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Look Ma, I made it to the number 1️⃣ hospital in the nation!! #ehlersdanlossyndrome #chronicillness #chronicpain #mayoclinic #painrehabcenter #werenumber1
She’s all grown up and I keep going back and forth between being sad about how fast time has flown by and completely amazed and proud of the beautiful person she has grown up to be.
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Okay, major RO sentence but that’s how I feel! Congratulations Kat! I am so very proud of you 😘❤️
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#congratulations #graduation #chasinglight #allgrownup
She’s all grown up and I keep going back and forth between being sad about how fast time has flown by and completely amazed and proud of the beautiful person she has grown up to be. • Okay, major RO sentence but that’s how I feel! Congratulations Kat! I am so very proud of you 😘❤️ . . . . . #congratulations  #graduation  #chasinglight  #allgrownup 
Happy Birthday to our little Mercy Moo. Forever Walkers girl and I guess Peyton’s too 🤣. Spunky little adventurer. Looks nothing like her momma but sure acts like her .
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 #blp #wlp #bthereforb #jailmom #momwithink #furmom #firewife  #hippysoul #yoga #yogaandJesus #jeepgirl #shejeeps  #jeepsandJesus #fibromyalgia #rheumatoidarthritis #lupus #lyme #trigeminalneuralgia #interstitialcystitis #chronicfatigue #chronicpain #migraine #ptsd #anxiety #depression #metoo
Happy Birthday to our little Mercy Moo. Forever Walkers girl and I guess Peyton’s too 🤣. Spunky little adventurer. Looks nothing like her momma but sure acts like her . . . . . . #blp  #wlp  #bthereforb  #jailmom  #momwithink  #furmom  #firewife  #hippysoul  #yoga  #yogaandJesus  #jeepgirl  #shejeeps  #jeepsandJesus  #fibromyalgia  #rheumatoidarthritis  #lupus  #lyme  #trigeminalneuralgia  #interstitialcystitis  #chronicfatigue  #chronicpain  #migraine  #ptsd  #anxiety  #depression  #metoo 
I ate this and my colon wasn’t even (that) mad at me!!!!!!!!! LIVE YA DAMN LIFE 🍟🍟 TREAT YOURSELF
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This weekend I went to Toronto, and enjoyed POUTINE FEST- and I was thinking about how 4 months ago I wouldn’t have even been able to stomach a bite of this. I wouldn’t have been able to walk around downtown Toronto without being crippled with anxiety about where a bathroom was, or without needing to sit down after a block from fatigue 🚽 PROGRESS BABY
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Don’t get me wrong- I still made multiple trips to the bathroom & im exshauted BUT I’m happy. Here’s to progress, here’s to 5mg of prednisone and here’s to testing yourself to poutine 🤩🤩✨
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#crohns #crohnsdisease #crohnzprobz #crohnswarrior #crohnsdiet #colitis #like #like4like #follow #followforfollow #health #poutine #poutinefest #tornado #torontopoutinefest #lifestyleblogger #thrive #invisibleillness #chronicillness #chronicpain
I ate this and my colon wasn’t even (that) mad at me!!!!!!!!! LIVE YA DAMN LIFE 🍟🍟 TREAT YOURSELF • This weekend I went to Toronto, and enjoyed POUTINE FEST- and I was thinking about how 4 months ago I wouldn’t have even been able to stomach a bite of this. I wouldn’t have been able to walk around downtown Toronto without being crippled with anxiety about where a bathroom was, or without needing to sit down after a block from fatigue 🚽 PROGRESS BABY • Don’t get me wrong- I still made multiple trips to the bathroom & im exshauted BUT I’m happy. Here’s to progress, here’s to 5mg of prednisone and here’s to testing yourself to poutine 🤩🤩✨ • • • #crohns  #crohnsdisease  #crohnzprobz  #crohnswarrior  #crohnsdiet  #colitis  #like  #like4like  #follow  #followforfollow  #health  #poutine  #poutinefest  #tornado  #torontopoutinefest  #lifestyleblogger  #thrive  #invisibleillness  #chronicillness  #chronicpain 
When you're living with a chronic illness, feeling down, in pain and like a burden, and he says everything you needed to hear and makes it all better ♥️
#husband #wife #marriage #love #chronicillnesswarrior #chronicpain #iloveyou #soppypost #mustbethemeds
FINALLY CBD oil without a trace of THC.  This is a natural, organic, non-pharmaceutical, pure oil with no side effects and its legal in 50 states.  It's helping thousands upon thousands of people..... and the best news is it may help YOU too!  ##Chronicpain ##Parkinson's  ##Huntington's ###Autism ##ADHD. ###Epilepsy  ##Seizures. ##Migraines.  ##Cancer. ##Insomnia  ##Brainfog.  ##PTSD. ##Anxiety.  ##Allergies  ##Acne  ##Addictionrecovery  www.Hempworx.com/Henkener
Feeling like ass today.  #migraine has me laying low and feeling useless. #bestwishes to everyone... regardless of whether you had a good day or not. #theimportantthing is to #keeptrying #nomatterwhat #lovetoall #chronicallyill  #chronicpain #fibromyalgia #migrainelife #idbethereificould #bestwishes #gentlehugs #nevergiveup #maine
I love being a mom...even today. Today was a rough day to be a mom but I did it and my kids feel loved, supported and at the end of the day that’s all I really care about. But on a selfish note, I hope Golden State wins tonight!!😊✨
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#momlife #sfbayarea #warriors ✨
#lawofattraction #imblessed #positivity #miracles #powerofnow #nofilter  #goldenstatewarriors #momanddaughter #daily #bethechange ✨
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#naturalbeauty #makeadifference #california #wheelchairlife 
#californialiving #californiadreaming #californiagirl #instagood #disabledandproud #disabledandcute #ehlersdanlossyndrome #pots #gastroparesis #chronicillness #chronicpain #elastigirl #bendygirl
I love being a mom...even today. Today was a rough day to be a mom but I did it and my kids feel loved, supported and at the end of the day that’s all I really care about. But on a selfish note, I hope Golden State wins tonight!!😊✨ ✨ ✨ #momlife  #sfbayarea  #warriors  ✨ #lawofattraction  #imblessed  #positivity  #miracles  #powerofnow  #nofilter  #goldenstatewarriors  #momanddaughter  #daily  #bethechange  ✨ ✨ ✨ ✨ #naturalbeauty  #makeadifference  #california  #wheelchairlife  #californialiving  #californiadreaming  #californiagirl  #instagood  #disabledandproud  #disabledandcute  #ehlersdanlossyndrome  #pots  #gastroparesis  #chronicillness  #chronicpain  #elastigirl  #bendygirl 
CLC MEMBER FEATURE: I’m Lezlee! I’m a 21 year old who loves running cross country and track. I used to be the girl who had no cares in the world until my life flipped upside down. One afternoon on our school’s indoor track at practice, I started feeling funny. I started to see spots and became very ill. Knowing the person I am, I wanted to keep going, *one more lap I thought* WRONG! The last thing I remembered was thinking to myself that I couldn’t feel my legs, that they were gone.
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Little did I know, this would be my life for awhile. I spent days in different ERs and doctors office getting fluids, medications, and tests done for literally no answers at all. I started to become hopeless and wanted to end everything when I came across this page and sought advice from people who knew and understood my struggle.
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The doctors finally got closer to somewhat of an answer by ruling it as an autoimmune disorder, but which one? They also realized this has been going on for a while now but never put two and two together.
