < leads to quitting/not turning what you’re doing into a lifestyle change. Makes sense- how can I change for the long term if I’m pushing too hard? Another warm sunny day today- I’m so grateful for the spring time and warmer weather.
One of these days I'll look good in these hospital gowns...it's bound to happen 😂 At least I'm pretty solid at not showing pain, well outside of home that is. Poor Bianca has to put up with me there!
Not feeling so hot so I'm getting patched up today. Looks like I'll live though 💪
You know what’s harder than running your own business? Running your own business with a chronic Illness. Today I set out to start my To-do of emails and editing etc. But first I had to reorder my Humira medication. It’s usually an easy phone call and I’m done. Not today. Today I spent 4 hours on the phone, on email, filling out applications etc. because I’ve reached my limit on my co-pay assistance. Which means my medication would go from $5 a month to several thousand a month. Great right?! Of course they never even told me there was a limit so I had no idea this was coming. I’ve cried roughly 75 times, called my mom crying, Called insurance crying, called Abbvie crying. Long story short- if you’re waiting on an email from me today this is why you haven’t gotten it yet. My fingers are crossed I get approved for the Patient Assistance program that is a last resort, but I won’t know for a week or more.
Isn’t being self employed great?! Lol. This is in no way meant to be a “why me” post, but simply to let you know what life is like for me these days. Things have changed so much in the last year or so and so much that goes on in my life that isn’t seen when I have a camera in my hand and put my game face on. But everyday with this Disease is a battle in some form or another. Im just trying to keep fighting it one day at a time. PS- if anyone has applied for that assistance program before did it take the full 5-7 business days to hear back? #crohns#crohnslife#abbvie#spoonie#photographerlife . Photo by @carrieholbo
I know this is a week late, but I’ve been trying to come up with the right words to say. First of all, happy [belated] Mother’s Day to the best mom out there. But here’s what I have to say:
Ever since I was a little girl, I had known that the way you raised me would change me for the better. When I was little, you were always patient with me. That doesn’t mean you never got angry, but you always tried to understand what was going on in my head. You always had your arms outstretched whenever I would come running to you for comfort. You always had a way of making me smile and laugh even after I’ve been crying my eyes out. Mom, I know I was never the perfect daughter. I said and did things that would have driven anyone else out of my life. But because of your unconditional love, I have learned to be a better person. I learned to appreciate everything you ever did for our family. You accepted me at my lowest, and you rejoiced with me throughout my successes. I could never have asked for a better mother in this world, and I doubt that it’s possible to find a better mother than you. You’ve been there for me since day one of life and of my medical journey, and I know you’ll continue to be there for me forever.
I love you, mom!💜