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So... here are some of my symptoms: numbness in hands/feet/legs, joint pain, rash when in sun too long (pictured), passing out, confusion, memory loss, fatigue, dry mouth, headache, seizures, anxiety, depression, mood changes, and many more. I just hope some of y’all can help and give me advice because I’m new to this and am up to trying anything to help my symptoms! I hope to get back to running and living life as best as I can. Thank you all️ 💕
#chronicloveclub
CLC MEMBER FEATURE: I’m Lezlee! I’m a 21 year old who loves running cross country and track. I used to be the girl who had no cares in the world until my life flipped upside down. One afternoon on our school’s indoor track at practice, I started feeling funny. I started to see spots and became very ill. Knowing the person I am, I wanted to keep going, *one more lap I thought* WRONG! The last thing I remembered was thinking to myself that I couldn’t feel my legs, that they were gone. • Little did I know, this would be my life for awhile. I spent days in different ERs and doctors office getting fluids, medications, and tests done for literally no answers at all. I started to become hopeless and wanted to end everything when I came across this page and sought advice from people who knew and understood my struggle. • The doctors finally got closer to somewhat of an answer by ruling it as an autoimmune disorder, but which one? They also realized this has been going on for a while now but never put two and two together. • So... here are some of my symptoms: numbness in hands/feet/legs, joint pain, rash when in sun too long (pictured), passing out, confusion, memory loss, fatigue, dry mouth, headache, seizures, anxiety, depression, mood changes, and many more. I just hope some of y’all can help and give me advice because I’m new to this and am up to trying anything to help my symptoms! I hope to get back to running and living life as best as I can. Thank you all️ 💕 #chronicloveclub 
Taking a break in between loads of laundry, wearing my sunset pansexual shirt in the last few days before the beginning of pride month! ❤️💛💚💙💜❤️💛💚💙
#disabledandproud  #buildaladder #fibromyalgia #chronicmigraine #chronicillness #chronicpain #warrior #babewithamobilityaid #dizziness #glasses #layingbutstillslaying #plussize #smile #chubby #plussizefashion #plussizemodel #bodyposi #bodylove #selflove #love #selfcare #panseuxal #lgbt #gay
Taking a break in between loads of laundry, wearing my sunset pansexual shirt in the last few days before the beginning of pride month! ❤️💛💚💙💜❤️💛💚💙 #disabledandproud  #buildaladder  #fibromyalgia  #chronicmigraine  #chronicillness  #chronicpain  #warrior  #babewithamobilityaid  #dizziness  #glasses  #layingbutstillslaying  #plussize  #smile  #chubby  #plussizefashion  #plussizemodel  #bodyposi  #bodylove  #selflove  #love  #selfcare  #panseuxal  #lgbt  #gay 
I’ve been living on the couch for a few days, dosing up on painkillers and going out at night trying to appear normal. I want so badly to be normal that I even fake it around the people I love...I wish I could just show them how bad the pain is...
💊💔♿️💉🎗 #pain #cripple #cardiologist #fightingformyhealth #fibromyalgia #fibro #ME #cfs #tired #pcos #flair #loopmotion #allegron #tachycardia #medicated #cbd #arrhythmia #hope #chronicpain #chronicillness #invisibledisease #heartproblems
I’ve been living on the couch for a few days, dosing up on painkillers and going out at night trying to appear normal. I want so badly to be normal that I even fake it around the people I love...I wish I could just show them how bad the pain is... 💊💔♿️💉🎗 #pain  #cripple  #cardiologist  #fightingformyhealth  #fibromyalgia  #fibro  #ME  #cfs  #tired  #pcos  #flair  #loopmotion  #allegron  #tachycardia  #medicated  #cbd  #arrhythmia  #hope  #chronicpain  #chronicillness  #invisibledisease  #heartproblems 
Looking out through my dad's backyard. I absolutely love this place... There's wildlife, beautiful trees, did I mention the wildlife? There's something about looking out your window and seeing raccoons, or dear, or rabbits, or the coyotes (which are new). It's a quiet, beautiful place, and I absolutely love it out here.

#fibromyalgia #fibro #painmanagement #chronicpain #chronicillness #invisibleillness #butyoudontlooksick #spoonie #spoontheory #Findthehappy #makeyourownhappy #choosetosmile #outdoors #blueskies #happyplace
Looking out through my dad's backyard. I absolutely love this place... There's wildlife, beautiful trees, did I mention the wildlife? There's something about looking out your window and seeing raccoons, or dear, or rabbits, or the coyotes (which are new). It's a quiet, beautiful place, and I absolutely love it out here. #fibromyalgia  #fibro  #painmanagement  #chronicpain  #chronicillness  #invisibleillness  #butyoudontlooksick  #spoonie  #spoontheory  #Findthehappy  #makeyourownhappy  #choosetosmile  #outdoors  #blueskies  #happyplace 
This is what makes it hard getting close to people.
I feel like when I'm happy around someone, they will judge me when I struggle.
Because they see "I'm fine".
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#fibromyalgia 
#interstitialcystitis #chronicpain #chronicillness #like #likethis #quote #quotes #lupus #crohnsdisease #cfs #endo #endometriosis #sickness #mentalhealth #depression #spoonie
It's a beautiful day to be alive! 😄🍃 I promise myself to be the best me I can be, to work to #grow in strength, resiliency, and even compassion, too, and  to endeavor to never take a day for granted 🕊🌻⛰🤗 Having tasted being bedridden and crippled in #pain and inflammation far too many times over the past 16 years, I have a BLINDING understanding of the importance of consistently pushing and moving forward in the name of my 🌺blossoming🌺. Right now I'm set up on the living room floor with a yoga mat, some blankets and pillows, and just some #pilates and yoga workout gear to get myself stretched out and prepped for our first #hiking outing tomorrow 😄🖒⛰🌳🌾
It's a beautiful day to be alive! 😄🍃 I promise myself to be the best me I can be, to work to #grow  in strength, resiliency, and even compassion, too, and to endeavor to never take a day for granted 🕊🌻⛰🤗 Having tasted being bedridden and crippled in #pain  and inflammation far too many times over the past 16 years, I have a BLINDING understanding of the importance of consistently pushing and moving forward in the name of my 🌺blossoming🌺. Right now I'm set up on the living room floor with a yoga mat, some blankets and pillows, and just some #pilates  and yoga workout gear to get myself stretched out and prepped for our first #hiking  outing tomorrow 😄🖒⛰🌳🌾
This is a Certificate of Analysis (COA). Hempworx posts COAs for each batch, per product produced, on our website. ➡️We have nothing to hide. 🌱
Many companies do not post these because they don't want you to see the results. 
Notice that the COA for our CBD Oil shows no presence of:
🚫 microbes 🚫 heavy metals
🚫 pesticides
🚫 solvents
You might find lower prices elsewhere, but I bet you'd be surprised what you'd find in those products... IF you can find a COA!
Know what you are consuming!🌱
See all of our labs under "Documentation" at www.myCBDgirl.com! 💚 #healthynothigh #cannabidiol #cbdlife #cbd #myCBDgirl #hemp #hemplove #cbdcures #hempheals #affiliatemarketing #extracts #chronicpain #fullspectrum #cbdoil #hempworx #cbdisolate #cannabis #arthritis #crohns #anxiety #menopause #cancer #hempoil #cannabiniods #nashville #tennessee #clarksville #ms
This is a Certificate of Analysis (COA). Hempworx posts COAs for each batch, per product produced, on our website. ➡️We have nothing to hide. 🌱 Many companies do not post these because they don't want you to see the results. Notice that the COA for our CBD Oil shows no presence of: 🚫 microbes 🚫 heavy metals 🚫 pesticides 🚫 solvents You might find lower prices elsewhere, but I bet you'd be surprised what you'd find in those products... IF you can find a COA! Know what you are consuming!🌱 See all of our labs under "Documentation" at www.myCBDgirl.com! 💚 #healthynothigh  #cannabidiol  #cbdlife  #cbd  #myCBDgirl  #hemp  #hemplove  #cbdcures  #hempheals  #affiliatemarketing  #extracts  #chronicpain  #fullspectrum  #cbdoil  #hempworx  #cbdisolate  #cannabis  #arthritis  #crohns  #anxiety  #menopause  #cancer  #hempoil  #cannabiniods  #nashville  #tennessee  #clarksville  #ms 
It’s supposed to be 97 degrees here tomorrow.... might as well start digging my grave tonight 💀😩
It’s supposed to be 97 degrees here tomorrow.... might as well start digging my grave tonight 💀😩
To prep for my allergist appointment on Monday, I had to go through my medical history back to 2011 to track all my past allergic reactions etc. It was surreal reading everything I've been through medically, mentally and physically, all in between graduating from college, travelling, hobbies, friendships, meeting my fiancé, living abroad, and everything else I've been able to accomplish. I've been knocked off course so much my original path is lost to me.  My goal of going to bed proud of myself has never changed. Reset. Re-focus. Change the plan but never the goal. Yes you'll have bad days but you will get back up again. Keep going. #reset #refocus #lawofattraction #begrateful #ibdawareness #ileostomy #crohns #ostomate #goal #determination #mentalhealth #depression #anxiety #fibromyalgia #beproud #restart #keepfighting #invisibleillness #motivation #chronicpain #chronicillness
To prep for my allergist appointment on Monday, I had to go through my medical history back to 2011 to track all my past allergic reactions etc. It was surreal reading everything I've been through medically, mentally and physically, all in between graduating from college, travelling, hobbies, friendships, meeting my fiancé, living abroad, and everything else I've been able to accomplish. I've been knocked off course so much my original path is lost to me. My goal of going to bed proud of myself has never changed. Reset. Re-focus. Change the plan but never the goal. Yes you'll have bad days but you will get back up again. Keep going. #reset  #refocus  #lawofattraction  #begrateful  #ibdawareness  #ileostomy  #crohns  #ostomate  #goal  #determination  #mentalhealth  #depression  #anxiety  #fibromyalgia  #beproud  #restart  #keepfighting  #invisibleillness  #motivation  #chronicpain  #chronicillness 
It’s been a rough day. The tropical storm system is messing with me pretty badly. My #chiariheadache is always worse with storms and so is my #dysautonomia. The only thing that is seeming to help the headaches is to stabilize my neck. Kaz and Athas are chilling today, thankfully allowing me to rest. Praying this storm dissipates quicker than expected. It’s expected to last all week 😰. -
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Check out our pawtners 🐶🐕🐾
@fantastic_fin_fry
@hearingdoghanalei 
@cai.the.service.saviour
@sdit_atlas
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#chronicillnesses #chronicillnesswarrior
#servicedogteam #respectthevest #medicalalertdog #posturalorthostatictachycardiasyndrome #POTSieSTRONG #dysautonomia #chiarimalformation #chronicpain #chronicfatigue #traumaticbraininjury #ehlersdanlossyndrome #eds #zebrastrong #ComplexPTSD #mastcellactivationdisorder #connectivetissuedisorder #goldenretrieversofinstagram #goldenretrieverservicedog
It’s been a rough day. The tropical storm system is messing with me pretty badly. My #chiariheadache  is always worse with storms and so is my #dysautonomia . The only thing that is seeming to help the headaches is to stabilize my neck. Kaz and Athas are chilling today, thankfully allowing me to rest. Praying this storm dissipates quicker than expected. It’s expected to last all week 😰. - - Check out our pawtners 🐶🐕🐾 @fantastic_fin_fry @hearingdoghanalei @cai.the.service.saviour @sdit_atlas - - - - - - #chronicillnesses  #chronicillnesswarrior  #servicedogteam  #respectthevest  #medicalalertdog  #posturalorthostatictachycardiasyndrome  #POTSieSTRONG  #dysautonomia  #chiarimalformation  #chronicpain  #chronicfatigue  #traumaticbraininjury  #ehlersdanlossyndrome  #eds  #zebrastrong  #ComplexPTSD  #mastcellactivationdisorder  #connectivetissuedisorder  #goldenretrieversofinstagram  #goldenretrieverservicedog 
[Caption reads:] So I've been doing some research, and it looks like the type of seizures I might be having are myoclonic ones. It also looks like I could be having non-motor focal seizures, which would explain the hallucinations 😕
I've thought it could just be normal myoclonic jerks, but every time it happens I get an "aura" beforehand. I get a weird type of nausea that I've never had before, then it goes away and I start having the possible "seizures".
Me and my mum both agree that if I do have a type of epilepsy, it's probably Juvenile myoclonic epilepsy (JME).
Yeah, it's kinda hard to think about because there are only two medical problems I've always dreaded, and epilepsy is one of them.
I dunno, it might be nothing, but we've booked a doctors appointment just incase. People with EDS can often end up with epilepsy, mostly fully aware seizures (just like I'm having), so we're just erring on the side of caution.
Anyway, I hope you enjoy EDS awareness month and you have a great day full of spoons!! 🥄🥄 [Caption ends]
{Image Description: A photo of a mustard yellow zebra Stripe background with white text. The text reads; EDS random fact #24:
Our digestion system may have structural abnormalities & other connective tissue problems that result in irritable bowel syndrome, acid reflux, gastroperisis, constipation and...
... other NSFW symptoms.}
[Caption reads:] So I've been doing some research, and it looks like the type of seizures I might be having are myoclonic ones. It also looks like I could be having non-motor focal seizures, which would explain the hallucinations 😕 I've thought it could just be normal myoclonic jerks, but every time it happens I get an "aura" beforehand. I get a weird type of nausea that I've never had before, then it goes away and I start having the possible "seizures". Me and my mum both agree that if I do have a type of epilepsy, it's probably Juvenile myoclonic epilepsy (JME). Yeah, it's kinda hard to think about because there are only two medical problems I've always dreaded, and epilepsy is one of them. I dunno, it might be nothing, but we've booked a doctors appointment just incase. People with EDS can often end up with epilepsy, mostly fully aware seizures (just like I'm having), so we're just erring on the side of caution. Anyway, I hope you enjoy EDS awareness month and you have a great day full of spoons!! 🥄🥄 [Caption ends] {Image Description: A photo of a mustard yellow zebra Stripe background with white text. The text reads; EDS random fact #24 : Our digestion system may have structural abnormalities & other connective tissue problems that result in irritable bowel syndrome, acid reflux, gastroperisis, constipation and... ... other NSFW symptoms.}
Ehlers Danlos Syndrome (EDS) Hypermobility/Classic type; It's Neck Brace Time! 
My left shoulder is loose and the joint is subluxing (partially dislocating). It has destabilised my neck and has caused what I think is a costochondritis flare up (inflammation of the ribcage). The chest pain feels more sinister than it actually is. 
The pain radiates up my neck, into my head causing a migraine. I have sharp nerve like shooting pains down the back of my neck and down the flank of my back from the ribs to hip. I'm not entirely sure what the cause of this pain is. 
The neck brace is helping my back as I'm resting the weight of my head..the shooting pain in my neck is REALLY painful. I'm not sure if it's whiplash, a trapped nerve, tendon pain or what the chest pain is about. I suspect it's all caused by such a big shoulder joint, rolling out of place so much. 
I should brace my left shoulder but am about to go to bed.

I think typing at the computer had caused all this trouble for me. Damn EDS. 
#ehlersdanlosgrrrls #ehlersdanlossyndrome #ehlersdanlos #ehlersdanloshypermobility #ehlersdanlospain #subluxation #partialdislocation #shoulder #shouldersubluxation #neckbrace #whiplash #shootingpain #costochondritis #costochondritissucks #chronicpain #chronicfatigue #chronicillness #spoonie #spoonielife #disability #disabilityawareness #autisticadult #autistic #actuallyautistic
Ehlers Danlos Syndrome (EDS) Hypermobility/Classic type; It's Neck Brace Time! My left shoulder is loose and the joint is subluxing (partially dislocating). It has destabilised my neck and has caused what I think is a costochondritis flare up (inflammation of the ribcage). The chest pain feels more sinister than it actually is. The pain radiates up my neck, into my head causing a migraine. I have sharp nerve like shooting pains down the back of my neck and down the flank of my back from the ribs to hip. I'm not entirely sure what the cause of this pain is. The neck brace is helping my back as I'm resting the weight of my head..the shooting pain in my neck is REALLY painful. I'm not sure if it's whiplash, a trapped nerve, tendon pain or what the chest pain is about. I suspect it's all caused by such a big shoulder joint, rolling out of place so much. I should brace my left shoulder but am about to go to bed. I think typing at the computer had caused all this trouble for me. Damn EDS. #ehlersdanlosgrrrls  #ehlersdanlossyndrome  #ehlersdanlos  #ehlersdanloshypermobility  #ehlersdanlospain  #subluxation  #partialdislocation  #shoulder  #shouldersubluxation  #neckbrace  #whiplash  #shootingpain  #costochondritis  #costochondritissucks  #chronicpain  #chronicfatigue  #chronicillness  #spoonie  #spoonielife  #disability  #disabilityawareness  #autisticadult  #autistic  #actuallyautistic 
Stating the obvious Giant Wheel. Can’t believe I actually went up in this, but so glad I did . Got a great view of the men’s toilet 🚽 area , ( outside urinals) nice 👍😂😂😂#onlyinbelfast #ferriswheel #conqueryourfears #afraidofheights #greatview #belfastlough #bbcmusic#bigweekend #greatfun#girlsday #birthdayweekend #spoonie #spoonielife #spoonieliving#autoimmunedisease #lupus#fibromyalgia #chronicpain #chronicillness #chronicfatigue #titanicslipway
Stating the obvious Giant Wheel. Can’t believe I actually went up in this, but so glad I did . Got a great view of the men’s toilet 🚽 area , ( outside urinals) nice 👍😂😂😂#onlyinbelfast  #ferriswheel  #conqueryourfears  #afraidofheights  #greatview  #belfastlough  #bbcmusic #bigweekend  #greatfun #girlsday  #birthdayweekend  #spoonie  #spoonielife  #spoonieliving #autoimmunedisease  #lupus #fibromyalgia  #chronicpain  #chronicillness  #chronicfatigue  #titanicslipway 
This was me today.. just a big ball of NOPE. I smoked weed, I napped and I cried. Today I survived, and that's all I can ask of myself on days like today, when I want to give up. #keepfighting #bigballofnope #nope #bignopefromme #mentalhealthawareness #mentalhealth #isurvivedtoday #isurvived #chronicpain #chronichillness #depression #anxiety #tomorrowisanewday
Eu tenho um Cocker spaniel que eu amo muito, chamado Kadu! Ele tem uma namorada que se chama Mel! Eles tiveram 4 filhotinhos há um mês! 
É muito amor envolvido....
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I have a Cocker Spaniel that I love very much, called Kadu! He has a girlfriend named Mel! They had 4 puppies a month ago! It's a lot of love involved ....
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#café #coffee #awereness #mindfullness #cockerspaniel #puppies #superação #gratidão #dogs #dog #motivação #sonhos #dreamer #foco #força #meditation #faith #sucesso #oportunidades #illustration #Godisgood #Jesus #belive #youcandoit #coaching #chronicpain #fibro #fibrowarrior #fibromialgia #fibromyalgia

@robsonricardo2012 
@nvanacker_22 
@nathhgvanacker 
@leovanacker
Eu tenho um Cocker spaniel que eu amo muito, chamado Kadu! Ele tem uma namorada que se chama Mel! Eles tiveram 4 filhotinhos há um mês! É muito amor envolvido.... . . I have a Cocker Spaniel that I love very much, called Kadu! He has a girlfriend named Mel! They had 4 puppies a month ago! It's a lot of love involved .... . . #café  #coffee  #awereness  #mindfullness  #cockerspaniel  #puppies  #superação  #gratidão  #dogs  #dog  #motivação  #sonhos  #dreamer  #foco  #força  #meditation  #faith  #sucesso  #oportunidades  #illustration  #Godisgood  #Jesus  #belive  #youcandoit  #coaching  #chronicpain  #fibro  #fibrowarrior  #fibromialgia  #fibromyalgia  @robsonricardo2012 @nvanacker_22 @nathhgvanacker @leovanacker
I’m struggling so much today. I had all intentions of making it a wonderfully productive day but it’s just not happening. I’m sore and feel yuck, and my mind is spinning all the horrible shit it likes to sometimes. 
I dunno how I’m gonna get myself out of this but I need to before it becomes dangerous and full of drama that I just don’t want. 
I can’t think straight though. All I can think about is the pain - mental and physical - and I just want to crawl back into bed until it all goes away but I know that’s not gonna help anything.
I guess it’s back to basics and just trying to get through the day. Eat, get dressed, fill the time, put on some more music....
I wish I could kill these illnesses. I wish they would disappear. I guess I’m still deep in the fight of breaking free...
I’m struggling so much today. I had all intentions of making it a wonderfully productive day but it’s just not happening. I’m sore and feel yuck, and my mind is spinning all the horrible shit it likes to sometimes. I dunno how I’m gonna get myself out of this but I need to before it becomes dangerous and full of drama that I just don’t want. I can’t think straight though. All I can think about is the pain - mental and physical - and I just want to crawl back into bed until it all goes away but I know that’s not gonna help anything. I guess it’s back to basics and just trying to get through the day. Eat, get dressed, fill the time, put on some more music.... I wish I could kill these illnesses. I wish they would disappear. I guess I’m still deep in the fight of breaking free...
Made a tracker for June! I've never done it before but really should have. I'm not super creative or original yet but I'll get there. 
Who else does trackers? Tag me in them or use the hashtag #SpoonieTracker so we can all share & get some inspiration! 💚🥄
Made a tracker for June! I've never done it before but really should have. I'm not super creative or original yet but I'll get there. Who else does trackers? Tag me in them or use the hashtag #SpoonieTracker  so we can all share & get some inspiration! 💚🥄
I don't think people truly understand how crucial magnesium is to our well being. Every single person NEEDS magnesium. One of the best ways to get it into our bodies is through our skin. Got Magnesium? www.kissmybath.com💋 Magnesium & Herbal Infused Products #kissmybath -
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#magnesium #minerals #transdermal #naturalmedicine #healing #muscles #cramps #chronicpain #chronicillness #migraine #anxiety #insomnia #sleep #wellness #relaxing #gotmagnesium #magnesiumcream #allnatural #heal #mindbodysoul #wellness #feelgood #healthandwellness #wellbeing #feelbetter #magnesiumislife #naturalproducts #musthave
I don't think people truly understand how crucial magnesium is to our well being. Every single person NEEDS magnesium. One of the best ways to get it into our bodies is through our skin. Got Magnesium? www.kissmybath.com💋 Magnesium & Herbal Infused Products #kissmybath  - - - - - - - - - - #magnesium  #minerals  #transdermal  #naturalmedicine  #healing  #muscles  #cramps  #chronicpain  #chronicillness  #migraine  #anxiety  #insomnia  #sleep  #wellness  #relaxing  #gotmagnesium  #magnesiumcream  #allnatural  #heal  #mindbodysoul  #wellness  #feelgood  #healthandwellness  #wellbeing  #feelbetter  #magnesiumislife  #naturalproducts  #musthave 
I've started asking for #nostrawplease for a while now...probably a year or two and this is the first time I've been brought a spoon because "that way you can help yourself with the ice bits". What a lovely thought!!! 😍
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#savetheearth #environmentalist #environmentallyfriendly
👀💤💭🛏 Just gone midnight here and painsomnia has kicked in. There is a thunderstorm happening which I love but the humidity in the air is horrible and my brain is wired. I can either toss and turn for the next few hours hoping my meds kick in and that I can cool down and switch off or I can read until the words start to blur together and with any luck be able to just pop my book down and drift off... the latter is definitely far more enjoyable! ⛈📖💤 Goodnight & sweet dreams 🙏😴🤞🏼💙.
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#painsomnia #insomnia #bedtime #nighttime #reading #books #booklover #bookworm #bookseries #laurenkate #fallenseries #bookmark #chronicpain #chronicfatigue #chronicillness #chronicallyill #wideawakeclub #bedtable #overbedtable #bedroom #mybedroom #mybed #meds #medication
👀💤💭🛏 Just gone midnight here and painsomnia has kicked in. There is a thunderstorm happening which I love but the humidity in the air is horrible and my brain is wired. I can either toss and turn for the next few hours hoping my meds kick in and that I can cool down and switch off or I can read until the words start to blur together and with any luck be able to just pop my book down and drift off... the latter is definitely far more enjoyable! ⛈📖💤 Goodnight & sweet dreams 🙏😴🤞🏼💙. . . . . . #painsomnia  #insomnia  #bedtime  #nighttime  #reading  #books  #booklover  #bookworm  #bookseries  #laurenkate  #fallenseries  #bookmark  #chronicpain  #chronicfatigue  #chronicillness  #chronicallyill  #wideawakeclub  #bedtable  #overbedtable  #bedroom  #mybedroom  #mybed  #meds  #medication 
Ah, playing around with some ideas in color comps! Thinking of doing a color and grayscale print. Or should it be just left linework? 
#wip #art #artist #illustrator #illustration #coloringbooks #ink #crowquill #graphictees  #sketch  #zen #logo #friends #nature #wildlife #blackandwhite #color #grizzly #grizzlybear #bear #goals  #anxiety #mdd #fibromyalgia #fibro #chronicpain #chronicpainwarrior
Bad leg day, my trousers felt really tight. 😭 Honestly it almost broke me. Hate these conditions. Almost let it beat me and make me hide away but gave myself a good talking to, spent some time pampering and went to a meal and film with my amazing hubby. Some days this condition just beats me, but not today 💪🏻 Due to dealing with this since my early teens I have massive self-confidence and self-worth issues and posting a photo of myself is so so hard 😰
Sending all my love to all my lippy ladies!! #lipoedema #lipodema #lipedema #lymphadema #lymphedema #chronicpain #battles #chronicillness #eds #ehlersdanlossyndrome  #stillfighting #warriorprincess
Bad leg day, my trousers felt really tight. 😭 Honestly it almost broke me. Hate these conditions. Almost let it beat me and make me hide away but gave myself a good talking to, spent some time pampering and went to a meal and film with my amazing hubby. Some days this condition just beats me, but not today 💪🏻 Due to dealing with this since my early teens I have massive self-confidence and self-worth issues and posting a photo of myself is so so hard 😰 Sending all my love to all my lippy ladies!! #lipoedema  #lipodema  #lipedema  #lymphadema  #lymphedema  #chronicpain  #battles  #chronicillness  #eds  #ehlersdanlossyndrome  #stillfighting  #warriorprincess 
I took a buttload of codeine & within half an hour my pain was greatly reduced. Thank you world 😅 So I took Finley out on a 15min walk around the village...by the end I was being super aggressive with Lyle again (why does a high hr do this?! We used to refer to it as 'seizure rage' as obviously seizures are triggered by hr at that level too, so we assumed they caused it) & feeling like utter shite, but Finley hadn't had a dark walk in ages & I needed to get out to rest my shitty neck. Plus I'm hoping I'll be able to sleep easier now. Gorgeous night out there 😍
#chronicpain #chronicfatigue #chronicallyill #chronicillness #POTSsyndrome #disabled #disability #spoonie
#amateurphotography #amateurphotographer #nature #photographersofinstagram #sunset #sunsetporn
I took a buttload of codeine & within half an hour my pain was greatly reduced. Thank you world 😅 So I took Finley out on a 15min walk around the village...by the end I was being super aggressive with Lyle again (why does a high hr do this?! We used to refer to it as 'seizure rage' as obviously seizures are triggered by hr at that level too, so we assumed they caused it) & feeling like utter shite, but Finley hadn't had a dark walk in ages & I needed to get out to rest my shitty neck. Plus I'm hoping I'll be able to sleep easier now. Gorgeous night out there 😍 #chronicpain  #chronicfatigue  #chronicallyill  #chronicillness  #POTSsyndrome  #disabled  #disability  #spoonie  #amateurphotography  #amateurphotographer  #nature  #photographersofinstagram  #sunset  #sunsetporn 
Iv been in an IC flare since getting back from vacation. Maybe it’s the stress of getting back into normal life 🤷🏻‍♀️ anyway, forcing myself to get my body moving is so important. It helps!! Love my hiking buddy #cowboythespringer 🐄🙎🏼‍♂️ .
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#interstitialcystitis #ic #chronicpain #spoonie #springerspaniel #englishspringerspaniel #ilovemyspaniel #utahisrad #chronicpainawareness #icflare #utahdogs #dogsofutah #girlsoutdoors #adventuretime #myhappyplace #cowboy #springerspanielsofinstagram
Iv been in an IC flare since getting back from vacation. Maybe it’s the stress of getting back into normal life 🤷🏻‍♀️ anyway, forcing myself to get my body moving is so important. It helps!! Love my hiking buddy #cowboythespringer  🐄🙎🏼‍♂️ . . . . . #interstitialcystitis  #ic  #chronicpain  #spoonie  #springerspaniel  #englishspringerspaniel  #ilovemyspaniel  #utahisrad  #chronicpainawareness  #icflare  #utahdogs  #dogsofutah  #girlsoutdoors  #adventuretime  #myhappyplace  #cowboy  #springerspanielsofinstagram 
TOPIC: Flair ups
So I’m having another flair up today and I believe it’s linked to my long standing conditioned response to drinking alcohol, sitting for a certain period of time, wearing tight jeans and sitting on a certain type of chair. We had a lovely night out at a gorgeous little wine bar with some friends last night and whilst I didn’t feel any pain during, it has left me with severe leg pain his morning. I probably had 4 glasses of red, more than I should have for my health, but you still need to enjoy life from time to time. My approach to my flair up this morning has been different to ones in the past. Now, since reading about TMS by Dr Sano, I am changing the way I think about my pain. I don’t believe my pain is here this morning because of the wine, the jeans etc, I believe it started because of the fear that’s associated with these activities, and the response I’ve conditioned to over time. So my routine now has been to stop ✋ take a break from those thoughts, inhale these oils which have been having a very powerful effect on my mood and pain, and I feed my brain 🧠 positive reinforcing thoughts that no, my body is fine. So what if I had a few wines, I might be a bit dusty - but there’s no need for the leg pain, my legs are perfectly healthy! These constant thinking patterns and belief systems combined with my ritual now of flooding the pain map with uplifting natural aromas are effectively “rewiring” or “retraining” my brain from pain. So don’t give in to the fear when you have a flair up, and maybe question your pain, does it make sense, are all your scans saying there’s nothing wrong with you but you still feel pain? Question that. Because WE have power over our mind, truly. Just have to be persistent. 👊💙#healit
TOPIC: Flair ups So I’m having another flair up today and I believe it’s linked to my long standing conditioned response to drinking alcohol, sitting for a certain period of time, wearing tight jeans and sitting on a certain type of chair. We had a lovely night out at a gorgeous little wine bar with some friends last night and whilst I didn’t feel any pain during, it has left me with severe leg pain his morning. I probably had 4 glasses of red, more than I should have for my health, but you still need to enjoy life from time to time. My approach to my flair up this morning has been different to ones in the past. Now, since reading about TMS by Dr Sano, I am changing the way I think about my pain. I don’t believe my pain is here this morning because of the wine, the jeans etc, I believe it started because of the fear that’s associated with these activities, and the response I’ve conditioned to over time. So my routine now has been to stop ✋ take a break from those thoughts, inhale these oils which have been having a very powerful effect on my mood and pain, and I feed my brain 🧠 positive reinforcing thoughts that no, my body is fine. So what if I had a few wines, I might be a bit dusty - but there’s no need for the leg pain, my legs are perfectly healthy! These constant thinking patterns and belief systems combined with my ritual now of flooding the pain map with uplifting natural aromas are effectively “rewiring” or “retraining” my brain from pain. So don’t give in to the fear when you have a flair up, and maybe question your pain, does it make sense, are all your scans saying there’s nothing wrong with you but you still feel pain? Question that. Because WE have power over our mind, truly. Just have to be persistent. 👊💙#healit 
In the past few posts we have seen that truly our biography becomes our biology
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We are sending millions of neural, chemical and hormonal signals into our bodies for good, or ill, every second of the day
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The quality of these signals facilitates healing or blocks it. They create health or they further disease
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This is what we teach, facilitate and play with at The Healed Tribe Clinic
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We help you notice, with a shit load of compassion and zero bullshit, just where you’ve been draining your body’s battery without realising, and sending haywire messages into your body (think terrible EDM at all different speeds going into that lovely vessel)
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We then teach you, in fun, accessible, and hugely empowering ways, how to start sending a symphony of neural, chemical and hormonal messages into your body and your brain; to re wire and re write your new biography of health
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This is not ‘bio-hacking’ - fuck me I dislike that term. There is no hacking to be done of your already perfect self. There’s nothing wrong with any of us. This is teaching heart, brain and body coherence
*
We gently assist you to shift your internal emotional, intellectual and physiological baseline into one of coherence and healing
*
This is not a silver bullet, this takes 6 weeks or so to really ingrain in and ongoing practice. As with anything in life we get out what we put in. But then this new inner state of wellbeing is yours for life - your tools to use in health, relationships, work, everything
*
The age of the guru and handing out power to an authority figure are dead. We are meant to hold hands and show each other the way through challenge
*
These methods have over 20 years of evidence based research to back them up. Coupled with the experience of our clinical team, we see every day its power to transform
In the past few posts we have seen that truly our biography becomes our biology * We are sending millions of neural, chemical and hormonal signals into our bodies for good, or ill, every second of the day * The quality of these signals facilitates healing or blocks it. They create health or they further disease * This is what we teach, facilitate and play with at The Healed Tribe Clinic * We help you notice, with a shit load of compassion and zero bullshit, just where you’ve been draining your body’s battery without realising, and sending haywire messages into your body (think terrible EDM at all different speeds going into that lovely vessel) * We then teach you, in fun, accessible, and hugely empowering ways, how to start sending a symphony of neural, chemical and hormonal messages into your body and your brain; to re wire and re write your new biography of health * This is not ‘bio-hacking’ - fuck me I dislike that term. There is no hacking to be done of your already perfect self. There’s nothing wrong with any of us. This is teaching heart, brain and body coherence * We gently assist you to shift your internal emotional, intellectual and physiological baseline into one of coherence and healing * This is not a silver bullet, this takes 6 weeks or so to really ingrain in and ongoing practice. As with anything in life we get out what we put in. But then this new inner state of wellbeing is yours for life - your tools to use in health, relationships, work, everything * The age of the guru and handing out power to an authority figure are dead. We are meant to hold hands and show each other the way through challenge * These methods have over 20 years of evidence based research to back them up. Coupled with the experience of our clinical team, we see every day its power to transform
Are you a member of our support group yet? Find us on Facebook and check it out!
KC
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🌟 WIN unique chronic illness clothes from The Unchargeables Shop. Link to giveaway in bio.
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#TheUnchargeables #Spoonie #Chargie #ChronicInsta  #unchargeables  #chronicillness #Spoonies #SpoonieLife #ChronicPain #ChronicFatigue #disability #chronicpainwarrior #InvisibleIllness #autoimmune #supportgroup #lowonenergy #lowbattery #StrongerThanYouThink #chronicillnesswarrior #autoimmunedisease #raredisease #butyoudontlooksick
Are you a member of our support group yet? Find us on Facebook and check it out! KC --------------------------------------------------- 🌟 WIN unique chronic illness clothes from The Unchargeables Shop. Link to giveaway in bio. ---------------------------------------------------- #TheUnchargeables  #Spoonie  #Chargie  #ChronicInsta  #unchargeables  #chronicillness  #Spoonies  #SpoonieLife  #ChronicPain  #ChronicFatigue  #disability  #chronicpainwarrior  #InvisibleIllness  #autoimmune  #supportgroup  #lowonenergy  #lowbattery  #StrongerThanYouThink  #chronicillnesswarrior  #autoimmunedisease  #raredisease  #butyoudontlooksick 
In this episode, Kevin talks to Joann about Colitis ruining her life and how she finally found freedom from it... all while shocking her physician.
https://www.youtube.com/watch?v=A0wSfn7_RKM
In this episode, Kevin talks to Joann about Colitis ruining her life and how she finally found freedom from it... all while shocking her physician. https://www.youtube.com/watch?v=A0wSfn7_RKM
How gorgeous is this boy @stefmeister001 this time just over 4 months ago did i think this boy would be a huge part of my life. Hes my rainbow when it rains like honestly he does everything for me ...today because i was grumpy he took me to the shop just to buy me munchies and make me feel better ....💜 he cheered me up when i felt like crap.... Ive fell in love with someone i actually want to spend the rest of my life...i didnt fall in love for the ...wrong reasons it was for the right... The way he holds me before i go to sleep the way he holds my hand the way i just love him so much he takes all the pain i bare through my chronic and mental illness away ... I cant say a bad word because hes been my rock since day one i love where we could just lie in bed all day and watch movies and just be happy sitting there im sorry this is soppy btw haha 💜 i really really love this boy #love #boyfriend #tagforlikes #chronicillness #handsome #chronicpain #lupus #interstitialcystitis #bpd #bipolardisorder #borderlinepersonalitydisorder
How gorgeous is this boy @stefmeister001 this time just over 4 months ago did i think this boy would be a huge part of my life. Hes my rainbow when it rains like honestly he does everything for me ...today because i was grumpy he took me to the shop just to buy me munchies and make me feel better ....💜 he cheered me up when i felt like crap.... Ive fell in love with someone i actually want to spend the rest of my life...i didnt fall in love for the ...wrong reasons it was for the right... The way he holds me before i go to sleep the way he holds my hand the way i just love him so much he takes all the pain i bare through my chronic and mental illness away ... I cant say a bad word because hes been my rock since day one i love where we could just lie in bed all day and watch movies and just be happy sitting there im sorry this is soppy btw haha 💜 i really really love this boy #love  #boyfriend  #tagforlikes  #chronicillness  #handsome  #chronicpain  #lupus  #interstitialcystitis  #bpd  #bipolardisorder  #borderlinepersonalitydisorder 
Honestly Tkitty's so handsome I can't stand it sometimes. 😍 I made the bad decision (for myself) to take Dakota out to play in the high heat and humidity. Our extra playtime together is really increasing our bond - he used to see JD as his only "friend" to play with outside as I was too ill to do it myself or the weather kept me inside. It's definitely getting too hot and humid for me to be out. Because we're having afternoon thunderstorms every day any outside time results in a nasty muddy pup. So then I had to run him in to the shower and get all the caked mud and burrs off of him. I crashed on the bathroom floor and JD carried me back to bed and put cool packs on my back to help my temperature stabilize. Dakota was a very good boy and stayed with me. I'm soooo exhausted and dizzy. Fortunately I have him scheduled to go to the groomer next week as while I can clip his coat, I have a really hard time pulling his ears due to grip issues. So I'm going to have her give him his extra short summer cut, too, which will help with the mud and burrs. He just has so much fun when we're out together and I hate that the weather's going to prevent that soon.
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#spoonie #spooniestrong #spoonielife #spoonieproblems #chronicallyill #chronicillness #POTs #potsie #potsiegirl #eds #edszebra #ehlersdanlos #ehlersdanlossyndrome #chronicpain #ehlersdanlostype3 #edstype3 #hypermobileehlersdanlos #migraines #hypermobileeds #hypermobility #fibromyalgia #chronicfatiguesyndrome #chronicfatigue #ehlersdanloszebra #chronicmigraines #sdit #servicedogintraining #gastroparesis #nokittyliketkitty
Honestly Tkitty's so handsome I can't stand it sometimes. 😍 I made the bad decision (for myself) to take Dakota out to play in the high heat and humidity. Our extra playtime together is really increasing our bond - he used to see JD as his only "friend" to play with outside as I was too ill to do it myself or the weather kept me inside. It's definitely getting too hot and humid for me to be out. Because we're having afternoon thunderstorms every day any outside time results in a nasty muddy pup. So then I had to run him in to the shower and get all the caked mud and burrs off of him. I crashed on the bathroom floor and JD carried me back to bed and put cool packs on my back to help my temperature stabilize. Dakota was a very good boy and stayed with me. I'm soooo exhausted and dizzy. Fortunately I have him scheduled to go to the groomer next week as while I can clip his coat, I have a really hard time pulling his ears due to grip issues. So I'm going to have her give him his extra short summer cut, too, which will help with the mud and burrs. He just has so much fun when we're out together and I hate that the weather's going to prevent that soon. . . #spoonie  #spooniestrong  #spoonielife  #spoonieproblems  #chronicallyill  #chronicillness  #POTs  #potsie  #potsiegirl  #eds  #edszebra  #ehlersdanlos  #ehlersdanlossyndrome  #chronicpain  #ehlersdanlostype3  #edstype3  #hypermobileehlersdanlos  #migraines  #hypermobileeds  #hypermobility  #fibromyalgia  #chronicfatiguesyndrome  #chronicfatigue  #ehlersdanloszebra  #chronicmigraines  #sdit  #servicedogintraining  #gastroparesis  #nokittyliketkitty 
Meu avô costumava dizer que amadurecemos com os danos e não com os anos! Às vezes aquele momento ruim que tivemos em nossas vidas, serviu como experiência para o nosso amadurecimento. Nada é em vão nessa vida. Tudo serve como lição.
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#café #coffee #awereness #mindfullness #poema #poem #superação #gratidão #dogs #motivação #sonhos #dreamer #foco #força #meditation #faith #sucesso #oportunidades #lifecoaching #Godisgood #Jesus #belive #youcandoit #coaching #chronicpain #fibro #vida #fibrowarrior #fibromialgia #fibromyalgia
Meu avô costumava dizer que amadurecemos com os danos e não com os anos! Às vezes aquele momento ruim que tivemos em nossas vidas, serviu como experiência para o nosso amadurecimento. Nada é em vão nessa vida. Tudo serve como lição. . . #café  #coffee  #awereness  #mindfullness  #poema  #poem  #superação  #gratidão  #dogs  #motivação  #sonhos  #dreamer  #foco  #força  #meditation  #faith  #sucesso  #oportunidades  #lifecoaching  #Godisgood  #Jesus  #belive  #youcandoit  #coaching  #chronicpain  #fibro  #vida  #fibrowarrior  #fibromialgia  #fibromyalgia 
Today was a painful day. I didn’t sleep last night and I’m suffering. My husband has been running since 7am opening our pool and making our yard pretty. I wait all year for these beauties, it’s amazing what flowers do for the soul😍💜 #lupus #interstitialcystitis #spoonie #chronicpain #chronicillness #depression #icwarrior #chronicloveclub #thepatientdiary #inspire #pain #health #strength #igotthis #beautiful #nature #peonylove #beauty #believe #hope #positivevibes
Today was a painful day. I didn’t sleep last night and I’m suffering. My husband has been running since 7am opening our pool and making our yard pretty. I wait all year for these beauties, it’s amazing what flowers do for the soul😍💜 #lupus  #interstitialcystitis  #spoonie  #chronicpain  #chronicillness  #depression  #icwarrior  #chronicloveclub  #thepatientdiary  #inspire  #pain  #health  #strength  #igotthis  #beautiful  #nature  #peonylove  #beauty  #believe  #hope  #positivevibes 
How do you spell relief??🌱
👉 www.cbdwins.com
How do you spell relief??🌱 👉 www.cbdwins.com
👏🏼 Controlled Left Hip Internal Rotation = saved weights 👏🏼
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Having movement options at its finest. Great save!
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#Repost @usa_weightlifting with @get_repost
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Save of the day goes to Ernie Prempeh. He hangs on to this 110kg snatch for a GOOD LIFT. Watch #18Nationals LIVE on our bio link! @jackedhippie
👏🏼 Controlled Left Hip Internal Rotation = saved weights 👏🏼 ⠀ Having movement options at its finest. Great save! ⠀ #Repost  @usa_weightlifting with @get_repost ・・・ Save of the day goes to Ernie Prempeh. He hangs on to this 110kg snatch for a GOOD LIFT. Watch #18Nationals  LIVE on our bio link! @jackedhippie
Back in the ER.  Waiting to be admitted.  Acute chest is not only still present - but has worsened quite a bit.  Fever, pain and increased coughing brought us back and the X-rays confirmed what mama already knew. 😢 .
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Thanks for always holding our arms up in prayer!  Grateful.  #prayforemmy #teamemmy #shehassicklecellbutitdoesnthaveher #teamsicklecell #sicklecell #sicklecellwarrior #sicklecellsucks #ihatesicklecell #aaronandhur #holdingourarmsupinprayer #thelottofus #thelottofus2018 #emmyfaith #lovemakesafamily #lovemadethisfamily #medicalmama #chronicpain #paincrisis#acutechestsyndrome
Back in the ER. Waiting to be admitted. Acute chest is not only still present - but has worsened quite a bit. Fever, pain and increased coughing brought us back and the X-rays confirmed what mama already knew. 😢 . . Thanks for always holding our arms up in prayer! Grateful. #prayforemmy  #teamemmy  #shehassicklecellbutitdoesnthaveher  #teamsicklecell  #sicklecell  #sicklecellwarrior  #sicklecellsucks  #ihatesicklecell  #aaronandhur  #holdingourarmsupinprayer  #thelottofus  #thelottofus2018  #emmyfaith  #lovemakesafamily  #lovemadethisfamily  #medicalmama  #chronicpain  #paincrisis #acutechestsyndrome 
A quick recap on my feeding tube situation to explain yesterday's post (check out previous posts for more details) - I've had my GJ tube since 2014 but have had a lot of issues with it migrating back into my stomach (it is supposed to stay in the jejunum, the middle part of the small intestine) which makes me sick. And the balloon in my stomach that holds it in place ruptures after a few weeks, leaving the tube to wobble around and cause painful granulation tissue. Also, GJs have to be changed every 3-4 months (mine usually more often) so I am at the hospital a lot.

So I decided I wanted to try a dedicated J tube to hopefully eliminate those issues. The surgery, in October 2017, was difficult and much longer than expected. And the complications began right away. Recovery was awful and long. I lost weight and got into a dangerous nutrition situation, so had to go back to my GJ as we worked out the J situation. I had several different J tubes, but after 7+ months of trying, I finally had to accept that my body just can't handle it. Any time I used it I got cramps, nausea and other unpleasant symptoms. Luckily, I still have my GJ, and strangely enough things have actually gotten better with it.

So that's the short version of why I had my J tube removed this week. Yes, it was hard, I suffered a lot and it didn't end up working out. But I feel OK about it. I feel compelled to do everything in my power to improve my quality of life, and not every chance I take is going to help. I've had a lot of other abdominal surgeries and they were all life changing in a positive way, so I can't be too upset about one failure. Although I did learn something important - my body can't handle a J tube.

By the way, my fever is down (but not gone, yet) and I feel much better, although still sick and in a lot of pain, so almost definitely no infection! I am so so relieved. The past couple of days have been been up there at the limits of what I can stand, and have really taken it out of me. But I think the danger is past and I'm heading in the right direction now.

Thank you for all the kind messages and support! I ❤️ you guys! 😊
A quick recap on my feeding tube situation to explain yesterday's post (check out previous posts for more details) - I've had my GJ tube since 2014 but have had a lot of issues with it migrating back into my stomach (it is supposed to stay in the jejunum, the middle part of the small intestine) which makes me sick. And the balloon in my stomach that holds it in place ruptures after a few weeks, leaving the tube to wobble around and cause painful granulation tissue. Also, GJs have to be changed every 3-4 months (mine usually more often) so I am at the hospital a lot. So I decided I wanted to try a dedicated J tube to hopefully eliminate those issues. The surgery, in October 2017, was difficult and much longer than expected. And the complications began right away. Recovery was awful and long. I lost weight and got into a dangerous nutrition situation, so had to go back to my GJ as we worked out the J situation. I had several different J tubes, but after 7+ months of trying, I finally had to accept that my body just can't handle it. Any time I used it I got cramps, nausea and other unpleasant symptoms. Luckily, I still have my GJ, and strangely enough things have actually gotten better with it. So that's the short version of why I had my J tube removed this week. Yes, it was hard, I suffered a lot and it didn't end up working out. But I feel OK about it. I feel compelled to do everything in my power to improve my quality of life, and not every chance I take is going to help. I've had a lot of other abdominal surgeries and they were all life changing in a positive way, so I can't be too upset about one failure. Although I did learn something important - my body can't handle a J tube. By the way, my fever is down (but not gone, yet) and I feel much better, although still sick and in a lot of pain, so almost definitely no infection! I am so so relieved. The past couple of days have been been up there at the limits of what I can stand, and have really taken it out of me. But I think the danger is past and I'm heading in the right direction now. Thank you for all the kind messages and support! I ❤️ you guys! 😊
So today i flew for the first time in my life, all by my own. It was a little bit scary but I am glad I made it.
I am now spending my holiday in England🇬🇧
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#scoliose #scoliosis #backpain #chronicillnes #sick #back #skoliose #illnes #chronicsick #pain #suffering #scars #ashamed #ugly #proud #chronicpain #titanium #love #beproud #dontfeelashamed #wemustdobetter #survived #suffer #hospital #scar
London has lit up!!!! #lightning is everywhere 😍 ⚡️⚡️⚡️ .
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💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜
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#chronicpain #chronicillness #spoonie #ibs #eds #asthma  #fibromyalgia  #disabled #hypermobility #london #ehlersdanlossyndrome #chronicfatigue #pots #pain #Dysautonomia #painrelief #spiritual #edsawareness #london #storm #weatherwatchers
First shower since my surgery and it almost made me faint. I’m so bruised and swollen, tired and in pain, but I’m so incredibly grateful for this surgery. #daytwo 🌈
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#adenomyosis #endometriosis #pcos #chronicpain #hysterectomy #hysterectomyrecovery #recovery #bodybuilding #fitnessmodel #fitnessaddict #fitspo #fitnessgirl #healthy #fitnessjourney #instafit #training #lifestyle #exercise #gymmotivation #workoutmotivation #fitnesslifestyle #gymtime #fitgirl #abs #cardio #fitnesslife #girlswholift #inspiration #photography
First shower since my surgery and it almost made me faint. I’m so bruised and swollen, tired and in pain, but I’m so incredibly grateful for this surgery. #daytwo  🌈 . . . . . #adenomyosis  #endometriosis  #pcos  #chronicpain  #hysterectomy  #hysterectomyrecovery  #recovery  #bodybuilding  #fitnessmodel  #fitnessaddict  #fitspo  #fitnessgirl  #healthy  #fitnessjourney  #instafit  #training  #lifestyle  #exercise  #gymmotivation  #workoutmotivation  #fitnesslifestyle  #gymtime  #fitgirl  #abs  #cardio  #fitnesslife  #girlswholift  #inspiration  #photography 
I met my friends baby today ❤️ then this beauty popped up on my timehop and I realised how much my face has changed since last year. Whilst I don’t resemble a hamster any more I’ve also got more wrinkles 🤭 👵🏼 #face #selfie #beforeandafter #before
I met my friends baby today ❤️ then this beauty popped up on my timehop and I realised how much my face has changed since last year. Whilst I don’t resemble a hamster any more I’ve also got more wrinkles 🤭 👵🏼 #face  #selfie  #beforeandafter  #before 
I hate golf - #itsapersonalthing. And yet here I sit- in a golf cart - having the best time just watching Shawn golf and actually thinking I can give him tips on #howtogolfbetter 🤣🤣🤣🤣
I hate golf - #itsapersonalthing . And yet here I sit- in a golf cart - having the best time just watching Shawn golf and actually thinking I can give him tips on #howtogolfbetter  🤣🤣🤣🤣
This bath bomb from @zeepbath is called #LickIt and I legit want to 😬 It smells like Dole whip rock candy (why isn't that a thing) to every one here omg it's absolutely amazing 😍 It was a fast fizzer that didn't leave any bath art but the scent is SO strong and the water feels amazing, I'm glad I put my bubble bars away bc I definitely don't need one! Storm season has started a bit early and we're waiting for the first bands to move through from #TropicalStormAlberto so I wanted a quick bath to help with swelling, this was perfect 💕 #ChronicPain #ChronicPainAwareness #Lush #LushKitchen #RIPLushKitchen #Zeep #TreatYoself
This bath bomb from @zeepbath is called #LickIt  and I legit want to 😬 It smells like Dole whip rock candy (why isn't that a thing) to every one here omg it's absolutely amazing 😍 It was a fast fizzer that didn't leave any bath art but the scent is SO strong and the water feels amazing, I'm glad I put my bubble bars away bc I definitely don't need one! Storm season has started a bit early and we're waiting for the first bands to move through from #TropicalStormAlberto  so I wanted a quick bath to help with swelling, this was perfect 💕 #ChronicPain  #ChronicPainAwareness  #Lush  #LushKitchen  #RIPLushKitchen  #Zeep  #TreatYoself 
Focus on making a difference in people’s lives then you will always succeed!
Focus on making a difference in people’s lives then you will always succeed!
It has been a long and busy week, and I can feel a #fibroflare coming on! I have some of my essentials at the ready 😄 Are y'all having a good #saturday and ready for the holiday?
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#momlife #wahm #mommyblogger #spoonie #fibromyalgia #chronicillness #fibrowarrior #lifestyleblogger #fibrotog #spooniemom #chronicpain #sahm #invisibleillness #flatlay #fibroblogger #flareday #momof4  #TexasFibroWarrior #momboss #girlmom #stayathomemom #flatlayphotography
It has been a long and busy week, and I can feel a #fibroflare  coming on! I have some of my essentials at the ready 😄 Are y'all having a good #saturday  and ready for the holiday? . . . . . #momlife  #wahm  #mommyblogger  #spoonie  #fibromyalgia  #chronicillness  #fibrowarrior  #lifestyleblogger  #fibrotog  #spooniemom  #chronicpain  #sahm  #invisibleillness  #flatlay  #fibroblogger  #flareday  #momof4   #TexasFibroWarrior  #momboss  #girlmom  #stayathomemom  #flatlayphotography 
🐕👍🏼⛺️ I wouldn’t rather have anyone else holding my toilet paper spindle 😆 fun fact something you may have never thought about, Colt has to help brace me when using the bathroom in the woods because I don’t have the strength to hold myself up while squatting, so I brace on him. Camping was great had to cut it short because of my health but we had fun. Just can’t be out in the middle of nowhere when your body decides to be difficult. We can still have fun at home though. #ServiceDog #TBI #TraumaticBrainInjury #Fighter #IChooseJoy #YouTuber #Vlogger #TheLordIsMyStrength #IChooseJesus #Seizures #Survivor #HeroDog #RawFedDog #Blessed #DoNotDistractServiceDogs #Hypoglycemic #ChronicOvercomer #ICanDoAllThingsThroughChrist #HeIsGreaterThanI #ServiceDogColt #RealLifeDory #JustKeepSwimming #TrickDog #InvisibleDisability #Spoonie #Syncope #StruckDownButNotDestroyed #TonicClonicSeizures #ChronicPain #FearIsALiar
🐕👍🏼⛺️ I wouldn’t rather have anyone else holding my toilet paper spindle 😆 fun fact something you may have never thought about, Colt has to help brace me when using the bathroom in the woods because I don’t have the strength to hold myself up while squatting, so I brace on him. Camping was great had to cut it short because of my health but we had fun. Just can’t be out in the middle of nowhere when your body decides to be difficult. We can still have fun at home though. #ServiceDog  #TBI  #TraumaticBrainInjury  #Fighter  #IChooseJoy  #YouTuber  #Vlogger  #TheLordIsMyStrength  #IChooseJesus  #Seizures  #Survivor  #HeroDog  #RawFedDog  #Blessed  #DoNotDistractServiceDogs  #Hypoglycemic  #ChronicOvercomer  #ICanDoAllThingsThroughChrist  #HeIsGreaterThanI  #ServiceDogColt  #RealLifeDory  #JustKeepSwimming  #TrickDog  #InvisibleDisability  #Spoonie  #Syncope  #StruckDownButNotDestroyed  #TonicClonicSeizures  #ChronicPain  #FearIsALiar 
I hope you’re all feeling well as the weather starts getting warmer! ☀️ I have to get an MRE at the IWK on Monday so I am flying up by myself tomorrow night 😬 my parents are already in Halifax so I won’t be alone but I’ve never flown by myself before !! I’m pretty sure I’m only seeing my GI doctor Monday to check out my stomach and make sure everything is still good on the inside :) I am glad to be getting an MRE before my switch into adult care because I know if there is anything going on in my gut, my doctor will help me ASAP! I’m nervous to make the switch because I hear lots of negative things about that system but I’m hopeful my doctors will make good recommendations for me 🤞🏼 “If nothing ever changed, there’d be no butterflies.” 🦋 #MyPurpleJourney #purple_journey #crohns #crohnsdisease #crohnsawareness #ibd #invisibleillness #autoimmunedisease #autoimmune #chronicillness #chronicallyill #chronicpain #purpleribbons #rheumatoidarthritis #crohnswarrior #crohnsfighter
I hope you’re all feeling well as the weather starts getting warmer! ☀️ I have to get an MRE at the IWK on Monday so I am flying up by myself tomorrow night 😬 my parents are already in Halifax so I won’t be alone but I’ve never flown by myself before !! I’m pretty sure I’m only seeing my GI doctor Monday to check out my stomach and make sure everything is still good on the inside :) I am glad to be getting an MRE before my switch into adult care because I know if there is anything going on in my gut, my doctor will help me ASAP! I’m nervous to make the switch because I hear lots of negative things about that system but I’m hopeful my doctors will make good recommendations for me 🤞🏼 “If nothing ever changed, there’d be no butterflies.” 🦋 #MyPurpleJourney  #purple_journey  #crohns  #crohnsdisease  #crohnsawareness  #ibd  #invisibleillness  #autoimmunedisease  #autoimmune  #chronicillness  #chronicallyill  #chronicpain  #purpleribbons  #rheumatoidarthritis  #crohnswarrior  #crohnsfighter 
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✔Don't miss out on your chance to win a free gram one post back!✔ Giveaway ends tomorrow!
Flavor you don't wanna miss! 🤤 Happy #shatterday  from @healedbyhemp 📸: Orange Crush 🍊 Broad Spectrum CBD Wax . ✔Don't miss out on your chance to win a free gram one post back!✔ Giveaway ends tomorrow!
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THC FREE product is now available‼️ Works just like our full spectrum but 💯 no chance of being detected on a drug test! 🌱 🌱Now Hiring! 🌱 💧Sell CBD OIL💧 💚Take a FREE TOUR💚 http://www.WinWithMDC.com/hellohappyhemp Come experience and share HempWorx CBD products. Help people improve the quality of their lives while improving your wellness. 🌱 Research & studies show that CBD can help relieve pain, reduce anxiety, reduce inflammation, relieve arthritis pain, depression, migraines, fibromyalgia, etc. Join the HempWorx team!! 🌱 ✅ Pay a one time $20 fee to start your business. ✅ We give you your own websites. ✅ We process the orders, collect the payments, and ship the orders to your customers. ✅ Our products have a 30 day (empty bottle) money back guarantee. ✅ Legally ships to all 50 states 💚🌱✅ Earn money while you sleep!!!! Cash in on this emerging $7.1 Billion industry! 🌱 According to Forbes, this industry is expected to grow 700% by 2020. 💕 Join my team!! Take the FREE tour here: http://www.WinWithMDC.com/hellohappyhemp 🌱 Learn more & order here: http://www.HempWorx.com/hellohappyhemp Help others, help your pets, make money. Enroll for free and secure your spot! DON’T WAIT, YOUR TIME IS NOW 💚 . . . #cbdoil  #cbd  #hemp  #hempoil  #purecbd  #natural  #pain  #painrelief  #arthritis  #fibromyalgia  #fibro  #spoonie  #insomnia  #chronicpain  #essentialoils  #entrepreneur  #empowersocial  #doterra  #youngliving  #anxiety  #chronicpain  #adhd  #best  #life  #entrepreneur  #workfromhome  #love  #kids  #family  #summer  #peace  #pain  #new 
Do you want answers to your pain? My clients tell me that they don’t understand why they are still hurting, why their pain is spreading. 
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Do you want answers to your pain? My clients tell me that they don’t understand why they are still hurting, why their pain is spreading. I give my clients the opportunity for change. If you ready to get answers and to start your journey, reach out.💕👊🏻
Spine molding with #mycatmalibu @catlife_in_meowtown
Someone's excited to sleep at his new house tonight! 🤩
Someone's excited to sleep at his new house tonight! 🤩
@anime___lover6386 @jazmin_khl_xo raving it to underworld. Best time today with these guys and @knittyfidgeter . I’m sure I’ll pay tomorrow, but it was so worth it . #bigweekend #bbcmusic #underworld #nenehcherry #franzferdinand #spoonie#spoonielife #spoonieliving #autoimmunedisease #lupus #fibromyalgia #chronicillness #chronicpain #chronicfatigue #livefortoday
• Let go..
• eat sleep create..
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The only part of the above that I’m getting right at the moment is the eating.. 🍔🍫😂
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So my sleep has been awful lately and a lot of it is down to my unbelievably uncomfortable mattress aggravating my fibromyalgia and body pain. I feel like the real life princess and the pea.. super sensitive!
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But Ive finally got round to getting a new one. I found one and it’s a beauty! It like heaven compared to mine, and will help with my body pain so I can have a much more restful sleep. Just have to put up with springs digging in me for a couple more weeks.
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Best birthday present ever! Thanks Mum and Dad 💗
• Let go.. • eat sleep create.. . The only part of the above that I’m getting right at the moment is the eating.. 🍔🍫😂 . So my sleep has been awful lately and a lot of it is down to my unbelievably uncomfortable mattress aggravating my fibromyalgia and body pain. I feel like the real life princess and the pea.. super sensitive! . But Ive finally got round to getting a new one. I found one and it’s a beauty! It like heaven compared to mine, and will help with my body pain so I can have a much more restful sleep. Just have to put up with springs digging in me for a couple more weeks. . Best birthday present ever! Thanks Mum and Dad 💗